I have been using the Eflow since January and I can not say in words how much it means to me and how much I love it. Not only is it silent but the treatments get done faster and get down in your lungs better. I TOTALLY believe that cause #1 my PFT has gone up since starting the Eflow along with Colistin AND I am no longer coughing at night, sleep on a normal two pillows and SLEEP through the nite! I have not felt this good in sooooooooo long!!! It is a shame that some CF centers are not proponents of this nebulizer. I know this cause in researching some CF Centers cause I am moving I ask if they are propents and they said they pretty much go by the book and wont use it off label. SHAME! I am so glad I have it now cause those centers said they would not make me change but what about the other CF patients that could be getting these benefits...UGH.
Anyway here is what I do to keep my eflow working 100%. I do each med one after the other so the metal head has NO TIME to clog up and dry up from meds sitting on it. I also the second I am done run to the bathroom to do ALL the cleaning and disinfecting. I really think that is key, that way no meds are sitting on the metal head drying up and clogging it. I have tried to wait a few minutes before cleaning to finish up my vest but it made the metal head clog. So, I rinse the metal head with distilled water, then I add a drop of clear liquied soap to some distilled water in a container and drop the metal head in it and swoosh it all around for a few minutes. Then I rinse the metal head with distilled and then store in the alcohol in a little container, until next use. Then I wash the plastic pieces same way but with warm tap water. Once a day I put ALL pieces in my AVENT IQ24 sterilizer and I use distilled water and disinfect them. Once a week I change the alcohol in the container I use to store the metal head. After the steam process is done I let plastic pieces air dry and put the metal head in the alcohol right from the sterilizer, right away, I do not let metal head air dry, it goes right into the alochol conatiner. Then I am good to go and it has worked wonderfully for me now!
Good Luck! I love the Eflow too!!!!
Jennifer 38 with CF and CFRD
