COUGHING!!!

zoeg

New member
Hi all,

My daughter Kate is almost four and has been very healthy so far. I have a one year old that does not have CF and on her first day in daycare brought home a lovely green snot and cough. Kate ended up getting it almost a week later. Well, we are coming up on FOUR weeks now. Took her to the pedicatrician and they gave a Z- Pac. Still coughing after that. CF dr. prescribed Bactrim over the phone. STill coughing. So they prescribed another course of it yesterday saying sometimes it can take a couple more weeks on it. I am sooo frustrated! Kate normally doesn't cough at all! I don't know if this is a virus or what. At first I wasn't freaking out since my non-CFer is also sick (it took her two rounds of amoxicillan so this must be a strong bug.) My question is, do you think I am being aggressive enough? We are doing almost 2 hours a day of the vest (and I work so this is early am and dinner hours). Can I get some opinions on what you would do in the same situation?

Thanks,
Zoe mom to Kate wCF
 

zoeg

New member
Hi all,

My daughter Kate is almost four and has been very healthy so far. I have a one year old that does not have CF and on her first day in daycare brought home a lovely green snot and cough. Kate ended up getting it almost a week later. Well, we are coming up on FOUR weeks now. Took her to the pedicatrician and they gave a Z- Pac. Still coughing after that. CF dr. prescribed Bactrim over the phone. STill coughing. So they prescribed another course of it yesterday saying sometimes it can take a couple more weeks on it. I am sooo frustrated! Kate normally doesn't cough at all! I don't know if this is a virus or what. At first I wasn't freaking out since my non-CFer is also sick (it took her two rounds of amoxicillan so this must be a strong bug.) My question is, do you think I am being aggressive enough? We are doing almost 2 hours a day of the vest (and I work so this is early am and dinner hours). Can I get some opinions on what you would do in the same situation?

Thanks,
Zoe mom to Kate wCF
 

zoeg

New member
Hi all,

My daughter Kate is almost four and has been very healthy so far. I have a one year old that does not have CF and on her first day in daycare brought home a lovely green snot and cough. Kate ended up getting it almost a week later. Well, we are coming up on FOUR weeks now. Took her to the pedicatrician and they gave a Z- Pac. Still coughing after that. CF dr. prescribed Bactrim over the phone. STill coughing. So they prescribed another course of it yesterday saying sometimes it can take a couple more weeks on it. I am sooo frustrated! Kate normally doesn't cough at all! I don't know if this is a virus or what. At first I wasn't freaking out since my non-CFer is also sick (it took her two rounds of amoxicillan so this must be a strong bug.) My question is, do you think I am being aggressive enough? We are doing almost 2 hours a day of the vest (and I work so this is early am and dinner hours). Can I get some opinions on what you would do in the same situation?

Thanks,
Zoe mom to Kate wCF
 

zoeg

New member
Hi all,

My daughter Kate is almost four and has been very healthy so far. I have a one year old that does not have CF and on her first day in daycare brought home a lovely green snot and cough. Kate ended up getting it almost a week later. Well, we are coming up on FOUR weeks now. Took her to the pedicatrician and they gave a Z- Pac. Still coughing after that. CF dr. prescribed Bactrim over the phone. STill coughing. So they prescribed another course of it yesterday saying sometimes it can take a couple more weeks on it. I am sooo frustrated! Kate normally doesn't cough at all! I don't know if this is a virus or what. At first I wasn't freaking out since my non-CFer is also sick (it took her two rounds of amoxicillan so this must be a strong bug.) My question is, do you think I am being aggressive enough? We are doing almost 2 hours a day of the vest (and I work so this is early am and dinner hours). Can I get some opinions on what you would do in the same situation?

Thanks,
Zoe mom to Kate wCF
 

zoeg

New member
Hi all,
<br />
<br />My daughter Kate is almost four and has been very healthy so far. I have a one year old that does not have CF and on her first day in daycare brought home a lovely green snot and cough. Kate ended up getting it almost a week later. Well, we are coming up on FOUR weeks now. Took her to the pedicatrician and they gave a Z- Pac. Still coughing after that. CF dr. prescribed Bactrim over the phone. STill coughing. So they prescribed another course of it yesterday saying sometimes it can take a couple more weeks on it. I am sooo frustrated! Kate normally doesn't cough at all! I don't know if this is a virus or what. At first I wasn't freaking out since my non-CFer is also sick (it took her two rounds of amoxicillan so this must be a strong bug.) My question is, do you think I am being aggressive enough? We are doing almost 2 hours a day of the vest (and I work so this is early am and dinner hours). Can I get some opinions on what you would do in the same situation?
<br />
<br />Thanks,
<br />Zoe mom to Kate wCF
 

saveferris2009

New member
Not aggressive enough. Has your 4 your old been cultured?

viruses go away in 10 days.... anything longer is bacterial.

Obviously zithromax and bactrum aren't covering the bacteria, so it's time to get cultured. she might have PA or MRSA.

So important to accurately treat CF bacteria... I am very surprised at your clinic.

Proactivity is the name of the game
 

saveferris2009

New member
Not aggressive enough. Has your 4 your old been cultured?

viruses go away in 10 days.... anything longer is bacterial.

Obviously zithromax and bactrum aren't covering the bacteria, so it's time to get cultured. she might have PA or MRSA.

So important to accurately treat CF bacteria... I am very surprised at your clinic.

Proactivity is the name of the game
 

saveferris2009

New member
Not aggressive enough. Has your 4 your old been cultured?

viruses go away in 10 days.... anything longer is bacterial.

Obviously zithromax and bactrum aren't covering the bacteria, so it's time to get cultured. she might have PA or MRSA.

So important to accurately treat CF bacteria... I am very surprised at your clinic.

Proactivity is the name of the game
 

saveferris2009

New member
Not aggressive enough. Has your 4 your old been cultured?

viruses go away in 10 days.... anything longer is bacterial.

Obviously zithromax and bactrum aren't covering the bacteria, so it's time to get cultured. she might have PA or MRSA.

So important to accurately treat CF bacteria... I am very surprised at your clinic.

Proactivity is the name of the game
 

saveferris2009

New member
Not aggressive enough. Has your 4 your old been cultured?
<br />
<br />viruses go away in 10 days.... anything longer is bacterial.
<br />
<br />Obviously zithromax and bactrum aren't covering the bacteria, so it's time to get cultured. she might have PA or MRSA.
<br />
<br />So important to accurately treat CF bacteria... I am very surprised at your clinic.
<br />
<br />Proactivity is the name of the game
 

crickit715

New member
my rule of thumb: if i am questioning whether i should be more aggressive...i should!! my daughter went thru almost 8 weeks of antibiotics for a wee little cough that just came out of nowhere....both cf doc and primary couldnt hear any conjestion when they listened to her, and her cultures were even coming back negative...i asked for a chest xray...it was "almost pneumonia" as the cf doc put it..he had her admitted asap for a bronch and 2 week iv antibiotic course! listen to your gut!!! ask for a chest xray to see whats in there. good luck!! its sooo frustrating, i know. ((hugs))
 

crickit715

New member
my rule of thumb: if i am questioning whether i should be more aggressive...i should!! my daughter went thru almost 8 weeks of antibiotics for a wee little cough that just came out of nowhere....both cf doc and primary couldnt hear any conjestion when they listened to her, and her cultures were even coming back negative...i asked for a chest xray...it was "almost pneumonia" as the cf doc put it..he had her admitted asap for a bronch and 2 week iv antibiotic course! listen to your gut!!! ask for a chest xray to see whats in there. good luck!! its sooo frustrating, i know. ((hugs))
 

crickit715

New member
my rule of thumb: if i am questioning whether i should be more aggressive...i should!! my daughter went thru almost 8 weeks of antibiotics for a wee little cough that just came out of nowhere....both cf doc and primary couldnt hear any conjestion when they listened to her, and her cultures were even coming back negative...i asked for a chest xray...it was "almost pneumonia" as the cf doc put it..he had her admitted asap for a bronch and 2 week iv antibiotic course! listen to your gut!!! ask for a chest xray to see whats in there. good luck!! its sooo frustrating, i know. ((hugs))
 

crickit715

New member
my rule of thumb: if i am questioning whether i should be more aggressive...i should!! my daughter went thru almost 8 weeks of antibiotics for a wee little cough that just came out of nowhere....both cf doc and primary couldnt hear any conjestion when they listened to her, and her cultures were even coming back negative...i asked for a chest xray...it was "almost pneumonia" as the cf doc put it..he had her admitted asap for a bronch and 2 week iv antibiotic course! listen to your gut!!! ask for a chest xray to see whats in there. good luck!! its sooo frustrating, i know. ((hugs))
 

crickit715

New member
my rule of thumb: if i am questioning whether i should be more aggressive...i should!! my daughter went thru almost 8 weeks of antibiotics for a wee little cough that just came out of nowhere....both cf doc and primary couldnt hear any conjestion when they listened to her, and her cultures were even coming back negative...i asked for a chest xray...it was "almost pneumonia" as the cf doc put it..he had her admitted asap for a bronch and 2 week iv antibiotic course! listen to your gut!!! ask for a chest xray to see whats in there. good luck!! its sooo frustrating, i know. ((hugs))
 
M

Mommafirst

Guest
Our last go with a cough was a similar situation. CF clinic (btw I never use the pedi for this stuff) started her on augmentin. AFter 10 days and 3 treatments a day, she was still coughing. We switched her to bactrim. AFter 5 days when the cough didn't change they admitted her and started IVs. They said after 5 days on bactrim with her cultures of staph that this should be lessening. It took a week on IVs to see a decrease in cough. The strong bugs can be a real pain in the butt -- I'm finding my daughter does not respond well to orals, even though she "only" cultures staph (as proven by several bronchs).

Stay on top of this. Call CF and see what they want you to do.
 
M

Mommafirst

Guest
Our last go with a cough was a similar situation. CF clinic (btw I never use the pedi for this stuff) started her on augmentin. AFter 10 days and 3 treatments a day, she was still coughing. We switched her to bactrim. AFter 5 days when the cough didn't change they admitted her and started IVs. They said after 5 days on bactrim with her cultures of staph that this should be lessening. It took a week on IVs to see a decrease in cough. The strong bugs can be a real pain in the butt -- I'm finding my daughter does not respond well to orals, even though she "only" cultures staph (as proven by several bronchs).

Stay on top of this. Call CF and see what they want you to do.
 
M

Mommafirst

Guest
Our last go with a cough was a similar situation. CF clinic (btw I never use the pedi for this stuff) started her on augmentin. AFter 10 days and 3 treatments a day, she was still coughing. We switched her to bactrim. AFter 5 days when the cough didn't change they admitted her and started IVs. They said after 5 days on bactrim with her cultures of staph that this should be lessening. It took a week on IVs to see a decrease in cough. The strong bugs can be a real pain in the butt -- I'm finding my daughter does not respond well to orals, even though she "only" cultures staph (as proven by several bronchs).

Stay on top of this. Call CF and see what they want you to do.
 
M

Mommafirst

Guest
Our last go with a cough was a similar situation. CF clinic (btw I never use the pedi for this stuff) started her on augmentin. AFter 10 days and 3 treatments a day, she was still coughing. We switched her to bactrim. AFter 5 days when the cough didn't change they admitted her and started IVs. They said after 5 days on bactrim with her cultures of staph that this should be lessening. It took a week on IVs to see a decrease in cough. The strong bugs can be a real pain in the butt -- I'm finding my daughter does not respond well to orals, even though she "only" cultures staph (as proven by several bronchs).

Stay on top of this. Call CF and see what they want you to do.
 
M

Mommafirst

Guest
Our last go with a cough was a similar situation. CF clinic (btw I never use the pedi for this stuff) started her on augmentin. AFter 10 days and 3 treatments a day, she was still coughing. We switched her to bactrim. AFter 5 days when the cough didn't change they admitted her and started IVs. They said after 5 days on bactrim with her cultures of staph that this should be lessening. It took a week on IVs to see a decrease in cough. The strong bugs can be a real pain in the butt -- I'm finding my daughter does not respond well to orals, even though she "only" cultures staph (as proven by several bronchs).
<br />
<br />Stay on top of this. Call CF and see what they want you to do.
 
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