For those of you who've been on Coumadin...

jleigh

New member
<font class="Apple-style-span" face="arial">I have been on Warfarin (coumadin) for 6 days now and I as wondering if anyone else who has had to take this crap (sorry)  has experienced shortness of breath?  Also, did it make you really tired?  </font><div><font class="Apple-style-span" face="arial"><br></font></div><div><font class="Apple-style-span" face="arial">Thanks,</font></div><div><font class="Apple-style-span" face="arial">Jen 41 w/cf </font></div>
 

jleigh

New member
<font class="Apple-style-span" face="arial">I have been on Warfarin (coumadin) for 6 days now and I as wondering if anyone else who has had to take this crap (sorry) has experienced shortness of breath? Also, did it make you really tired? </font><font class="Apple-style-span" face="arial"><br></font><font class="Apple-style-span" face="arial">Thanks,</font><font class="Apple-style-span" face="arial">Jen 41 w/cf</font>
 

jleigh

New member
<font class="Apple-style-span" face="arial">I have been on Warfarin (coumadin) for 6 days now and I as wondering if anyone else who has had to take this crap (sorry) has experienced shortness of breath? Also, did it make you really tired? </font><font class="Apple-style-span" face="arial"><br></font><font class="Apple-style-span" face="arial">Thanks,</font><font class="Apple-style-span" face="arial">Jen 41 w/cf</font>
 

phutton

New member
I was on coumadin for a couple months. It didn't effect my breathing, but did make me very tired. I think the biggest frustration was my levels were never regulate. It was high then low, it was a nightmare. I think crap is the best choice of word for it!!
 

phutton

New member
I was on coumadin for a couple months. It didn't effect my breathing, but did make me very tired. I think the biggest frustration was my levels were never regulate. It was high then low, it was a nightmare. I think crap is the best choice of word for it!!
 

phutton

New member
I was on coumadin for a couple months. It didn't effect my breathing, but did make me very tired. I think the biggest frustration was my levels were never regulate. It was high then low, it was a nightmare. I think crap is the best choice of word for it!!
 

JustDucky

New member
I have been on coumadin chronically for 3 or so years now because I am at high risk for clotting (have had them in my lungs and legs). Not sure if I feel tired or not on it. As Pepsi said, the hardest part is regulating the INR levels. Mine are always a mess, either too low or too high. I have found that whenever I am on certain medications, my INR's shoot right up. Merrem is one of them, so are Diflucan and Vancomycin. My INR has been as high as 9 (theraputic for me is between 2 and 3). I also find that whenever I am getting a whopping infection (sepsis), my INR's are very high as well. As far as the low side, if I go nuts with the dark greens in my diet, then my INR's will drop. Anything with high Vit K in it will counteract the coumadin. That's why I don't take ADEK's, just extra A, D and E but no K because I would have to take huge amounts of coumadin to regulate those INR's. Even though I have been on this for years, I get weekly draws to check my levels because they fluctuate so much. Hope you have better luck! If you have any more questions, ask away <img src="i/expressions/face-icon-small-smile.gif" border="0">
Jenn 39 w/CF
 

JustDucky

New member
I have been on coumadin chronically for 3 or so years now because I am at high risk for clotting (have had them in my lungs and legs). Not sure if I feel tired or not on it. As Pepsi said, the hardest part is regulating the INR levels. Mine are always a mess, either too low or too high. I have found that whenever I am on certain medications, my INR's shoot right up. Merrem is one of them, so are Diflucan and Vancomycin. My INR has been as high as 9 (theraputic for me is between 2 and 3). I also find that whenever I am getting a whopping infection (sepsis), my INR's are very high as well. As far as the low side, if I go nuts with the dark greens in my diet, then my INR's will drop. Anything with high Vit K in it will counteract the coumadin. That's why I don't take ADEK's, just extra A, D and E but no K because I would have to take huge amounts of coumadin to regulate those INR's. Even though I have been on this for years, I get weekly draws to check my levels because they fluctuate so much. Hope you have better luck! If you have any more questions, ask away <img src="i/expressions/face-icon-small-smile.gif" border="0">
Jenn 39 w/CF
 

JustDucky

New member
I have been on coumadin chronically for 3 or so years now because I am at high risk for clotting (have had them in my lungs and legs). Not sure if I feel tired or not on it. As Pepsi said, the hardest part is regulating the INR levels. Mine are always a mess, either too low or too high. I have found that whenever I am on certain medications, my INR's shoot right up. Merrem is one of them, so are Diflucan and Vancomycin. My INR has been as high as 9 (theraputic for me is between 2 and 3). I also find that whenever I am getting a whopping infection (sepsis), my INR's are very high as well. As far as the low side, if I go nuts with the dark greens in my diet, then my INR's will drop. Anything with high Vit K in it will counteract the coumadin. That's why I don't take ADEK's, just extra A, D and E but no K because I would have to take huge amounts of coumadin to regulate those INR's. Even though I have been on this for years, I get weekly draws to check my levels because they fluctuate so much. Hope you have better luck! If you have any more questions, ask away <img src="i/expressions/face-icon-small-smile.gif" border="0">
<br />Jenn 39 w/CF
 
B

bethylove

Guest
I just started taking Coumadin a week or two ago. So far it has been nothing but a pain in the butt. Especially since I've started to not feel so hot, so it's back on antibiotics for me. . . which means having the hemotologist call me everyday, seeing them a few times a week for blood work, etc. I have been extra tired lately, just no energy whatsoever, but I had chalked it up to not feeling great (the SOB too) now I'm wondering if it has anything to do with the coumadin. Interesting thought. If my energy levels don't pick back up on these antibiotics it might be worth a chat to see if that could be the cause.

If it's not one thing, it's another right? sigh.
 
B

bethylove

Guest
I just started taking Coumadin a week or two ago. So far it has been nothing but a pain in the butt. Especially since I've started to not feel so hot, so it's back on antibiotics for me. . . which means having the hemotologist call me everyday, seeing them a few times a week for blood work, etc. I have been extra tired lately, just no energy whatsoever, but I had chalked it up to not feeling great (the SOB too) now I'm wondering if it has anything to do with the coumadin. Interesting thought. If my energy levels don't pick back up on these antibiotics it might be worth a chat to see if that could be the cause.

If it's not one thing, it's another right? sigh.
 
B

bethylove

Guest
I just started taking Coumadin a week or two ago. So far it has been nothing but a pain in the butt. Especially since I've started to not feel so hot, so it's back on antibiotics for me. . . which means having the hemotologist call me everyday, seeing them a few times a week for blood work, etc. I have been extra tired lately, just no energy whatsoever, but I had chalked it up to not feeling great (the SOB too) now I'm wondering if it has anything to do with the coumadin. Interesting thought. If my energy levels don't pick back up on these antibiotics it might be worth a chat to see if that could be the cause.
<br />
<br />If it's not one thing, it's another right? sigh.
 

jleigh

New member
Thanks to all of you for your replies.  After a month now of being on it, it has been nothing short of a nightmare!!  And I have been on Lovenox all of this time with the exception of maybe 4 days.  I even got a hematoma from the injections :p  My levels finally went therapeutic, then wham...dropped like a lead weight and stayed there.  Finally they jacked my warfarin up to 15 mg for 3 days and yesterday when I went in my level was 3.96.  So frustrating....I cannot wait for this therapy to be over!  Oh and Pepsi...this crap really makes me tired as well.  I just want to lay down and take naps everyday!  And Beth...what did you have to go on coumadin for?  I ended up getting a DVT in my arm following my PICC removal.  Yes...always something! :p<br><br><br>Jen 41 w/CF<br>
 

jleigh

New member
Thanks to all of you for your replies. After a month now of being on it, it has been nothing short of a nightmare!! And I have been on Lovenox all of this time with the exception of maybe 4 days. I even got a hematoma from the injections :p My levels finally went therapeutic, then wham...dropped like a lead weight and stayed there. Finally they jacked my warfarin up to 15 mg for 3 days and yesterday when I went in my level was 3.96. So frustrating....I cannot wait for this therapy to be over! Oh and Pepsi...this crap really makes me tired as well. I just want to lay down and take naps everyday! And Beth...what did you have to go on coumadin for? I ended up getting a DVT in my arm following my PICC removal. Yes...always something! :p<br><br><br>Jen 41 w/CF<br>
 

jleigh

New member
Thanks to all of you for your replies. After a month now of being on it, it has been nothing short of a nightmare!! And I have been on Lovenox all of this time with the exception of maybe 4 days. I even got a hematoma from the injections :p My levels finally went therapeutic, then wham...dropped like a lead weight and stayed there. Finally they jacked my warfarin up to 15 mg for 3 days and yesterday when I went in my level was 3.96. So frustrating....I cannot wait for this therapy to be over! Oh and Pepsi...this crap really makes me tired as well. I just want to lay down and take naps everyday! And Beth...what did you have to go on coumadin for? I ended up getting a DVT in my arm following my PICC removal. Yes...always something! :p<br><br><br>Jen 41 w/CF<br>
 

beleache

New member
Hi Jen, <div><br></div><div> I have been on coumadin in the past but it was switched to Arixtria sub q injections due to hemoptysis (sp)  The injections can be stopped & restarted whenever needed..  </div><div><br></div><div>I dont recall having any SOB issues due to the oral med.  I usually am tired all the time but don't think the blood thinners have anything to do with it..  </div><div><br></div><div> Hope you feel better  <img src="i/expressions/face-icon-small-smile.gif" border="0">  joni</div>
 

beleache

New member
Hi Jen,<br>I have been on coumadin in the past but it was switched to Arixtria sub q injections due to hemoptysis (sp) The injections can be stopped & restarted whenever needed.. <br>I dont recall having any SOB issues due to the oral med. I usually am tired all the time but don't think the blood thinners have anything to do with it.. <br>Hope you feel better <img src="i/expressions/face-icon-small-smile.gif" border="0"> joni
 

beleache

New member
Hi Jen,<br>I have been on coumadin in the past but it was switched to Arixtria sub q injections due to hemoptysis (sp) The injections can be stopped & restarted whenever needed.. <br>I dont recall having any SOB issues due to the oral med. I usually am tired all the time but don't think the blood thinners have anything to do with it.. <br>Hope you feel better <img src="i/expressions/face-icon-small-smile.gif" border="0"> joni
 

saveferris2009

New member
there's truly no reason you should have to be on coumadin for a DVT. <div><br></div><div>It's very old school and there are so many better options out there such as Lovenox and Arixtra that work much faster, don't require the same crazy monitoring, and won't make you feel like crap. <br>
<br>Hope you feel better soon.
<br>
<br>http://noexcusesnoexcuses.blogspot.com/search/label/DVT</div>
 

saveferris2009

New member
there's truly no reason you should have to be on coumadin for a DVT.<br>It's very old school and there are so many better options out there such as Lovenox and Arixtra that work much faster, don't require the same crazy monitoring, and won't make you feel like crap.<br>
<br>Hope you feel better soon.
<br>
<br>http://noexcusesnoexcuses.blogspot.com/search/label/DVT
 
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