CF survivor guilt

[abnormal]

This is my first post... I'm 31 and have CF and two weeks I lost my youngest sister to CF. She was 22, she just graduated from college and had alot going for her. That's when I discovered "survivor guilt".

I have a fairly "mild" case of CF while my sister had it much worse, so I already was feeling some guilt prior to her death. It's not easy losing anyone you love but to lose sibling with the same disease as you is pretty hard. It really sucks but I know that she isn't suffering any more and she was able to die happy surrounded by people she loved...

I'm trying to cope with her loss the best I can and every has been a challenge. She was strong, smart and brave. She never gave up. CF may have taken her body but not her spirit! I hope some good can come from her passing as she donated her body to science.

 

[abnormal]

This is my first post... I'm 31 and have CF and two weeks I lost my youngest sister to CF. She was 22, she just graduated from college and had alot going for her. That's when I discovered "survivor guilt".

I have a fairly "mild" case of CF while my sister had it much worse, so I already was feeling some guilt prior to her death. It's not easy losing anyone you love but to lose sibling with the same disease as you is pretty hard. It really sucks but I know that she isn't suffering any more and she was able to die happy surrounded by people she loved...

I'm trying to cope with her loss the best I can and every has been a challenge. She was strong, smart and brave. She never gave up. CF may have taken her body but not her spirit! I hope some good can come from her passing as she donated her body to science.

 

[Jade]

I know this feeling very well. The "<i>why not me"</i> part of it stems from things that happened way before I joined this site. I'm just not sure I can answer it without things coming out the wrong way. I think everyone who replied basically nailed it based on their own perspective though.

 

[Jade]

I know this feeling very well. The "<i>why not me"</i> part of it stems from things that happened way before I joined this site. I'm just not sure I can answer it without things coming out the wrong way. I think everyone who replied basically nailed it based on their own perspective though.

 

[Jade]

I know this feeling very well. The "<i>why not me"</i> part of it stems from things that happened way before I joined this site. I'm just not sure I can answer it without things coming out the wrong way. I think everyone who replied basically nailed it based on their own perspective though.

 

[Jade]

I know this feeling very well. The "<i>why not me"</i> part of it stems from things that happened way before I joined this site. I'm just not sure I can answer it without things coming out the wrong way. I think everyone who replied basically nailed it based on their own perspective though.

 

[Jade]

I know this feeling very well. The "<i>why not me"</i> part of it stems from things that happened way before I joined this site. I'm just not sure I can answer it without things coming out the wrong way. I think everyone who replied basically nailed it based on their own perspective though.

 

[Jade]

I know this feeling very well. The "<i>why not me"</i> part of it stems from things that happened way before I joined this site. I'm just not sure I can answer it without things coming out the wrong way. I think everyone who replied basically nailed it based on their own perspective though.

 

[nicole781]

Although I don't have CF, my daughter does, and I feel guilt everyday...
She's only 6 weeks old, and I wonder if i'm going to outlive her. I can't imagine how that's fair or right.
In my eyes, she's perfect, and I would do ANYTHING to make this better for her.....why her and not me?
On another side, not involving CF, I've also seen alot of death in my 26 years. When I was a senior in high school, 5 of my friends died in a car crash. I was 17, they were all 16 or 17. Even now, over 8 years later, I still wonder why them and not me? What gives one person a long, fairly healthy life, and not the next?
So, now, when I think about the long tough road that Alexa has ahead of her, I think of what I told my 17 year old self.......Life is fragile, and not promised. It's not about how long you're here, it's about how much you're here.

 

[nicole781]

Although I don't have CF, my daughter does, and I feel guilt everyday...
She's only 6 weeks old, and I wonder if i'm going to outlive her. I can't imagine how that's fair or right.
In my eyes, she's perfect, and I would do ANYTHING to make this better for her.....why her and not me?
On another side, not involving CF, I've also seen alot of death in my 26 years. When I was a senior in high school, 5 of my friends died in a car crash. I was 17, they were all 16 or 17. Even now, over 8 years later, I still wonder why them and not me? What gives one person a long, fairly healthy life, and not the next?
So, now, when I think about the long tough road that Alexa has ahead of her, I think of what I told my 17 year old self.......Life is fragile, and not promised. It's not about how long you're here, it's about how much you're here.

 

[nicole781]

Although I don't have CF, my daughter does, and I feel guilt everyday...
She's only 6 weeks old, and I wonder if i'm going to outlive her. I can't imagine how that's fair or right.
In my eyes, she's perfect, and I would do ANYTHING to make this better for her.....why her and not me?
On another side, not involving CF, I've also seen alot of death in my 26 years. When I was a senior in high school, 5 of my friends died in a car crash. I was 17, they were all 16 or 17. Even now, over 8 years later, I still wonder why them and not me? What gives one person a long, fairly healthy life, and not the next?
So, now, when I think about the long tough road that Alexa has ahead of her, I think of what I told my 17 year old self.......Life is fragile, and not promised. It's not about how long you're here, it's about how much you're here.

 

[nicole781]

Although I don't have CF, my daughter does, and I feel guilt everyday...
She's only 6 weeks old, and I wonder if i'm going to outlive her. I can't imagine how that's fair or right.
In my eyes, she's perfect, and I would do ANYTHING to make this better for her.....why her and not me?
On another side, not involving CF, I've also seen alot of death in my 26 years. When I was a senior in high school, 5 of my friends died in a car crash. I was 17, they were all 16 or 17. Even now, over 8 years later, I still wonder why them and not me? What gives one person a long, fairly healthy life, and not the next?
So, now, when I think about the long tough road that Alexa has ahead of her, I think of what I told my 17 year old self.......Life is fragile, and not promised. It's not about how long you're here, it's about how much you're here.

 

[nicole781]

Although I don't have CF, my daughter does, and I feel guilt everyday...
She's only 6 weeks old, and I wonder if i'm going to outlive her. I can't imagine how that's fair or right.
In my eyes, she's perfect, and I would do ANYTHING to make this better for her.....why her and not me?
On another side, not involving CF, I've also seen alot of death in my 26 years. When I was a senior in high school, 5 of my friends died in a car crash. I was 17, they were all 16 or 17. Even now, over 8 years later, I still wonder why them and not me? What gives one person a long, fairly healthy life, and not the next?
So, now, when I think about the long tough road that Alexa has ahead of her, I think of what I told my 17 year old self.......Life is fragile, and not promised. It's not about how long you're here, it's about how much you're here.

 

[nicole781]

Although I don't have CF, my daughter does, and I feel guilt everyday...
She's only 6 weeks old, and I wonder if i'm going to outlive her. I can't imagine how that's fair or right.
In my eyes, she's perfect, and I would do ANYTHING to make this better for her.....why her and not me?
On another side, not involving CF, I've also seen alot of death in my 26 years. When I was a senior in high school, 5 of my friends died in a car crash. I was 17, they were all 16 or 17. Even now, over 8 years later, I still wonder why them and not me? What gives one person a long, fairly healthy life, and not the next?
So, now, when I think about the long tough road that Alexa has ahead of her, I think of what I told my 17 year old self.......Life is fragile, and not promised. It's not about how long you're here, it's about how much you're here.