Do you share a room in the hospital?

[anonymous]

I have been in two different hospitals lately with a CF flair up - one had me share a room with other (non CF) patients and the other told me that CF patients should not share rooms with other patients - CF or not. I personally like having my own room, but it got me wondering what do other adults with CF do?

Rosie<img src="i/expressions/rose.gif" border="0">

 

[Diane]

i Never share a room with anyone cf or not. I remember when i first got diabetes when i was 15 i had to stay in the hospital and i was on the 3rd floor where there were a lot of cf patients and we were all in wards ( sooooooo not a good idea) They stopped allowing cf patients to share rooms with anyone after outbreaks of cepacia , mrsa, pseudomonas etc. ABSOLUTELY refuse to share a room with anyone cf or not if you have to be hospitalized. Your life may depend on it !

 

[Mockingbird]

Persoanlly, i just do IV's at home. It costs a little more to go that route, but you don't have to worry so much about catching anything. If I remember right, even a hospital that has seperate rooms will still have shared bathrooms, showers, etc.

 

[anonymous]

I usually try to do all my cleanouts at home also, but every once in a while I have had to go in, if I am really sick, or if they make me just for a couple days to do tests, etc. I hate it! I freak out while I am there and make my mother clean everything with antibacterial stuff. I dont touch anything until I am sure its cleaned by her, and I am paranoid the whole time with all of the equipment. I have my own room and have for a long time. That started because I have cepacia, but I am pretty sure all CF people have thier own rooms now, although I am not sure. I have my own bathroom too, which I am surprised, Mockingbird, that your hospital doesnt. Thats quite possibly the grossest part is sharing a bathroom with some other sick-o. Ha.

The room I stay in has two doors, with a vestibule in between- kind of like a quarantine room. Everyone has to wear gown/gloves, wash thier hands, etc. Fine with me- i'd rather they stay out all together! I have my own Fridge too, and all my own vital sign equipment.

Caitlin
22 w/CF, cepacia

 

[Faust]

For a very long time now, our CF center here won't allow us to share rooms with other cf's or others at all. I get my own comfy room in isolation (standard practice to keep whatever bugs we have in our own area). I dig it, and my lady likes to stay over and sleep on the fairly big couch they supply.

 

[anonymous]

Thank You Everyone

 

[anonymous]

I go to a hospital with a designated CF unit. All the rooms are private and have a couple of recliners and a roll-away bed for my family to stay overnight.

 

[thelizardqueen]

I always end up sharing a room with someone and I hate it. My guy never gets to spend the night either - he has to stick with regular hours, regardless of what I'm in for. I think the next time I am in - I'll demand a seperate room. Can I do that? What if they don't have a private room that I can use?

 

[anonymous]

I'm not sure....they ALWAYS gave Ry a private room. I figured it would be too dangerous to put him in with someone else, regardless of whether they had CF or not. God knows what they could give him, and I was germ phobic enough as it was. I was a pusher for hand sanitizer lol.

And I stayed the night a lot, though sometimes I'd choose to try and sleep in Ry's bed with him and get yelled at by cranky nurses. Silly people.

 

[Allie]

^ Yay for being logged out.

 

[jamey]

where i go we get private rooms with our own bathroom/shower and also a mini fridge in each room for sodas or whatever.

 

[JazzysMom]

Only 1 time since oh early twenties I guess have I shared a room & that was less then a day. I also shared a bathroom for a day. These are extreme cases when EVERY room is full & they had to rearrange everybody to accomodate the CFers.

 

[Dea]

I'm with Jamey on this one...when I'm in at St.Louis, we get our own private rooms. No sharing for CFers! It is great!!!
Dea
32 w/CF

 

[vinnie1973]

hospitals are where people go to die.
do yourself a favor and do your iv meds at home

 

[jenjen2130]

When I stay at MGH in Boston. I always get a private room with fridge and the dietation comes in with free meal tickets for me and my family to use the resteraunt downstairs in the cafe.

When i see my specialist he also puts all the Cfs in what they call CLEAN ROOMS. And we are not aloud to talk to anyboday that has come in if they have CF at all.

I can remember whe I was 11 and I had my first clean-out. There would at least 12 Cfers on the floor and there were 4 to a room. We would stay up all night, talk about life and who we liked that was in the next room ( the boys room). We took over the floor. We would take wheelchairs and have races down the hall into the activies room. That is when it was a blast.

Now I have private rooms, or home cleanouts. I never see any of my CF friends that I had in the Hospital. I hear about them and how well they are but never get to see them. MISS that the most.

Jennifer 32/w cf ( Jenjen)

 

[cfcndlelady]

Same response here as Jamey and Dea....At Barnes in St Louis we get our own rooms, most roosm have little refrigerators for our goodies! We also have own bathrooms! No sharing for us! Although I do like to stick my head out of my room and say hi to others!

Caren 33w/cf

 

[anonymous]

i always go to john hopkins, i never share a room..you should complain if you don't get your own room

 

[anonymous]

THE only good thing about having cepacia!!! I always get my own room.
Or I go home on IV's.

Christian

 

[Lilith]

After I became multi-drug resistant, they gave me my own room, away from annoying screaming children and babies!! YAY! I actually like it much better than having a roomie. My boyfriend can come over whenever he sees fit, and my family has these little get-well-soon parties that they throw for me, so it's nice to have privacy for that.

Though now, I usually just have home IV's. I haven't been in the hospital since last Feb.

 

[cfmama]

Our local hosptial is only set up for one bed per room, there they are followed by the pediatric dr. which is where hospitalizations mainly take place. They had to be hospitalized at the university hospital where the cf dr is for the first time this past March and they were in the same room. My son got discharged before my daughter so she was alone for a long time the cf dr didn't want anyone else in the room. She went off duty and the dr that took over put someone else in the room. I questioned this and he said that they do not like putting anyone else in rooms w/ cf patients but my daughter had been in there for awhile and the person that came in was being watched only for a bad fall off of a swing and the other rooms that were left were being saved for sick kids. The hospital was packed on the childrens floor.