G Tube and a 2 yr old???

BabyBeauty · Dec 14, 2009

My daughter is almost 2yrs and has no problem running, dancing, jumping, wrestling, screaming, getting into trouble...I would even venture to say she is more active than all of her 2 yr old friends!

She has had it for over a year now and it has been great! We definitely had to get used to it. Things take a lot longer at first. But we are pros now and wouldn't change our decision at all! She was struggling with her weight and then we decided to go for it. Since then she has been hitting all of her growth goals.

It is a huge weight off of our backs to know that if she doesn't eat (which is sooooo common for a toddler) we pump her! She sits in a special chair and watches her favorite show, Dora. Weight is such a huge issue for CFers and having a toddler that doesn't understand they need to eat makes it so stressful.

Every family is different and approaches things differently. We have had a good experience, but you should weigh the pros and cons and you will make the right decision.

BabyBeauty · Dec 14, 2009

My daughter is almost 2yrs and has no problem running, dancing, jumping, wrestling, screaming, getting into trouble...I would even venture to say she is more active than all of her 2 yr old friends!

She has had it for over a year now and it has been great! We definitely had to get used to it. Things take a lot longer at first. But we are pros now and wouldn't change our decision at all! She was struggling with her weight and then we decided to go for it. Since then she has been hitting all of her growth goals.

It is a huge weight off of our backs to know that if she doesn't eat (which is sooooo common for a toddler) we pump her! She sits in a special chair and watches her favorite show, Dora. Weight is such a huge issue for CFers and having a toddler that doesn't understand they need to eat makes it so stressful.

Every family is different and approaches things differently. We have had a good experience, but you should weigh the pros and cons and you will make the right decision.

BabyBeauty · Dec 14, 2009

My daughter is almost 2yrs and has no problem running, dancing, jumping, wrestling, screaming, getting into trouble...I would even venture to say she is more active than all of her 2 yr old friends!

She has had it for over a year now and it has been great! We definitely had to get used to it. Things take a lot longer at first. But we are pros now and wouldn't change our decision at all! She was struggling with her weight and then we decided to go for it. Since then she has been hitting all of her growth goals.

It is a huge weight off of our backs to know that if she doesn't eat (which is sooooo common for a toddler) we pump her! She sits in a special chair and watches her favorite show, Dora. Weight is such a huge issue for CFers and having a toddler that doesn't understand they need to eat makes it so stressful.

Every family is different and approaches things differently. We have had a good experience, but you should weigh the pros and cons and you will make the right decision.

BabyBeauty · Dec 14, 2009

My daughter is almost 2yrs and has no problem running, dancing, jumping, wrestling, screaming, getting into trouble...I would even venture to say she is more active than all of her 2 yr old friends!

She has had it for over a year now and it has been great! We definitely had to get used to it. Things take a lot longer at first. But we are pros now and wouldn't change our decision at all! She was struggling with her weight and then we decided to go for it. Since then she has been hitting all of her growth goals.

It is a huge weight off of our backs to know that if she doesn't eat (which is sooooo common for a toddler) we pump her! She sits in a special chair and watches her favorite show, Dora. Weight is such a huge issue for CFers and having a toddler that doesn't understand they need to eat makes it so stressful.

Every family is different and approaches things differently. We have had a good experience, but you should weigh the pros and cons and you will make the right decision.

BabyBeauty · Dec 14, 2009

My daughter is almost 2yrs and has no problem running, dancing, jumping, wrestling, screaming, getting into trouble...I would even venture to say she is more active than all of her 2 yr old friends!
 
 She has had it for over a year now and it has been great! We definitely had to get used to it. Things take a lot longer at first. But we are pros now and wouldn't change our decision at all! She was struggling with her weight and then we decided to go for it. Since then she has been hitting all of her growth goals.
 
 It is a huge weight off of our backs to know that if she doesn't eat (which is sooooo common for a toddler) we pump her! She sits in a special chair and watches her favorite show, Dora. Weight is such a huge issue for CFers and having a toddler that doesn't understand they need to eat makes it so stressful.
 
 Every family is different and approaches things differently. We have had a good experience, but you should weigh the pros and cons and you will make the right decision.

mbrandazzo · Dec 15, 2009

Hi,
My son got his tube when he was about 18 months old... We were really nervous to go through with it too, but as the other Moms have said, its benefits have outweighed the concerns and troubles... Logan went from the 7th%tile to the 66th within a month after getting the tube. It also has been a stress relief not to have to fight with him to eat. Meal time has become more relaxing...

Not only that, but he is still running around like crazy... He climbs, swims, and never lets the tube get in the way. Another thought is that when a person gets a tube at a younger age, they grow up with it, so it is just like another part of their body.

NO one can tell you what decision to make... It is up to you and your family... I wish you nothing but the best of luck with whatever you decide, and if you ever need any advice if you do go through with it feel free to PM me.

mbrandazzo · Dec 15, 2009

Hi,
My son got his tube when he was about 18 months old... We were really nervous to go through with it too, but as the other Moms have said, its benefits have outweighed the concerns and troubles... Logan went from the 7th%tile to the 66th within a month after getting the tube. It also has been a stress relief not to have to fight with him to eat. Meal time has become more relaxing...

Not only that, but he is still running around like crazy... He climbs, swims, and never lets the tube get in the way. Another thought is that when a person gets a tube at a younger age, they grow up with it, so it is just like another part of their body.

NO one can tell you what decision to make... It is up to you and your family... I wish you nothing but the best of luck with whatever you decide, and if you ever need any advice if you do go through with it feel free to PM me.

mbrandazzo · Dec 15, 2009

Hi,
My son got his tube when he was about 18 months old... We were really nervous to go through with it too, but as the other Moms have said, its benefits have outweighed the concerns and troubles... Logan went from the 7th%tile to the 66th within a month after getting the tube. It also has been a stress relief not to have to fight with him to eat. Meal time has become more relaxing...

Not only that, but he is still running around like crazy... He climbs, swims, and never lets the tube get in the way. Another thought is that when a person gets a tube at a younger age, they grow up with it, so it is just like another part of their body.

NO one can tell you what decision to make... It is up to you and your family... I wish you nothing but the best of luck with whatever you decide, and if you ever need any advice if you do go through with it feel free to PM me.

mbrandazzo · Dec 15, 2009

Hi,
My son got his tube when he was about 18 months old... We were really nervous to go through with it too, but as the other Moms have said, its benefits have outweighed the concerns and troubles... Logan went from the 7th%tile to the 66th within a month after getting the tube. It also has been a stress relief not to have to fight with him to eat. Meal time has become more relaxing...

Not only that, but he is still running around like crazy... He climbs, swims, and never lets the tube get in the way. Another thought is that when a person gets a tube at a younger age, they grow up with it, so it is just like another part of their body.

NO one can tell you what decision to make... It is up to you and your family... I wish you nothing but the best of luck with whatever you decide, and if you ever need any advice if you do go through with it feel free to PM me.

mbrandazzo · Dec 15, 2009

Hi,
 My son got his tube when he was about 18 months old... We were really nervous to go through with it too, but as the other Moms have said, its benefits have outweighed the concerns and troubles... Logan went from the 7th%tile to the 66th within a month after getting the tube. It also has been a stress relief not to have to fight with him to eat. Meal time has become more relaxing...
 
 Not only that, but he is still running around like crazy... He climbs, swims, and never lets the tube get in the way. Another thought is that when a person gets a tube at a younger age, they grow up with it, so it is just like another part of their body.
 
 NO one can tell you what decision to make... It is up to you and your family... I wish you nothing but the best of luck with whatever you decide, and if you ever need any advice if you do go through with it feel free to PM me.

izemmom · Dec 15, 2009

I can more or less echo everything posted above!

Emily is now 4 and got her tube at about 18 months. I resisted, worried, panicked, got a second opinion from another CF center, got angty, felt guilty, worried what she would feel and what other kids would say and do.... It was a terrible decision to have to make. I hated everything about it.

But, I came to the conclusion that it was the right thing to do for her, medically, and that HAD to trump all my other issues (social, emotional, esthetic...). If the CF team had told me that she needed to go on a new medication, or start a new therapy or go in for a tune up, I would not have resisted. I would have praised them for being proactive and having her best interest at heart. So, how was this different? The truth was, THIS made ME scared. THIS would be hard to deny. THIS would make MY child outwardly different. They were all MY issues.

So, we went ahead with it. WIth in 2 or 3 days Emily was back to her normal, active, sometimes WILD self. She was not fazed at all by the sudden presence of a piece of plastic sticking out of her tummy. She just accepted it and we moved on and adjusted it. I can assure you, this would not have been the case had we waited until she was the age she is now! Now she fights everything, questions everything, resists new things. Then, she didn't know how to do that, and she just adjusted.

Her health has improved tenfold. She has reached and maintained the 50th percentile for weight and surpassed it for height. We have been able to cut back on the number of nights per week that she is tube fed and she continues to gain! Getting the tube has been the single best thing that had happened to her, healthwise.

SHe runs, jumps from snow hills, was the star of her summer swimming class, tackles her big sister, wrestles with Daddy and LOVES her ballet class! I thought that the little bump through the swimsuit or leotard might bother her, but she hasn't said a word. If kids say something to her (Or, once a really rude adult in the changing room at the pool!!!) she just says "That's my tube. Do you have one?" Once she told a kid who was bothering her about it that it was "Very Dangerous. Don't touch it because it could hurt you very bad!!!" Then she came home and told us that she scared him away so he would leave her alone!!!

If you can't tell already, I'm very pro g-tube. You will, of course, need to make the decision for your daughter based on what your heart, head and gut tell you. Just PLEASE don't let guilt, fear or another person's opinion keep you from doing something that has the potential to be a lifesaver. We're all here if you have specific questions or want to see pictures of how the tube looks once it's in.

This is a tought decision, so go easy on yourself and don't rush into it. We're cheering for you!

izemmom · Dec 15, 2009

I can more or less echo everything posted above!

Emily is now 4 and got her tube at about 18 months. I resisted, worried, panicked, got a second opinion from another CF center, got angty, felt guilty, worried what she would feel and what other kids would say and do.... It was a terrible decision to have to make. I hated everything about it.

But, I came to the conclusion that it was the right thing to do for her, medically, and that HAD to trump all my other issues (social, emotional, esthetic...). If the CF team had told me that she needed to go on a new medication, or start a new therapy or go in for a tune up, I would not have resisted. I would have praised them for being proactive and having her best interest at heart. So, how was this different? The truth was, THIS made ME scared. THIS would be hard to deny. THIS would make MY child outwardly different. They were all MY issues.

So, we went ahead with it. WIth in 2 or 3 days Emily was back to her normal, active, sometimes WILD self. She was not fazed at all by the sudden presence of a piece of plastic sticking out of her tummy. She just accepted it and we moved on and adjusted it. I can assure you, this would not have been the case had we waited until she was the age she is now! Now she fights everything, questions everything, resists new things. Then, she didn't know how to do that, and she just adjusted.

Her health has improved tenfold. She has reached and maintained the 50th percentile for weight and surpassed it for height. We have been able to cut back on the number of nights per week that she is tube fed and she continues to gain! Getting the tube has been the single best thing that had happened to her, healthwise.

SHe runs, jumps from snow hills, was the star of her summer swimming class, tackles her big sister, wrestles with Daddy and LOVES her ballet class! I thought that the little bump through the swimsuit or leotard might bother her, but she hasn't said a word. If kids say something to her (Or, once a really rude adult in the changing room at the pool!!!) she just says "That's my tube. Do you have one?" Once she told a kid who was bothering her about it that it was "Very Dangerous. Don't touch it because it could hurt you very bad!!!" Then she came home and told us that she scared him away so he would leave her alone!!!

If you can't tell already, I'm very pro g-tube. You will, of course, need to make the decision for your daughter based on what your heart, head and gut tell you. Just PLEASE don't let guilt, fear or another person's opinion keep you from doing something that has the potential to be a lifesaver. We're all here if you have specific questions or want to see pictures of how the tube looks once it's in.

This is a tought decision, so go easy on yourself and don't rush into it. We're cheering for you!

izemmom · Dec 15, 2009

I can more or less echo everything posted above!

Emily is now 4 and got her tube at about 18 months. I resisted, worried, panicked, got a second opinion from another CF center, got angty, felt guilty, worried what she would feel and what other kids would say and do.... It was a terrible decision to have to make. I hated everything about it.

But, I came to the conclusion that it was the right thing to do for her, medically, and that HAD to trump all my other issues (social, emotional, esthetic...). If the CF team had told me that she needed to go on a new medication, or start a new therapy or go in for a tune up, I would not have resisted. I would have praised them for being proactive and having her best interest at heart. So, how was this different? The truth was, THIS made ME scared. THIS would be hard to deny. THIS would make MY child outwardly different. They were all MY issues.

So, we went ahead with it. WIth in 2 or 3 days Emily was back to her normal, active, sometimes WILD self. She was not fazed at all by the sudden presence of a piece of plastic sticking out of her tummy. She just accepted it and we moved on and adjusted it. I can assure you, this would not have been the case had we waited until she was the age she is now! Now she fights everything, questions everything, resists new things. Then, she didn't know how to do that, and she just adjusted.

Her health has improved tenfold. She has reached and maintained the 50th percentile for weight and surpassed it for height. We have been able to cut back on the number of nights per week that she is tube fed and she continues to gain! Getting the tube has been the single best thing that had happened to her, healthwise.

SHe runs, jumps from snow hills, was the star of her summer swimming class, tackles her big sister, wrestles with Daddy and LOVES her ballet class! I thought that the little bump through the swimsuit or leotard might bother her, but she hasn't said a word. If kids say something to her (Or, once a really rude adult in the changing room at the pool!!!) she just says "That's my tube. Do you have one?" Once she told a kid who was bothering her about it that it was "Very Dangerous. Don't touch it because it could hurt you very bad!!!" Then she came home and told us that she scared him away so he would leave her alone!!!

If you can't tell already, I'm very pro g-tube. You will, of course, need to make the decision for your daughter based on what your heart, head and gut tell you. Just PLEASE don't let guilt, fear or another person's opinion keep you from doing something that has the potential to be a lifesaver. We're all here if you have specific questions or want to see pictures of how the tube looks once it's in.

This is a tought decision, so go easy on yourself and don't rush into it. We're cheering for you!

izemmom · Dec 15, 2009

I can more or less echo everything posted above!

Emily is now 4 and got her tube at about 18 months. I resisted, worried, panicked, got a second opinion from another CF center, got angty, felt guilty, worried what she would feel and what other kids would say and do.... It was a terrible decision to have to make. I hated everything about it.

But, I came to the conclusion that it was the right thing to do for her, medically, and that HAD to trump all my other issues (social, emotional, esthetic...). If the CF team had told me that she needed to go on a new medication, or start a new therapy or go in for a tune up, I would not have resisted. I would have praised them for being proactive and having her best interest at heart. So, how was this different? The truth was, THIS made ME scared. THIS would be hard to deny. THIS would make MY child outwardly different. They were all MY issues.

So, we went ahead with it. WIth in 2 or 3 days Emily was back to her normal, active, sometimes WILD self. She was not fazed at all by the sudden presence of a piece of plastic sticking out of her tummy. She just accepted it and we moved on and adjusted it. I can assure you, this would not have been the case had we waited until she was the age she is now! Now she fights everything, questions everything, resists new things. Then, she didn't know how to do that, and she just adjusted.

Her health has improved tenfold. She has reached and maintained the 50th percentile for weight and surpassed it for height. We have been able to cut back on the number of nights per week that she is tube fed and she continues to gain! Getting the tube has been the single best thing that had happened to her, healthwise.

SHe runs, jumps from snow hills, was the star of her summer swimming class, tackles her big sister, wrestles with Daddy and LOVES her ballet class! I thought that the little bump through the swimsuit or leotard might bother her, but she hasn't said a word. If kids say something to her (Or, once a really rude adult in the changing room at the pool!!!) she just says "That's my tube. Do you have one?" Once she told a kid who was bothering her about it that it was "Very Dangerous. Don't touch it because it could hurt you very bad!!!" Then she came home and told us that she scared him away so he would leave her alone!!!

If you can't tell already, I'm very pro g-tube. You will, of course, need to make the decision for your daughter based on what your heart, head and gut tell you. Just PLEASE don't let guilt, fear or another person's opinion keep you from doing something that has the potential to be a lifesaver. We're all here if you have specific questions or want to see pictures of how the tube looks once it's in.

This is a tought decision, so go easy on yourself and don't rush into it. We're cheering for you!

izemmom · Dec 15, 2009

I can more or less echo everything posted above!
 
 Emily is now 4 and got her tube at about 18 months. I resisted, worried, panicked, got a second opinion from another CF center, got angty, felt guilty, worried what she would feel and what other kids would say and do.... It was a terrible decision to have to make. I hated everything about it.
 
 But, I came to the conclusion that it was the right thing to do for her, medically, and that HAD to trump all my other issues (social, emotional, esthetic...). If the CF team had told me that she needed to go on a new medication, or start a new therapy or go in for a tune up, I would not have resisted. I would have praised them for being proactive and having her best interest at heart. So, how was this different? The truth was, THIS made ME scared. THIS would be hard to deny. THIS would make MY child outwardly different. They were all MY issues.
 
 So, we went ahead with it. WIth in 2 or 3 days Emily was back to her normal, active, sometimes WILD self. She was not fazed at all by the sudden presence of a piece of plastic sticking out of her tummy. She just accepted it and we moved on and adjusted it. I can assure you, this would not have been the case had we waited until she was the age she is now! Now she fights everything, questions everything, resists new things. Then, she didn't know how to do that, and she just adjusted.
 
 Her health has improved tenfold. She has reached and maintained the 50th percentile for weight and surpassed it for height. We have been able to cut back on the number of nights per week that she is tube fed and she continues to gain! Getting the tube has been the single best thing that had happened to her, healthwise.
 
 SHe runs, jumps from snow hills, was the star of her summer swimming class, tackles her big sister, wrestles with Daddy and LOVES her ballet class! I thought that the little bump through the swimsuit or leotard might bother her, but she hasn't said a word. If kids say something to her (Or, once a really rude adult in the changing room at the pool!!!) she just says "That's my tube. Do you have one?" Once she told a kid who was bothering her about it that it was "Very Dangerous. Don't touch it because it could hurt you very bad!!!" Then she came home and told us that she scared him away so he would leave her alone!!!
 
 If you can't tell already, I'm very pro g-tube. You will, of course, need to make the decision for your daughter based on what your heart, head and gut tell you. Just PLEASE don't let guilt, fear or another person's opinion keep you from doing something that has the potential to be a lifesaver. We're all here if you have specific questions or want to see pictures of how the tube looks once it's in.
 
 This is a tought decision, so go easy on yourself and don't rush into it. We're cheering for you!

hockeykid · Dec 15, 2009

You should not have to worry about your child's movement being restricted by the feeding tube. After the stoma heals within 8 to 12 weeks, a Mic-Key can be put in. If you do not know already what a Mic-Key is, it is a low profile feeding tube. I would suggest going to www.oley.org. They have lots of information regarding tube feeding. They are an organization that gives support to tube fed patients. I personally used them when I was deciding whether to get a feeding tube or not. You can even order DVD's from them. You can also call them if you have any questions. Good luck to you.

hockeykid · Dec 15, 2009

You should not have to worry about your child's movement being restricted by the feeding tube. After the stoma heals within 8 to 12 weeks, a Mic-Key can be put in. If you do not know already what a Mic-Key is, it is a low profile feeding tube. I would suggest going to www.oley.org. They have lots of information regarding tube feeding. They are an organization that gives support to tube fed patients. I personally used them when I was deciding whether to get a feeding tube or not. You can even order DVD's from them. You can also call them if you have any questions. Good luck to you.

hockeykid · Dec 15, 2009

You should not have to worry about your child's movement being restricted by the feeding tube. After the stoma heals within 8 to 12 weeks, a Mic-Key can be put in. If you do not know already what a Mic-Key is, it is a low profile feeding tube. I would suggest going to www.oley.org. They have lots of information regarding tube feeding. They are an organization that gives support to tube fed patients. I personally used them when I was deciding whether to get a feeding tube or not. You can even order DVD's from them. You can also call them if you have any questions. Good luck to you.

hockeykid · Dec 15, 2009

You should not have to worry about your child's movement being restricted by the feeding tube. After the stoma heals within 8 to 12 weeks, a Mic-Key can be put in. If you do not know already what a Mic-Key is, it is a low profile feeding tube. I would suggest going to www.oley.org. They have lots of information regarding tube feeding. They are an organization that gives support to tube fed patients. I personally used them when I was deciding whether to get a feeding tube or not. You can even order DVD's from them. You can also call them if you have any questions. Good luck to you.

hockeykid · Dec 15, 2009

You should not have to worry about your child's movement being restricted by the feeding tube. After the stoma heals within 8 to 12 weeks, a Mic-Key can be put in. If you do not know already what a Mic-Key is, it is a low profile feeding tube. I would suggest going to www.oley.org. They have lots of information regarding tube feeding. They are an organization that gives support to tube fed patients. I personally used them when I was deciding whether to get a feeding tube or not. You can even order DVD's from them. You can also call them if you have any questions. Good luck to you.

G Tube and a 2 yr old???

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