F/U Poll for CFers Who Work Full Time

[65rosessamurai]

I get up at 5:30am for a 15 to 20 min neb session. (My PD session is sporatic, though in my Judo and Aikido days, it was given to me during every practice!)
I then get ready for work, out the door by 7am and am at work around 8:45am.
On the average, my work days end at 5:30pm and I'm out the door by 6pm, but some days are longer <img src="i/expressions/face-icon-small-sad.gif" border="0">
I seem to have more stuff to do at home than at work so my bedtime ends up at 11pm. I'm trying to change that to get to bed around 10pm, 10:30pm at the latest.

As for amount of sleep, if I add my six and a half at night (give or take) with my 20 min on the morning train and 10 or 15 min at lunch (I get sleepy after eating lunch), then I'm close to 7 hours.

I'm sure its not enough sleep, esp. when I'm fighting an infection, but I suppose after about 15 years, I've gotten used to fighting the infections with little to no antibiotics, though the previously explained agenda is only about 1 year old.

 

[65rosessamurai]

I get up at 5:30am for a 15 to 20 min neb session. (My PD session is sporatic, though in my Judo and Aikido days, it was given to me during every practice!)
I then get ready for work, out the door by 7am and am at work around 8:45am.
On the average, my work days end at 5:30pm and I'm out the door by 6pm, but some days are longer <img src="i/expressions/face-icon-small-sad.gif" border="0">
I seem to have more stuff to do at home than at work so my bedtime ends up at 11pm. I'm trying to change that to get to bed around 10pm, 10:30pm at the latest.

As for amount of sleep, if I add my six and a half at night (give or take) with my 20 min on the morning train and 10 or 15 min at lunch (I get sleepy after eating lunch), then I'm close to 7 hours.

I'm sure its not enough sleep, esp. when I'm fighting an infection, but I suppose after about 15 years, I've gotten used to fighting the infections with little to no antibiotics, though the previously explained agenda is only about 1 year old.

 

[65rosessamurai]

I get up at 5:30am for a 15 to 20 min neb session. (My PD session is sporatic, though in my Judo and Aikido days, it was given to me during every practice!)
I then get ready for work, out the door by 7am and am at work around 8:45am.
On the average, my work days end at 5:30pm and I'm out the door by 6pm, but some days are longer <img src="i/expressions/face-icon-small-sad.gif" border="0">
I seem to have more stuff to do at home than at work so my bedtime ends up at 11pm. I'm trying to change that to get to bed around 10pm, 10:30pm at the latest.

As for amount of sleep, if I add my six and a half at night (give or take) with my 20 min on the morning train and 10 or 15 min at lunch (I get sleepy after eating lunch), then I'm close to 7 hours.

I'm sure its not enough sleep, esp. when I'm fighting an infection, but I suppose after about 15 years, I've gotten used to fighting the infections with little to no antibiotics, though the previously explained agenda is only about 1 year old.

 

[65rosessamurai]

I get up at 5:30am for a 15 to 20 min neb session. (My PD session is sporatic, though in my Judo and Aikido days, it was given to me during every practice!)
I then get ready for work, out the door by 7am and am at work around 8:45am.
On the average, my work days end at 5:30pm and I'm out the door by 6pm, but some days are longer <img src="i/expressions/face-icon-small-sad.gif" border="0">
I seem to have more stuff to do at home than at work so my bedtime ends up at 11pm. I'm trying to change that to get to bed around 10pm, 10:30pm at the latest.

As for amount of sleep, if I add my six and a half at night (give or take) with my 20 min on the morning train and 10 or 15 min at lunch (I get sleepy after eating lunch), then I'm close to 7 hours.

I'm sure its not enough sleep, esp. when I'm fighting an infection, but I suppose after about 15 years, I've gotten used to fighting the infections with little to no antibiotics, though the previously explained agenda is only about 1 year old.

 

[65rosessamurai]

I get up at 5:30am for a 15 to 20 min neb session. (My PD session is sporatic, though in my Judo and Aikido days, it was given to me during every practice!)
<br />I then get ready for work, out the door by 7am and am at work around 8:45am.
<br />On the average, my work days end at 5:30pm and I'm out the door by 6pm, but some days are longer <img src="i/expressions/face-icon-small-sad.gif" border="0">
<br />I seem to have more stuff to do at home than at work so my bedtime ends up at 11pm. I'm trying to change that to get to bed around 10pm, 10:30pm at the latest.
<br />
<br />As for amount of sleep, if I add my six and a half at night (give or take) with my 20 min on the morning train and 10 or 15 min at lunch (I get sleepy after eating lunch), then I'm close to 7 hours.
<br />
<br />I'm sure its not enough sleep, esp. when I'm fighting an infection, but I suppose after about 15 years, I've gotten used to fighting the infections with little to no antibiotics, though the previously explained agenda is only about 1 year old.

 

[wuffles]

I do hypertonic saline once a day, at night, takes half an hour. I also take the dog for a 30 minute walk every morning and some afternoons which I like to think is another form of treatment <img src="">

I am meant to do the saline twice a day but it's so hard to fit in. If only I could do it at the same time as walking the dog...

I wake up at 6, leave home at 8, get home 5:30, get to bed 10:30 to 11 (so 7 or 7.5 hours sleep).

EDIT: Oh, I also play volleyball at least twice a week for about 4 hours all up.

 

[wuffles]

I do hypertonic saline once a day, at night, takes half an hour. I also take the dog for a 30 minute walk every morning and some afternoons which I like to think is another form of treatment <img src="">

I am meant to do the saline twice a day but it's so hard to fit in. If only I could do it at the same time as walking the dog...

I wake up at 6, leave home at 8, get home 5:30, get to bed 10:30 to 11 (so 7 or 7.5 hours sleep).

EDIT: Oh, I also play volleyball at least twice a week for about 4 hours all up.

 

[wuffles]

I do hypertonic saline once a day, at night, takes half an hour. I also take the dog for a 30 minute walk every morning and some afternoons which I like to think is another form of treatment <img src="">

I am meant to do the saline twice a day but it's so hard to fit in. If only I could do it at the same time as walking the dog...

I wake up at 6, leave home at 8, get home 5:30, get to bed 10:30 to 11 (so 7 or 7.5 hours sleep).

EDIT: Oh, I also play volleyball at least twice a week for about 4 hours all up.

 

[wuffles]

I do hypertonic saline once a day, at night, takes half an hour. I also take the dog for a 30 minute walk every morning and some afternoons which I like to think is another form of treatment <img src="">

I am meant to do the saline twice a day but it's so hard to fit in. If only I could do it at the same time as walking the dog...

I wake up at 6, leave home at 8, get home 5:30, get to bed 10:30 to 11 (so 7 or 7.5 hours sleep).

EDIT: Oh, I also play volleyball at least twice a week for about 4 hours all up.

 

[wuffles]

I do hypertonic saline once a day, at night, takes half an hour. I also take the dog for a 30 minute walk every morning and some afternoons which I like to think is another form of treatment <img src="">
<br />
<br />I am meant to do the saline twice a day but it's so hard to fit in. If only I could do it at the same time as walking the dog...
<br />
<br />I wake up at 6, leave home at 8, get home 5:30, get to bed 10:30 to 11 (so 7 or 7.5 hours sleep).
<br />
<br />EDIT: Oh, I also play volleyball at least twice a week for about 4 hours all up.

 

[Fancymushroom]

I'm at university, and have a mild case of CF, so luckily it doesn't take up too much of my time as sickness ect.

I have salbutamol and colomycin nebs which all in all take about 30 mins twice a day. I exercise by running (anywhere from 3-10 miles, and slow or fast with my coach and training group), or doing cardio cross training in the gym, or dancing.

In addition if I am stickier, or roughly 3-4 times a week, I do a good PEP, PD, and manual CPT sesh all together to blow out some stuff that didn't come up during exercise.

I therefore get up about an hour earlier than if I didn't have it, but I like this as it gives me a chance to wake up and do my emails/ work! It's a nice feeling when by 9am you have done a workout, nebs and meds, replied to your emails, had a shower, and eaten a nice breakfast! x

 

[Fancymushroom]

I'm at university, and have a mild case of CF, so luckily it doesn't take up too much of my time as sickness ect.

I have salbutamol and colomycin nebs which all in all take about 30 mins twice a day. I exercise by running (anywhere from 3-10 miles, and slow or fast with my coach and training group), or doing cardio cross training in the gym, or dancing.

In addition if I am stickier, or roughly 3-4 times a week, I do a good PEP, PD, and manual CPT sesh all together to blow out some stuff that didn't come up during exercise.

I therefore get up about an hour earlier than if I didn't have it, but I like this as it gives me a chance to wake up and do my emails/ work! It's a nice feeling when by 9am you have done a workout, nebs and meds, replied to your emails, had a shower, and eaten a nice breakfast! x

 

[Fancymushroom]

I'm at university, and have a mild case of CF, so luckily it doesn't take up too much of my time as sickness ect.

I have salbutamol and colomycin nebs which all in all take about 30 mins twice a day. I exercise by running (anywhere from 3-10 miles, and slow or fast with my coach and training group), or doing cardio cross training in the gym, or dancing.

In addition if I am stickier, or roughly 3-4 times a week, I do a good PEP, PD, and manual CPT sesh all together to blow out some stuff that didn't come up during exercise.

I therefore get up about an hour earlier than if I didn't have it, but I like this as it gives me a chance to wake up and do my emails/ work! It's a nice feeling when by 9am you have done a workout, nebs and meds, replied to your emails, had a shower, and eaten a nice breakfast! x

 

[Fancymushroom]

I'm at university, and have a mild case of CF, so luckily it doesn't take up too much of my time as sickness ect.

I have salbutamol and colomycin nebs which all in all take about 30 mins twice a day. I exercise by running (anywhere from 3-10 miles, and slow or fast with my coach and training group), or doing cardio cross training in the gym, or dancing.

In addition if I am stickier, or roughly 3-4 times a week, I do a good PEP, PD, and manual CPT sesh all together to blow out some stuff that didn't come up during exercise.

I therefore get up about an hour earlier than if I didn't have it, but I like this as it gives me a chance to wake up and do my emails/ work! It's a nice feeling when by 9am you have done a workout, nebs and meds, replied to your emails, had a shower, and eaten a nice breakfast! x

 

[Fancymushroom]

I'm at university, and have a mild case of CF, so luckily it doesn't take up too much of my time as sickness ect.
<br />
<br />I have salbutamol and colomycin nebs which all in all take about 30 mins twice a day. I exercise by running (anywhere from 3-10 miles, and slow or fast with my coach and training group), or doing cardio cross training in the gym, or dancing.
<br />
<br />In addition if I am stickier, or roughly 3-4 times a week, I do a good PEP, PD, and manual CPT sesh all together to blow out some stuff that didn't come up during exercise.
<br />
<br />I therefore get up about an hour earlier than if I didn't have it, but I like this as it gives me a chance to wake up and do my emails/ work! It's a nice feeling when by 9am you have done a workout, nebs and meds, replied to your emails, had a shower, and eaten a nice breakfast! x

 

[AnD]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Kristen</b></i>

how did you do your nebs in the car?? That would be so awesome. I once asked my doctor if there was something I could plug into the cigarette lighter slot-thingy, and he said it didn't provide enough power to make the fine mist needed to get really deep into our lungs.</end quote></div>

I don't work outside the home (but have a 5 year old at home <img src="i/expressions/face-icon-small-wink.gif" border="0"> ), but I do have a Pari Trek S for the car (it has a rechargable battery pack or you can plug it into the accessory outlet). Here's a link, and this is a good price too (less than I paid last year)!

<a target=_blank class=ftalternatingbarlinklarge href="http://dhmedical.com/newpatrspone.html">http://dhmedical.com/newpatrspone.html</a>

It doesn't do <i>quite</i> a fine enough mist (it's close though if you use a Pari LC + with it instead of the Pari Sprint neb it comes with) for things like Pulmozyme and Tobi, but it is fine for Xopenex, Albuterol and HS.

If I'm on the run and running too late to do my Pulmozyme and Tobi before I leave the house in the morning, I will take them with me and do them in the car (the "something is better than nothing" theory <img src="i/expressions/face-icon-small-wink.gif" border="0"> ). I usually do Xopenex and HS in the car at least twice a week on my way to go swim, and sometimes in the evenings if we have been out and about- it gets me a head start on getting to bed at a decent (haha-night owl here) hour.

 

[AnD]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Kristen</b></i>

how did you do your nebs in the car?? That would be so awesome. I once asked my doctor if there was something I could plug into the cigarette lighter slot-thingy, and he said it didn't provide enough power to make the fine mist needed to get really deep into our lungs.</end quote></div>

I don't work outside the home (but have a 5 year old at home <img src="i/expressions/face-icon-small-wink.gif" border="0"> ), but I do have a Pari Trek S for the car (it has a rechargable battery pack or you can plug it into the accessory outlet). Here's a link, and this is a good price too (less than I paid last year)!

<a target=_blank class=ftalternatingbarlinklarge href="http://dhmedical.com/newpatrspone.html">http://dhmedical.com/newpatrspone.html</a>

It doesn't do <i>quite</i> a fine enough mist (it's close though if you use a Pari LC + with it instead of the Pari Sprint neb it comes with) for things like Pulmozyme and Tobi, but it is fine for Xopenex, Albuterol and HS.

If I'm on the run and running too late to do my Pulmozyme and Tobi before I leave the house in the morning, I will take them with me and do them in the car (the "something is better than nothing" theory <img src="i/expressions/face-icon-small-wink.gif" border="0"> ). I usually do Xopenex and HS in the car at least twice a week on my way to go swim, and sometimes in the evenings if we have been out and about- it gets me a head start on getting to bed at a decent (haha-night owl here) hour.

 

[AnD]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Kristen</b></i>

how did you do your nebs in the car?? That would be so awesome. I once asked my doctor if there was something I could plug into the cigarette lighter slot-thingy, and he said it didn't provide enough power to make the fine mist needed to get really deep into our lungs.</end quote></div>

I don't work outside the home (but have a 5 year old at home <img src="i/expressions/face-icon-small-wink.gif" border="0"> ), but I do have a Pari Trek S for the car (it has a rechargable battery pack or you can plug it into the accessory outlet). Here's a link, and this is a good price too (less than I paid last year)!

<a target=_blank class=ftalternatingbarlinklarge href="http://dhmedical.com/newpatrspone.html">http://dhmedical.com/newpatrspone.html</a>

It doesn't do <i>quite</i> a fine enough mist (it's close though if you use a Pari LC + with it instead of the Pari Sprint neb it comes with) for things like Pulmozyme and Tobi, but it is fine for Xopenex, Albuterol and HS.

If I'm on the run and running too late to do my Pulmozyme and Tobi before I leave the house in the morning, I will take them with me and do them in the car (the "something is better than nothing" theory <img src="i/expressions/face-icon-small-wink.gif" border="0"> ). I usually do Xopenex and HS in the car at least twice a week on my way to go swim, and sometimes in the evenings if we have been out and about- it gets me a head start on getting to bed at a decent (haha-night owl here) hour.

 

[AnD]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Kristen</b></i>

how did you do your nebs in the car?? That would be so awesome. I once asked my doctor if there was something I could plug into the cigarette lighter slot-thingy, and he said it didn't provide enough power to make the fine mist needed to get really deep into our lungs.</end quote>

I don't work outside the home (but have a 5 year old at home <img src="i/expressions/face-icon-small-wink.gif" border="0"> ), but I do have a Pari Trek S for the car (it has a rechargable battery pack or you can plug it into the accessory outlet). Here's a link, and this is a good price too (less than I paid last year)!

<a target=_blank class=ftalternatingbarlinklarge href="http://dhmedical.com/newpatrspone.html">http://dhmedical.com/newpatrspone.html</a>

It doesn't do <i>quite</i> a fine enough mist (it's close though if you use a Pari LC + with it instead of the Pari Sprint neb it comes with) for things like Pulmozyme and Tobi, but it is fine for Xopenex, Albuterol and HS.

If I'm on the run and running too late to do my Pulmozyme and Tobi before I leave the house in the morning, I will take them with me and do them in the car (the "something is better than nothing" theory <img src="i/expressions/face-icon-small-wink.gif" border="0"> ). I usually do Xopenex and HS in the car at least twice a week on my way to go swim, and sometimes in the evenings if we have been out and about- it gets me a head start on getting to bed at a decent (haha-night owl here) hour.

 

[AnD]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Kristen</b></i>
<br />
<br />how did you do your nebs in the car?? That would be so awesome. I once asked my doctor if there was something I could plug into the cigarette lighter slot-thingy, and he said it didn't provide enough power to make the fine mist needed to get really deep into our lungs.</end quote>
<br />
<br />I don't work outside the home (but have a 5 year old at home <img src="i/expressions/face-icon-small-wink.gif" border="0"> ), but I do have a Pari Trek S for the car (it has a rechargable battery pack or you can plug it into the accessory outlet). Here's a link, and this is a good price too (less than I paid last year)!
<br />
<br /><a target=_blank class=ftalternatingbarlinklarge href="http://dhmedical.com/newpatrspone.html">http://dhmedical.com/newpatrspone.html</a>
<br />
<br />It doesn't do <i>quite</i> a fine enough mist (it's close though if you use a Pari LC + with it instead of the Pari Sprint neb it comes with) for things like Pulmozyme and Tobi, but it is fine for Xopenex, Albuterol and HS.
<br />
<br />If I'm on the run and running too late to do my Pulmozyme and Tobi before I leave the house in the morning, I will take them with me and do them in the car (the "something is better than nothing" theory <img src="i/expressions/face-icon-small-wink.gif" border="0"> ). I usually do Xopenex and HS in the car at least twice a week on my way to go swim, and sometimes in the evenings if we have been out and about- it gets me a head start on getting to bed at a decent (haha-night owl here) hour.
<br />
<br />