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Denufosol
- Thread starter Brad
- Start date
people are just misplacing anger. they're frustrated with CF, so they blame drugs meant to help them.
scientists aren't trying to make our lives harder but making a drug 3x a day. it's the nature of the med to reach maximum efficacy. no one's forcing you to take the drug.
have you ever been prescribed IV's for more than twice a day and then been mad at the dose? maybe you're frustrated but it's not some conspiracy to make your life hell. it's what needs to be done for the drug to have max efficacy.
and in terms of the FEV1 over 75%, those people tend to have less damage to their airways and in order for the med to work, it needs to reach the surface of the airways (which is more difficult if you have more lung damage). so again, not a conspiracy against people. simply the drug's mechanism of action.
how ridiculous would it be to invest millions of dollars in drug development only to have the approval be delayed because they let CFer's with lower FEV1 into the clinical trials so no one's feelings were hurt.
i wonder sometimes if people think outside their own immediate needs and see the big picture of this process works......
misplaced anger is bizarre.
at the end of the day, you could be like rami living in the war torn middle east just trying to get someone to send you digestive enzymes so you can absorb nutrients. i'm sure he would kill to have the ability to bitch about another life-extending treatment that happens to take a little more time in our day.
scientists aren't trying to make our lives harder but making a drug 3x a day. it's the nature of the med to reach maximum efficacy. no one's forcing you to take the drug.
have you ever been prescribed IV's for more than twice a day and then been mad at the dose? maybe you're frustrated but it's not some conspiracy to make your life hell. it's what needs to be done for the drug to have max efficacy.
and in terms of the FEV1 over 75%, those people tend to have less damage to their airways and in order for the med to work, it needs to reach the surface of the airways (which is more difficult if you have more lung damage). so again, not a conspiracy against people. simply the drug's mechanism of action.
how ridiculous would it be to invest millions of dollars in drug development only to have the approval be delayed because they let CFer's with lower FEV1 into the clinical trials so no one's feelings were hurt.
i wonder sometimes if people think outside their own immediate needs and see the big picture of this process works......
misplaced anger is bizarre.
at the end of the day, you could be like rami living in the war torn middle east just trying to get someone to send you digestive enzymes so you can absorb nutrients. i'm sure he would kill to have the ability to bitch about another life-extending treatment that happens to take a little more time in our day.
people are just misplacing anger. they're frustrated with CF, so they blame drugs meant to help them.
scientists aren't trying to make our lives harder but making a drug 3x a day. it's the nature of the med to reach maximum efficacy. no one's forcing you to take the drug.
have you ever been prescribed IV's for more than twice a day and then been mad at the dose? maybe you're frustrated but it's not some conspiracy to make your life hell. it's what needs to be done for the drug to have max efficacy.
and in terms of the FEV1 over 75%, those people tend to have less damage to their airways and in order for the med to work, it needs to reach the surface of the airways (which is more difficult if you have more lung damage). so again, not a conspiracy against people. simply the drug's mechanism of action.
how ridiculous would it be to invest millions of dollars in drug development only to have the approval be delayed because they let CFer's with lower FEV1 into the clinical trials so no one's feelings were hurt.
i wonder sometimes if people think outside their own immediate needs and see the big picture of this process works......
misplaced anger is bizarre.
at the end of the day, you could be like rami living in the war torn middle east just trying to get someone to send you digestive enzymes so you can absorb nutrients. i'm sure he would kill to have the ability to bitch about another life-extending treatment that happens to take a little more time in our day.
scientists aren't trying to make our lives harder but making a drug 3x a day. it's the nature of the med to reach maximum efficacy. no one's forcing you to take the drug.
have you ever been prescribed IV's for more than twice a day and then been mad at the dose? maybe you're frustrated but it's not some conspiracy to make your life hell. it's what needs to be done for the drug to have max efficacy.
and in terms of the FEV1 over 75%, those people tend to have less damage to their airways and in order for the med to work, it needs to reach the surface of the airways (which is more difficult if you have more lung damage). so again, not a conspiracy against people. simply the drug's mechanism of action.
how ridiculous would it be to invest millions of dollars in drug development only to have the approval be delayed because they let CFer's with lower FEV1 into the clinical trials so no one's feelings were hurt.
i wonder sometimes if people think outside their own immediate needs and see the big picture of this process works......
misplaced anger is bizarre.
at the end of the day, you could be like rami living in the war torn middle east just trying to get someone to send you digestive enzymes so you can absorb nutrients. i'm sure he would kill to have the ability to bitch about another life-extending treatment that happens to take a little more time in our day.
people are just misplacing anger. they're frustrated with CF, so they blame drugs meant to help them.
scientists aren't trying to make our lives harder but making a drug 3x a day. it's the nature of the med to reach maximum efficacy. no one's forcing you to take the drug.
have you ever been prescribed IV's for more than twice a day and then been mad at the dose? maybe you're frustrated but it's not some conspiracy to make your life hell. it's what needs to be done for the drug to have max efficacy.
and in terms of the FEV1 over 75%, those people tend to have less damage to their airways and in order for the med to work, it needs to reach the surface of the airways (which is more difficult if you have more lung damage). so again, not a conspiracy against people. simply the drug's mechanism of action.
how ridiculous would it be to invest millions of dollars in drug development only to have the approval be delayed because they let CFer's with lower FEV1 into the clinical trials so no one's feelings were hurt.
i wonder sometimes if people think outside their own immediate needs and see the big picture of this process works......
misplaced anger is bizarre.
at the end of the day, you could be like rami living in the war torn middle east just trying to get someone to send you digestive enzymes so you can absorb nutrients. i'm sure he would kill to have the ability to bitch about another life-extending treatment that happens to take a little more time in our day.
scientists aren't trying to make our lives harder but making a drug 3x a day. it's the nature of the med to reach maximum efficacy. no one's forcing you to take the drug.
have you ever been prescribed IV's for more than twice a day and then been mad at the dose? maybe you're frustrated but it's not some conspiracy to make your life hell. it's what needs to be done for the drug to have max efficacy.
and in terms of the FEV1 over 75%, those people tend to have less damage to their airways and in order for the med to work, it needs to reach the surface of the airways (which is more difficult if you have more lung damage). so again, not a conspiracy against people. simply the drug's mechanism of action.
how ridiculous would it be to invest millions of dollars in drug development only to have the approval be delayed because they let CFer's with lower FEV1 into the clinical trials so no one's feelings were hurt.
i wonder sometimes if people think outside their own immediate needs and see the big picture of this process works......
misplaced anger is bizarre.
at the end of the day, you could be like rami living in the war torn middle east just trying to get someone to send you digestive enzymes so you can absorb nutrients. i'm sure he would kill to have the ability to bitch about another life-extending treatment that happens to take a little more time in our day.
people are just misplacing anger. they're frustrated with CF, so they blame drugs meant to help them.
scientists aren't trying to make our lives harder but making a drug 3x a day. it's the nature of the med to reach maximum efficacy. no one's forcing you to take the drug.
have you ever been prescribed IV's for more than twice a day and then been mad at the dose? maybe you're frustrated but it's not some conspiracy to make your life hell. it's what needs to be done for the drug to have max efficacy.
and in terms of the FEV1 over 75%, those people tend to have less damage to their airways and in order for the med to work, it needs to reach the surface of the airways (which is more difficult if you have more lung damage). so again, not a conspiracy against people. simply the drug's mechanism of action.
how ridiculous would it be to invest millions of dollars in drug development only to have the approval be delayed because they let CFer's with lower FEV1 into the clinical trials so no one's feelings were hurt.
i wonder sometimes if people think outside their own immediate needs and see the big picture of this process works......
misplaced anger is bizarre.
at the end of the day, you could be like rami living in the war torn middle east just trying to get someone to send you digestive enzymes so you can absorb nutrients. i'm sure he would kill to have the ability to bitch about another life-extending treatment that happens to take a little more time in our day.
scientists aren't trying to make our lives harder but making a drug 3x a day. it's the nature of the med to reach maximum efficacy. no one's forcing you to take the drug.
have you ever been prescribed IV's for more than twice a day and then been mad at the dose? maybe you're frustrated but it's not some conspiracy to make your life hell. it's what needs to be done for the drug to have max efficacy.
and in terms of the FEV1 over 75%, those people tend to have less damage to their airways and in order for the med to work, it needs to reach the surface of the airways (which is more difficult if you have more lung damage). so again, not a conspiracy against people. simply the drug's mechanism of action.
how ridiculous would it be to invest millions of dollars in drug development only to have the approval be delayed because they let CFer's with lower FEV1 into the clinical trials so no one's feelings were hurt.
i wonder sometimes if people think outside their own immediate needs and see the big picture of this process works......
misplaced anger is bizarre.
at the end of the day, you could be like rami living in the war torn middle east just trying to get someone to send you digestive enzymes so you can absorb nutrients. i'm sure he would kill to have the ability to bitch about another life-extending treatment that happens to take a little more time in our day.
people are just misplacing anger. they're frustrated with CF, so they blame drugs meant to help them.
<br />
<br />scientists aren't trying to make our lives harder but making a drug 3x a day. it's the nature of the med to reach maximum efficacy. no one's forcing you to take the drug.
<br />
<br />have you ever been prescribed IV's for more than twice a day and then been mad at the dose? maybe you're frustrated but it's not some conspiracy to make your life hell. it's what needs to be done for the drug to have max efficacy.
<br />
<br />and in terms of the FEV1 over 75%, those people tend to have less damage to their airways and in order for the med to work, it needs to reach the surface of the airways (which is more difficult if you have more lung damage). so again, not a conspiracy against people. simply the drug's mechanism of action.
<br />
<br />how ridiculous would it be to invest millions of dollars in drug development only to have the approval be delayed because they let CFer's with lower FEV1 into the clinical trials so no one's feelings were hurt.
<br />
<br />i wonder sometimes if people think outside their own immediate needs and see the big picture of this process works......
<br />
<br />misplaced anger is bizarre.
<br />
<br />at the end of the day, you could be like rami living in the war torn middle east just trying to get someone to send you digestive enzymes so you can absorb nutrients. i'm sure he would kill to have the ability to bitch about another life-extending treatment that happens to take a little more time in our day.
<br />
<br />scientists aren't trying to make our lives harder but making a drug 3x a day. it's the nature of the med to reach maximum efficacy. no one's forcing you to take the drug.
<br />
<br />have you ever been prescribed IV's for more than twice a day and then been mad at the dose? maybe you're frustrated but it's not some conspiracy to make your life hell. it's what needs to be done for the drug to have max efficacy.
<br />
<br />and in terms of the FEV1 over 75%, those people tend to have less damage to their airways and in order for the med to work, it needs to reach the surface of the airways (which is more difficult if you have more lung damage). so again, not a conspiracy against people. simply the drug's mechanism of action.
<br />
<br />how ridiculous would it be to invest millions of dollars in drug development only to have the approval be delayed because they let CFer's with lower FEV1 into the clinical trials so no one's feelings were hurt.
<br />
<br />i wonder sometimes if people think outside their own immediate needs and see the big picture of this process works......
<br />
<br />misplaced anger is bizarre.
<br />
<br />at the end of the day, you could be like rami living in the war torn middle east just trying to get someone to send you digestive enzymes so you can absorb nutrients. i'm sure he would kill to have the ability to bitch about another life-extending treatment that happens to take a little more time in our day.
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>NoExcuses</b></i>
JD, i found a study once on denufosol in the eFlow. let me try to find it.... i'm sure it's much faster as you said.</end quote></div>
Here you go:
<a target=_blank class=ftalternatingbarlinklarge href="http://www.inspirepharm.com/Inspire-NACFC2005-Evans,Richard.pdf
">http://www.inspirepharm.com/In...005-Evans,Richard.pdf
</a>
Delivery time of Denufosl by eflow: 5-6 minutes
JD, i found a study once on denufosol in the eFlow. let me try to find it.... i'm sure it's much faster as you said.</end quote></div>
Here you go:
<a target=_blank class=ftalternatingbarlinklarge href="http://www.inspirepharm.com/Inspire-NACFC2005-Evans,Richard.pdf
">http://www.inspirepharm.com/In...005-Evans,Richard.pdf
</a>
Delivery time of Denufosl by eflow: 5-6 minutes
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>NoExcuses</b></i>
JD, i found a study once on denufosol in the eFlow. let me try to find it.... i'm sure it's much faster as you said.</end quote></div>
Here you go:
<a target=_blank class=ftalternatingbarlinklarge href="http://www.inspirepharm.com/Inspire-NACFC2005-Evans,Richard.pdf
">http://www.inspirepharm.com/In...005-Evans,Richard.pdf
</a>
Delivery time of Denufosl by eflow: 5-6 minutes
JD, i found a study once on denufosol in the eFlow. let me try to find it.... i'm sure it's much faster as you said.</end quote></div>
Here you go:
<a target=_blank class=ftalternatingbarlinklarge href="http://www.inspirepharm.com/Inspire-NACFC2005-Evans,Richard.pdf
">http://www.inspirepharm.com/In...005-Evans,Richard.pdf
</a>
Delivery time of Denufosl by eflow: 5-6 minutes
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>NoExcuses</b></i>
JD, i found a study once on denufosol in the eFlow. let me try to find it.... i'm sure it's much faster as you said.</end quote></div>
Here you go:
<a target=_blank class=ftalternatingbarlinklarge href="http://www.inspirepharm.com/Inspire-NACFC2005-Evans,Richard.pdf
">http://www.inspirepharm.com/In...005-Evans,Richard.pdf
</a>
Delivery time of Denufosl by eflow: 5-6 minutes
JD, i found a study once on denufosol in the eFlow. let me try to find it.... i'm sure it's much faster as you said.</end quote></div>
Here you go:
<a target=_blank class=ftalternatingbarlinklarge href="http://www.inspirepharm.com/Inspire-NACFC2005-Evans,Richard.pdf
">http://www.inspirepharm.com/In...005-Evans,Richard.pdf
</a>
Delivery time of Denufosl by eflow: 5-6 minutes
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>NoExcuses</b></i>
JD, i found a study once on denufosol in the eFlow. let me try to find it.... i'm sure it's much faster as you said.</end quote>
Here you go:
<a target=_blank class=ftalternatingbarlinklarge href="http://www.inspirepharm.com/Inspire-NACFC2005-Evans,Richard.pdf
">http://www.inspirepharm.com/In...005-Evans,Richard.pdf
</a>
Delivery time of Denufosl by eflow: 5-6 minutes
JD, i found a study once on denufosol in the eFlow. let me try to find it.... i'm sure it's much faster as you said.</end quote>
Here you go:
<a target=_blank class=ftalternatingbarlinklarge href="http://www.inspirepharm.com/Inspire-NACFC2005-Evans,Richard.pdf
">http://www.inspirepharm.com/In...005-Evans,Richard.pdf
</a>
Delivery time of Denufosl by eflow: 5-6 minutes
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>NoExcuses</b></i>
<br />
<br />JD, i found a study once on denufosol in the eFlow. let me try to find it.... i'm sure it's much faster as you said.</end quote>
<br />
<br />
<br />Here you go:
<br />
<br /><a target=_blank class=ftalternatingbarlinklarge href="http://www.inspirepharm.com/Inspire-NACFC2005-Evans,Richard.pdf
">http://www.inspirepharm.com/In...005-Evans,Richard.pdf
</a><br />
<br />Delivery time of Denufosl by eflow: 5-6 minutes
<br />
<br />JD, i found a study once on denufosol in the eFlow. let me try to find it.... i'm sure it's much faster as you said.</end quote>
<br />
<br />
<br />Here you go:
<br />
<br /><a target=_blank class=ftalternatingbarlinklarge href="http://www.inspirepharm.com/Inspire-NACFC2005-Evans,Richard.pdf
">http://www.inspirepharm.com/In...005-Evans,Richard.pdf
</a><br />
<br />Delivery time of Denufosl by eflow: 5-6 minutes
jdprecious
New member
Jaelyn is currently in the study for Denufosol as well. The first six mos she was on placebo. I smelled and tasted the solution just to be nosy and it was no more than salt water solution. Those six months I saw no side effects or improvement/decline. Last six months, we are currently 4 months into it, was the real thing. Smelled and tasted completely different and within 5 days she was hawking up gunk like never before. All cultures are negative so that is a plus, but she is much more productive. Yes, the three times a day is tough. Out of 7 days, we might get 5-6 days that are all 3 times. We do the best we can with the time/schedule we have. Our clinic allows you to continue on the neb after the study. That is one of the main reasons I allowed her to endure the god awful PKU's for this whole year. It has not been a picnic, this study, in any way but totally worth it.
jdprecious
New member
Jaelyn is currently in the study for Denufosol as well. The first six mos she was on placebo. I smelled and tasted the solution just to be nosy and it was no more than salt water solution. Those six months I saw no side effects or improvement/decline. Last six months, we are currently 4 months into it, was the real thing. Smelled and tasted completely different and within 5 days she was hawking up gunk like never before. All cultures are negative so that is a plus, but she is much more productive. Yes, the three times a day is tough. Out of 7 days, we might get 5-6 days that are all 3 times. We do the best we can with the time/schedule we have. Our clinic allows you to continue on the neb after the study. That is one of the main reasons I allowed her to endure the god awful PKU's for this whole year. It has not been a picnic, this study, in any way but totally worth it.
jdprecious
New member
Jaelyn is currently in the study for Denufosol as well. The first six mos she was on placebo. I smelled and tasted the solution just to be nosy and it was no more than salt water solution. Those six months I saw no side effects or improvement/decline. Last six months, we are currently 4 months into it, was the real thing. Smelled and tasted completely different and within 5 days she was hawking up gunk like never before. All cultures are negative so that is a plus, but she is much more productive. Yes, the three times a day is tough. Out of 7 days, we might get 5-6 days that are all 3 times. We do the best we can with the time/schedule we have. Our clinic allows you to continue on the neb after the study. That is one of the main reasons I allowed her to endure the god awful PKU's for this whole year. It has not been a picnic, this study, in any way but totally worth it.
jdprecious
New member
Jaelyn is currently in the study for Denufosol as well. The first six mos she was on placebo. I smelled and tasted the solution just to be nosy and it was no more than salt water solution. Those six months I saw no side effects or improvement/decline. Last six months, we are currently 4 months into it, was the real thing. Smelled and tasted completely different and within 5 days she was hawking up gunk like never before. All cultures are negative so that is a plus, but she is much more productive. Yes, the three times a day is tough. Out of 7 days, we might get 5-6 days that are all 3 times. We do the best we can with the time/schedule we have. Our clinic allows you to continue on the neb after the study. That is one of the main reasons I allowed her to endure the god awful PKU's for this whole year. It has not been a picnic, this study, in any way but totally worth it.
jdprecious
New member
Jaelyn is currently in the study for Denufosol as well. The first six mos she was on placebo. I smelled and tasted the solution just to be nosy and it was no more than salt water solution. Those six months I saw no side effects or improvement/decline. Last six months, we are currently 4 months into it, was the real thing. Smelled and tasted completely different and within 5 days she was hawking up gunk like never before. All cultures are negative so that is a plus, but she is much more productive. Yes, the three times a day is tough. Out of 7 days, we might get 5-6 days that are all 3 times. We do the best we can with the time/schedule we have. Our clinic allows you to continue on the neb after the study. That is one of the main reasons I allowed her to endure the god awful PKU's for this whole year. It has not been a picnic, this study, in any way but totally worth it.