thanks everyone for the replies and info and suggestions, I really appreciate you all taking the time.
I must say that I wasn't aware that I could just call the clinic and they'd get him in...I was under the assumption that they only see CFers on their clinic day which is Monday AM (and I called and there were no openings for today) but I didn't speak to the nurse or anything. I will give them a call tomorrow to see what they advise. thank you again for that info!
Instead of reading this all to Mark tonight, I told him I posted and asked him to please read your responses-which he did.
He's never needed IV antibiotics before and I think the thought really scares him. Like someone already said, I think he sees this as a decline in his health and I get the feeling that he's kind of scared and not wanting to "face" it. I get it, I really do, it's unnerving for me so I can only imagine how it must feel to him.
Now his biggest concern is that if it IS time for IV meds, what about me and the kids (I can't lift them for 6 weeks). I told him that we'd just have to make do and I would just have to lift them, because his health is more important. Part of me thinks hes making an excuse but the other part of me remembers how much my doctor drilled it into him that I could NOT pick the kids up.
So for those of you that have done at home IV's, can you explain a little about how that works? Would he need to get a PICC? I can start IV's (not sure if that makes a difference) or do we get some sort of home healthcare nurse? Have you had to do a course in the hospital first or did they let you do them at home the first time?
Currently he's doing Pulmozyme and the vest daily (in the AM) and albuterol (puffer) as needed throughout the day, but his breathing seems really labored and he's still coughing so much, and coughing up SOOOO much mucus (even he made a comment about it)
thank you all for the info!!