Diabetes or CFRD

L

lightNlife

New member
Here's an article about what's involved in the Oral Glucose Tolerance Test.

<a target=_blank class=ftalternatingbarlinklarge href="http://understandingcysticfibrosis.blogspot.com/2007/06/diabetes-screening.html">Diabetes Screening</a>

When you mention that your doctor thinks it's diabetes, are you talking about a CF specialist, or just your basic doc? I had a lot of trouble communicating to one of my past doctors that I was not diabetic, even though I needed insulin when being on prednisone. They sent me to "diabetes school" where they forced me to count carbs, and so forth. I knew what they were saying was completely wrong for CFRD, even a transient case of steroid induced CFRD like mine, so I stopped going.

Also, the only needle you need to worry about is a finger stick for the OGTT, and possibly a blood draw if your doc says you need a <a target=_blank class=ftalternatingbarlinklarge href="http://understandingcysticfibrosis.blogspot.com/2007/07/blood-draws-hemoglobin-a1c.html">Hemoglobin A1c test done. </a> This is probably the "big needle" situation that Jazzy's Mom and others were talking about. It's another measure of the amount of sugar in the blood.

If you are diagnosed with CFRD, the needles used to administer insulin are VERY small. Honestly, I can't even feel them unless I do something stupid like try to reuse it.

Worrying about what might be going on with your sugars may be far more frustrating and exhausting than simply having the OGTT done and finding out once and for all what is going on.

Best wishes. I hope it goes well for you.
 
L

lightNlife

New member
Here's an article about what's involved in the Oral Glucose Tolerance Test.

<a target=_blank class=ftalternatingbarlinklarge href="http://understandingcysticfibrosis.blogspot.com/2007/06/diabetes-screening.html">Diabetes Screening</a>

When you mention that your doctor thinks it's diabetes, are you talking about a CF specialist, or just your basic doc? I had a lot of trouble communicating to one of my past doctors that I was not diabetic, even though I needed insulin when being on prednisone. They sent me to "diabetes school" where they forced me to count carbs, and so forth. I knew what they were saying was completely wrong for CFRD, even a transient case of steroid induced CFRD like mine, so I stopped going.

Also, the only needle you need to worry about is a finger stick for the OGTT, and possibly a blood draw if your doc says you need a <a target=_blank class=ftalternatingbarlinklarge href="http://understandingcysticfibrosis.blogspot.com/2007/07/blood-draws-hemoglobin-a1c.html">Hemoglobin A1c test done. </a> This is probably the "big needle" situation that Jazzy's Mom and others were talking about. It's another measure of the amount of sugar in the blood.

If you are diagnosed with CFRD, the needles used to administer insulin are VERY small. Honestly, I can't even feel them unless I do something stupid like try to reuse it.

Worrying about what might be going on with your sugars may be far more frustrating and exhausting than simply having the OGTT done and finding out once and for all what is going on.

Best wishes. I hope it goes well for you.
 
L

lightNlife

New member
Here's an article about what's involved in the Oral Glucose Tolerance Test.

<a target=_blank class=ftalternatingbarlinklarge href="http://understandingcysticfibrosis.blogspot.com/2007/06/diabetes-screening.html">Diabetes Screening</a>

When you mention that your doctor thinks it's diabetes, are you talking about a CF specialist, or just your basic doc? I had a lot of trouble communicating to one of my past doctors that I was not diabetic, even though I needed insulin when being on prednisone. They sent me to "diabetes school" where they forced me to count carbs, and so forth. I knew what they were saying was completely wrong for CFRD, even a transient case of steroid induced CFRD like mine, so I stopped going.

Also, the only needle you need to worry about is a finger stick for the OGTT, and possibly a blood draw if your doc says you need a <a target=_blank class=ftalternatingbarlinklarge href="http://understandingcysticfibrosis.blogspot.com/2007/07/blood-draws-hemoglobin-a1c.html">Hemoglobin A1c test done. </a> This is probably the "big needle" situation that Jazzy's Mom and others were talking about. It's another measure of the amount of sugar in the blood.

If you are diagnosed with CFRD, the needles used to administer insulin are VERY small. Honestly, I can't even feel them unless I do something stupid like try to reuse it.

Worrying about what might be going on with your sugars may be far more frustrating and exhausting than simply having the OGTT done and finding out once and for all what is going on.

Best wishes. I hope it goes well for you.
 
L

lightNlife

New member
Here's an article about what's involved in the Oral Glucose Tolerance Test.

<a target=_blank class=ftalternatingbarlinklarge href="http://understandingcysticfibrosis.blogspot.com/2007/06/diabetes-screening.html">Diabetes Screening</a>

When you mention that your doctor thinks it's diabetes, are you talking about a CF specialist, or just your basic doc? I had a lot of trouble communicating to one of my past doctors that I was not diabetic, even though I needed insulin when being on prednisone. They sent me to "diabetes school" where they forced me to count carbs, and so forth. I knew what they were saying was completely wrong for CFRD, even a transient case of steroid induced CFRD like mine, so I stopped going.

Also, the only needle you need to worry about is a finger stick for the OGTT, and possibly a blood draw if your doc says you need a <a target=_blank class=ftalternatingbarlinklarge href="http://understandingcysticfibrosis.blogspot.com/2007/07/blood-draws-hemoglobin-a1c.html">Hemoglobin A1c test done. </a> This is probably the "big needle" situation that Jazzy's Mom and others were talking about. It's another measure of the amount of sugar in the blood.

If you are diagnosed with CFRD, the needles used to administer insulin are VERY small. Honestly, I can't even feel them unless I do something stupid like try to reuse it.

Worrying about what might be going on with your sugars may be far more frustrating and exhausting than simply having the OGTT done and finding out once and for all what is going on.

Best wishes. I hope it goes well for you.
 
C

coltsfan715

New member
Allisa,

If your highs are only happening at a certain time period during the day it may be a hormone related issue. I was having problems last summer where my blood sugar just sarted staying high after breakfast. I was already diagnosed with CFRD at the time - but my diet had not changed and I was having to give about twice as much insulin as I had in the past to bring my blood sugar into a normal range. I am actually still at a point where my blood sugars in the AM are higher than the PM (now it is because I am taking prednisone in the AM and not the PM for transplant related stuff).

Anyhow - my endocrinologist told me that often times our bodies will release hormones at certain times of the day. The hormones can cause your blood sugar to increase at those times.

Also I would have the doc get a Hemoglobin A1C test - I never had a GTT, but was diagnosed with CFRD due to all the symptoms I had, my non-fasting and fasting blood sugars and HemoglboinA1C.

For blood sugars I was told by my endocrinologist that a fasting sugar over 100 is indicative of diabetes or that you are at risk for diabetes.
2 hours after eating if you have a sugar of 200+ then you are diabetic.

HemoglobinA1C - I was told that they tell people they have diabetes if their HemoglobinA1C level is over 7.0. Normal range for a NONdiabetic should be roughly 6.0 or something close to that. At least that information was according to my doc a few years ago.

Hope that helps.

Take Care,
Lindsey
 
C

coltsfan715

New member
Allisa,

If your highs are only happening at a certain time period during the day it may be a hormone related issue. I was having problems last summer where my blood sugar just sarted staying high after breakfast. I was already diagnosed with CFRD at the time - but my diet had not changed and I was having to give about twice as much insulin as I had in the past to bring my blood sugar into a normal range. I am actually still at a point where my blood sugars in the AM are higher than the PM (now it is because I am taking prednisone in the AM and not the PM for transplant related stuff).

Anyhow - my endocrinologist told me that often times our bodies will release hormones at certain times of the day. The hormones can cause your blood sugar to increase at those times.

Also I would have the doc get a Hemoglobin A1C test - I never had a GTT, but was diagnosed with CFRD due to all the symptoms I had, my non-fasting and fasting blood sugars and HemoglboinA1C.

For blood sugars I was told by my endocrinologist that a fasting sugar over 100 is indicative of diabetes or that you are at risk for diabetes.
2 hours after eating if you have a sugar of 200+ then you are diabetic.

HemoglobinA1C - I was told that they tell people they have diabetes if their HemoglobinA1C level is over 7.0. Normal range for a NONdiabetic should be roughly 6.0 or something close to that. At least that information was according to my doc a few years ago.

Hope that helps.

Take Care,
Lindsey
 
C

coltsfan715

New member
Allisa,

If your highs are only happening at a certain time period during the day it may be a hormone related issue. I was having problems last summer where my blood sugar just sarted staying high after breakfast. I was already diagnosed with CFRD at the time - but my diet had not changed and I was having to give about twice as much insulin as I had in the past to bring my blood sugar into a normal range. I am actually still at a point where my blood sugars in the AM are higher than the PM (now it is because I am taking prednisone in the AM and not the PM for transplant related stuff).

Anyhow - my endocrinologist told me that often times our bodies will release hormones at certain times of the day. The hormones can cause your blood sugar to increase at those times.

Also I would have the doc get a Hemoglobin A1C test - I never had a GTT, but was diagnosed with CFRD due to all the symptoms I had, my non-fasting and fasting blood sugars and HemoglboinA1C.

For blood sugars I was told by my endocrinologist that a fasting sugar over 100 is indicative of diabetes or that you are at risk for diabetes.
2 hours after eating if you have a sugar of 200+ then you are diabetic.

HemoglobinA1C - I was told that they tell people they have diabetes if their HemoglobinA1C level is over 7.0. Normal range for a NONdiabetic should be roughly 6.0 or something close to that. At least that information was according to my doc a few years ago.

Hope that helps.

Take Care,
Lindsey
 
C

coltsfan715

New member
Allisa,

If your highs are only happening at a certain time period during the day it may be a hormone related issue. I was having problems last summer where my blood sugar just sarted staying high after breakfast. I was already diagnosed with CFRD at the time - but my diet had not changed and I was having to give about twice as much insulin as I had in the past to bring my blood sugar into a normal range. I am actually still at a point where my blood sugars in the AM are higher than the PM (now it is because I am taking prednisone in the AM and not the PM for transplant related stuff).

Anyhow - my endocrinologist told me that often times our bodies will release hormones at certain times of the day. The hormones can cause your blood sugar to increase at those times.

Also I would have the doc get a Hemoglobin A1C test - I never had a GTT, but was diagnosed with CFRD due to all the symptoms I had, my non-fasting and fasting blood sugars and HemoglboinA1C.

For blood sugars I was told by my endocrinologist that a fasting sugar over 100 is indicative of diabetes or that you are at risk for diabetes.
2 hours after eating if you have a sugar of 200+ then you are diabetic.

HemoglobinA1C - I was told that they tell people they have diabetes if their HemoglobinA1C level is over 7.0. Normal range for a NONdiabetic should be roughly 6.0 or something close to that. At least that information was according to my doc a few years ago.

Hope that helps.

Take Care,
Lindsey
 
C

coltsfan715

New member
Allisa,

If your highs are only happening at a certain time period during the day it may be a hormone related issue. I was having problems last summer where my blood sugar just sarted staying high after breakfast. I was already diagnosed with CFRD at the time - but my diet had not changed and I was having to give about twice as much insulin as I had in the past to bring my blood sugar into a normal range. I am actually still at a point where my blood sugars in the AM are higher than the PM (now it is because I am taking prednisone in the AM and not the PM for transplant related stuff).

Anyhow - my endocrinologist told me that often times our bodies will release hormones at certain times of the day. The hormones can cause your blood sugar to increase at those times.

Also I would have the doc get a Hemoglobin A1C test - I never had a GTT, but was diagnosed with CFRD due to all the symptoms I had, my non-fasting and fasting blood sugars and HemoglboinA1C.

For blood sugars I was told by my endocrinologist that a fasting sugar over 100 is indicative of diabetes or that you are at risk for diabetes.
2 hours after eating if you have a sugar of 200+ then you are diabetic.

HemoglobinA1C - I was told that they tell people they have diabetes if their HemoglobinA1C level is over 7.0. Normal range for a NONdiabetic should be roughly 6.0 or something close to that. At least that information was according to my doc a few years ago.

Hope that helps.

Take Care,
Lindsey
 
C

coltsfan715

New member
Allisa,

If your highs are only happening at a certain time period during the day it may be a hormone related issue. I was having problems last summer where my blood sugar just sarted staying high after breakfast. I was already diagnosed with CFRD at the time - but my diet had not changed and I was having to give about twice as much insulin as I had in the past to bring my blood sugar into a normal range. I am actually still at a point where my blood sugars in the AM are higher than the PM (now it is because I am taking prednisone in the AM and not the PM for transplant related stuff).

Anyhow - my endocrinologist told me that often times our bodies will release hormones at certain times of the day. The hormones can cause your blood sugar to increase at those times.

Also I would have the doc get a Hemoglobin A1C test - I never had a GTT, but was diagnosed with CFRD due to all the symptoms I had, my non-fasting and fasting blood sugars and HemoglboinA1C.

For blood sugars I was told by my endocrinologist that a fasting sugar over 100 is indicative of diabetes or that you are at risk for diabetes.
2 hours after eating if you have a sugar of 200+ then you are diabetic.

HemoglobinA1C - I was told that they tell people they have diabetes if their HemoglobinA1C level is over 7.0. Normal range for a NONdiabetic should be roughly 6.0 or something close to that. At least that information was according to my doc a few years ago.

Hope that helps.

Take Care,
Lindsey
 
K

ktsmom

New member
I found this publication from cff.org extremely informative and easy to understand (I was researching CFRD w/o Fasting Hyperglycemia):

<a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/UploadedFiles/LivingWithCF/StayingHealthy/Diet/Diabetes/CFRD%20Manual.pdf
">http://www.cff.org/UploadedFil...tes/CFRD%20Manual.pdf
</a>
Good luck - I hope you find your answers.
 
K

ktsmom

New member
I found this publication from cff.org extremely informative and easy to understand (I was researching CFRD w/o Fasting Hyperglycemia):

<a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/UploadedFiles/LivingWithCF/StayingHealthy/Diet/Diabetes/CFRD%20Manual.pdf
">http://www.cff.org/UploadedFil...tes/CFRD%20Manual.pdf
</a>
Good luck - I hope you find your answers.
 
K

ktsmom

New member
I found this publication from cff.org extremely informative and easy to understand (I was researching CFRD w/o Fasting Hyperglycemia):

<a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/UploadedFiles/LivingWithCF/StayingHealthy/Diet/Diabetes/CFRD%20Manual.pdf
">http://www.cff.org/UploadedFil...tes/CFRD%20Manual.pdf
</a>
Good luck - I hope you find your answers.
 
K

ktsmom

New member
I found this publication from cff.org extremely informative and easy to understand (I was researching CFRD w/o Fasting Hyperglycemia):

<a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/UploadedFiles/LivingWithCF/StayingHealthy/Diet/Diabetes/CFRD%20Manual.pdf
">http://www.cff.org/UploadedFil...tes/CFRD%20Manual.pdf
</a>
Good luck - I hope you find your answers.
 
K

ktsmom

New member
I found this publication from cff.org extremely informative and easy to understand (I was researching CFRD w/o Fasting Hyperglycemia):

<a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/UploadedFiles/LivingWithCF/StayingHealthy/Diet/Diabetes/CFRD%20Manual.pdf
">http://www.cff.org/UploadedFil...tes/CFRD%20Manual.pdf
</a>
Good luck - I hope you find your answers.
 
K

ktsmom

New member
I found this publication from cff.org extremely informative and easy to understand (I was researching CFRD w/o Fasting Hyperglycemia):

<a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/UploadedFiles/LivingWithCF/StayingHealthy/Diet/Diabetes/CFRD%20Manual.pdf
">http://www.cff.org/UploadedFil...tes/CFRD%20Manual.pdf
</a>
Good luck - I hope you find your answers.
 
A

Allisa35

Member
Thanks everybody for your replies. Sorry I am just now responding, but it's been a bad day (my sister had surgery today and it was a bit scary there for a bit, but I think she is fine now). I haven't had a chance yet to read the articles, but I will.

Sorry if I confused anyone about the GTT. My doctor wants me to have the test done where they draw blood from your arm first, then drink something, then they draw blood again at the 2 hour mark. I might have to go ahead and schedule it.

I wanted also to respond to Lindsey. I did have a A1C Hemaglobin done shortly after all of this came to be (in October 2004). My A1C was within normal range at 5.9. This is also another reason why I am confused. Also, I have never had a blood sugar level here at home over 200 at the 2 hour mark (I think except for one time). It is always high at his office, which makes me suspect his machine doesn't work properly, but I don't know.

Also, the dr. I'm referring to is my primary care physcian, but he is very familiar with the CF and I think he had even mentioned at one time that it would be a different form of diabetes (referred to the CFRD).

Thanks again for your responses, and I will try to catch up on reading the articles.
 
A

Allisa35

Member
Thanks everybody for your replies. Sorry I am just now responding, but it's been a bad day (my sister had surgery today and it was a bit scary there for a bit, but I think she is fine now). I haven't had a chance yet to read the articles, but I will.

Sorry if I confused anyone about the GTT. My doctor wants me to have the test done where they draw blood from your arm first, then drink something, then they draw blood again at the 2 hour mark. I might have to go ahead and schedule it.

I wanted also to respond to Lindsey. I did have a A1C Hemaglobin done shortly after all of this came to be (in October 2004). My A1C was within normal range at 5.9. This is also another reason why I am confused. Also, I have never had a blood sugar level here at home over 200 at the 2 hour mark (I think except for one time). It is always high at his office, which makes me suspect his machine doesn't work properly, but I don't know.

Also, the dr. I'm referring to is my primary care physcian, but he is very familiar with the CF and I think he had even mentioned at one time that it would be a different form of diabetes (referred to the CFRD).

Thanks again for your responses, and I will try to catch up on reading the articles.
 
A

Allisa35

Member
Thanks everybody for your replies. Sorry I am just now responding, but it's been a bad day (my sister had surgery today and it was a bit scary there for a bit, but I think she is fine now). I haven't had a chance yet to read the articles, but I will.

Sorry if I confused anyone about the GTT. My doctor wants me to have the test done where they draw blood from your arm first, then drink something, then they draw blood again at the 2 hour mark. I might have to go ahead and schedule it.

I wanted also to respond to Lindsey. I did have a A1C Hemaglobin done shortly after all of this came to be (in October 2004). My A1C was within normal range at 5.9. This is also another reason why I am confused. Also, I have never had a blood sugar level here at home over 200 at the 2 hour mark (I think except for one time). It is always high at his office, which makes me suspect his machine doesn't work properly, but I don't know.

Also, the dr. I'm referring to is my primary care physcian, but he is very familiar with the CF and I think he had even mentioned at one time that it would be a different form of diabetes (referred to the CFRD).

Thanks again for your responses, and I will try to catch up on reading the articles.
 
A

Allisa35

Member
Thanks everybody for your replies. Sorry I am just now responding, but it's been a bad day (my sister had surgery today and it was a bit scary there for a bit, but I think she is fine now). I haven't had a chance yet to read the articles, but I will.

Sorry if I confused anyone about the GTT. My doctor wants me to have the test done where they draw blood from your arm first, then drink something, then they draw blood again at the 2 hour mark. I might have to go ahead and schedule it.

I wanted also to respond to Lindsey. I did have a A1C Hemaglobin done shortly after all of this came to be (in October 2004). My A1C was within normal range at 5.9. This is also another reason why I am confused. Also, I have never had a blood sugar level here at home over 200 at the 2 hour mark (I think except for one time). It is always high at his office, which makes me suspect his machine doesn't work properly, but I don't know.

Also, the dr. I'm referring to is my primary care physcian, but he is very familiar with the CF and I think he had even mentioned at one time that it would be a different form of diabetes (referred to the CFRD).

Thanks again for your responses, and I will try to catch up on reading the articles.
 
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