I agree with everyone here. Please keep your daughter's needs ahead of everything else, she will not only need physical help but she will also need emotional help to get through all the endeavours of CF. You will be unable to properly provide this if you do not get help for yourself. Good luck...
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Cystic Fibrosis is a Business!!!!!!!!
- Thread starter imanov
- Start date
I agree with everyone here. Please keep your daughter's needs ahead of everything else, she will not only need physical help but she will also need emotional help to get through all the endeavours of CF. You will be unable to properly provide this if you do not get help for yourself. Good luck...
serendipity730
New member
I hate to dignify this with a reply. My only reply to the other posters. This post is not about denial or anger IMO. This post is just OFFENSIVE to everyone who is fighting this disease daily (either personally or with this child, spouse, etc.
serendipity730
New member
I hate to dignify this with a reply. My only reply to the other posters. This post is not about denial or anger IMO. This post is just OFFENSIVE to everyone who is fighting this disease daily (either personally or with this child, spouse, etc.
serendipity730
New member
I hate to dignify this with a reply. My only reply to the other posters. This post is not about denial or anger IMO. This post is just OFFENSIVE to everyone who is fighting this disease daily (either personally or with this child, spouse, etc.
mamaScarlett
Active member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>serendipity730</b></i>
I hate to dignify this with a reply. My only reply to the other posters. This post is not about denial or anger IMO. This post is just OFFENSIVE to everyone who is fighting this disease daily (either personally or with this child, spouse, etc.</end quote></div>
I kind of agree with you. Threads in general never bother me but everytime I log on and see the title of this thread it upsets me. I actually do find it offensive.
I hate to dignify this with a reply. My only reply to the other posters. This post is not about denial or anger IMO. This post is just OFFENSIVE to everyone who is fighting this disease daily (either personally or with this child, spouse, etc.</end quote></div>
I kind of agree with you. Threads in general never bother me but everytime I log on and see the title of this thread it upsets me. I actually do find it offensive.
mamaScarlett
Active member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>serendipity730</b></i>
I hate to dignify this with a reply. My only reply to the other posters. This post is not about denial or anger IMO. This post is just OFFENSIVE to everyone who is fighting this disease daily (either personally or with this child, spouse, etc.</end quote>
I kind of agree with you. Threads in general never bother me but everytime I log on and see the title of this thread it upsets me. I actually do find it offensive.
I hate to dignify this with a reply. My only reply to the other posters. This post is not about denial or anger IMO. This post is just OFFENSIVE to everyone who is fighting this disease daily (either personally or with this child, spouse, etc.</end quote>
I kind of agree with you. Threads in general never bother me but everytime I log on and see the title of this thread it upsets me. I actually do find it offensive.
mamaScarlett
Active member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>serendipity730</b></i>
<br />
<br />I hate to dignify this with a reply. My only reply to the other posters. This post is not about denial or anger IMO. This post is just OFFENSIVE to everyone who is fighting this disease daily (either personally or with this child, spouse, etc.</end quote>
<br />
<br />I kind of agree with you. Threads in general never bother me but everytime I log on and see the title of this thread it upsets me. I actually do find it offensive.
<br />
<br />I hate to dignify this with a reply. My only reply to the other posters. This post is not about denial or anger IMO. This post is just OFFENSIVE to everyone who is fighting this disease daily (either personally or with this child, spouse, etc.</end quote>
<br />
<br />I kind of agree with you. Threads in general never bother me but everytime I log on and see the title of this thread it upsets me. I actually do find it offensive.
CysticlyFunny
New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>mamaScarlett</b></i>
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>serendipity730</b></i>
I hate to dignify this with a reply. My only reply to the other posters. This post is not about denial or anger IMO. This post is just OFFENSIVE to everyone who is fighting this disease daily (either personally or with this child, spouse, etc.</end quote></div>
I kind of agree with you. Threads in general never bother me but everytime I log on and see the title of this thread it upsets me. I actually do find it offensive.</end quote></div>
Hey everyone, Stop letting this time waster imanov bother you all,...!
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>serendipity730</b></i>
I hate to dignify this with a reply. My only reply to the other posters. This post is not about denial or anger IMO. This post is just OFFENSIVE to everyone who is fighting this disease daily (either personally or with this child, spouse, etc.</end quote></div>
I kind of agree with you. Threads in general never bother me but everytime I log on and see the title of this thread it upsets me. I actually do find it offensive.</end quote></div>
Hey everyone, Stop letting this time waster imanov bother you all,...!
CysticlyFunny
New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>mamaScarlett</b></i>
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>serendipity730</b></i>
I hate to dignify this with a reply. My only reply to the other posters. This post is not about denial or anger IMO. This post is just OFFENSIVE to everyone who is fighting this disease daily (either personally or with this child, spouse, etc.</end quote>
I kind of agree with you. Threads in general never bother me but everytime I log on and see the title of this thread it upsets me. I actually do find it offensive.</end quote>
Hey everyone, Stop letting this time waster imanov bother you all,...!
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>serendipity730</b></i>
I hate to dignify this with a reply. My only reply to the other posters. This post is not about denial or anger IMO. This post is just OFFENSIVE to everyone who is fighting this disease daily (either personally or with this child, spouse, etc.</end quote>
I kind of agree with you. Threads in general never bother me but everytime I log on and see the title of this thread it upsets me. I actually do find it offensive.</end quote>
Hey everyone, Stop letting this time waster imanov bother you all,...!
CysticlyFunny
New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>mamaScarlett</b></i>
<br />
<br /><div class="FTQUOTE"><begin quote><i>Originally posted by: <b>serendipity730</b></i>
<br />
<br />
<br />
<br />I hate to dignify this with a reply. My only reply to the other posters. This post is not about denial or anger IMO. This post is just OFFENSIVE to everyone who is fighting this disease daily (either personally or with this child, spouse, etc.</end quote>
<br />
<br />
<br />
<br />I kind of agree with you. Threads in general never bother me but everytime I log on and see the title of this thread it upsets me. I actually do find it offensive.</end quote>
<br />
<br />
<br />
<br />Hey everyone, Stop letting this time waster imanov bother you all,...!
<br />
<br /><div class="FTQUOTE"><begin quote><i>Originally posted by: <b>serendipity730</b></i>
<br />
<br />
<br />
<br />I hate to dignify this with a reply. My only reply to the other posters. This post is not about denial or anger IMO. This post is just OFFENSIVE to everyone who is fighting this disease daily (either personally or with this child, spouse, etc.</end quote>
<br />
<br />
<br />
<br />I kind of agree with you. Threads in general never bother me but everytime I log on and see the title of this thread it upsets me. I actually do find it offensive.</end quote>
<br />
<br />
<br />
<br />Hey everyone, Stop letting this time waster imanov bother you all,...!
CysticlyFunny
New member
Imanov's Gene mutations are the following :
Delta--1509<stu-pid> w/Stop intelligence codne combinations ,....
Delta--1509<stu-pid> w/Stop intelligence codne combinations ,....
CysticlyFunny
New member
Imanov's Gene mutations are the following :
Delta--1509<stu-pid> w/Stop intelligence codne combinations ,....
Delta--1509<stu-pid> w/Stop intelligence codne combinations ,....
CysticlyFunny
New member
Imanov's Gene mutations are the following :
<br />
<br />Delta--1509<stu-pid> w/Stop intelligence codne combinations ,....
<br />
<br />Delta--1509<stu-pid> w/Stop intelligence codne combinations ,....
CysticlyFunny
New member
Imanov's your Gene mutations are provided :
Delta--1509<stu-pid> w/Stop intelligence codne combinations.
Delta--1509<stu-pid> w/Stop intelligence codne combinations.
CysticlyFunny
New member
Imanov's your Gene mutations are provided :
Delta--1509<stu-pid> w/Stop intelligence codne combinations.
Delta--1509<stu-pid> w/Stop intelligence codne combinations.
CysticlyFunny
New member
Imanov's your Gene mutations are provided :
<br />
<br />Delta--1509<stu-pid> w/Stop intelligence codne combinations.
<br />
<br />Delta--1509<stu-pid> w/Stop intelligence codne combinations.
JennifersHope
New member
How sad. my first response is that this is a total goof ball who is just coming on to the website to stir the pot because they are bored. I still half think that, but in the event that this is actually a mother that has a child with two genes and two positive sweat tests, I am going to reply.
Cystic Fibrosis is a real genetic disease. It is genetic because it is passed on through the parents, (of no fault of their own) you most likely didn't know you carried the gene. Second of all, the average person does not contain disease causing bacteria in their mucus, they have normal flora, which means normal bacteria. You can not deny the truth. If your daughter was diagnosed with CF, is culturing bacteria in their lungs, then they have CF.
It is very normal to react very strongly when you first find out, you can blame yourself, or deny it is genetic because you don't want to think your genes are the cause of your child having CF, again, no fault of the parent, it is what it is. It is easier to deny and say it is a scam, that they are just in it for the money, etc.
I would venture to say, most if not all CF doctors are extremely dedicated. I have not met a CF doctor yet that did not have their whole soul into their job, who spend hours and hours a day to try to do what is best for their patients.
It is okay to be ticked, it is okay to not want to believe it, but do yourself a favor and talk to people you trust, and while you sort this through, make sure your daughter is doing all the treatments she possibly can, They are getting really close to finding drugs that are going to modify the CF gene that can make CF much more bearable.
Don't not treat your daughter and allow her to get lung damage that you can not reverse. You will surely kick yourself down the road. Yell, scream, vent, but put one foot in front of the other and get educated about the best course of treatment for your child.
Cystic Fibrosis is a real genetic disease. It is genetic because it is passed on through the parents, (of no fault of their own) you most likely didn't know you carried the gene. Second of all, the average person does not contain disease causing bacteria in their mucus, they have normal flora, which means normal bacteria. You can not deny the truth. If your daughter was diagnosed with CF, is culturing bacteria in their lungs, then they have CF.
It is very normal to react very strongly when you first find out, you can blame yourself, or deny it is genetic because you don't want to think your genes are the cause of your child having CF, again, no fault of the parent, it is what it is. It is easier to deny and say it is a scam, that they are just in it for the money, etc.
I would venture to say, most if not all CF doctors are extremely dedicated. I have not met a CF doctor yet that did not have their whole soul into their job, who spend hours and hours a day to try to do what is best for their patients.
It is okay to be ticked, it is okay to not want to believe it, but do yourself a favor and talk to people you trust, and while you sort this through, make sure your daughter is doing all the treatments she possibly can, They are getting really close to finding drugs that are going to modify the CF gene that can make CF much more bearable.
Don't not treat your daughter and allow her to get lung damage that you can not reverse. You will surely kick yourself down the road. Yell, scream, vent, but put one foot in front of the other and get educated about the best course of treatment for your child.
JennifersHope
New member
How sad. my first response is that this is a total goof ball who is just coming on to the website to stir the pot because they are bored. I still half think that, but in the event that this is actually a mother that has a child with two genes and two positive sweat tests, I am going to reply.
Cystic Fibrosis is a real genetic disease. It is genetic because it is passed on through the parents, (of no fault of their own) you most likely didn't know you carried the gene. Second of all, the average person does not contain disease causing bacteria in their mucus, they have normal flora, which means normal bacteria. You can not deny the truth. If your daughter was diagnosed with CF, is culturing bacteria in their lungs, then they have CF.
It is very normal to react very strongly when you first find out, you can blame yourself, or deny it is genetic because you don't want to think your genes are the cause of your child having CF, again, no fault of the parent, it is what it is. It is easier to deny and say it is a scam, that they are just in it for the money, etc.
I would venture to say, most if not all CF doctors are extremely dedicated. I have not met a CF doctor yet that did not have their whole soul into their job, who spend hours and hours a day to try to do what is best for their patients.
It is okay to be ticked, it is okay to not want to believe it, but do yourself a favor and talk to people you trust, and while you sort this through, make sure your daughter is doing all the treatments she possibly can, They are getting really close to finding drugs that are going to modify the CF gene that can make CF much more bearable.
Don't not treat your daughter and allow her to get lung damage that you can not reverse. You will surely kick yourself down the road. Yell, scream, vent, but put one foot in front of the other and get educated about the best course of treatment for your child.
Cystic Fibrosis is a real genetic disease. It is genetic because it is passed on through the parents, (of no fault of their own) you most likely didn't know you carried the gene. Second of all, the average person does not contain disease causing bacteria in their mucus, they have normal flora, which means normal bacteria. You can not deny the truth. If your daughter was diagnosed with CF, is culturing bacteria in their lungs, then they have CF.
It is very normal to react very strongly when you first find out, you can blame yourself, or deny it is genetic because you don't want to think your genes are the cause of your child having CF, again, no fault of the parent, it is what it is. It is easier to deny and say it is a scam, that they are just in it for the money, etc.
I would venture to say, most if not all CF doctors are extremely dedicated. I have not met a CF doctor yet that did not have their whole soul into their job, who spend hours and hours a day to try to do what is best for their patients.
It is okay to be ticked, it is okay to not want to believe it, but do yourself a favor and talk to people you trust, and while you sort this through, make sure your daughter is doing all the treatments she possibly can, They are getting really close to finding drugs that are going to modify the CF gene that can make CF much more bearable.
Don't not treat your daughter and allow her to get lung damage that you can not reverse. You will surely kick yourself down the road. Yell, scream, vent, but put one foot in front of the other and get educated about the best course of treatment for your child.
JennifersHope
New member
How sad. my first response is that this is a total goof ball who is just coming on to the website to stir the pot because they are bored. I still half think that, but in the event that this is actually a mother that has a child with two genes and two positive sweat tests, I am going to reply.
<br />
<br />Cystic Fibrosis is a real genetic disease. It is genetic because it is passed on through the parents, (of no fault of their own) you most likely didn't know you carried the gene. Second of all, the average person does not contain disease causing bacteria in their mucus, they have normal flora, which means normal bacteria. You can not deny the truth. If your daughter was diagnosed with CF, is culturing bacteria in their lungs, then they have CF.
<br />
<br />It is very normal to react very strongly when you first find out, you can blame yourself, or deny it is genetic because you don't want to think your genes are the cause of your child having CF, again, no fault of the parent, it is what it is. It is easier to deny and say it is a scam, that they are just in it for the money, etc.
<br />
<br />I would venture to say, most if not all CF doctors are extremely dedicated. I have not met a CF doctor yet that did not have their whole soul into their job, who spend hours and hours a day to try to do what is best for their patients.
<br />
<br />It is okay to be ticked, it is okay to not want to believe it, but do yourself a favor and talk to people you trust, and while you sort this through, make sure your daughter is doing all the treatments she possibly can, They are getting really close to finding drugs that are going to modify the CF gene that can make CF much more bearable.
<br />
<br />Don't not treat your daughter and allow her to get lung damage that you can not reverse. You will surely kick yourself down the road. Yell, scream, vent, but put one foot in front of the other and get educated about the best course of treatment for your child.
<br />
<br />Cystic Fibrosis is a real genetic disease. It is genetic because it is passed on through the parents, (of no fault of their own) you most likely didn't know you carried the gene. Second of all, the average person does not contain disease causing bacteria in their mucus, they have normal flora, which means normal bacteria. You can not deny the truth. If your daughter was diagnosed with CF, is culturing bacteria in their lungs, then they have CF.
<br />
<br />It is very normal to react very strongly when you first find out, you can blame yourself, or deny it is genetic because you don't want to think your genes are the cause of your child having CF, again, no fault of the parent, it is what it is. It is easier to deny and say it is a scam, that they are just in it for the money, etc.
<br />
<br />I would venture to say, most if not all CF doctors are extremely dedicated. I have not met a CF doctor yet that did not have their whole soul into their job, who spend hours and hours a day to try to do what is best for their patients.
<br />
<br />It is okay to be ticked, it is okay to not want to believe it, but do yourself a favor and talk to people you trust, and while you sort this through, make sure your daughter is doing all the treatments she possibly can, They are getting really close to finding drugs that are going to modify the CF gene that can make CF much more bearable.
<br />
<br />Don't not treat your daughter and allow her to get lung damage that you can not reverse. You will surely kick yourself down the road. Yell, scream, vent, but put one foot in front of the other and get educated about the best course of treatment for your child.