Hello everyone!
I have some crazy news! My daughter's cf doc sent us a letter saying she will no longer be my daughter's doc anymore! The letter was sent the monday following our 504 meeting. When we called for a reason, the lady said that we were trying to get the doc to say she needs to take naps in school! That was so not the case! One of the accomodations we had listed that her teacher suggested was for her to take one if needed because she noticed an improvement when she took one. I am soooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooo pissed! Her doc has never been an understanding one. Alwasys made us seem like we were trying to baby her. Ever since she told me there is NO reason for her to miss school since she has noraml lung function, I have wanted to get another doc but now that she kicked us out, we can't even go to another doc at that whole clinic. With her insurance there is only 1 other choice at Dallas Children's and I don't care for them at all! We took her there for a least a year when they were not sure if she had cf and they never did diagnose her, but when I took her to this office I realized Dallas didn't even do all the necessary tests. I don't think I have a choice now though except my mom says maybe we can put my daughter in her care so she can get on Medicaid and go to a clinic that is supposed to be awesome. I don't know if that's a good idea either. They say a doc can discontinue care for any reason in the state of Tx. I think that is rediculous especially if their reason is obviously something they don't even understand. I only have til 1/9 to find another doc. Great. I wanted to talk to yall about it a long time ago but my computer isn't working right now so tonight I am using my sister's. We didn't even get the letter til 12/18 b/c they sent it to ther wrong address but since it was dated 12/9 that is all they say matters. 30 days. period. Any suggestions??? You guys are the best!!
I have some crazy news! My daughter's cf doc sent us a letter saying she will no longer be my daughter's doc anymore! The letter was sent the monday following our 504 meeting. When we called for a reason, the lady said that we were trying to get the doc to say she needs to take naps in school! That was so not the case! One of the accomodations we had listed that her teacher suggested was for her to take one if needed because she noticed an improvement when she took one. I am soooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooo pissed! Her doc has never been an understanding one. Alwasys made us seem like we were trying to baby her. Ever since she told me there is NO reason for her to miss school since she has noraml lung function, I have wanted to get another doc but now that she kicked us out, we can't even go to another doc at that whole clinic. With her insurance there is only 1 other choice at Dallas Children's and I don't care for them at all! We took her there for a least a year when they were not sure if she had cf and they never did diagnose her, but when I took her to this office I realized Dallas didn't even do all the necessary tests. I don't think I have a choice now though except my mom says maybe we can put my daughter in her care so she can get on Medicaid and go to a clinic that is supposed to be awesome. I don't know if that's a good idea either. They say a doc can discontinue care for any reason in the state of Tx. I think that is rediculous especially if their reason is obviously something they don't even understand. I only have til 1/9 to find another doc. Great. I wanted to talk to yall about it a long time ago but my computer isn't working right now so tonight I am using my sister's. We didn't even get the letter til 12/18 b/c they sent it to ther wrong address but since it was dated 12/9 that is all they say matters. 30 days. period. Any suggestions??? You guys are the best!!