You can call me whatever you want, I absolutely do not care. Correct my English, I am not American or British. I believe in what I say! Those who say that they did not have symptoms of CF until sometime, they just did not treat another illness and that brought them to this situation. It is insane to give 7 months baby intervenal antibiotics for 14 days! This child will be open to all bacterias to the end of his/her life. I am not trying to prove you anything, I just want you to stop lying yourself.
To that guy who wrote that I only care about money: I am ready to do anything for my child, but not that stupid treatment that doctors prescribe. I was not speaking about daily expenses of CF diagnosed people. First expenses are enough: Imagine how many suspicions there are and all of them are being genetically tested, each person approximately for $4000-5000.
Listen, this world is not only medicines, antibiotics etc. and we have put garlics all around the bed of my child, put a lot of salt (which contains iodium), slowly stopped kreons which we don't give at all now, refused from very strong antibiotics and the child is ok now. I will not write more not to annoy you all, but please also read the links below.
I wish each of you to get healthy very very soon and be strong!
<a target=_blank class=ftalternatingbarlinklarge href="http://www.pulmonologychannel.com/cf/diagnosis.shtml
">http://www.pulmonologychannel....diagnosis.shtml
</a>
"About 10% to 15% of all positive sweat tests are false positives, meaning that even though the test results suggest that the patient has CF, they do not in fact have the disease. There are many conditions not related to CF that can cause false positive sweat test results. All positive tests should be repeated, usually the next day, and/or patients should be genetically screened."
<a target=_blank class=ftalternatingbarlinklarge href="http://www.clsi.org/source/orders/free/c34-a3.pdf
">http://www.clsi.org/source/ord...free/c34-a3.pdf
</a>
"The sweat test has been reported to have unacceptably high false-positive (up to 15%) and false-negative (up to 12%) rates attributable to inaccurate methodology, technical error, and patient physiology"
and the most important moment:
<a target=_blank class=ftalternatingbarlinklarge href="http://www.cysticfibrosis.com/forums/messageview.cfm?catid=902&threadid=48942
">http://www.cysticfibrosis.com/...&threadid=48942
</a>
"False positives are rare, but do happen and is normally caused by the nurse or tech doing the test not doing it correctly. There are some medical reasons you can get a positive sweat test result, yet not have CF, but many of them are fairly uncommon diseases/syndromes and their symptoms aren't consistent with CF. Here is a list of the diseases and syndromes that I found online a few years ago:
"Adrenal insufficiency, anorexia nervosa, atopic dermatitis, autonomic dysfunction, coeliac disease, ectodermal dysplasia, familial cholestasis (Byler's disease), fucosidosis, G6PD deficiency, glycogen storage disease type 1, hypogammaglobulinemia, hypoparathyroidism, hypothyroidism, Klinefelter's syndrome, malnutrition, mucopolysaccharidosis type 1, nephrogenic diabetes insipidus, nephrosis, pseudohypoaldosteronism, psychosocial problems (Rosenstein & Cutting, 1998, Duddy et al, 1987)"."
<a target=_blank class=ftalternatingbarlinklarge href="http://www.alrc.gov.au/publications/23-genetic-counselling-and-medical-education/access-medical-genetic-testing-and-counsel">http://www.alrc.gov.au/publica...ic-testing-and-counsel</a>
To that guy who wrote that I only care about money: I am ready to do anything for my child, but not that stupid treatment that doctors prescribe. I was not speaking about daily expenses of CF diagnosed people. First expenses are enough: Imagine how many suspicions there are and all of them are being genetically tested, each person approximately for $4000-5000.
Listen, this world is not only medicines, antibiotics etc. and we have put garlics all around the bed of my child, put a lot of salt (which contains iodium), slowly stopped kreons which we don't give at all now, refused from very strong antibiotics and the child is ok now. I will not write more not to annoy you all, but please also read the links below.
I wish each of you to get healthy very very soon and be strong!
<a target=_blank class=ftalternatingbarlinklarge href="http://www.pulmonologychannel.com/cf/diagnosis.shtml
">http://www.pulmonologychannel....diagnosis.shtml
</a>
"About 10% to 15% of all positive sweat tests are false positives, meaning that even though the test results suggest that the patient has CF, they do not in fact have the disease. There are many conditions not related to CF that can cause false positive sweat test results. All positive tests should be repeated, usually the next day, and/or patients should be genetically screened."
<a target=_blank class=ftalternatingbarlinklarge href="http://www.clsi.org/source/orders/free/c34-a3.pdf
">http://www.clsi.org/source/ord...free/c34-a3.pdf
</a>
"The sweat test has been reported to have unacceptably high false-positive (up to 15%) and false-negative (up to 12%) rates attributable to inaccurate methodology, technical error, and patient physiology"
and the most important moment:
<a target=_blank class=ftalternatingbarlinklarge href="http://www.cysticfibrosis.com/forums/messageview.cfm?catid=902&threadid=48942
">http://www.cysticfibrosis.com/...&threadid=48942
</a>
"False positives are rare, but do happen and is normally caused by the nurse or tech doing the test not doing it correctly. There are some medical reasons you can get a positive sweat test result, yet not have CF, but many of them are fairly uncommon diseases/syndromes and their symptoms aren't consistent with CF. Here is a list of the diseases and syndromes that I found online a few years ago:
"Adrenal insufficiency, anorexia nervosa, atopic dermatitis, autonomic dysfunction, coeliac disease, ectodermal dysplasia, familial cholestasis (Byler's disease), fucosidosis, G6PD deficiency, glycogen storage disease type 1, hypogammaglobulinemia, hypoparathyroidism, hypothyroidism, Klinefelter's syndrome, malnutrition, mucopolysaccharidosis type 1, nephrogenic diabetes insipidus, nephrosis, pseudohypoaldosteronism, psychosocial problems (Rosenstein & Cutting, 1998, Duddy et al, 1987)"."
<a target=_blank class=ftalternatingbarlinklarge href="http://www.alrc.gov.au/publications/23-genetic-counselling-and-medical-education/access-medical-genetic-testing-and-counsel">http://www.alrc.gov.au/publica...ic-testing-and-counsel</a>