Has anyone gone to

anonymous

New member
Not sure but I believe foundcare pharmacy can help you or direct to the right people. Give them a call.
www.foundcare.com
All the contact info is there. That's who I spoke w/ on the phone.

John
 

anonymous

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>gsplover</b></i>

Do you knoe if source CF the pharmacy that will give you the eflow for free as long as you get your medicine through them?</end quote></div>

give the eflow free?

now a snow ball's chance in hell.

the eflow is $1200.

i would be furious if i knew that my fundraising money went to give CFers eflows for free. either get your insurance to cover it or do longer treatments with your regular compressor!!!!
 

anonymous

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>gsplover</b></i>

Do you knoe if source CF the pharmacy that will give you the eflow for free as long as you get your medicine through them?</end quote></div>

give the eflow free?

now a snow ball's chance in hell.

the eflow is $1200.

i would be furious if i knew that my fundraising money went to give CFers eflows for free. either get your insurance to cover it or do longer treatments with your regular compressor!!!!
 

anonymous

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>gsplover</b></i>

Do you knoe if source CF the pharmacy that will give you the eflow for free as long as you get your medicine through them?</end quote></div>

give the eflow free?

now a snow ball's chance in hell.

the eflow is $1200.

i would be furious if i knew that my fundraising money went to give CFers eflows for free. either get your insurance to cover it or do longer treatments with your regular compressor!!!!
 

anonymous

New member
Your post doesn't make any sense, gsplover. Are you out of your mind--what are so angry about. I'm just telling you what I learned. The people at the pharmacy told me I didn't have to worry about getting the eflow covered. Just get the meds covered and they would provide the eflow. I haven't tried to get the eflow yet, because I want to wait till my next doctor's visit, to make sure they approve. If they do, I'll save about two hours per day...that's pretty important to me.
 

anonymous

New member
Your post doesn't make any sense, gsplover. Are you out of your mind--what are so angry about. I'm just telling you what I learned. The people at the pharmacy told me I didn't have to worry about getting the eflow covered. Just get the meds covered and they would provide the eflow. I haven't tried to get the eflow yet, because I want to wait till my next doctor's visit, to make sure they approve. If they do, I'll save about two hours per day...that's pretty important to me.
 

anonymous

New member
Your post doesn't make any sense, gsplover. Are you out of your mind--what are so angry about. I'm just telling you what I learned. The people at the pharmacy told me I didn't have to worry about getting the eflow covered. Just get the meds covered and they would provide the eflow. I haven't tried to get the eflow yet, because I want to wait till my next doctor's visit, to make sure they approve. If they do, I'll save about two hours per day...that's pretty important to me.
 

anonymous

New member
YES, the eflow is FREE if u go through Source CF and order certain meds thru them. The reason is i'm sure is because pharmacutical companies are making bukoo money on drugs. But whoever thinks it should not be free, needs to get a life....who cares, whatever u can get free take it, we have good insurance and pay, but if you don't more power to u, that's like comparing the eflow to the nebulizer and telling u that u ahve to still use the old long nebs to saying if u need lungs, too bad, wait 10 years and instead of 2 years. Get a life, sometimes I think CF people can be their own worst enemys. you'll do better in life if u WOrrry about yourself in the future and quit always wondering if life is fair. It's not, and i'm sure in your life u have take what u could for free or will do it sometime in the future...UGHHH
 

anonymous

New member
YES, the eflow is FREE if u go through Source CF and order certain meds thru them. The reason is i'm sure is because pharmacutical companies are making bukoo money on drugs. But whoever thinks it should not be free, needs to get a life....who cares, whatever u can get free take it, we have good insurance and pay, but if you don't more power to u, that's like comparing the eflow to the nebulizer and telling u that u ahve to still use the old long nebs to saying if u need lungs, too bad, wait 10 years and instead of 2 years. Get a life, sometimes I think CF people can be their own worst enemys. you'll do better in life if u WOrrry about yourself in the future and quit always wondering if life is fair. It's not, and i'm sure in your life u have take what u could for free or will do it sometime in the future...UGHHH
 

anonymous

New member
YES, the eflow is FREE if u go through Source CF and order certain meds thru them. The reason is i'm sure is because pharmacutical companies are making bukoo money on drugs. But whoever thinks it should not be free, needs to get a life....who cares, whatever u can get free take it, we have good insurance and pay, but if you don't more power to u, that's like comparing the eflow to the nebulizer and telling u that u ahve to still use the old long nebs to saying if u need lungs, too bad, wait 10 years and instead of 2 years. Get a life, sometimes I think CF people can be their own worst enemys. you'll do better in life if u WOrrry about yourself in the future and quit always wondering if life is fair. It's not, and i'm sure in your life u have take what u could for free or will do it sometime in the future...UGHHH
 

anonymous

New member
oh and by the way, if u couldn't tell i was cheesed off before, YOUR fundraising did not go to giving it free to other CFers and if u believe this then keep raising, maybe next time we will get a free car....UGHHH
 

anonymous

New member
oh and by the way, if u couldn't tell i was cheesed off before, YOUR fundraising did not go to giving it free to other CFers and if u believe this then keep raising, maybe next time we will get a free car....UGHHH
 

anonymous

New member
oh and by the way, if u couldn't tell i was cheesed off before, YOUR fundraising did not go to giving it free to other CFers and if u believe this then keep raising, maybe next time we will get a free car....UGHHH
 

anonymous

New member
I guess your right, they are not new, I was thinking of another thread. But Stella was new. I've learned alot from Amy and appreciate her input, the statement didn't sound very friendly though...but hey I haven't been very friendly tonight either. That's why I am posting anon.
 

anonymous

New member
I guess your right, they are not new, I was thinking of another thread. But Stella was new. I've learned alot from Amy and appreciate her input, the statement didn't sound very friendly though...but hey I haven't been very friendly tonight either. That's why I am posting anon.
 

anonymous

New member
I guess your right, they are not new, I was thinking of another thread. But Stella was new. I've learned alot from Amy and appreciate her input, the statement didn't sound very friendly though...but hey I haven't been very friendly tonight either. That's why I am posting anon.
 

anonymous

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>anonymous</b></i>

. The reason is i'm sure is because pharmacutical companies are making bukoo money on drugs. But whoever thinks it should not be free, needs to get a life....who cares, whatever u can get free take it, we have good insurance and pay, but if you don't more power to u, that's like comparing the eflow to the nebulizer and telling u that u ahve to still use the old long nebs to saying if u need lungs, too bad, wait 10 years and instead of 2 years. Get a life, sometimes I think CF people can be their own worst enemys. you'll do better in life if u WOrrry about yourself in the future and quit always wondering if life is fair. It's not, and i'm sure in your life u have take what u could for free or will do it sometime in the future...UGHHH</end quote></div>

1. pharmaceutical companies make moeny on drugs. what does that have to do with Source CF providing eFlows? Source CF doesn't make the profits on the drugs.... pharmaceutical companies do, as you state. and the eFlow isn't made by a pharmaceutical company. it's made by PARI. please explain your logic...

2. i don't take things for free when i know people who are less fortunate than me can benefit. my doc offers me free meds and nebs all the time and i don't take them because i know others who are worse off than me could really use the free-bees. many people like myself think outside themselves.

3. when people donate to the CF Foundation, they are donating with the impression that the money goes to fund research for treatments for the disease. not for a free, new nebulizer invention. yes, the eFlow is a great concept. but i disagree with the concept that it should be provided for free at the expense of research for CF meds.
 
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