Extraordinary Expenses

Emily65Roses

New member
Not sure if I'm repeating any....

*Distilled water for the eFlow pieces
*70% isopropyl alcohol, also for the eFlow
*Probiotics and yeast infection creams
*Extra juice - I drink a lot
*Advil for my crappy hips and knees
*Gym membership
*When I used to wear medic alerts ALL the time (like literally never took them off), my mom had to replace them every few years because all the salt ate away at the medallions.
*Aqua Guards when on IVs so you can still shower sort of
*Flushable adult wet wipes - great for oily pooooooop
*I second the extra toilet paper!
*More tissues (for spitting and for my nose)
*Dixie cups (also for spitting)
*Extra vitamins because even with my ABDEKs, some of my vitamins are low
*Caffeine pills... so I can stay awake when I don't get enough sleep for me (though it'd be enough for other people)

That'll do. If I come up with any other big ones, I'll post again.
 

Emily65Roses

New member
Not sure if I'm repeating any....

*Distilled water for the eFlow pieces
*70% isopropyl alcohol, also for the eFlow
*Probiotics and yeast infection creams
*Extra juice - I drink a lot
*Advil for my crappy hips and knees
*Gym membership
*When I used to wear medic alerts ALL the time (like literally never took them off), my mom had to replace them every few years because all the salt ate away at the medallions.
*Aqua Guards when on IVs so you can still shower sort of
*Flushable adult wet wipes - great for oily pooooooop
*I second the extra toilet paper!
*More tissues (for spitting and for my nose)
*Dixie cups (also for spitting)
*Extra vitamins because even with my ABDEKs, some of my vitamins are low
*Caffeine pills... so I can stay awake when I don't get enough sleep for me (though it'd be enough for other people)

That'll do. If I come up with any other big ones, I'll post again.
 

Emily65Roses

New member
Not sure if I'm repeating any....

*Distilled water for the eFlow pieces
*70% isopropyl alcohol, also for the eFlow
*Probiotics and yeast infection creams
*Extra juice - I drink a lot
*Advil for my crappy hips and knees
*Gym membership
*When I used to wear medic alerts ALL the time (like literally never took them off), my mom had to replace them every few years because all the salt ate away at the medallions.
*Aqua Guards when on IVs so you can still shower sort of
*Flushable adult wet wipes - great for oily pooooooop
*I second the extra toilet paper!
*More tissues (for spitting and for my nose)
*Dixie cups (also for spitting)
*Extra vitamins because even with my ABDEKs, some of my vitamins are low
*Caffeine pills... so I can stay awake when I don't get enough sleep for me (though it'd be enough for other people)

That'll do. If I come up with any other big ones, I'll post again.
 

Emily65Roses

New member
Not sure if I'm repeating any....

*Distilled water for the eFlow pieces
*70% isopropyl alcohol, also for the eFlow
*Probiotics and yeast infection creams
*Extra juice - I drink a lot
*Advil for my crappy hips and knees
*Gym membership
*When I used to wear medic alerts ALL the time (like literally never took them off), my mom had to replace them every few years because all the salt ate away at the medallions.
*Aqua Guards when on IVs so you can still shower sort of
*Flushable adult wet wipes - great for oily pooooooop
*I second the extra toilet paper!
*More tissues (for spitting and for my nose)
*Dixie cups (also for spitting)
*Extra vitamins because even with my ABDEKs, some of my vitamins are low
*Caffeine pills... so I can stay awake when I don't get enough sleep for me (though it'd be enough for other people)

That'll do. If I come up with any other big ones, I'll post again.
 

Emily65Roses

New member
Not sure if I'm repeating any....
<br />
<br />*Distilled water for the eFlow pieces
<br />*70% isopropyl alcohol, also for the eFlow
<br />*Probiotics and yeast infection creams
<br />*Extra juice - I drink a lot
<br />*Advil for my crappy hips and knees
<br />*Gym membership
<br />*When I used to wear medic alerts ALL the time (like literally never took them off), my mom had to replace them every few years because all the salt ate away at the medallions.
<br />*Aqua Guards when on IVs so you can still shower sort of
<br />*Flushable adult wet wipes - great for oily pooooooop
<br />*I second the extra toilet paper!
<br />*More tissues (for spitting and for my nose)
<br />*Dixie cups (also for spitting)
<br />*Extra vitamins because even with my ABDEKs, some of my vitamins are low
<br />*Caffeine pills... so I can stay awake when I don't get enough sleep for me (though it'd be enough for other people)
<br />
<br />That'll do. If I come up with any other big ones, I'll post again.
 

SaltyAndSweet

New member
hehehe... maybe I am just using this as an excuse for my shopping addiction, but how about two different clothing wardrobes? One for my healthy weight and one for my sick weight 10lbs less? (ok, maybe now I am stretching!) <img src="i/expressions/face-icon-small-happy.gif" border="0">
 

SaltyAndSweet

New member
hehehe... maybe I am just using this as an excuse for my shopping addiction, but how about two different clothing wardrobes? One for my healthy weight and one for my sick weight 10lbs less? (ok, maybe now I am stretching!) <img src="i/expressions/face-icon-small-happy.gif" border="0">
 

SaltyAndSweet

New member
hehehe... maybe I am just using this as an excuse for my shopping addiction, but how about two different clothing wardrobes? One for my healthy weight and one for my sick weight 10lbs less? (ok, maybe now I am stretching!) <img src="i/expressions/face-icon-small-happy.gif" border="0">
 

SaltyAndSweet

New member
hehehe... maybe I am just using this as an excuse for my shopping addiction, but how about two different clothing wardrobes? One for my healthy weight and one for my sick weight 10lbs less? (ok, maybe now I am stretching!) <img src="i/expressions/face-icon-small-happy.gif" border="0">
 

SaltyAndSweet

New member
hehehe... maybe I am just using this as an excuse for my shopping addiction, but how about two different clothing wardrobes? One for my healthy weight and one for my sick weight 10lbs less? (ok, maybe now I am stretching!) <img src="i/expressions/face-icon-small-happy.gif" border="0">
 

Sevenstars

New member
- Juice or a juicer. I buy a lot of the 'superfood' Naked juices because they have so many good vitamins, protein, iron etc. Those things are )(#$*#ing expensive! 3$ for a little 16oz bottle.

- Tissues and paper towels (to set out neb parts to dry)

- Distilled water for neti pot

- Neti pot and the salt to go in it

- Viactiv or generic calcium chews

- PARKING when I go to the doctor. My god, last year when I was sick and going in every two weeks... 8$ parking adds up for me.
And yes, gas too.

- Phone bills - sometimes I pay to get phone service in the hospital (you have to pay for it here!!) and its 6$ a day. But usually I try to avoid getting it. :/

- Random weird supplements and OTC meds like Garlic, Benefiber, Tylenol, Ibuprofen.. I go through so much of all of those.

- Exercise equipment or gym membership

- Purell. I could buy this stuff in a gallon jug.

- Books and newsletters about CF, or diet, or diabetes or health stuff in general. My CF book was like 30ish dollars, newsletters are 10 or 15 for Commitment I think.

- O2 meter if you buy it yoursef. Mini PFT meter.

Probably way more things I can't think of.

Edit: Just remembered clothes Saltyandsweet, thanks.

I have clothes ranging from a size 4 to a size 14. Seriously. <img src="i/expressions/face-icon-small-sad.gif" border="0"> 4 = sick. 14 = prednisone.
 

Sevenstars

New member
- Juice or a juicer. I buy a lot of the 'superfood' Naked juices because they have so many good vitamins, protein, iron etc. Those things are )(#$*#ing expensive! 3$ for a little 16oz bottle.

- Tissues and paper towels (to set out neb parts to dry)

- Distilled water for neti pot

- Neti pot and the salt to go in it

- Viactiv or generic calcium chews

- PARKING when I go to the doctor. My god, last year when I was sick and going in every two weeks... 8$ parking adds up for me.
And yes, gas too.

- Phone bills - sometimes I pay to get phone service in the hospital (you have to pay for it here!!) and its 6$ a day. But usually I try to avoid getting it. :/

- Random weird supplements and OTC meds like Garlic, Benefiber, Tylenol, Ibuprofen.. I go through so much of all of those.

- Exercise equipment or gym membership

- Purell. I could buy this stuff in a gallon jug.

- Books and newsletters about CF, or diet, or diabetes or health stuff in general. My CF book was like 30ish dollars, newsletters are 10 or 15 for Commitment I think.

- O2 meter if you buy it yoursef. Mini PFT meter.

Probably way more things I can't think of.

Edit: Just remembered clothes Saltyandsweet, thanks.

I have clothes ranging from a size 4 to a size 14. Seriously. <img src="i/expressions/face-icon-small-sad.gif" border="0"> 4 = sick. 14 = prednisone.
 

Sevenstars

New member
- Juice or a juicer. I buy a lot of the 'superfood' Naked juices because they have so many good vitamins, protein, iron etc. Those things are )(#$*#ing expensive! 3$ for a little 16oz bottle.

- Tissues and paper towels (to set out neb parts to dry)

- Distilled water for neti pot

- Neti pot and the salt to go in it

- Viactiv or generic calcium chews

- PARKING when I go to the doctor. My god, last year when I was sick and going in every two weeks... 8$ parking adds up for me.
And yes, gas too.

- Phone bills - sometimes I pay to get phone service in the hospital (you have to pay for it here!!) and its 6$ a day. But usually I try to avoid getting it. :/

- Random weird supplements and OTC meds like Garlic, Benefiber, Tylenol, Ibuprofen.. I go through so much of all of those.

- Exercise equipment or gym membership

- Purell. I could buy this stuff in a gallon jug.

- Books and newsletters about CF, or diet, or diabetes or health stuff in general. My CF book was like 30ish dollars, newsletters are 10 or 15 for Commitment I think.

- O2 meter if you buy it yoursef. Mini PFT meter.

Probably way more things I can't think of.

Edit: Just remembered clothes Saltyandsweet, thanks.

I have clothes ranging from a size 4 to a size 14. Seriously. <img src="i/expressions/face-icon-small-sad.gif" border="0"> 4 = sick. 14 = prednisone.
 

Sevenstars

New member
- Juice or a juicer. I buy a lot of the 'superfood' Naked juices because they have so many good vitamins, protein, iron etc. Those things are )(#$*#ing expensive! 3$ for a little 16oz bottle.

- Tissues and paper towels (to set out neb parts to dry)

- Distilled water for neti pot

- Neti pot and the salt to go in it

- Viactiv or generic calcium chews

- PARKING when I go to the doctor. My god, last year when I was sick and going in every two weeks... 8$ parking adds up for me.
And yes, gas too.

- Phone bills - sometimes I pay to get phone service in the hospital (you have to pay for it here!!) and its 6$ a day. But usually I try to avoid getting it. :/

- Random weird supplements and OTC meds like Garlic, Benefiber, Tylenol, Ibuprofen.. I go through so much of all of those.

- Exercise equipment or gym membership

- Purell. I could buy this stuff in a gallon jug.

- Books and newsletters about CF, or diet, or diabetes or health stuff in general. My CF book was like 30ish dollars, newsletters are 10 or 15 for Commitment I think.

- O2 meter if you buy it yoursef. Mini PFT meter.

Probably way more things I can't think of.

Edit: Just remembered clothes Saltyandsweet, thanks.

I have clothes ranging from a size 4 to a size 14. Seriously. <img src="i/expressions/face-icon-small-sad.gif" border="0"> 4 = sick. 14 = prednisone.
 

Sevenstars

New member
- Juice or a juicer. I buy a lot of the 'superfood' Naked juices because they have so many good vitamins, protein, iron etc. Those things are )(#$*#ing expensive! 3$ for a little 16oz bottle.
<br />
<br />- Tissues and paper towels (to set out neb parts to dry)
<br />
<br />- Distilled water for neti pot
<br />
<br />- Neti pot and the salt to go in it
<br />
<br />- Viactiv or generic calcium chews
<br />
<br />- PARKING when I go to the doctor. My god, last year when I was sick and going in every two weeks... 8$ parking adds up for me.
And yes, gas too.
<br />
<br />- Phone bills - sometimes I pay to get phone service in the hospital (you have to pay for it here!!) and its 6$ a day. But usually I try to avoid getting it. :/
<br />
<br />- Random weird supplements and OTC meds like Garlic, Benefiber, Tylenol, Ibuprofen.. I go through so much of all of those.
<br />
<br />- Exercise equipment or gym membership
<br />
<br />- Purell. I could buy this stuff in a gallon jug.
<br />
<br />- Books and newsletters about CF, or diet, or diabetes or health stuff in general. My CF book was like 30ish dollars, newsletters are 10 or 15 for Commitment I think.
<br />
<br />- O2 meter if you buy it yoursef. Mini PFT meter.
<br />
<br />Probably way more things I can't think of.
<br />
<br />Edit: Just remembered clothes Saltyandsweet, thanks.
<br />
<br />I have clothes ranging from a size 4 to a size 14. Seriously. <img src="i/expressions/face-icon-small-sad.gif" border="0"> 4 = sick. 14 = prednisone.
 

Ratatosk

Administrator
Staff member
Oooh, I forgot sunscreen. I realize that you're supposed to use sunscreen anyway, but DS is on Septra, which makes him ultra sensitive, so we slather him down with Hawaiian Tropic sunblock before preschool, they do it again before going outside at preschool and we do it again after supper in the summer time.
 

Ratatosk

Administrator
Staff member
Oooh, I forgot sunscreen. I realize that you're supposed to use sunscreen anyway, but DS is on Septra, which makes him ultra sensitive, so we slather him down with Hawaiian Tropic sunblock before preschool, they do it again before going outside at preschool and we do it again after supper in the summer time.
 

Ratatosk

Administrator
Staff member
Oooh, I forgot sunscreen. I realize that you're supposed to use sunscreen anyway, but DS is on Septra, which makes him ultra sensitive, so we slather him down with Hawaiian Tropic sunblock before preschool, they do it again before going outside at preschool and we do it again after supper in the summer time.
 

Ratatosk

Administrator
Staff member
Oooh, I forgot sunscreen. I realize that you're supposed to use sunscreen anyway, but DS is on Septra, which makes him ultra sensitive, so we slather him down with Hawaiian Tropic sunblock before preschool, they do it again before going outside at preschool and we do it again after supper in the summer time.
 

Ratatosk

Administrator
Staff member
Oooh, I forgot sunscreen. I realize that you're supposed to use sunscreen anyway, but DS is on Septra, which makes him ultra sensitive, so we slather him down with Hawaiian Tropic sunblock before preschool, they do it again before going outside at preschool and we do it again after supper in the summer time.
 
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