Do you need a cathiter to pee?

J

JazzysMom

New member
I have had a catheter & quite frankly......its one of the least worries given everything else you would be facing during a tx.

I havent officially decided on a tx yet, but this is not something that would stop me.

I think when you are closer to needing it (tho this does vary) that your priorities & general thought patterns change.....

Dont rule anything out due to "inconvenience". You already have that having CF!
 
J

JazzysMom

New member
I have had a catheter & quite frankly......its one of the least worries given everything else you would be facing during a tx.

I havent officially decided on a tx yet, but this is not something that would stop me.

I think when you are closer to needing it (tho this does vary) that your priorities & general thought patterns change.....

Dont rule anything out due to "inconvenience". You already have that having CF!
 
J

JazzysMom

New member
I have had a catheter & quite frankly......its one of the least worries given everything else you would be facing during a tx.

I havent officially decided on a tx yet, but this is not something that would stop me.

I think when you are closer to needing it (tho this does vary) that your priorities & general thought patterns change.....

Dont rule anything out due to "inconvenience". You already have that having CF!
 
J

JazzysMom

New member
I have had a catheter & quite frankly......its one of the least worries given everything else you would be facing during a tx.

I havent officially decided on a tx yet, but this is not something that would stop me.

I think when you are closer to needing it (tho this does vary) that your priorities & general thought patterns change.....

Dont rule anything out due to "inconvenience". You already have that having CF!
 
J

JazzysMom

New member
I have had a catheter & quite frankly......its one of the least worries given everything else you would be facing during a tx.
<br />
<br />I havent officially decided on a tx yet, but this is not something that would stop me.
<br />
<br />I think when you are closer to needing it (tho this does vary) that your priorities & general thought patterns change.....
<br />
<br />Dont rule anything out due to "inconvenience". You already have that having CF!
 
T

Transplantmommy

New member
Honestly....the catheter is the least of your worries during transplant. You are still young yet and could change your mind when you come to realize that you want another chance to live your life to the fullest without any breathing difficulties or nebulizers. It is seriously a whole new world!

My catheter was put in after I was already sedated and actually came out like 3 days after transplant. It deflated and they wanted to put it back in and I told them no, I could get on a bed pan and go pee myself. I was honestly in a lot of pain after the Tx and it took a little bit to get used to but shortly after I was released to come home and I was enjoying my new life with less meds, my year old son, and my husband, I realized that no matter what, I would do it all over again if I had to.
 
T

Transplantmommy

New member
Honestly....the catheter is the least of your worries during transplant. You are still young yet and could change your mind when you come to realize that you want another chance to live your life to the fullest without any breathing difficulties or nebulizers. It is seriously a whole new world!

My catheter was put in after I was already sedated and actually came out like 3 days after transplant. It deflated and they wanted to put it back in and I told them no, I could get on a bed pan and go pee myself. I was honestly in a lot of pain after the Tx and it took a little bit to get used to but shortly after I was released to come home and I was enjoying my new life with less meds, my year old son, and my husband, I realized that no matter what, I would do it all over again if I had to.
 
T

Transplantmommy

New member
Honestly....the catheter is the least of your worries during transplant. You are still young yet and could change your mind when you come to realize that you want another chance to live your life to the fullest without any breathing difficulties or nebulizers. It is seriously a whole new world!

My catheter was put in after I was already sedated and actually came out like 3 days after transplant. It deflated and they wanted to put it back in and I told them no, I could get on a bed pan and go pee myself. I was honestly in a lot of pain after the Tx and it took a little bit to get used to but shortly after I was released to come home and I was enjoying my new life with less meds, my year old son, and my husband, I realized that no matter what, I would do it all over again if I had to.
 
T

Transplantmommy

New member
Honestly....the catheter is the least of your worries during transplant. You are still young yet and could change your mind when you come to realize that you want another chance to live your life to the fullest without any breathing difficulties or nebulizers. It is seriously a whole new world!

My catheter was put in after I was already sedated and actually came out like 3 days after transplant. It deflated and they wanted to put it back in and I told them no, I could get on a bed pan and go pee myself. I was honestly in a lot of pain after the Tx and it took a little bit to get used to but shortly after I was released to come home and I was enjoying my new life with less meds, my year old son, and my husband, I realized that no matter what, I would do it all over again if I had to.
 
T

Transplantmommy

New member
Honestly....the catheter is the least of your worries during transplant. You are still young yet and could change your mind when you come to realize that you want another chance to live your life to the fullest without any breathing difficulties or nebulizers. It is seriously a whole new world!
<br />
<br />My catheter was put in after I was already sedated and actually came out like 3 days after transplant. It deflated and they wanted to put it back in and I told them no, I could get on a bed pan and go pee myself. I was honestly in a lot of pain after the Tx and it took a little bit to get used to but shortly after I was released to come home and I was enjoying my new life with less meds, my year old son, and my husband, I realized that no matter what, I would do it all over again if I had to.
 
S

sk8rgrrrl4life

New member
When you all say you're in alot of pain after the tx how much pain are you talking like on a scale of 1-10 and where is it and what causes the pain.
Like how would you describe it because from what I hear a tx isn't worth the amount of pain and risk of rejection and just ruining even more organs in my body for a new set of lungs that will just need a stent later on in life and cause more complications.
<img src="i/expressions/face-icon-small-frown.gif" border="0">
 
S

sk8rgrrrl4life

New member
When you all say you're in alot of pain after the tx how much pain are you talking like on a scale of 1-10 and where is it and what causes the pain.
Like how would you describe it because from what I hear a tx isn't worth the amount of pain and risk of rejection and just ruining even more organs in my body for a new set of lungs that will just need a stent later on in life and cause more complications.
<img src="i/expressions/face-icon-small-frown.gif" border="0">
 
S

sk8rgrrrl4life

New member
When you all say you're in alot of pain after the tx how much pain are you talking like on a scale of 1-10 and where is it and what causes the pain.
Like how would you describe it because from what I hear a tx isn't worth the amount of pain and risk of rejection and just ruining even more organs in my body for a new set of lungs that will just need a stent later on in life and cause more complications.
<img src="i/expressions/face-icon-small-frown.gif" border="0">
 
S

sk8rgrrrl4life

New member
When you all say you're in alot of pain after the tx how much pain are you talking like on a scale of 1-10 and where is it and what causes the pain.
Like how would you describe it because from what I hear a tx isn't worth the amount of pain and risk of rejection and just ruining even more organs in my body for a new set of lungs that will just need a stent later on in life and cause more complications.
<img src="i/expressions/face-icon-small-frown.gif" border="0">
 
S

sk8rgrrrl4life

New member
When you all say you're in alot of pain after the tx how much pain are you talking like on a scale of 1-10 and where is it and what causes the pain.
Like how would you describe it because from what I hear a tx isn't worth the amount of pain and risk of rejection and just ruining even more organs in my body for a new set of lungs that will just need a stent later on in life and cause more complications.
<img src="i/expressions/face-icon-small-frown.gif" border="0">
 
T

Transplantmommy

New member
Seriously, my pain got to about a 15 but it was not a constant pain. I think a lot of it was more discomfort from the chest tubes. The doctors did a LOT to get me to a comfortable level and they did a pretty good job. My pain was much better after I got out of the ICU and I was able to get moving. I had double lung and liver and I was out of the hospital in 12 days and home 2 1/2 weeks after that. I seriously love my life a lot more since I had the transplants almost two years ago. Yes, it is possible that I may eventually need a kidney transplant, but that is still not a reason to not get the transplants that I needed to stay alive. I'm here, I'm breathing better than I ever have, and I am enjoying life to the fullest.

As for the stent, I have not had to have one. Not everyone does. I don't know who you are talking to and getting your information from, but to me, it sounds like they are scaring you away from transplant, and that's not good. I think that everyone deserves a chance at a new life and to be able to breath again. I know plenty of people with CF who are 5 years or more post-tx and still going strong. Not every case is bad.....there are a lot of success stories out there and mine is one of them.
 
T

Transplantmommy

New member
Seriously, my pain got to about a 15 but it was not a constant pain. I think a lot of it was more discomfort from the chest tubes. The doctors did a LOT to get me to a comfortable level and they did a pretty good job. My pain was much better after I got out of the ICU and I was able to get moving. I had double lung and liver and I was out of the hospital in 12 days and home 2 1/2 weeks after that. I seriously love my life a lot more since I had the transplants almost two years ago. Yes, it is possible that I may eventually need a kidney transplant, but that is still not a reason to not get the transplants that I needed to stay alive. I'm here, I'm breathing better than I ever have, and I am enjoying life to the fullest.

As for the stent, I have not had to have one. Not everyone does. I don't know who you are talking to and getting your information from, but to me, it sounds like they are scaring you away from transplant, and that's not good. I think that everyone deserves a chance at a new life and to be able to breath again. I know plenty of people with CF who are 5 years or more post-tx and still going strong. Not every case is bad.....there are a lot of success stories out there and mine is one of them.
 
T

Transplantmommy

New member
Seriously, my pain got to about a 15 but it was not a constant pain. I think a lot of it was more discomfort from the chest tubes. The doctors did a LOT to get me to a comfortable level and they did a pretty good job. My pain was much better after I got out of the ICU and I was able to get moving. I had double lung and liver and I was out of the hospital in 12 days and home 2 1/2 weeks after that. I seriously love my life a lot more since I had the transplants almost two years ago. Yes, it is possible that I may eventually need a kidney transplant, but that is still not a reason to not get the transplants that I needed to stay alive. I'm here, I'm breathing better than I ever have, and I am enjoying life to the fullest.

As for the stent, I have not had to have one. Not everyone does. I don't know who you are talking to and getting your information from, but to me, it sounds like they are scaring you away from transplant, and that's not good. I think that everyone deserves a chance at a new life and to be able to breath again. I know plenty of people with CF who are 5 years or more post-tx and still going strong. Not every case is bad.....there are a lot of success stories out there and mine is one of them.
 
T

Transplantmommy

New member
Seriously, my pain got to about a 15 but it was not a constant pain. I think a lot of it was more discomfort from the chest tubes. The doctors did a LOT to get me to a comfortable level and they did a pretty good job. My pain was much better after I got out of the ICU and I was able to get moving. I had double lung and liver and I was out of the hospital in 12 days and home 2 1/2 weeks after that. I seriously love my life a lot more since I had the transplants almost two years ago. Yes, it is possible that I may eventually need a kidney transplant, but that is still not a reason to not get the transplants that I needed to stay alive. I'm here, I'm breathing better than I ever have, and I am enjoying life to the fullest.

As for the stent, I have not had to have one. Not everyone does. I don't know who you are talking to and getting your information from, but to me, it sounds like they are scaring you away from transplant, and that's not good. I think that everyone deserves a chance at a new life and to be able to breath again. I know plenty of people with CF who are 5 years or more post-tx and still going strong. Not every case is bad.....there are a lot of success stories out there and mine is one of them.
 
T

Transplantmommy

New member
Seriously, my pain got to about a 15 but it was not a constant pain. I think a lot of it was more discomfort from the chest tubes. The doctors did a LOT to get me to a comfortable level and they did a pretty good job. My pain was much better after I got out of the ICU and I was able to get moving. I had double lung and liver and I was out of the hospital in 12 days and home 2 1/2 weeks after that. I seriously love my life a lot more since I had the transplants almost two years ago. Yes, it is possible that I may eventually need a kidney transplant, but that is still not a reason to not get the transplants that I needed to stay alive. I'm here, I'm breathing better than I ever have, and I am enjoying life to the fullest.
<br />
<br />As for the stent, I have not had to have one. Not everyone does. I don't know who you are talking to and getting your information from, but to me, it sounds like they are scaring you away from transplant, and that's not good. I think that everyone deserves a chance at a new life and to be able to breath again. I know plenty of people with CF who are 5 years or more post-tx and still going strong. Not every case is bad.....there are a lot of success stories out there and mine is one of them.
 
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