my son has been struggling with weight gain all of his 14 years, we have tried all the shakes, drinks, calorie powders, and so on. My family is of small size, my mom, sister, and grandmother are 4'11", my brother is 5'5", I am 5'3". As kids we were the scrawniest in the neighborhood. Yet the doctors say this has nothing to do with my sons size. I understand my sons BMI is of the utmost importance in his bodies ability to handle this disease and it is beyond frustrating these many years not to be able to find a way to help him increase his BMI. We are now considering a feeding tube that we have been told will not intervere with his current activities or activity level. We have been told that he will have to utilize this tube for many years, feedings given through the tube nightly for 6 to 10 hours per night. I would like to know what experiences others have had with the feeding tube, how it effects normal daily eating habits (my biggest fear is that he will stop eating during the day from being filled up at night, therefore not really getting the extra calories in the end), how it effects daily activities and so on.