Daily medications

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fourkidsmom

New member
My son takes:

Prevacid 15 mg
ADEK- 1 a day
Zithromax- 1 tsp mon, wed, fri
Lactulose- 2 tsp twice daily
Miralax- 17 mg- once daily
1 creon 20 and 2 creon 5's with meals & snacks
Vitamin C
400 I.U. of vitimin E daily
Pulmozyme once daily
Albuterol treatments- twice daily
Hypertonic Saline - 2 times a day
Pulmicort- 2 times a day
Hillrom vest 3 times daily- 20 minutes each
Nasal washes- twice daily
Ocean nose spray
Night feedings thru G-tube- right now on 4 cans of pediasure thru the night and he drinks 3 during the day- will ask for higher calorie formula at next doctor visit
We do his port flush monthly at home

As needed- Racepinephrine & Oraphred

Fourkidsmom
 
F

fourkidsmom

New member
My son takes:

Prevacid 15 mg
ADEK- 1 a day
Zithromax- 1 tsp mon, wed, fri
Lactulose- 2 tsp twice daily
Miralax- 17 mg- once daily
1 creon 20 and 2 creon 5's with meals & snacks
Vitamin C
400 I.U. of vitimin E daily
Pulmozyme once daily
Albuterol treatments- twice daily
Hypertonic Saline - 2 times a day
Pulmicort- 2 times a day
Hillrom vest 3 times daily- 20 minutes each
Nasal washes- twice daily
Ocean nose spray
Night feedings thru G-tube- right now on 4 cans of pediasure thru the night and he drinks 3 during the day- will ask for higher calorie formula at next doctor visit
We do his port flush monthly at home

As needed- Racepinephrine & Oraphred

Fourkidsmom
 
F

fourkidsmom

New member
My son takes:

Prevacid 15 mg
ADEK- 1 a day
Zithromax- 1 tsp mon, wed, fri
Lactulose- 2 tsp twice daily
Miralax- 17 mg- once daily
1 creon 20 and 2 creon 5's with meals & snacks
Vitamin C
400 I.U. of vitimin E daily
Pulmozyme once daily
Albuterol treatments- twice daily
Hypertonic Saline - 2 times a day
Pulmicort- 2 times a day
Hillrom vest 3 times daily- 20 minutes each
Nasal washes- twice daily
Ocean nose spray
Night feedings thru G-tube- right now on 4 cans of pediasure thru the night and he drinks 3 during the day- will ask for higher calorie formula at next doctor visit
We do his port flush monthly at home

As needed- Racepinephrine & Oraphred

Fourkidsmom
 
F

fourkidsmom

New member
My son takes:

Prevacid 15 mg
ADEK- 1 a day
Zithromax- 1 tsp mon, wed, fri
Lactulose- 2 tsp twice daily
Miralax- 17 mg- once daily
1 creon 20 and 2 creon 5's with meals & snacks
Vitamin C
400 I.U. of vitimin E daily
Pulmozyme once daily
Albuterol treatments- twice daily
Hypertonic Saline - 2 times a day
Pulmicort- 2 times a day
Hillrom vest 3 times daily- 20 minutes each
Nasal washes- twice daily
Ocean nose spray
Night feedings thru G-tube- right now on 4 cans of pediasure thru the night and he drinks 3 during the day- will ask for higher calorie formula at next doctor visit
We do his port flush monthly at home

As needed- Racepinephrine & Oraphred

Fourkidsmom
 
F

Finnsmommy

New member
I'm noticing that nearly everyone has listed pulmozyme as one of their meds. My son is 3 and this has never been presented to us as an option. Could you all share some more about it? I don't trust my current clinic--had to fight like hell to get the vest, so I would think the same would be true about pulmozyme if it's needed.
 
F

Finnsmommy

New member
I'm noticing that nearly everyone has listed pulmozyme as one of their meds. My son is 3 and this has never been presented to us as an option. Could you all share some more about it? I don't trust my current clinic--had to fight like hell to get the vest, so I would think the same would be true about pulmozyme if it's needed.
 
F

Finnsmommy

New member
I'm noticing that nearly everyone has listed pulmozyme as one of their meds. My son is 3 and this has never been presented to us as an option. Could you all share some more about it? I don't trust my current clinic--had to fight like hell to get the vest, so I would think the same would be true about pulmozyme if it's needed.
 
F

Finnsmommy

New member
I'm noticing that nearly everyone has listed pulmozyme as one of their meds. My son is 3 and this has never been presented to us as an option. Could you all share some more about it? I don't trust my current clinic--had to fight like hell to get the vest, so I would think the same would be true about pulmozyme if it's needed.
 
F

Finnsmommy

New member
I'm noticing that nearly everyone has listed pulmozyme as one of their meds. My son is 3 and this has never been presented to us as an option. Could you all share some more about it? I don't trust my current clinic--had to fight like hell to get the vest, so I would think the same would be true about pulmozyme if it's needed.
 
F

Finnsmommy

New member
I'm noticing that nearly everyone has listed pulmozyme as one of their meds. My son is 3 and this has never been presented to us as an option. Could you all share some more about it? I don't trust my current clinic--had to fight like hell to get the vest, so I would think the same would be true about pulmozyme if it's needed.
 
A

Alyssa

New member
Pulmozyme thins the mucus in the lungs, making it way easier to cough up. It is expensive -- about $1700 per month - some insurance companies give patients a little bit of a hassle sometimes, but by and large it seems to be the standard of care for many with CF and productive cough.
 
A

Alyssa

New member
Pulmozyme thins the mucus in the lungs, making it way easier to cough up. It is expensive -- about $1700 per month - some insurance companies give patients a little bit of a hassle sometimes, but by and large it seems to be the standard of care for many with CF and productive cough.
 
A

Alyssa

New member
Pulmozyme thins the mucus in the lungs, making it way easier to cough up. It is expensive -- about $1700 per month - some insurance companies give patients a little bit of a hassle sometimes, but by and large it seems to be the standard of care for many with CF and productive cough.
 
A

Alyssa

New member
Pulmozyme thins the mucus in the lungs, making it way easier to cough up. It is expensive -- about $1700 per month - some insurance companies give patients a little bit of a hassle sometimes, but by and large it seems to be the standard of care for many with CF and productive cough.
 
A

Alyssa

New member
Pulmozyme thins the mucus in the lungs, making it way easier to cough up. It is expensive -- about $1700 per month - some insurance companies give patients a little bit of a hassle sometimes, but by and large it seems to be the standard of care for many with CF and productive cough.
 
A

Alyssa

New member
Pulmozyme thins the mucus in the lungs, making it way easier to cough up. It is expensive -- about $1700 per month - some insurance companies give patients a little bit of a hassle sometimes, but by and large it seems to be the standard of care for many with CF and productive cough.
 
A

Alyssa

New member
I guess I forgot to list what my kids are on:

Daughter:
Pulmozyme
7% Hypertonic Saline
Proventil
Flovent
The Vest

Son:
Flonase

Just started yesterday:
Pulmozyme
Advair

Will start next week if symptoms are not confirmed to be allergy related:
5% Hypertonic Saline with Respirtech Vest
 
A

Alyssa

New member
I guess I forgot to list what my kids are on:

Daughter:
Pulmozyme
7% Hypertonic Saline
Proventil
Flovent
The Vest

Son:
Flonase

Just started yesterday:
Pulmozyme
Advair

Will start next week if symptoms are not confirmed to be allergy related:
5% Hypertonic Saline with Respirtech Vest
 
A

Alyssa

New member
I guess I forgot to list what my kids are on:

Daughter:
Pulmozyme
7% Hypertonic Saline
Proventil
Flovent
The Vest

Son:
Flonase

Just started yesterday:
Pulmozyme
Advair

Will start next week if symptoms are not confirmed to be allergy related:
5% Hypertonic Saline with Respirtech Vest
 
A

Alyssa

New member
I guess I forgot to list what my kids are on:

Daughter:
Pulmozyme
7% Hypertonic Saline
Proventil
Flovent
The Vest

Son:
Flonase

Just started yesterday:
Pulmozyme
Advair

Will start next week if symptoms are not confirmed to be allergy related:
5% Hypertonic Saline with Respirtech Vest
 
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