<div style="background-color: transparent; margin-top: 0px; margin-left: 0px; margin-bottom: 0px; margin-right: 0px; border-collapse: separate; color: rgb(0, 0, 0); font-family: Times; font-size: medium; "><span id="internal-source-marker_0.34818829968571663" style="font-size: 11pt; font-family: Arial; color: rgb(0, 0, 0); background-color: transparent; font-weight: normal; font-style: normal; text-decoration: none; vertical-align: baseline; white-space: pre-wrap; ">Recently at a visit for a new drug study, I was filling out the routine questionnaire that sponsoring drug company has all participants fill out. Normally, I am a quick read, and I fly through such questionnaires. They are all monotonous, they ask the same thing in three different ways and thankfully, my health for the most part has been stable for the last 10+ years. This time, the question made me pause, I smiled a bit... a smug kind of smile. I didn't expect to have this reaction at all. I continued on with the study visit.<br><span style="font-size: 11pt; font-family: Arial; color: rgb(0, 0, 0); background-color: transparent; font-weight: normal; font-style: normal; text-decoration: none; vertical-align: baseline; white-space: pre-wrap; "><br><span style="font-size: 11pt; font-family: Arial; color: rgb(0, 0, 0); background-color: transparent; font-weight: normal; font-style: normal; text-decoration: none; vertical-align: baseline; white-space: pre-wrap; ">On the car ride home, I was really bothered by my reaction. Why was I so condescending to a question on a piece of paper? It dawned on me that it was the simplicity of such a question, which cannot be answered with a check-box. It's a question which I dare say, cannot even be asked. <br><span style="font-size: 11pt; font-family: Arial; color: rgb(0, 0, 0); background-color: transparent; font-weight: normal; font-style: normal; text-decoration: none; vertical-align: baseline; white-space: pre-wrap; "><br><span style="font-size: 11pt; font-family: Arial; color: rgb(0, 0, 0); background-color: transparent; font-weight: normal; font-style: normal; text-decoration: none; vertical-align: baseline; white-space: pre-wrap; ">Allow me to tangent for a second and make one thing blatantly clear: The amount of respect and admiration I have for everyone in the medical field cannot be underscored enough. These are the people I am depending on to find a cure for my disease. These are the people whom take care of us when we are ill.<br><span style="font-size: 11pt; font-family: Arial; color: rgb(0, 0, 0); background-color: transparent; font-weight: normal; font-style: normal; text-decoration: none; vertical-align: baseline; white-space: pre-wrap; "><br><span style="font-size: 11pt; font-family: Arial; color: rgb(0, 0, 0); background-color: transparent; font-weight: normal; font-style: normal; text-decoration: none; vertical-align: baseline; white-space: pre-wrap; ">Normal. Is living to 100 years old normal? Is not having to take any medication normal? What is a normal height? Weight? Is there a normal attitude? I suppose there are always ends of a spectrum; someone can be extremely energetic, or not have enough energy to get out of bed. Does that mean someone who has energy to walk is normal, but someone who can run is not? Insensitive or over-sensitive? You get the point.<br><span style="font-size: 11pt; font-family: Arial; color: rgb(0, 0, 0); background-color: transparent; font-weight: normal; font-style: normal; text-decoration: none; vertical-align: baseline; white-space: pre-wrap; "><br><span style="font-size: 11pt; font-family: Arial; color: rgb(0, 0, 0); background-color: transparent; font-weight: normal; font-style: normal; text-decoration: none; vertical-align: baseline; white-space: pre-wrap; ">So yes, I lead a normal life. It is not the same as my neighbors, or my best friend who lives with me, or my other best friend who passed away from cancer at age 27. It is different, but normal. I take medication daily. I do treatments, I've been hospitalized, I run, I work, I get the flu once in a while, I have cystic fibrosis. I have a family which sometimes drives me insane. I watch sports, I have a favorite food. I can't eat all foods. I read, I laugh, I cry and I think about my problems every day. I enjoy life, I don't take it for granted. <br><span style="font-size: 11pt; font-family: Arial; color: rgb(0, 0, 0); background-color: transparent; font-weight: normal; font-style: normal; text-decoration: none; vertical-align: baseline; white-space: pre-wrap; "><br><span style="font-size: 11pt; font-family: Arial; color: rgb(0, 0, 0); background-color: transparent; font-weight: normal; font-style: normal; text-decoration: none; vertical-align: baseline; white-space: pre-wrap; ">Yes, I lead a normal life. <img src="i/expressions/face-icon-small-smile.gif" border="0"></div>