This is a neat thread.................................
Another mom's perspective to add to the already wonderful list.....
Air freshener- we buy the Lysol freshmatic for Briceton's room, he has to have the continued spray!
Car seats- we have been through 4 car seats in the past several months due to major leakage of runny diapers. You can only clean them so many times before the smell imbeds itself in the seat.
Sheets, blankets, pajamas, and clothes- again, I can only wash things a few times before the smell is forever imbedded. Plus if you don't get to it right away and sometimes even if you do, it will stain. Toss em' out!
Storage containers for all the medications and supplies
Air purifiers- depending on the ones you get, they aren't cheap. We have 5 in our house.
Diaper cream- when on IV's, the antibiotics tear his little bottom up.
I know a lot of these items may seem nitpicky to some, but I just had to compile a list to show our monthly expenses for bankruptcy........it really ALL adds up! From what I have read, CF is one of the most expensive diseases, along with MS.
I even include email, at home and cell, as we correspond with clinic/dietician a lot through email.