Hello everyone, my name is Candi I am a 30 yr old with cf and diabetes. My pft's fev1 is at my best of 54 percent after two week of iv antibiotics, my doctors is wanting me to think about dissability, he says it could help my lung functions and in general add years to my life, although I dont feel as if I am disabled and feel a little guilty going on it but on another hand, if going on it will mean that I could live a longer healthier life than I think that is the best thing. I just im just needing some advice of others that has gone on disability but feel the same way I do. I work in a hospital in the pharmacy, my boss is scared to death because of my mrsa flare up and she is now on chemo... infection control there at work wants me to wear a mask from here on out... Its just not fair that I have to be the one that wears the mask when my boss is the one that has a low immune system.... I have several issuess grrrrrrrr can someone please help make some sense out of this... I have not gone back to work yet sense my tune up and now that my work issue has came up, it urges me to look more into the dissability just so it makes life easier for everyone..... Please any help or ideas would greatly help me out thanks so much
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going on dissability
- Thread starter candi1976
- Start date
Hello everyone, my name is Candi I am a 30 yr old with cf and diabetes. My pft's fev1 is at my best of 54 percent after two week of iv antibiotics, my doctors is wanting me to think about dissability, he says it could help my lung functions and in general add years to my life, although I dont feel as if I am disabled and feel a little guilty going on it but on another hand, if going on it will mean that I could live a longer healthier life than I think that is the best thing. I just im just needing some advice of others that has gone on disability but feel the same way I do. I work in a hospital in the pharmacy, my boss is scared to death because of my mrsa flare up and she is now on chemo... infection control there at work wants me to wear a mask from here on out... Its just not fair that I have to be the one that wears the mask when my boss is the one that has a low immune system.... I have several issuess grrrrrrrr can someone please help make some sense out of this... I have not gone back to work yet sense my tune up and now that my work issue has came up, it urges me to look more into the dissability just so it makes life easier for everyone..... Please any help or ideas would greatly help me out thanks so much
Hello everyone, my name is Candi I am a 30 yr old with cf and diabetes. My pft's fev1 is at my best of 54 percent after two week of iv antibiotics, my doctors is wanting me to think about dissability, he says it could help my lung functions and in general add years to my life, although I dont feel as if I am disabled and feel a little guilty going on it but on another hand, if going on it will mean that I could live a longer healthier life than I think that is the best thing. I just im just needing some advice of others that has gone on disability but feel the same way I do. I work in a hospital in the pharmacy, my boss is scared to death because of my mrsa flare up and she is now on chemo... infection control there at work wants me to wear a mask from here on out... Its just not fair that I have to be the one that wears the mask when my boss is the one that has a low immune system.... I have several issuess grrrrrrrr can someone please help make some sense out of this... I have not gone back to work yet sense my tune up and now that my work issue has came up, it urges me to look more into the dissability just so it makes life easier for everyone..... Please any help or ideas would greatly help me out thanks so much
Hello everyone, my name is Candi I am a 30 yr old with cf and diabetes. My pft's fev1 is at my best of 54 percent after two week of iv antibiotics, my doctors is wanting me to think about dissability, he says it could help my lung functions and in general add years to my life, although I dont feel as if I am disabled and feel a little guilty going on it but on another hand, if going on it will mean that I could live a longer healthier life than I think that is the best thing. I just im just needing some advice of others that has gone on disability but feel the same way I do. I work in a hospital in the pharmacy, my boss is scared to death because of my mrsa flare up and she is now on chemo... infection control there at work wants me to wear a mask from here on out... Its just not fair that I have to be the one that wears the mask when my boss is the one that has a low immune system.... I have several issuess grrrrrrrr can someone please help make some sense out of this... I have not gone back to work yet sense my tune up and now that my work issue has came up, it urges me to look more into the dissability just so it makes life easier for everyone..... Please any help or ideas would greatly help me out thanks so much
Hello everyone, my name is Candi I am a 30 yr old with cf and diabetes. My pft's fev1 is at my best of 54 percent after two week of iv antibiotics, my doctors is wanting me to think about dissability, he says it could help my lung functions and in general add years to my life, although I dont feel as if I am disabled and feel a little guilty going on it but on another hand, if going on it will mean that I could live a longer healthier life than I think that is the best thing. I just im just needing some advice of others that has gone on disability but feel the same way I do. I work in a hospital in the pharmacy, my boss is scared to death because of my mrsa flare up and she is now on chemo... infection control there at work wants me to wear a mask from here on out... Its just not fair that I have to be the one that wears the mask when my boss is the one that has a low immune system.... I have several issuess grrrrrrrr can someone please help make some sense out of this... I have not gone back to work yet sense my tune up and now that my work issue has came up, it urges me to look more into the dissability just so it makes life easier for everyone..... Please any help or ideas would greatly help me out thanks so much
I agree that she should be the one protecting herself too - I guess we all have to do our part and be responsible....but it does seem as though she's putting it off on you - which is a little discrimatory and unresponsible of her in my opinion. And I know some here will jump all over you for letting your work know your personal health information (the fact that you have MRSA) - however I'm sure you were just trying to be fair and helpful to someone else who was sick herself.
I went on disability at the age of 35 (or there abouts). However with me, it came after lung damage from an untreated exacerbation, on top of having some untreated insomnia issues. I know if you are still feeling fairly well, it's difficult to see why it might be important.
I'm wondering, with working, are you able to do all your treatments or do you find yourself slacking off? If you are a slacker, then the disability might be a good idea - it will give you all the time in the world to do all the things the doctors ask of you. For me it was a huge relief - I didn't HAVE to go to work when I had ANOTHER bad nights sleep, or didn't feel well. For that reason in and of itself - I welcomed disability.
Best wishes with your decision... <img src="i/expressions/heart.gif" border="0">
I went on disability at the age of 35 (or there abouts). However with me, it came after lung damage from an untreated exacerbation, on top of having some untreated insomnia issues. I know if you are still feeling fairly well, it's difficult to see why it might be important.
I'm wondering, with working, are you able to do all your treatments or do you find yourself slacking off? If you are a slacker, then the disability might be a good idea - it will give you all the time in the world to do all the things the doctors ask of you. For me it was a huge relief - I didn't HAVE to go to work when I had ANOTHER bad nights sleep, or didn't feel well. For that reason in and of itself - I welcomed disability.
Best wishes with your decision... <img src="i/expressions/heart.gif" border="0">
I agree that she should be the one protecting herself too - I guess we all have to do our part and be responsible....but it does seem as though she's putting it off on you - which is a little discrimatory and unresponsible of her in my opinion. And I know some here will jump all over you for letting your work know your personal health information (the fact that you have MRSA) - however I'm sure you were just trying to be fair and helpful to someone else who was sick herself.
I went on disability at the age of 35 (or there abouts). However with me, it came after lung damage from an untreated exacerbation, on top of having some untreated insomnia issues. I know if you are still feeling fairly well, it's difficult to see why it might be important.
I'm wondering, with working, are you able to do all your treatments or do you find yourself slacking off? If you are a slacker, then the disability might be a good idea - it will give you all the time in the world to do all the things the doctors ask of you. For me it was a huge relief - I didn't HAVE to go to work when I had ANOTHER bad nights sleep, or didn't feel well. For that reason in and of itself - I welcomed disability.
Best wishes with your decision... <img src="i/expressions/heart.gif" border="0">
I went on disability at the age of 35 (or there abouts). However with me, it came after lung damage from an untreated exacerbation, on top of having some untreated insomnia issues. I know if you are still feeling fairly well, it's difficult to see why it might be important.
I'm wondering, with working, are you able to do all your treatments or do you find yourself slacking off? If you are a slacker, then the disability might be a good idea - it will give you all the time in the world to do all the things the doctors ask of you. For me it was a huge relief - I didn't HAVE to go to work when I had ANOTHER bad nights sleep, or didn't feel well. For that reason in and of itself - I welcomed disability.
Best wishes with your decision... <img src="i/expressions/heart.gif" border="0">
I agree that she should be the one protecting herself too - I guess we all have to do our part and be responsible....but it does seem as though she's putting it off on you - which is a little discrimatory and unresponsible of her in my opinion. And I know some here will jump all over you for letting your work know your personal health information (the fact that you have MRSA) - however I'm sure you were just trying to be fair and helpful to someone else who was sick herself.
I went on disability at the age of 35 (or there abouts). However with me, it came after lung damage from an untreated exacerbation, on top of having some untreated insomnia issues. I know if you are still feeling fairly well, it's difficult to see why it might be important.
I'm wondering, with working, are you able to do all your treatments or do you find yourself slacking off? If you are a slacker, then the disability might be a good idea - it will give you all the time in the world to do all the things the doctors ask of you. For me it was a huge relief - I didn't HAVE to go to work when I had ANOTHER bad nights sleep, or didn't feel well. For that reason in and of itself - I welcomed disability.
Best wishes with your decision... <img src="i/expressions/heart.gif" border="0">
I went on disability at the age of 35 (or there abouts). However with me, it came after lung damage from an untreated exacerbation, on top of having some untreated insomnia issues. I know if you are still feeling fairly well, it's difficult to see why it might be important.
I'm wondering, with working, are you able to do all your treatments or do you find yourself slacking off? If you are a slacker, then the disability might be a good idea - it will give you all the time in the world to do all the things the doctors ask of you. For me it was a huge relief - I didn't HAVE to go to work when I had ANOTHER bad nights sleep, or didn't feel well. For that reason in and of itself - I welcomed disability.
Best wishes with your decision... <img src="i/expressions/heart.gif" border="0">
I agree that she should be the one protecting herself too - I guess we all have to do our part and be responsible....but it does seem as though she's putting it off on you - which is a little discrimatory and unresponsible of her in my opinion. And I know some here will jump all over you for letting your work know your personal health information (the fact that you have MRSA) - however I'm sure you were just trying to be fair and helpful to someone else who was sick herself.
I went on disability at the age of 35 (or there abouts). However with me, it came after lung damage from an untreated exacerbation, on top of having some untreated insomnia issues. I know if you are still feeling fairly well, it's difficult to see why it might be important.
I'm wondering, with working, are you able to do all your treatments or do you find yourself slacking off? If you are a slacker, then the disability might be a good idea - it will give you all the time in the world to do all the things the doctors ask of you. For me it was a huge relief - I didn't HAVE to go to work when I had ANOTHER bad nights sleep, or didn't feel well. For that reason in and of itself - I welcomed disability.
Best wishes with your decision... <img src="i/expressions/heart.gif" border="0">
I went on disability at the age of 35 (or there abouts). However with me, it came after lung damage from an untreated exacerbation, on top of having some untreated insomnia issues. I know if you are still feeling fairly well, it's difficult to see why it might be important.
I'm wondering, with working, are you able to do all your treatments or do you find yourself slacking off? If you are a slacker, then the disability might be a good idea - it will give you all the time in the world to do all the things the doctors ask of you. For me it was a huge relief - I didn't HAVE to go to work when I had ANOTHER bad nights sleep, or didn't feel well. For that reason in and of itself - I welcomed disability.
Best wishes with your decision... <img src="i/expressions/heart.gif" border="0">
I agree that she should be the one protecting herself too - I guess we all have to do our part and be responsible....but it does seem as though she's putting it off on you - which is a little discrimatory and unresponsible of her in my opinion. And I know some here will jump all over you for letting your work know your personal health information (the fact that you have MRSA) - however I'm sure you were just trying to be fair and helpful to someone else who was sick herself.
I went on disability at the age of 35 (or there abouts). However with me, it came after lung damage from an untreated exacerbation, on top of having some untreated insomnia issues. I know if you are still feeling fairly well, it's difficult to see why it might be important.
I'm wondering, with working, are you able to do all your treatments or do you find yourself slacking off? If you are a slacker, then the disability might be a good idea - it will give you all the time in the world to do all the things the doctors ask of you. For me it was a huge relief - I didn't HAVE to go to work when I had ANOTHER bad nights sleep, or didn't feel well. For that reason in and of itself - I welcomed disability.
Best wishes with your decision... <img src="i/expressions/heart.gif" border="0">
I went on disability at the age of 35 (or there abouts). However with me, it came after lung damage from an untreated exacerbation, on top of having some untreated insomnia issues. I know if you are still feeling fairly well, it's difficult to see why it might be important.
I'm wondering, with working, are you able to do all your treatments or do you find yourself slacking off? If you are a slacker, then the disability might be a good idea - it will give you all the time in the world to do all the things the doctors ask of you. For me it was a huge relief - I didn't HAVE to go to work when I had ANOTHER bad nights sleep, or didn't feel well. For that reason in and of itself - I welcomed disability.
Best wishes with your decision... <img src="i/expressions/heart.gif" border="0">
I have been on disability now for about 9 months. I felt exactly the same way you do. I was working full-time but got to a point where I was calling off ALOT and my health was just not as good. I finally quit working, but my husband wasn't making enough money so I started delivering papers once a week about 2 1/2 months later. I finally found a part-time job working 2-3 hours a day. My family and friends (from the time I quit working full-time) kept pushing me to apply for disability. I didn't apply because I didn't feel I would qualify and didn't feel like I was "disabled enough." I also felt guilty about applying when there were many other cf patients that were far worse than me and, for whatever reason, were denied. I just felt like, "Why should I apply when these people who are worse than me need it more than I do." I even spoke to the social worker at the clinic about it. I finally did apply but not until 3 years after quiting my full-time job.
The only thing is, I don't know if you can get it while you are working full-time. I was (and still am) working only part-time and only earning so much money a month. But I'm not real sure. If I remember right, their website (SSA) wasn't real specific in this area. Maybe others might now more (Julie ??).
Also, just because you go on disability, doesn't mean you have to stay on it. If you are able to get it for a period of time and your health improves, you can always go back to work and stop receiving disability. I will say this, once I found out that I had been approved, I cried because I just felt like a huge weight had been lifted off of my shoulders.
I hope things work out for you. I will say too that I think your co-worker should be the one to take precautions since it is her health at stake.
The only thing is, I don't know if you can get it while you are working full-time. I was (and still am) working only part-time and only earning so much money a month. But I'm not real sure. If I remember right, their website (SSA) wasn't real specific in this area. Maybe others might now more (Julie ??).
Also, just because you go on disability, doesn't mean you have to stay on it. If you are able to get it for a period of time and your health improves, you can always go back to work and stop receiving disability. I will say this, once I found out that I had been approved, I cried because I just felt like a huge weight had been lifted off of my shoulders.
I hope things work out for you. I will say too that I think your co-worker should be the one to take precautions since it is her health at stake.
I have been on disability now for about 9 months. I felt exactly the same way you do. I was working full-time but got to a point where I was calling off ALOT and my health was just not as good. I finally quit working, but my husband wasn't making enough money so I started delivering papers once a week about 2 1/2 months later. I finally found a part-time job working 2-3 hours a day. My family and friends (from the time I quit working full-time) kept pushing me to apply for disability. I didn't apply because I didn't feel I would qualify and didn't feel like I was "disabled enough." I also felt guilty about applying when there were many other cf patients that were far worse than me and, for whatever reason, were denied. I just felt like, "Why should I apply when these people who are worse than me need it more than I do." I even spoke to the social worker at the clinic about it. I finally did apply but not until 3 years after quiting my full-time job.
The only thing is, I don't know if you can get it while you are working full-time. I was (and still am) working only part-time and only earning so much money a month. But I'm not real sure. If I remember right, their website (SSA) wasn't real specific in this area. Maybe others might now more (Julie ??).
Also, just because you go on disability, doesn't mean you have to stay on it. If you are able to get it for a period of time and your health improves, you can always go back to work and stop receiving disability. I will say this, once I found out that I had been approved, I cried because I just felt like a huge weight had been lifted off of my shoulders.
I hope things work out for you. I will say too that I think your co-worker should be the one to take precautions since it is her health at stake.
The only thing is, I don't know if you can get it while you are working full-time. I was (and still am) working only part-time and only earning so much money a month. But I'm not real sure. If I remember right, their website (SSA) wasn't real specific in this area. Maybe others might now more (Julie ??).
Also, just because you go on disability, doesn't mean you have to stay on it. If you are able to get it for a period of time and your health improves, you can always go back to work and stop receiving disability. I will say this, once I found out that I had been approved, I cried because I just felt like a huge weight had been lifted off of my shoulders.
I hope things work out for you. I will say too that I think your co-worker should be the one to take precautions since it is her health at stake.
I have been on disability now for about 9 months. I felt exactly the same way you do. I was working full-time but got to a point where I was calling off ALOT and my health was just not as good. I finally quit working, but my husband wasn't making enough money so I started delivering papers once a week about 2 1/2 months later. I finally found a part-time job working 2-3 hours a day. My family and friends (from the time I quit working full-time) kept pushing me to apply for disability. I didn't apply because I didn't feel I would qualify and didn't feel like I was "disabled enough." I also felt guilty about applying when there were many other cf patients that were far worse than me and, for whatever reason, were denied. I just felt like, "Why should I apply when these people who are worse than me need it more than I do." I even spoke to the social worker at the clinic about it. I finally did apply but not until 3 years after quiting my full-time job.
The only thing is, I don't know if you can get it while you are working full-time. I was (and still am) working only part-time and only earning so much money a month. But I'm not real sure. If I remember right, their website (SSA) wasn't real specific in this area. Maybe others might now more (Julie ??).
Also, just because you go on disability, doesn't mean you have to stay on it. If you are able to get it for a period of time and your health improves, you can always go back to work and stop receiving disability. I will say this, once I found out that I had been approved, I cried because I just felt like a huge weight had been lifted off of my shoulders.
I hope things work out for you. I will say too that I think your co-worker should be the one to take precautions since it is her health at stake.
The only thing is, I don't know if you can get it while you are working full-time. I was (and still am) working only part-time and only earning so much money a month. But I'm not real sure. If I remember right, their website (SSA) wasn't real specific in this area. Maybe others might now more (Julie ??).
Also, just because you go on disability, doesn't mean you have to stay on it. If you are able to get it for a period of time and your health improves, you can always go back to work and stop receiving disability. I will say this, once I found out that I had been approved, I cried because I just felt like a huge weight had been lifted off of my shoulders.
I hope things work out for you. I will say too that I think your co-worker should be the one to take precautions since it is her health at stake.
I have been on disability now for about 9 months. I felt exactly the same way you do. I was working full-time but got to a point where I was calling off ALOT and my health was just not as good. I finally quit working, but my husband wasn't making enough money so I started delivering papers once a week about 2 1/2 months later. I finally found a part-time job working 2-3 hours a day. My family and friends (from the time I quit working full-time) kept pushing me to apply for disability. I didn't apply because I didn't feel I would qualify and didn't feel like I was "disabled enough." I also felt guilty about applying when there were many other cf patients that were far worse than me and, for whatever reason, were denied. I just felt like, "Why should I apply when these people who are worse than me need it more than I do." I even spoke to the social worker at the clinic about it. I finally did apply but not until 3 years after quiting my full-time job.
The only thing is, I don't know if you can get it while you are working full-time. I was (and still am) working only part-time and only earning so much money a month. But I'm not real sure. If I remember right, their website (SSA) wasn't real specific in this area. Maybe others might now more (Julie ??).
Also, just because you go on disability, doesn't mean you have to stay on it. If you are able to get it for a period of time and your health improves, you can always go back to work and stop receiving disability. I will say this, once I found out that I had been approved, I cried because I just felt like a huge weight had been lifted off of my shoulders.
I hope things work out for you. I will say too that I think your co-worker should be the one to take precautions since it is her health at stake.
The only thing is, I don't know if you can get it while you are working full-time. I was (and still am) working only part-time and only earning so much money a month. But I'm not real sure. If I remember right, their website (SSA) wasn't real specific in this area. Maybe others might now more (Julie ??).
Also, just because you go on disability, doesn't mean you have to stay on it. If you are able to get it for a period of time and your health improves, you can always go back to work and stop receiving disability. I will say this, once I found out that I had been approved, I cried because I just felt like a huge weight had been lifted off of my shoulders.
I hope things work out for you. I will say too that I think your co-worker should be the one to take precautions since it is her health at stake.
I have been on disability now for about 9 months. I felt exactly the same way you do. I was working full-time but got to a point where I was calling off ALOT and my health was just not as good. I finally quit working, but my husband wasn't making enough money so I started delivering papers once a week about 2 1/2 months later. I finally found a part-time job working 2-3 hours a day. My family and friends (from the time I quit working full-time) kept pushing me to apply for disability. I didn't apply because I didn't feel I would qualify and didn't feel like I was "disabled enough." I also felt guilty about applying when there were many other cf patients that were far worse than me and, for whatever reason, were denied. I just felt like, "Why should I apply when these people who are worse than me need it more than I do." I even spoke to the social worker at the clinic about it. I finally did apply but not until 3 years after quiting my full-time job.
The only thing is, I don't know if you can get it while you are working full-time. I was (and still am) working only part-time and only earning so much money a month. But I'm not real sure. If I remember right, their website (SSA) wasn't real specific in this area. Maybe others might now more (Julie ??).
Also, just because you go on disability, doesn't mean you have to stay on it. If you are able to get it for a period of time and your health improves, you can always go back to work and stop receiving disability. I will say this, once I found out that I had been approved, I cried because I just felt like a huge weight had been lifted off of my shoulders.
I hope things work out for you. I will say too that I think your co-worker should be the one to take precautions since it is her health at stake.
The only thing is, I don't know if you can get it while you are working full-time. I was (and still am) working only part-time and only earning so much money a month. But I'm not real sure. If I remember right, their website (SSA) wasn't real specific in this area. Maybe others might now more (Julie ??).
Also, just because you go on disability, doesn't mean you have to stay on it. If you are able to get it for a period of time and your health improves, you can always go back to work and stop receiving disability. I will say this, once I found out that I had been approved, I cried because I just felt like a huge weight had been lifted off of my shoulders.
I hope things work out for you. I will say too that I think your co-worker should be the one to take precautions since it is her health at stake.