got some more bad news today

[Jbenjamin152]

Thank you for the response your one of the only people to respond to anything I say...most of the time people read it but never have any input. I am still wondering if you have any ideas for getting energy back, anything work for any of u and am I the only one that the antibiotics have WIPED out?
I have NO energy...walking which I actually like to do is HARD, it winds me to go 100 feet...even 50 and I'm starting to get winded...I have to sit down 3 times on the way to the computers...so I am using a wheel chair and having the aides wheel me around. Any ideas would help. I am soooo happy to finally be able to talk to cf patients besides myself.

 

[Jbenjamin152]

Thank you for the response your one of the only people to respond to anything I say...most of the time people read it but never have any input. I am still wondering if you have any ideas for getting energy back, anything work for any of u and am I the only one that the antibiotics have WIPED out?
I have NO energy...walking which I actually like to do is HARD, it winds me to go 100 feet...even 50 and I'm starting to get winded...I have to sit down 3 times on the way to the computers...so I am using a wheel chair and having the aides wheel me around. Any ideas would help. I am soooo happy to finally be able to talk to cf patients besides myself.

 

[Jbenjamin152]

Thank you for the response your one of the only people to respond to anything I say...most of the time people read it but never have any input. I am still wondering if you have any ideas for getting energy back, anything work for any of u and am I the only one that the antibiotics have WIPED out?
I have NO energy...walking which I actually like to do is HARD, it winds me to go 100 feet...even 50 and I'm starting to get winded...I have to sit down 3 times on the way to the computers...so I am using a wheel chair and having the aides wheel me around. Any ideas would help. I am soooo happy to finally be able to talk to cf patients besides myself.

 

[Jbenjamin152]

Thank you for the response your one of the only people to respond to anything I say...most of the time people read it but never have any input. I am still wondering if you have any ideas for getting energy back, anything work for any of u and am I the only one that the antibiotics have WIPED out?
I have NO energy...walking which I actually like to do is HARD, it winds me to go 100 feet...even 50 and I'm starting to get winded...I have to sit down 3 times on the way to the computers...so I am using a wheel chair and having the aides wheel me around. Any ideas would help. I am soooo happy to finally be able to talk to cf patients besides myself.

 

[Jbenjamin152]

Thank you for the response your one of the only people to respond to anything I say...most of the time people read it but never have any input. I am still wondering if you have any ideas for getting energy back, anything work for any of u and am I the only one that the antibiotics have WIPED out?
<br />I have NO energy...walking which I actually like to do is HARD, it winds me to go 100 feet...even 50 and I'm starting to get winded...I have to sit down 3 times on the way to the computers...so I am using a wheel chair and having the aides wheel me around. Any ideas would help. I am soooo happy to finally be able to talk to cf patients besides myself.

 

[pegsoninthepresent]

milk drink it....force it down it will put the wait on you....exercise just force yourself 3 mins in you will feel better.....these are things i try to do...i also find i respond better to nebs as its straight to the point of infection

 

[pegsoninthepresent]

milk drink it....force it down it will put the wait on you....exercise just force yourself 3 mins in you will feel better.....these are things i try to do...i also find i respond better to nebs as its straight to the point of infection

 

[pegsoninthepresent]

milk drink it....force it down it will put the wait on you....exercise just force yourself 3 mins in you will feel better.....these are things i try to do...i also find i respond better to nebs as its straight to the point of infection

 

[pegsoninthepresent]

milk drink it....force it down it will put the wait on you....exercise just force yourself 3 mins in you will feel better.....these are things i try to do...i also find i respond better to nebs as its straight to the point of infection

 

[pegsoninthepresent]

milk drink it....force it down it will put the wait on you....exercise just force yourself 3 mins in you will feel better.....these are things i try to do...i also find i respond better to nebs as its straight to the point of infection

 

[JazzysMom]

I dont know if you are a music lover, but it calms the savage beast in me.

I would normally recommend exercise whether it be a walk, dance or some time on the wii....but its not always possible when you cant breathe.

Music does wonders for me. Sometimes I can sing along & sometiems I cant!

BTW I didnt gown up LOL

 

[JazzysMom]

I dont know if you are a music lover, but it calms the savage beast in me.

I would normally recommend exercise whether it be a walk, dance or some time on the wii....but its not always possible when you cant breathe.

Music does wonders for me. Sometimes I can sing along & sometiems I cant!

BTW I didnt gown up LOL

 

[JazzysMom]

I dont know if you are a music lover, but it calms the savage beast in me.

I would normally recommend exercise whether it be a walk, dance or some time on the wii....but its not always possible when you cant breathe.

Music does wonders for me. Sometimes I can sing along & sometiems I cant!

BTW I didnt gown up LOL

 

[JazzysMom]

I dont know if you are a music lover, but it calms the savage beast in me.

I would normally recommend exercise whether it be a walk, dance or some time on the wii....but its not always possible when you cant breathe.

Music does wonders for me. Sometimes I can sing along & sometiems I cant!

BTW I didnt gown up LOL

 

[JazzysMom]

I dont know if you are a music lover, but it calms the savage beast in me.
<br />
<br />I would normally recommend exercise whether it be a walk, dance or some time on the wii....but its not always possible when you cant breathe.
<br />
<br />Music does wonders for me. Sometimes I can sing along & sometiems I cant!
<br />
<br />BTW I didnt gown up LOL

 

[Aspiemom]

I've wiped out the abx and they have, in turn, wiped me out. I don't know how you get the energy back. I slowly try to move around more and do more, taking frequent breaks to rest and just find that as I do that I can slowly start doing more.

Also, like Mel said, sometimes music can help take your mind off things. If I focus on how I feel, it's hard to conquer it, but if I can focus on something else I want to do it helps. I love to read, which is great for this.

 

[Aspiemom]

I've wiped out the abx and they have, in turn, wiped me out. I don't know how you get the energy back. I slowly try to move around more and do more, taking frequent breaks to rest and just find that as I do that I can slowly start doing more.

Also, like Mel said, sometimes music can help take your mind off things. If I focus on how I feel, it's hard to conquer it, but if I can focus on something else I want to do it helps. I love to read, which is great for this.

 

[Aspiemom]

I've wiped out the abx and they have, in turn, wiped me out. I don't know how you get the energy back. I slowly try to move around more and do more, taking frequent breaks to rest and just find that as I do that I can slowly start doing more.

Also, like Mel said, sometimes music can help take your mind off things. If I focus on how I feel, it's hard to conquer it, but if I can focus on something else I want to do it helps. I love to read, which is great for this.

 

[Aspiemom]

I've wiped out the abx and they have, in turn, wiped me out. I don't know how you get the energy back. I slowly try to move around more and do more, taking frequent breaks to rest and just find that as I do that I can slowly start doing more.

Also, like Mel said, sometimes music can help take your mind off things. If I focus on how I feel, it's hard to conquer it, but if I can focus on something else I want to do it helps. I love to read, which is great for this.

 

[Aspiemom]

I've wiped out the abx and they have, in turn, wiped me out. I don't know how you get the energy back. I slowly try to move around more and do more, taking frequent breaks to rest and just find that as I do that I can slowly start doing more.
<br />
<br />Also, like Mel said, sometimes music can help take your mind off things. If I focus on how I feel, it's hard to conquer it, but if I can focus on something else I want to do it helps. I love to read, which is great for this.