I am the grandmother of Isaac who unexpectedly has CF. His mom, my daughter has CF, but daddy tested negative in 2004 so they went ahead and had a baby. Turns out daddy has a rare mutation that wasn't discovered until later. I say life is for living and I'm so grateful to have this lovely child who is so far asymptomatic. I vote for grandparenthood! Check out the video of Isaac and Loulou on this website.
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Grandparent wanna-be
- Thread starter jlmortenson
- Start date
I am the grandmother of Isaac who unexpectedly has CF. His mom, my daughter has CF, but daddy tested negative in 2004 so they went ahead and had a baby. Turns out daddy has a rare mutation that wasn't discovered until later. I say life is for living and I'm so grateful to have this lovely child who is so far asymptomatic. I vote for grandparenthood! Check out the video of Isaac and Loulou on this website.
I am the grandmother of Isaac who unexpectedly has CF. His mom, my daughter has CF, but daddy tested negative in 2004 so they went ahead and had a baby. Turns out daddy has a rare mutation that wasn't discovered until later. I say life is for living and I'm so grateful to have this lovely child who is so far asymptomatic. I vote for grandparenthood! Check out the video of Isaac and Loulou on this website.
T
tarheel
Guest
Personally, I think the answer to this topic and all that needs to be said about has been said by jazzysmom. She has a wonderful daughter, but nothing can replace being raised by the great mother that we all knew as Mel. Just thought it was kinda ironic in a depressing and sad way too.
T
tarheel
Guest
Personally, I think the answer to this topic and all that needs to be said about has been said by jazzysmom. She has a wonderful daughter, but nothing can replace being raised by the great mother that we all knew as Mel. Just thought it was kinda ironic in a depressing and sad way too.
T
tarheel
Guest
Personally, I think the answer to this topic and all that needs to be said about has been said by jazzysmom. She has a wonderful daughter, but nothing can replace being raised by the great mother that we all knew as Mel. Just thought it was kinda ironic in a depressing and sad way too.
Once you're ready to be a parent, the one question you need to ask here is: What are your chances of passing on CF to your child? Especially people with CF, who know what kind of challenge living with CF is, might want to consider this. We did, so before we even start to think about having children or how, I got tested (clear luckily). Now we're ready to take it from there.
Other than that, I completely agree with Jenna, black chameleon and charlene. A person with cf makes just as good a parent as any other person.
27 y/o (w/o CF), partner of 28 y/o (w/CF).
Other than that, I completely agree with Jenna, black chameleon and charlene. A person with cf makes just as good a parent as any other person.
27 y/o (w/o CF), partner of 28 y/o (w/CF).
Once you're ready to be a parent, the one question you need to ask here is: What are your chances of passing on CF to your child? Especially people with CF, who know what kind of challenge living with CF is, might want to consider this. We did, so before we even start to think about having children or how, I got tested (clear luckily). Now we're ready to take it from there.
Other than that, I completely agree with Jenna, black chameleon and charlene. A person with cf makes just as good a parent as any other person.
27 y/o (w/o CF), partner of 28 y/o (w/CF).
Other than that, I completely agree with Jenna, black chameleon and charlene. A person with cf makes just as good a parent as any other person.
27 y/o (w/o CF), partner of 28 y/o (w/CF).
Once you're ready to be a parent, the one question you need to ask here is: What are your chances of passing on CF to your child? Especially people with CF, who know what kind of challenge living with CF is, might want to consider this. We did, so before we even start to think about having children or how, I got tested (clear luckily). Now we're ready to take it from there.
<br />
<br />Other than that, I completely agree with Jenna, black chameleon and charlene. A person with cf makes just as good a parent as any other person.
<br />
<br />27 y/o (w/o CF), partner of 28 y/o (w/CF).
<br />
<br />Other than that, I completely agree with Jenna, black chameleon and charlene. A person with cf makes just as good a parent as any other person.
<br />
<br />27 y/o (w/o CF), partner of 28 y/o (w/CF).
mikorankin
New member
I can't imagine life without my little girls....and although I can't ever tell them that I carried them for nine months, I will one day share the story of going under the knife and relying on frozen peas for two weeks. I am now 41 and can tell you that having kids has helped me become greedy for a longer future. I would only caution anybody with CF to claim more time for airway clearance when a family is involved- something I could be better at. I agree with the many others that so many children are just getting by with one parent or selfish parents. I do believe that CF'ers have passion and love beyond the norm, and have two little girls that can vouch for me on that.
mikorankin
New member
I can't imagine life without my little girls....and although I can't ever tell them that I carried them for nine months, I will one day share the story of going under the knife and relying on frozen peas for two weeks. I am now 41 and can tell you that having kids has helped me become greedy for a longer future. I would only caution anybody with CF to claim more time for airway clearance when a family is involved- something I could be better at. I agree with the many others that so many children are just getting by with one parent or selfish parents. I do believe that CF'ers have passion and love beyond the norm, and have two little girls that can vouch for me on that.
mikorankin
New member
I can't imagine life without my little girls....and although I can't ever tell them that I carried them for nine months, I will one day share the story of going under the knife and relying on frozen peas for two weeks. I am now 41 and can tell you that having kids has helped me become greedy for a longer future. I would only caution anybody with CF to claim more time for airway clearance when a family is involved- something I could be better at. I agree with the many others that so many children are just getting by with one parent or selfish parents. I do believe that CF'ers have passion and love beyond the norm, and have two little girls that can vouch for me on that.
Here's how I looked at it when my ex husband and I were married, we made sure we were "set up" (life insurance, disability insurance...) for when something happened to him. WE both really wanted children and making the decision wasn't an easy one for me, but my biggest "factor" was that when he's gone someday, I wanted a part of him left behind. And that little part of him would be our child.
My ex and I aren't together anymore, but for reasons not having anything to do with CF. And I would still NOT do anything different! He is an amazing father, and I LOVE being a mother.
The truth of the matter is (and I know many CFers might disagree) is that NONE of us are guaranteed tomorrow. At least with CF, or some other "terminal" disease, people know that they have a shortened lifespan and I think that might allow them to fully savor all the wonderful things in their life, including children. I could get hit by a bus tomorrow. If they both want children, I don't think CF is a good enough reason not to.
I've got lots of info on my website about IVF, ICSI and the sperm retrieval, and I'm happy to answer any questions your son and his gf might have if they decide this is the right route for them. cysticfibrosismaleinfertility.com
My ex and I aren't together anymore, but for reasons not having anything to do with CF. And I would still NOT do anything different! He is an amazing father, and I LOVE being a mother.
The truth of the matter is (and I know many CFers might disagree) is that NONE of us are guaranteed tomorrow. At least with CF, or some other "terminal" disease, people know that they have a shortened lifespan and I think that might allow them to fully savor all the wonderful things in their life, including children. I could get hit by a bus tomorrow. If they both want children, I don't think CF is a good enough reason not to.
I've got lots of info on my website about IVF, ICSI and the sperm retrieval, and I'm happy to answer any questions your son and his gf might have if they decide this is the right route for them. cysticfibrosismaleinfertility.com
Here's how I looked at it when my ex husband and I were married, we made sure we were "set up" (life insurance, disability insurance...) for when something happened to him. WE both really wanted children and making the decision wasn't an easy one for me, but my biggest "factor" was that when he's gone someday, I wanted a part of him left behind. And that little part of him would be our child.
My ex and I aren't together anymore, but for reasons not having anything to do with CF. And I would still NOT do anything different! He is an amazing father, and I LOVE being a mother.
The truth of the matter is (and I know many CFers might disagree) is that NONE of us are guaranteed tomorrow. At least with CF, or some other "terminal" disease, people know that they have a shortened lifespan and I think that might allow them to fully savor all the wonderful things in their life, including children. I could get hit by a bus tomorrow. If they both want children, I don't think CF is a good enough reason not to.
I've got lots of info on my website about IVF, ICSI and the sperm retrieval, and I'm happy to answer any questions your son and his gf might have if they decide this is the right route for them. cysticfibrosismaleinfertility.com
My ex and I aren't together anymore, but for reasons not having anything to do with CF. And I would still NOT do anything different! He is an amazing father, and I LOVE being a mother.
The truth of the matter is (and I know many CFers might disagree) is that NONE of us are guaranteed tomorrow. At least with CF, or some other "terminal" disease, people know that they have a shortened lifespan and I think that might allow them to fully savor all the wonderful things in their life, including children. I could get hit by a bus tomorrow. If they both want children, I don't think CF is a good enough reason not to.
I've got lots of info on my website about IVF, ICSI and the sperm retrieval, and I'm happy to answer any questions your son and his gf might have if they decide this is the right route for them. cysticfibrosismaleinfertility.com
Here's how I looked at it when my ex husband and I were married, we made sure we were "set up" (life insurance, disability insurance...) for when something happened to him. WE both really wanted children and making the decision wasn't an easy one for me, but my biggest "factor" was that when he's gone someday, I wanted a part of him left behind. And that little part of him would be our child.
<br />
<br />My ex and I aren't together anymore, but for reasons not having anything to do with CF. And I would still NOT do anything different! He is an amazing father, and I LOVE being a mother.
<br />
<br />The truth of the matter is (and I know many CFers might disagree) is that NONE of us are guaranteed tomorrow. At least with CF, or some other "terminal" disease, people know that they have a shortened lifespan and I think that might allow them to fully savor all the wonderful things in their life, including children. I could get hit by a bus tomorrow. If they both want children, I don't think CF is a good enough reason not to.
<br />
<br />I've got lots of info on my website about IVF, ICSI and the sperm retrieval, and I'm happy to answer any questions your son and his gf might have if they decide this is the right route for them. cysticfibrosismaleinfertility.com
<br />
<br />My ex and I aren't together anymore, but for reasons not having anything to do with CF. And I would still NOT do anything different! He is an amazing father, and I LOVE being a mother.
<br />
<br />The truth of the matter is (and I know many CFers might disagree) is that NONE of us are guaranteed tomorrow. At least with CF, or some other "terminal" disease, people know that they have a shortened lifespan and I think that might allow them to fully savor all the wonderful things in their life, including children. I could get hit by a bus tomorrow. If they both want children, I don't think CF is a good enough reason not to.
<br />
<br />I've got lots of info on my website about IVF, ICSI and the sperm retrieval, and I'm happy to answer any questions your son and his gf might have if they decide this is the right route for them. cysticfibrosismaleinfertility.com
longhorn4life
New member
It's really up to him I suppose. I know my personal decision is to not have children because I don't believe I could just leave my child without a parent. If this is something he decides to do, he should make sure that his girlfriend is tested for CF beforehand. In my personal opinion, if both partners have even a single CF gene then they shouldn't even attempt having children together. I wouldn't wish this disease on anyone and I know that I'd never be able to live with myself if I had children even though I knew I could pass it on to them. That would just be irresponsible and selfish.
longhorn4life
New member
It's really up to him I suppose. I know my personal decision is to not have children because I don't believe I could just leave my child without a parent. If this is something he decides to do, he should make sure that his girlfriend is tested for CF beforehand. In my personal opinion, if both partners have even a single CF gene then they shouldn't even attempt having children together. I wouldn't wish this disease on anyone and I know that I'd never be able to live with myself if I had children even though I knew I could pass it on to them. That would just be irresponsible and selfish.