Denufosol

[nu65]

cfsucks, you can still have a life with 3 treatments a day. I do 3 rounds of nebs eveyday and have been for maybe 4 years now. It's difficult, to be sure, and you have to plan your day around it. But as a CFer, more than likely everyone will end up doing 3 neb treatments a day as we get sicker. I'm a full-time student and I just try to make it so that I have an hour-long break between classes late in the afternoon (around 4) so I can get it done. Now, if I don't have my afternoon treatment, I feel horrible and have SOB.

So three treatments a day wouldn't be that horrible but it would add another hour or so of treatment to my already comprimised day. I have a hard time seeing the awesomeness of new drugs mainly because I think it is too late for me to get better at all (FEV1 28%). :/

 

[nu65]

cfsucks, you can still have a life with 3 treatments a day. I do 3 rounds of nebs eveyday and have been for maybe 4 years now. It's difficult, to be sure, and you have to plan your day around it. But as a CFer, more than likely everyone will end up doing 3 neb treatments a day as we get sicker. I'm a full-time student and I just try to make it so that I have an hour-long break between classes late in the afternoon (around 4) so I can get it done. Now, if I don't have my afternoon treatment, I feel horrible and have SOB.

So three treatments a day wouldn't be that horrible but it would add another hour or so of treatment to my already comprimised day. I have a hard time seeing the awesomeness of new drugs mainly because I think it is too late for me to get better at all (FEV1 28%). :/

 

[nu65]

cfsucks, you can still have a life with 3 treatments a day. I do 3 rounds of nebs eveyday and have been for maybe 4 years now. It's difficult, to be sure, and you have to plan your day around it. But as a CFer, more than likely everyone will end up doing 3 neb treatments a day as we get sicker. I'm a full-time student and I just try to make it so that I have an hour-long break between classes late in the afternoon (around 4) so I can get it done. Now, if I don't have my afternoon treatment, I feel horrible and have SOB.

So three treatments a day wouldn't be that horrible but it would add another hour or so of treatment to my already comprimised day. I have a hard time seeing the awesomeness of new drugs mainly because I think it is too late for me to get better at all (FEV1 28%). :/

 

[nu65]

cfsucks, you can still have a life with 3 treatments a day. I do 3 rounds of nebs eveyday and have been for maybe 4 years now. It's difficult, to be sure, and you have to plan your day around it. But as a CFer, more than likely everyone will end up doing 3 neb treatments a day as we get sicker. I'm a full-time student and I just try to make it so that I have an hour-long break between classes late in the afternoon (around 4) so I can get it done. Now, if I don't have my afternoon treatment, I feel horrible and have SOB.

So three treatments a day wouldn't be that horrible but it would add another hour or so of treatment to my already comprimised day. I have a hard time seeing the awesomeness of new drugs mainly because I think it is too late for me to get better at all (FEV1 28%). :/

 

[nu65]

cfsucks, you can still have a life with 3 treatments a day. I do 3 rounds of nebs eveyday and have been for maybe 4 years now. It's difficult, to be sure, and you have to plan your day around it. But as a CFer, more than likely everyone will end up doing 3 neb treatments a day as we get sicker. I'm a full-time student and I just try to make it so that I have an hour-long break between classes late in the afternoon (around 4) so I can get it done. Now, if I don't have my afternoon treatment, I feel horrible and have SOB.
<br />
<br />So three treatments a day wouldn't be that horrible but it would add another hour or so of treatment to my already comprimised day. I have a hard time seeing the awesomeness of new drugs mainly because I think it is too late for me to get better at all (FEV1 28%). :/

 

[jamie6girl]

I personally am excited about the new drugs, even though my numbers suck. I'm around 38 - 40 percent. But I think this new one will help even though they are being lame and asking for only 75+ numbers.

 

[jamie6girl]

I personally am excited about the new drugs, even though my numbers suck. I'm around 38 - 40 percent. But I think this new one will help even though they are being lame and asking for only 75+ numbers.

 

[jamie6girl]

I personally am excited about the new drugs, even though my numbers suck. I'm around 38 - 40 percent. But I think this new one will help even though they are being lame and asking for only 75+ numbers.

 

[jamie6girl]

I personally am excited about the new drugs, even though my numbers suck. I'm around 38 - 40 percent. But I think this new one will help even though they are being lame and asking for only 75+ numbers.

 

[jamie6girl]

I personally am excited about the new drugs, even though my numbers suck. I'm around 38 - 40 percent. But I think this new one will help even though they are being lame and asking for only 75+ numbers.

 

[Brad]

First let me say,the reason they require a Fev1 of 75% or better is
that it would be easier to treat a paitant who got a pnunmonia
with a higher fev1, rather than one with a fev1 of say 40 to 55%.

I understand that many of you ( me inclueded )
have fev1s lower than 75% and feel left out
or have hurt feelings, But it four OUR own good.

I have been involved in many trials, but not this one.
I am glad that those folks with higher fev1s are willing
to take this chance for all of Us.

I was in the Pulmazine trials years ago, at that time I saw
little or no difference.But today it works great for me.

Now I want to say I am Shocked at all the Pissing
and Moaning I have seen here.

I do my Nebs at Work, I can't believe I am the only
one who can do so.

I would think anyone with CF would be very happy
about a treatment that improves Our Lives...

I have a Life too and I Live it Everyday.
But I will be Happy to Add Denufosol to my
daily Nebs.I think I can work it in.....

So now everybody get all pissy and blast me
with nasty replies...

Just stop Whinning!!!!!










Sadly, Brad doesn't realise the can of worms he has reopened.

<a target=_blank class=ftalternatingbarlinklarge href="http://blogs.cysticfibrosis.com/blogpost.cfm?threadid=33934&catid=2317#comments">Blog</a>

 

[Brad]

First let me say,the reason they require a Fev1 of 75% or better is
that it would be easier to treat a paitant who got a pnunmonia
with a higher fev1, rather than one with a fev1 of say 40 to 55%.

I understand that many of you ( me inclueded )
have fev1s lower than 75% and feel left out
or have hurt feelings, But it four OUR own good.

I have been involved in many trials, but not this one.
I am glad that those folks with higher fev1s are willing
to take this chance for all of Us.

I was in the Pulmazine trials years ago, at that time I saw
little or no difference.But today it works great for me.

Now I want to say I am Shocked at all the Pissing
and Moaning I have seen here.

I do my Nebs at Work, I can't believe I am the only
one who can do so.

I would think anyone with CF would be very happy
about a treatment that improves Our Lives...

I have a Life too and I Live it Everyday.
But I will be Happy to Add Denufosol to my
daily Nebs.I think I can work it in.....

So now everybody get all pissy and blast me
with nasty replies...

Just stop Whinning!!!!!










Sadly, Brad doesn't realise the can of worms he has reopened.

<a target=_blank class=ftalternatingbarlinklarge href="http://blogs.cysticfibrosis.com/blogpost.cfm?threadid=33934&catid=2317#comments">Blog</a>

 

[Brad]

First let me say,the reason they require a Fev1 of 75% or better is
that it would be easier to treat a paitant who got a pnunmonia
with a higher fev1, rather than one with a fev1 of say 40 to 55%.

I understand that many of you ( me inclueded )
have fev1s lower than 75% and feel left out
or have hurt feelings, But it four OUR own good.

I have been involved in many trials, but not this one.
I am glad that those folks with higher fev1s are willing
to take this chance for all of Us.

I was in the Pulmazine trials years ago, at that time I saw
little or no difference.But today it works great for me.

Now I want to say I am Shocked at all the Pissing
and Moaning I have seen here.

I do my Nebs at Work, I can't believe I am the only
one who can do so.

I would think anyone with CF would be very happy
about a treatment that improves Our Lives...

I have a Life too and I Live it Everyday.
But I will be Happy to Add Denufosol to my
daily Nebs.I think I can work it in.....

So now everybody get all pissy and blast me
with nasty replies...

Just stop Whinning!!!!!










Sadly, Brad doesn't realise the can of worms he has reopened.

<a target=_blank class=ftalternatingbarlinklarge href="http://blogs.cysticfibrosis.com/blogpost.cfm?threadid=33934&catid=2317#comments">Blog</a>

 

[Brad]

First let me say,the reason they require a Fev1 of 75% or better is
that it would be easier to treat a paitant who got a pnunmonia
with a higher fev1, rather than one with a fev1 of say 40 to 55%.

I understand that many of you ( me inclueded )
have fev1s lower than 75% and feel left out
or have hurt feelings, But it four OUR own good.

I have been involved in many trials, but not this one.
I am glad that those folks with higher fev1s are willing
to take this chance for all of Us.

I was in the Pulmazine trials years ago, at that time I saw
little or no difference.But today it works great for me.

Now I want to say I am Shocked at all the Pissing
and Moaning I have seen here.

I do my Nebs at Work, I can't believe I am the only
one who can do so.

I would think anyone with CF would be very happy
about a treatment that improves Our Lives...

I have a Life too and I Live it Everyday.
But I will be Happy to Add Denufosol to my
daily Nebs.I think I can work it in.....

So now everybody get all pissy and blast me
with nasty replies...

Just stop Whinning!!!!!










Sadly, Brad doesn't realise the can of worms he has reopened.

<a target=_blank class=ftalternatingbarlinklarge href="http://blogs.cysticfibrosis.com/blogpost.cfm?threadid=33934&catid=2317#comments">Blog</a>

 

[Brad]

<br />
<br />
<br />
<br />
<br />
<br />
<br />First let me say,the reason they require a Fev1 of 75% or better is
<br />that it would be easier to treat a paitant who got a pnunmonia
<br />with a higher fev1, rather than one with a fev1 of say 40 to 55%.
<br />
<br />I understand that many of you ( me inclueded )
<br />have fev1s lower than 75% and feel left out
<br />or have hurt feelings, But it four OUR own good.
<br />
<br />I have been involved in many trials, but not this one.
<br />I am glad that those folks with higher fev1s are willing
<br />to take this chance for all of Us.
<br />
<br />I was in the Pulmazine trials years ago, at that time I saw
<br />little or no difference.But today it works great for me.
<br />
<br />Now I want to say I am Shocked at all the Pissing
<br />and Moaning I have seen here.
<br />
<br />I do my Nebs at Work, I can't believe I am the only
<br />one who can do so.
<br />
<br />I would think anyone with CF would be very happy
<br />about a treatment that improves Our Lives...
<br />
<br /> I have a Life too and I Live it Everyday.
<br /> But I will be Happy to Add Denufosol to my
<br /> daily Nebs.I think I can work it in.....
<br />
<br />So now everybody get all pissy and blast me
<br />with nasty replies...
<br />
<br /> Just stop Whinning!!!!!
<br />
<br />
<br />
<br />
<br />
<br />
<br />
<br />
<br />
<br />
<br />Sadly, Brad doesn't realise the can of worms he has reopened.

<a target=_blank class=ftalternatingbarlinklarge href="http://blogs.cysticfibrosis.com/blogpost.cfm?threadid=33934&catid=2317#comments">Blog</a>
<br />
<br />
<br />
<br />
<br />
<br />
<br />
<br />

 

[jamie6girl]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Brad</b></i>

First let me say,the reason they require a Fev1 of 75% or better is

that it would be easier to treat a paitant who got a pnunmonia

with a higher fev1, rather than one with a fev1 of say 40 to 55%.



I understand that many of you ( me inclueded )

have fev1s lower than 75% and feel left out

or have hurt feelings, But it four OUR own good.



I have been involved in many trials, but not this one.

I am glad that those folks with higher fev1s are willing

to take this chance for all of Us.



I was in the Pulmazine trials years ago, at that time I saw

little or no difference.But today it works great for me.



Now I want to say I am Shocked at all the Pissing

and Moaning I have seen here.



I do my Nebs at Work, I can't believe I am the only

one who can do so.



I would think anyone with CF would be very happy

about a treatment that improves Our Lives...



I have a Life too and I Live it Everyday.

But I will be Happy to Add Denufosol to my

daily Nebs.I think I can work it in.....



So now everybody get all pissy and blast me

with nasty replies...



Just stop Whinning!!!!!





















Sadly, Brad doesn't realise the can of worms he has reopened.

<a target=_blank class=ftalternatingbarlinklarge href="http://blogs.cysticfibrosis.com/blogpost.cfm?threadid=33934&catid=2317#comments">Blog</a></end quote></div><br><br>


Personally, I think people are just overwhelmed. It's hard keeping up with work, treatments, exercise, and having time to do other things. Even though I'm sure many folks are grateful that a new med is coming out, at the same time it is hard to to comprehend sometimes how you are going to fit something ELSE into your schedule. If people can't vent here, then where the hell else CAN they vent?

 

[jamie6girl]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Brad</b></i>

First let me say,the reason they require a Fev1 of 75% or better is

that it would be easier to treat a paitant who got a pnunmonia

with a higher fev1, rather than one with a fev1 of say 40 to 55%.



I understand that many of you ( me inclueded )

have fev1s lower than 75% and feel left out

or have hurt feelings, But it four OUR own good.



I have been involved in many trials, but not this one.

I am glad that those folks with higher fev1s are willing

to take this chance for all of Us.



I was in the Pulmazine trials years ago, at that time I saw

little or no difference.But today it works great for me.



Now I want to say I am Shocked at all the Pissing

and Moaning I have seen here.



I do my Nebs at Work, I can't believe I am the only

one who can do so.



I would think anyone with CF would be very happy

about a treatment that improves Our Lives...



I have a Life too and I Live it Everyday.

But I will be Happy to Add Denufosol to my

daily Nebs.I think I can work it in.....



So now everybody get all pissy and blast me

with nasty replies...



Just stop Whinning!!!!!





















Sadly, Brad doesn't realise the can of worms he has reopened.

<a target=_blank class=ftalternatingbarlinklarge href="http://blogs.cysticfibrosis.com/blogpost.cfm?threadid=33934&catid=2317#comments">Blog</a></end quote></div><br><br>


Personally, I think people are just overwhelmed. It's hard keeping up with work, treatments, exercise, and having time to do other things. Even though I'm sure many folks are grateful that a new med is coming out, at the same time it is hard to to comprehend sometimes how you are going to fit something ELSE into your schedule. If people can't vent here, then where the hell else CAN they vent?

 

[jamie6girl]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Brad</b></i>

First let me say,the reason they require a Fev1 of 75% or better is

that it would be easier to treat a paitant who got a pnunmonia

with a higher fev1, rather than one with a fev1 of say 40 to 55%.



I understand that many of you ( me inclueded )

have fev1s lower than 75% and feel left out

or have hurt feelings, But it four OUR own good.



I have been involved in many trials, but not this one.

I am glad that those folks with higher fev1s are willing

to take this chance for all of Us.



I was in the Pulmazine trials years ago, at that time I saw

little or no difference.But today it works great for me.



Now I want to say I am Shocked at all the Pissing

and Moaning I have seen here.



I do my Nebs at Work, I can't believe I am the only

one who can do so.



I would think anyone with CF would be very happy

about a treatment that improves Our Lives...



I have a Life too and I Live it Everyday.

But I will be Happy to Add Denufosol to my

daily Nebs.I think I can work it in.....



So now everybody get all pissy and blast me

with nasty replies...



Just stop Whinning!!!!!





















Sadly, Brad doesn't realise the can of worms he has reopened.

<a target=_blank class=ftalternatingbarlinklarge href="http://blogs.cysticfibrosis.com/blogpost.cfm?threadid=33934&catid=2317#comments">Blog</a></end quote></div><br><br>


Personally, I think people are just overwhelmed. It's hard keeping up with work, treatments, exercise, and having time to do other things. Even though I'm sure many folks are grateful that a new med is coming out, at the same time it is hard to to comprehend sometimes how you are going to fit something ELSE into your schedule. If people can't vent here, then where the hell else CAN they vent?

 

[jamie6girl]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Brad</b></i>

First let me say,the reason they require a Fev1 of 75% or better is

that it would be easier to treat a paitant who got a pnunmonia

with a higher fev1, rather than one with a fev1 of say 40 to 55%.



I understand that many of you ( me inclueded )

have fev1s lower than 75% and feel left out

or have hurt feelings, But it four OUR own good.



I have been involved in many trials, but not this one.

I am glad that those folks with higher fev1s are willing

to take this chance for all of Us.



I was in the Pulmazine trials years ago, at that time I saw

little or no difference.But today it works great for me.



Now I want to say I am Shocked at all the Pissing

and Moaning I have seen here.



I do my Nebs at Work, I can't believe I am the only

one who can do so.



I would think anyone with CF would be very happy

about a treatment that improves Our Lives...



I have a Life too and I Live it Everyday.

But I will be Happy to Add Denufosol to my

daily Nebs.I think I can work it in.....



So now everybody get all pissy and blast me

with nasty replies...



Just stop Whinning!!!!!





















Sadly, Brad doesn't realise the can of worms he has reopened.

<a target=_blank class=ftalternatingbarlinklarge href="http://blogs.cysticfibrosis.com/blogpost.cfm?threadid=33934&catid=2317#comments">Blog</a></end quote><br><br>


Personally, I think people are just overwhelmed. It's hard keeping up with work, treatments, exercise, and having time to do other things. Even though I'm sure many folks are grateful that a new med is coming out, at the same time it is hard to to comprehend sometimes how you are going to fit something ELSE into your schedule. If people can't vent here, then where the hell else CAN they vent?

 

[jamie6girl]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Brad</b></i>

First let me say,the reason they require a Fev1 of 75% or better is

that it would be easier to treat a paitant who got a pnunmonia

with a higher fev1, rather than one with a fev1 of say 40 to 55%.



I understand that many of you ( me inclueded )

have fev1s lower than 75% and feel left out

or have hurt feelings, But it four OUR own good.



I have been involved in many trials, but not this one.

I am glad that those folks with higher fev1s are willing

to take this chance for all of Us.



I was in the Pulmazine trials years ago, at that time I saw

little or no difference.But today it works great for me.



Now I want to say I am Shocked at all the Pissing

and Moaning I have seen here.



I do my Nebs at Work, I can't believe I am the only

one who can do so.



I would think anyone with CF would be very happy

about a treatment that improves Our Lives...



I have a Life too and I Live it Everyday.

But I will be Happy to Add Denufosol to my

daily Nebs.I think I can work it in.....



So now everybody get all pissy and blast me

with nasty replies...



Just stop Whinning!!!!!





















Sadly, Brad doesn't realise the can of worms he has reopened.

<a target=_blank class=ftalternatingbarlinklarge href="http://blogs.cysticfibrosis.com/blogpost.cfm?threadid=33934&catid=2317#comments">Blog</a></end quote><br><br>


Personally, I think people are just overwhelmed. It's hard keeping up with work, treatments, exercise, and having time to do other things. Even though I'm sure many folks are grateful that a new med is coming out, at the same time it is hard to to comprehend sometimes how you are going to fit something ELSE into your schedule. If people can't vent here, then where the hell else CAN they vent?