Alyssa,
<br />I am sorry you are having a hard time processing the different entities associated with a double lung transplant. This is one of the most complex surgeries that can be performed. It is not to be entered into lightly without thinking it through. So it is good you are questioning what happens post-transplant.
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<br />The way I look at it though... My quality of life is of upmost importance. To be as sick as these women have posted, I would seek a way to change that, which would be a transplant. As much as we hope it will be a pleasant experience, it's not. From what I gathered, there are several very difficult few days to deal with in order to get to the better days. And those better days, according to these women, are beyond incredible and unimaginable.
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<br />I know it is hard when you are 16 years old and don't want to be different than others (ie. scars from surgery, picc line, etc). However, given a declining health, I'd rather suffer through the transplant and deal with the aftermath of the surgical incision. I'm sure you can understand that.
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<br />That surgical line you are talking about -- are you referring to the port placement? I have one and it's actually pretty nice. I've never heard of an adolescent needing to replace it due to additional growth. I could see a toddler needing a new one after doing a majority of growth.
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<br />Good luck
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<br />Jenn
<br />30 yo cf