College Residence Life Being SOOO Unaccomidating

lmattaway

New member
I also vote to NOT stay there. I have never had a good experience with rooms that are semi or totally below ground. There's just too much moisture floating around. And I'm sorry, but a professional cleaning of the carpet is not going to do the trick. Though, admittedly, the instant she eluded to the fact that CF isn't a physical disease, I was ready to do some serious educating!
 

lmattaway

New member
I also vote to NOT stay there. I have never had a good experience with rooms that are semi or totally below ground. There's just too much moisture floating around. And I'm sorry, but a professional cleaning of the carpet is not going to do the trick. Though, admittedly, the instant she eluded to the fact that CF isn't a physical disease, I was ready to do some serious educating!
 

lmattaway

New member
I also vote to NOT stay there. I have never had a good experience with rooms that are semi or totally below ground. There's just too much moisture floating around. And I'm sorry, but a professional cleaning of the carpet is not going to do the trick. Though, admittedly, the instant she eluded to the fact that CF isn't a physical disease, I was ready to do some serious educating!
 

lmattaway

New member
I also vote to NOT stay there. I have never had a good experience with rooms that are semi or totally below ground. There's just too much moisture floating around. And I'm sorry, but a professional cleaning of the carpet is not going to do the trick. Though, admittedly, the instant she eluded to the fact that CF isn't a physical disease, I was ready to do some serious educating!
 

lmattaway

New member
I also vote to NOT stay there. I have never had a good experience with rooms that are semi or totally below ground. There's just too much moisture floating around. And I'm sorry, but a professional cleaning of the carpet is not going to do the trick. Though, admittedly, the instant she eluded to the fact that CF isn't a physical disease, I was ready to do some serious educating!
 

Liza

New member
Others have mentioned it, office of students with disabilities. Also if needed contact the schools ADA person. Every college or university should have one. I've had two girls in university housing. We have always been able to get the accomodations we needed for them. Even the coveted university apartment when Anna returned for spring semester after her transplant. All thanks to the office of students with disabilities. I try to give my girls the chance to handle things on their own but I am still in contact with the director for OSD when I need to be.
 

Liza

New member
Others have mentioned it, office of students with disabilities. Also if needed contact the schools ADA person. Every college or university should have one. I've had two girls in university housing. We have always been able to get the accomodations we needed for them. Even the coveted university apartment when Anna returned for spring semester after her transplant. All thanks to the office of students with disabilities. I try to give my girls the chance to handle things on their own but I am still in contact with the director for OSD when I need to be.
 

Liza

New member
Others have mentioned it, office of students with disabilities. Also if needed contact the schools ADA person. Every college or university should have one. I've had two girls in university housing. We have always been able to get the accomodations we needed for them. Even the coveted university apartment when Anna returned for spring semester after her transplant. All thanks to the office of students with disabilities. I try to give my girls the chance to handle things on their own but I am still in contact with the director for OSD when I need to be.
 

Liza

New member
Others have mentioned it, office of students with disabilities. Also if needed contact the schools ADA person. Every college or university should have one. I've had two girls in university housing. We have always been able to get the accomodations we needed for them. Even the coveted university apartment when Anna returned for spring semester after her transplant. All thanks to the office of students with disabilities. I try to give my girls the chance to handle things on their own but I am still in contact with the director for OSD when I need to be.
 

Liza

New member
Others have mentioned it, office of students with disabilities. Also if needed contact the schools ADA person. Every college or university should have one. I've had two girls in university housing. We have always been able to get the accomodations we needed for them. Even the coveted university apartment when Anna returned for spring semester after her transplant. All thanks to the office of students with disabilities. I try to give my girls the chance to handle things on their own but I am still in contact with the director for OSD when I need to be.
<br />
 

Kelli

New member
I didn't read all of the posts...but this was my situation.

I had a horrible roommate. Not the party animal type- but the NEVER leave the dorm type. Which gave me no privacy for vest, cpt, nebs, etc. SO.......I went to reslife and told them exactly what was up, threw the old CF card on the table and they moved me to a private room. Sure it got a little lonely but it beat having a roommate on top of me 24/7 who NEVER changed her sheets and would eat every night at midnight and was so loud her chewing woke me up (gross!).
After that, I always had private rooms, in a dorm with a an elevator. You have to be upfront and proactive with your request. Just keep on it!
Good luck to you and if there is MOLD, do NOT stay there!

kelli
31 f CF
 

Kelli

New member
I didn't read all of the posts...but this was my situation.

I had a horrible roommate. Not the party animal type- but the NEVER leave the dorm type. Which gave me no privacy for vest, cpt, nebs, etc. SO.......I went to reslife and told them exactly what was up, threw the old CF card on the table and they moved me to a private room. Sure it got a little lonely but it beat having a roommate on top of me 24/7 who NEVER changed her sheets and would eat every night at midnight and was so loud her chewing woke me up (gross!).
After that, I always had private rooms, in a dorm with a an elevator. You have to be upfront and proactive with your request. Just keep on it!
Good luck to you and if there is MOLD, do NOT stay there!

kelli
31 f CF
 

Kelli

New member
I didn't read all of the posts...but this was my situation.

I had a horrible roommate. Not the party animal type- but the NEVER leave the dorm type. Which gave me no privacy for vest, cpt, nebs, etc. SO.......I went to reslife and told them exactly what was up, threw the old CF card on the table and they moved me to a private room. Sure it got a little lonely but it beat having a roommate on top of me 24/7 who NEVER changed her sheets and would eat every night at midnight and was so loud her chewing woke me up (gross!).
After that, I always had private rooms, in a dorm with a an elevator. You have to be upfront and proactive with your request. Just keep on it!
Good luck to you and if there is MOLD, do NOT stay there!

kelli
31 f CF
 

Kelli

New member
I didn't read all of the posts...but this was my situation.

I had a horrible roommate. Not the party animal type- but the NEVER leave the dorm type. Which gave me no privacy for vest, cpt, nebs, etc. SO.......I went to reslife and told them exactly what was up, threw the old CF card on the table and they moved me to a private room. Sure it got a little lonely but it beat having a roommate on top of me 24/7 who NEVER changed her sheets and would eat every night at midnight and was so loud her chewing woke me up (gross!).
After that, I always had private rooms, in a dorm with a an elevator. You have to be upfront and proactive with your request. Just keep on it!
Good luck to you and if there is MOLD, do NOT stay there!

kelli
31 f CF
 

Kelli

New member
I didn't read all of the posts...but this was my situation.
<br />
<br />I had a horrible roommate. Not the party animal type- but the NEVER leave the dorm type. Which gave me no privacy for vest, cpt, nebs, etc. SO.......I went to reslife and told them exactly what was up, threw the old CF card on the table and they moved me to a private room. Sure it got a little lonely but it beat having a roommate on top of me 24/7 who NEVER changed her sheets and would eat every night at midnight and was so loud her chewing woke me up (gross!).
<br />After that, I always had private rooms, in a dorm with a an elevator. You have to be upfront and proactive with your request. Just keep on it!
<br />Good luck to you and if there is MOLD, do NOT stay there!
<br />
<br />kelli
<br />31 f CF
 

PedsNP2007

New member
Hi,

If doing the other suggestions do not work, I would pursue legal advice associated with the ADA and I would not be SHY in letting residence life know about that. They legally have to provide accommodations within their abilities for students with disabilities. Accommodations include a single room (hopefully with a bathroom) as well as a parking spot near classes (if your classes are very far away and you have a documented difficulty getting back and forth) and extra time for completion of homework/tests.

I am very shocked that the res life person did not understand what CF is. Sounds like this person needs to meet your CF dr and get a tour of what CF really is like in the hospital and at home to stay healthy.

I have no pride issues with my mom getting involved in this aspect. Our parents have battled with insurances, teachers, etc to make sure we have the best chance possible with CF. My mom is a strong woman who is not afraid to call someone and educate them about CF.

IE. at my first undergraduate college, I had a bad exacerbation requiring me to be in the hospital for 2-3 weeks. I almost died during that stay (due to how bad my cf got due to my stupidity of "I don't need to care for myself" in college) and almost needed home o2. Anyways, I went back to school and one of my chemical engineering professors basically said something like "suck it up... CF is a like a job, deal with it." Needless to say, my mom got onto that and *educated* her about CF and really what it entails.

I ended up transferring and LOVED my next school. I had great accommodations and my nursing professors (only the few I told) were understanding and never said anything negative about my hospital stays nor need for longer time for getting work completed (if I needed it, which was rare since I pushed myself to be as normal as possible). Needless to say, I highly recommend this school and I'm currently in this place for my PhD in nursing :)

Good luck.

Jennifer
31 yo cf
 

PedsNP2007

New member
Hi,

If doing the other suggestions do not work, I would pursue legal advice associated with the ADA and I would not be SHY in letting residence life know about that. They legally have to provide accommodations within their abilities for students with disabilities. Accommodations include a single room (hopefully with a bathroom) as well as a parking spot near classes (if your classes are very far away and you have a documented difficulty getting back and forth) and extra time for completion of homework/tests.

I am very shocked that the res life person did not understand what CF is. Sounds like this person needs to meet your CF dr and get a tour of what CF really is like in the hospital and at home to stay healthy.

I have no pride issues with my mom getting involved in this aspect. Our parents have battled with insurances, teachers, etc to make sure we have the best chance possible with CF. My mom is a strong woman who is not afraid to call someone and educate them about CF.

IE. at my first undergraduate college, I had a bad exacerbation requiring me to be in the hospital for 2-3 weeks. I almost died during that stay (due to how bad my cf got due to my stupidity of "I don't need to care for myself" in college) and almost needed home o2. Anyways, I went back to school and one of my chemical engineering professors basically said something like "suck it up... CF is a like a job, deal with it." Needless to say, my mom got onto that and *educated* her about CF and really what it entails.

I ended up transferring and LOVED my next school. I had great accommodations and my nursing professors (only the few I told) were understanding and never said anything negative about my hospital stays nor need for longer time for getting work completed (if I needed it, which was rare since I pushed myself to be as normal as possible). Needless to say, I highly recommend this school and I'm currently in this place for my PhD in nursing :)

Good luck.

Jennifer
31 yo cf
 

PedsNP2007

New member
Hi,

If doing the other suggestions do not work, I would pursue legal advice associated with the ADA and I would not be SHY in letting residence life know about that. They legally have to provide accommodations within their abilities for students with disabilities. Accommodations include a single room (hopefully with a bathroom) as well as a parking spot near classes (if your classes are very far away and you have a documented difficulty getting back and forth) and extra time for completion of homework/tests.

I am very shocked that the res life person did not understand what CF is. Sounds like this person needs to meet your CF dr and get a tour of what CF really is like in the hospital and at home to stay healthy.

I have no pride issues with my mom getting involved in this aspect. Our parents have battled with insurances, teachers, etc to make sure we have the best chance possible with CF. My mom is a strong woman who is not afraid to call someone and educate them about CF.

IE. at my first undergraduate college, I had a bad exacerbation requiring me to be in the hospital for 2-3 weeks. I almost died during that stay (due to how bad my cf got due to my stupidity of "I don't need to care for myself" in college) and almost needed home o2. Anyways, I went back to school and one of my chemical engineering professors basically said something like "suck it up... CF is a like a job, deal with it." Needless to say, my mom got onto that and *educated* her about CF and really what it entails.

I ended up transferring and LOVED my next school. I had great accommodations and my nursing professors (only the few I told) were understanding and never said anything negative about my hospital stays nor need for longer time for getting work completed (if I needed it, which was rare since I pushed myself to be as normal as possible). Needless to say, I highly recommend this school and I'm currently in this place for my PhD in nursing :)

Good luck.

Jennifer
31 yo cf
 

PedsNP2007

New member
Hi,

If doing the other suggestions do not work, I would pursue legal advice associated with the ADA and I would not be SHY in letting residence life know about that. They legally have to provide accommodations within their abilities for students with disabilities. Accommodations include a single room (hopefully with a bathroom) as well as a parking spot near classes (if your classes are very far away and you have a documented difficulty getting back and forth) and extra time for completion of homework/tests.

I am very shocked that the res life person did not understand what CF is. Sounds like this person needs to meet your CF dr and get a tour of what CF really is like in the hospital and at home to stay healthy.

I have no pride issues with my mom getting involved in this aspect. Our parents have battled with insurances, teachers, etc to make sure we have the best chance possible with CF. My mom is a strong woman who is not afraid to call someone and educate them about CF.

IE. at my first undergraduate college, I had a bad exacerbation requiring me to be in the hospital for 2-3 weeks. I almost died during that stay (due to how bad my cf got due to my stupidity of "I don't need to care for myself" in college) and almost needed home o2. Anyways, I went back to school and one of my chemical engineering professors basically said something like "suck it up... CF is a like a job, deal with it." Needless to say, my mom got onto that and *educated* her about CF and really what it entails.

I ended up transferring and LOVED my next school. I had great accommodations and my nursing professors (only the few I told) were understanding and never said anything negative about my hospital stays nor need for longer time for getting work completed (if I needed it, which was rare since I pushed myself to be as normal as possible). Needless to say, I highly recommend this school and I'm currently in this place for my PhD in nursing :)

Good luck.

Jennifer
31 yo cf
 

PedsNP2007

New member
Hi,
<br />
<br />If doing the other suggestions do not work, I would pursue legal advice associated with the ADA and I would not be SHY in letting residence life know about that. They legally have to provide accommodations within their abilities for students with disabilities. Accommodations include a single room (hopefully with a bathroom) as well as a parking spot near classes (if your classes are very far away and you have a documented difficulty getting back and forth) and extra time for completion of homework/tests.
<br />
<br />I am very shocked that the res life person did not understand what CF is. Sounds like this person needs to meet your CF dr and get a tour of what CF really is like in the hospital and at home to stay healthy.
<br />
<br />I have no pride issues with my mom getting involved in this aspect. Our parents have battled with insurances, teachers, etc to make sure we have the best chance possible with CF. My mom is a strong woman who is not afraid to call someone and educate them about CF.
<br />
<br />IE. at my first undergraduate college, I had a bad exacerbation requiring me to be in the hospital for 2-3 weeks. I almost died during that stay (due to how bad my cf got due to my stupidity of "I don't need to care for myself" in college) and almost needed home o2. Anyways, I went back to school and one of my chemical engineering professors basically said something like "suck it up... CF is a like a job, deal with it." Needless to say, my mom got onto that and *educated* her about CF and really what it entails.
<br />
<br />I ended up transferring and LOVED my next school. I had great accommodations and my nursing professors (only the few I told) were understanding and never said anything negative about my hospital stays nor need for longer time for getting work completed (if I needed it, which was rare since I pushed myself to be as normal as possible). Needless to say, I highly recommend this school and I'm currently in this place for my PhD in nursing :)
<br />
<br />Good luck.
<br />
<br />Jennifer
<br />31 yo cf
 
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