coltsfan715
New member
Yes I had a catheter for maybe 5 days post surgery - I had the catheter until I had the epiduryl taken out and I had that until I had the chest tubes removed.
I will be honest and say the worst my pain got on a scale of 1-10 was ..... maybe a 20. For me that lasted one day (2 days post transplant) and it was because they had changed my pain meds and the new med just wasn't effective for me.
Overall the pain wasn't bad it was just a nagging thing for a few weeks/months.
As for transplant not being worth it because of rejection, infection, stents and what have you. I haven't had any of those and honestly I was prepared for all of those going into it. I prepared myself for the worst and have honestly had probably one of the best recoveries thus far. I would have another transplant if it was needed but that is me.
I think what it boils down to is what it is worth to you. when I was 20 I probably would have chosen against transplant because I was at that time okay with leaving the world. It would suck for my parents but honestly I was okay with leaving. When I became sick enough to need it I had found my fiance and had things I wanted to pursue in life. I wasn't ready at that point to just say ado. So it didn't really matter to me all the gnarly details of what may happen I was going to give it a shot regardless because I wasn't okay with just dying at the time.
If it is something you want to do if you still have things you want to pursue then honestly all the other stuff won't really matter to you. At least that is how I felt. It took me a long time to become okay with transplant - years of considering the idea and several weeks of determining whether or not I really wanted to do when it came time for my evaluation.
But again - for me the whole process has been worth it - the meds - the risk of rejection - the risk of infection and the risk of stents have all been worth it because I am alive and have a better quality of life now than I ever did before. Even when I was considered "healthy" on the CF spectrum.
Also to add I was told by my docs that in most transplant cases the individuals that require stents tend to be older - not saying that it won't happen to a younger person just saying the majority of cases fall into the older class of patients.
take Care,
Lindsey
I will be honest and say the worst my pain got on a scale of 1-10 was ..... maybe a 20. For me that lasted one day (2 days post transplant) and it was because they had changed my pain meds and the new med just wasn't effective for me.
Overall the pain wasn't bad it was just a nagging thing for a few weeks/months.
As for transplant not being worth it because of rejection, infection, stents and what have you. I haven't had any of those and honestly I was prepared for all of those going into it. I prepared myself for the worst and have honestly had probably one of the best recoveries thus far. I would have another transplant if it was needed but that is me.
I think what it boils down to is what it is worth to you. when I was 20 I probably would have chosen against transplant because I was at that time okay with leaving the world. It would suck for my parents but honestly I was okay with leaving. When I became sick enough to need it I had found my fiance and had things I wanted to pursue in life. I wasn't ready at that point to just say ado. So it didn't really matter to me all the gnarly details of what may happen I was going to give it a shot regardless because I wasn't okay with just dying at the time.
If it is something you want to do if you still have things you want to pursue then honestly all the other stuff won't really matter to you. At least that is how I felt. It took me a long time to become okay with transplant - years of considering the idea and several weeks of determining whether or not I really wanted to do when it came time for my evaluation.
But again - for me the whole process has been worth it - the meds - the risk of rejection - the risk of infection and the risk of stents have all been worth it because I am alive and have a better quality of life now than I ever did before. Even when I was considered "healthy" on the CF spectrum.
Also to add I was told by my docs that in most transplant cases the individuals that require stents tend to be older - not saying that it won't happen to a younger person just saying the majority of cases fall into the older class of patients.
take Care,
Lindsey