Do you think this is possible?

[anonymous]

well i just think since it is the internet and anyone could be lying it is better to take people's word for it than assume people are lying. If someone irritates me i try to just ignore them. I think in the long run it is healthier for yourself if you just don't try to guess/interpret people's motives because so much of it is clouded by your own issues. In my experience (although i've never done it over the internet since i tend to trust everyone) it usually just ends up hurting everyone involved (including yourself.) I probably shouldn't be talking though since i have such a hard time avoiding this myself.

I've heard from ambry that with full panel mutation testing the carrier frequency increases to about 1/15 among caucasions. This is certainly not anywhere near 5/100 or 5/50 but it is something. If you are really concerned about this you should find out what the frequency of munchausen by proxy syndrome occurs at. I just can't imagine anyone who considers it "dramatic" to have a ill child to have anything less than munchausen. I could certainly see pretending they have an ill child over the internet is probably a launching pad for the full blown disorder. I could see maybe one of these indviduals making things up for attention but i have a hard time believing three would...? Why wouldn't any of them choose another disease? Maybe what you are noticing are parents who are very worried about their child's health and to them it feels like everyone is against them? Possibly the defensiveness from this attitude could set off your BS meter? maybe they are hypochondriacs?

who knows. good luck.

 

[anonymous]

well i just think since it is the internet and anyone could be lying it is better to take people's word for it than assume people are lying. If someone irritates me i try to just ignore them. I think in the long run it is healthier for yourself if you just don't try to guess/interpret people's motives because so much of it is clouded by your own issues. In my experience (although i've never done it over the internet since i tend to trust everyone) it usually just ends up hurting everyone involved (including yourself.) I probably shouldn't be talking though since i have such a hard time avoiding this myself.

I've heard from ambry that with full panel mutation testing the carrier frequency increases to about 1/15 among caucasions. This is certainly not anywhere near 5/100 or 5/50 but it is something. If you are really concerned about this you should find out what the frequency of munchausen by proxy syndrome occurs at. I just can't imagine anyone who considers it "dramatic" to have a ill child to have anything less than munchausen. I could certainly see pretending they have an ill child over the internet is probably a launching pad for the full blown disorder. I could see maybe one of these indviduals making things up for attention but i have a hard time believing three would...? Why wouldn't any of them choose another disease? Maybe what you are noticing are parents who are very worried about their child's health and to them it feels like everyone is against them? Possibly the defensiveness from this attitude could set off your BS meter? maybe they are hypochondriacs?

who knows. good luck.

 

[Scarlett81]

Beside what others said-obstetric doctors are very test happy now a days when it comes to prenatal testing. They'll offer you every test available. So maybe there are more cf diagnosis, maybe there are overreacting moms, maybe there are impostors, maybe the moms doctors are pushing more tests these days. I know now that I'm preg, they offer every stinking test out there for anything, and if there is a slight-slight chance something looks unusual-they want to do more tests. There is a generation of afraid people now b/c of that. Dont' mean my comments to offend anyone, this is just my opinion. And all circumstances are different.

 

[Scarlett81]

Beside what others said-obstetric doctors are very test happy now a days when it comes to prenatal testing. They'll offer you every test available. So maybe there are more cf diagnosis, maybe there are overreacting moms, maybe there are impostors, maybe the moms doctors are pushing more tests these days. I know now that I'm preg, they offer every stinking test out there for anything, and if there is a slight-slight chance something looks unusual-they want to do more tests. There is a generation of afraid people now b/c of that. Dont' mean my comments to offend anyone, this is just my opinion. And all circumstances are different.

 

[Scarlett81]

Beside what others said-obstetric doctors are very test happy now a days when it comes to prenatal testing. They'll offer you every test available. So maybe there are more cf diagnosis, maybe there are overreacting moms, maybe there are impostors, maybe the moms doctors are pushing more tests these days. I know now that I'm preg, they offer every stinking test out there for anything, and if there is a slight-slight chance something looks unusual-they want to do more tests. There is a generation of afraid people now b/c of that. Dont' mean my comments to offend anyone, this is just my opinion. And all circumstances are different.

 

[PinkRaysOfSunshine]

Since KY started the newborn screening... arionnas dr said that he sees TONS of really young patients now.. where as before.. it was all babys that were at least a few months old.. usually 2 years old..... still arionna is yet to be the youngest one he's seen yet.. at 4 days old...... (diagnosed prenatally)

 

[PinkRaysOfSunshine]

Since KY started the newborn screening... arionnas dr said that he sees TONS of really young patients now.. where as before.. it was all babys that were at least a few months old.. usually 2 years old..... still arionna is yet to be the youngest one he's seen yet.. at 4 days old...... (diagnosed prenatally)

 

[PinkRaysOfSunshine]

Since KY started the newborn screening... arionnas dr said that he sees TONS of really young patients now.. where as before.. it was all babys that were at least a few months old.. usually 2 years old..... still arionna is yet to be the youngest one he's seen yet.. at 4 days old...... (diagnosed prenatally)

 

[cf121212]

Although it would be weird for 5 out of the 50 or so to have CF, I do not think it is strange that there is being testing done. Those babies obviously have something that prompts the Dr's to look into CF. Seems like a lot of people with similar issues gets tested for CF. CF is probably one of the worst that people with those symptoms could have so they test to get that out of the way first. I would hate to think any one would lie about that, and really I doubt they are. Im sure they are scared and worried expecially if they know of anything your little one goes through. I hope you get answers to your doubts soon... but these ladies are all ladies you spent 9 months getting to know, and now almost another year as well. do you honestly think some of those ladies are capable of making this up for attention???

 

[cf121212]

Although it would be weird for 5 out of the 50 or so to have CF, I do not think it is strange that there is being testing done. Those babies obviously have something that prompts the Dr's to look into CF. Seems like a lot of people with similar issues gets tested for CF. CF is probably one of the worst that people with those symptoms could have so they test to get that out of the way first. I would hate to think any one would lie about that, and really I doubt they are. Im sure they are scared and worried expecially if they know of anything your little one goes through. I hope you get answers to your doubts soon... but these ladies are all ladies you spent 9 months getting to know, and now almost another year as well. do you honestly think some of those ladies are capable of making this up for attention???

 

[cf121212]

Although it would be weird for 5 out of the 50 or so to have CF, I do not think it is strange that there is being testing done. Those babies obviously have something that prompts the Dr's to look into CF. Seems like a lot of people with similar issues gets tested for CF. CF is probably one of the worst that people with those symptoms could have so they test to get that out of the way first. I would hate to think any one would lie about that, and really I doubt they are. Im sure they are scared and worried expecially if they know of anything your little one goes through. I hope you get answers to your doubts soon... but these ladies are all ladies you spent 9 months getting to know, and now almost another year as well. do you honestly think some of those ladies are capable of making this up for attention???

 

[khar59]

How is Cystic Fibrosis diagnosed?
In New Zealand the National Testing Laboratory has been screening all new-born infants for Cystic Fibrosis since mid-1981. This test was devised by Professor Bob Elliott. It measures the amount of pancreatic enzymes in a baby's blood. This is conveniently done by using the blood spot sample which is routinely taken on all babies on the fifth day of life, and which is used to check for other diseases. This measurement of pancreatic enzyme levels is not a definitive diagnosis, but 'screens' out the babies that are likely to have Cystic Fibrosis.

 

[khar59]

How is Cystic Fibrosis diagnosed?
In New Zealand the National Testing Laboratory has been screening all new-born infants for Cystic Fibrosis since mid-1981. This test was devised by Professor Bob Elliott. It measures the amount of pancreatic enzymes in a baby's blood. This is conveniently done by using the blood spot sample which is routinely taken on all babies on the fifth day of life, and which is used to check for other diseases. This measurement of pancreatic enzyme levels is not a definitive diagnosis, but 'screens' out the babies that are likely to have Cystic Fibrosis.

 

[khar59]

How is Cystic Fibrosis diagnosed?
In New Zealand the National Testing Laboratory has been screening all new-born infants for Cystic Fibrosis since mid-1981. This test was devised by Professor Bob Elliott. It measures the amount of pancreatic enzymes in a baby's blood. This is conveniently done by using the blood spot sample which is routinely taken on all babies on the fifth day of life, and which is used to check for other diseases. This measurement of pancreatic enzyme levels is not a definitive diagnosis, but 'screens' out the babies that are likely to have Cystic Fibrosis.

 

[Alyssa]

This may be a little off base from the original post, but it brought to mind a post I just read on another list I follow -- someone there said they live in a mid-western town of 600 people. They just found out that the 4th child in their town has been diagnosed with CF. They have the oldest daughter at 12 years old. None of the families are related at all.

For such a small town, that seems like a lot of CF to me too!

 

[Alyssa]

This may be a little off base from the original post, but it brought to mind a post I just read on another list I follow -- someone there said they live in a mid-western town of 600 people. They just found out that the 4th child in their town has been diagnosed with CF. They have the oldest daughter at 12 years old. None of the families are related at all.

For such a small town, that seems like a lot of CF to me too!

 

[Alyssa]

This may be a little off base from the original post, but it brought to mind a post I just read on another list I follow -- someone there said they live in a mid-western town of 600 people. They just found out that the 4th child in their town has been diagnosed with CF. They have the oldest daughter at 12 years old. None of the families are related at all.

For such a small town, that seems like a lot of CF to me too!

 

[Mommafirst]

It does seem really high to me too!!

At this point of the five babies on the board, mine and one other are confirmed CF (sweat and genetic). There are three others with BORDERLINE sweats -- a 37, a 48, and a 59. At this point I wouldn't be surprised if all 5 will be confirmed CF diagnosis and out of 50 babies it seems like a HUGE number.

 

[Mommafirst]

It does seem really high to me too!!

At this point of the five babies on the board, mine and one other are confirmed CF (sweat and genetic). There are three others with BORDERLINE sweats -- a 37, a 48, and a 59. At this point I wouldn't be surprised if all 5 will be confirmed CF diagnosis and out of 50 babies it seems like a HUGE number.

 

[Mommafirst]

It does seem really high to me too!!

At this point of the five babies on the board, mine and one other are confirmed CF (sweat and genetic). There are three others with BORDERLINE sweats -- a 37, a 48, and a 59. At this point I wouldn't be surprised if all 5 will be confirmed CF diagnosis and out of 50 babies it seems like a HUGE number.