has cf affected your social life

[Ricky123]

has cf affected other peoples social life as a result of cf.I have found personally with me that it has.As a result of a lot of problems caused by my cf i developed a inferiority complex which did not help when socialising.I aslo found i was reguarly tired and fatigued as a result of my cf and did not feel up to mixing with other people which further affected my social skills
what about other people

 

[Ricky123]

has cf affected other peoples social life as a result of cf.I have found personally with me that it has.As a result of a lot of problems caused by my cf i developed a inferiority complex which did not help when socialising.I aslo found i was reguarly tired and fatigued as a result of my cf and did not feel up to mixing with other people which further affected my social skills
what about other people

 

[Ricky123]

has cf affected other peoples social life as a result of cf.I have found personally with me that it has.As a result of a lot of problems caused by my cf i developed a inferiority complex which did not help when socialising.I aslo found i was reguarly tired and fatigued as a result of my cf and did not feel up to mixing with other people which further affected my social skills
what about other people

 

[JazzysMom]

As a kid it didnt affect things. It has a bit as I got older and things progressed. Its not where I cant do anything, but I have to be more selective about what I do when socializing. I get wore out easily.

 

[JazzysMom]

As a kid it didnt affect things. It has a bit as I got older and things progressed. Its not where I cant do anything, but I have to be more selective about what I do when socializing. I get wore out easily.

 

[JazzysMom]

As a kid it didnt affect things. It has a bit as I got older and things progressed. Its not where I cant do anything, but I have to be more selective about what I do when socializing. I get wore out easily.

 

[sue35]

It affected my social life but only because I let it. I also got tired easily and didn't feel like socializing with people and then when I would get really sick I would kind of shut down and not talk to anyone really. But this is only because I made it that way. I blame myself rather than CF.

The only way CF has directly affected my social life is that I can't go out to bars as much as my friends do.

 

[sue35]

It affected my social life but only because I let it. I also got tired easily and didn't feel like socializing with people and then when I would get really sick I would kind of shut down and not talk to anyone really. But this is only because I made it that way. I blame myself rather than CF.

The only way CF has directly affected my social life is that I can't go out to bars as much as my friends do.

 

[sue35]

It affected my social life but only because I let it. I also got tired easily and didn't feel like socializing with people and then when I would get really sick I would kind of shut down and not talk to anyone really. But this is only because I made it that way. I blame myself rather than CF.

The only way CF has directly affected my social life is that I can't go out to bars as much as my friends do.

 

[Ratatosk]

As a parent of a child wcf -- we're sometimes forgotten. Assumption that we're too busy with DS's treatments, etc. Or that we wouldn't be interested. Some of our friends couldn't deal with the diagnosis and wouldn't visit at first.

Or family members still expect us to be available at the drop of a hat. When DS was 3 months old we took him to a wedding and had to slip in the back of the church 'cuz we were delayed because we were still getting used to his being on Tobi -- got in trouble 'cuz we were late and didn't sit with the family. Nowdays we just come and go as we please. We don't have THAT strict of a schedule, but it really annoys me when they start calling us wondering where we are -- they're holding dinner for us... After we told them don't worry about feeding us -- we'll be there but don't wait on our account.

 

[Ratatosk]

As a parent of a child wcf -- we're sometimes forgotten. Assumption that we're too busy with DS's treatments, etc. Or that we wouldn't be interested. Some of our friends couldn't deal with the diagnosis and wouldn't visit at first.

Or family members still expect us to be available at the drop of a hat. When DS was 3 months old we took him to a wedding and had to slip in the back of the church 'cuz we were delayed because we were still getting used to his being on Tobi -- got in trouble 'cuz we were late and didn't sit with the family. Nowdays we just come and go as we please. We don't have THAT strict of a schedule, but it really annoys me when they start calling us wondering where we are -- they're holding dinner for us... After we told them don't worry about feeding us -- we'll be there but don't wait on our account.

 

[Ratatosk]

As a parent of a child wcf -- we're sometimes forgotten. Assumption that we're too busy with DS's treatments, etc. Or that we wouldn't be interested. Some of our friends couldn't deal with the diagnosis and wouldn't visit at first.

Or family members still expect us to be available at the drop of a hat. When DS was 3 months old we took him to a wedding and had to slip in the back of the church 'cuz we were delayed because we were still getting used to his being on Tobi -- got in trouble 'cuz we were late and didn't sit with the family. Nowdays we just come and go as we please. We don't have THAT strict of a schedule, but it really annoys me when they start calling us wondering where we are -- they're holding dinner for us... After we told them don't worry about feeding us -- we'll be there but don't wait on our account.

 

[nicolaj]

i sometimes have to remind my friends that i cant always do the things they do. i cant always keep up. a couple of years ago i could go out clubbing when ever i wanted, so my friends never thought i was " ill ". but as i have deteriated i have had to pace myself, and turn my friends down more often. im alot more responsible than i used to be. i still go out quite often, because i dont like to let cf get in the way of my life. but i also realise, that it is a part of my life, and i have to think about the best thing for me.
There is one friend in particular who doesnt really understand. she can be selfish at times, but i dont let it bother me because i have other friends who are great! Fatigue can be a big problem at times, and can be very frustrating. i just try to ignore it and enjoy myself. i no its never going to go away, so why let it get in the way?

Nicola xx

 

[nicolaj]

i sometimes have to remind my friends that i cant always do the things they do. i cant always keep up. a couple of years ago i could go out clubbing when ever i wanted, so my friends never thought i was " ill ". but as i have deteriated i have had to pace myself, and turn my friends down more often. im alot more responsible than i used to be. i still go out quite often, because i dont like to let cf get in the way of my life. but i also realise, that it is a part of my life, and i have to think about the best thing for me.
There is one friend in particular who doesnt really understand. she can be selfish at times, but i dont let it bother me because i have other friends who are great! Fatigue can be a big problem at times, and can be very frustrating. i just try to ignore it and enjoy myself. i no its never going to go away, so why let it get in the way?

Nicola xx

 

[nicolaj]

i sometimes have to remind my friends that i cant always do the things they do. i cant always keep up. a couple of years ago i could go out clubbing when ever i wanted, so my friends never thought i was " ill ". but as i have deteriated i have had to pace myself, and turn my friends down more often. im alot more responsible than i used to be. i still go out quite often, because i dont like to let cf get in the way of my life. but i also realise, that it is a part of my life, and i have to think about the best thing for me.
There is one friend in particular who doesnt really understand. she can be selfish at times, but i dont let it bother me because i have other friends who are great! Fatigue can be a big problem at times, and can be very frustrating. i just try to ignore it and enjoy myself. i no its never going to go away, so why let it get in the way?

Nicola xx

 

[clinging2faith]

Hi Ricky123:

Yes it has for me too. CF does affect to a great extent.
HOw can we make many friends when we are hospitalized and in bed at home or trying to stay away from other's germs? It is difficult also because like you state, its not always possible to be in the greatest mood and relentlessly have energy for all the demands of having friends all the time and around.

It is tiring to try to keep up with friends. I lucked out because I have my set of very good friends since childhood and adolescence, I sitll have at least 5 of my highschool friends who are my constant supporters whenever they can get online because they are in Spain and Mexico and Italy and South America.

Talking takes energy, if one is clogged well it s more difficult to keep talking, joking, laughing and us )chocking!

I , like you, had or maybe have some sort of inferiority feeling too not from other but from the fact that cf does limit us in many ways even if one is encouraged to live a normal life, its not always normal is it?

To have a social life, one needs energy, stamina, lungs clear so one can talk for hours, no therapies so one does not interrupt others (or vice versa), one should be able to feel so good that one can go anywhere and smile. Eating problems? This was my biggest issue when I was growing up. HOW TO HIDE THE HORRIBLE GAS PROBLEM FROM DIGESTIVE PROBLEMS? back when I was a child I had to suffer so much from this and go to school and hide in the bathroom until all the kids were out so nobody would smell ... it was very hard I remember that and sometimes I still do.

I remember one time I had a Catholic retreat when i was 12yrs old. I had joined with my school 2 entire classrooms of girls in the retreat. For every two girls we had a small room to sleep in with the toilet in the middle of the room enclosed in 3 walls. HOW DOES A CF PERSON WITH SEVERE DIGESTIVE DISORDER HIDE THIS IN THS SITUATION?
I had to not go to the toilet for 3 days, i went back home with such a severe intestinal blockage from holding all in.
YES ITS REALLY SAD BUT CF DOES AFFECT GREATLY SOCIAL LIFE.

We can go up and down the list of problems which can be large.

People who have a great social life, have a greater body and illness not so bad or no illness at all. They can stand the daily and routine things in a social life which are very demanding on a cf person with breathing proble3ms, digesting probs, etc.

I cant think of having a social life whenIm in a lot of pain unable to get up from it, coughing, chocking, medication schedules, et c etc etc sometimes one has to make the friends online, get a few phone calls from others and leave the socializing till one feels good enough to walk out and talk for hours (to say the least).

Yes thereare CF people who do have a great social life I think, but those may be the ones with a milder form of cf that allows them to continue as if nothing was wrong and with not many complicaitons to have a social life.

I find that being so thin makes me feel so badly inferior now becayse I compare myself all the time looking at evrybody else being ok (those without cf) and me here like bones. ITS HARD IT IS.
Somethings we can overcome some we may not .

Mary

 

[clinging2faith]

Hi Ricky123:

Yes it has for me too. CF does affect to a great extent.
HOw can we make many friends when we are hospitalized and in bed at home or trying to stay away from other's germs? It is difficult also because like you state, its not always possible to be in the greatest mood and relentlessly have energy for all the demands of having friends all the time and around.

It is tiring to try to keep up with friends. I lucked out because I have my set of very good friends since childhood and adolescence, I sitll have at least 5 of my highschool friends who are my constant supporters whenever they can get online because they are in Spain and Mexico and Italy and South America.

Talking takes energy, if one is clogged well it s more difficult to keep talking, joking, laughing and us )chocking!

I , like you, had or maybe have some sort of inferiority feeling too not from other but from the fact that cf does limit us in many ways even if one is encouraged to live a normal life, its not always normal is it?

To have a social life, one needs energy, stamina, lungs clear so one can talk for hours, no therapies so one does not interrupt others (or vice versa), one should be able to feel so good that one can go anywhere and smile. Eating problems? This was my biggest issue when I was growing up. HOW TO HIDE THE HORRIBLE GAS PROBLEM FROM DIGESTIVE PROBLEMS? back when I was a child I had to suffer so much from this and go to school and hide in the bathroom until all the kids were out so nobody would smell ... it was very hard I remember that and sometimes I still do.

I remember one time I had a Catholic retreat when i was 12yrs old. I had joined with my school 2 entire classrooms of girls in the retreat. For every two girls we had a small room to sleep in with the toilet in the middle of the room enclosed in 3 walls. HOW DOES A CF PERSON WITH SEVERE DIGESTIVE DISORDER HIDE THIS IN THS SITUATION?
I had to not go to the toilet for 3 days, i went back home with such a severe intestinal blockage from holding all in.
YES ITS REALLY SAD BUT CF DOES AFFECT GREATLY SOCIAL LIFE.

We can go up and down the list of problems which can be large.

People who have a great social life, have a greater body and illness not so bad or no illness at all. They can stand the daily and routine things in a social life which are very demanding on a cf person with breathing proble3ms, digesting probs, etc.

I cant think of having a social life whenIm in a lot of pain unable to get up from it, coughing, chocking, medication schedules, et c etc etc sometimes one has to make the friends online, get a few phone calls from others and leave the socializing till one feels good enough to walk out and talk for hours (to say the least).

Yes thereare CF people who do have a great social life I think, but those may be the ones with a milder form of cf that allows them to continue as if nothing was wrong and with not many complicaitons to have a social life.

I find that being so thin makes me feel so badly inferior now becayse I compare myself all the time looking at evrybody else being ok (those without cf) and me here like bones. ITS HARD IT IS.
Somethings we can overcome some we may not .

Mary

 

[clinging2faith]

Hi Ricky123:

Yes it has for me too. CF does affect to a great extent.
HOw can we make many friends when we are hospitalized and in bed at home or trying to stay away from other's germs? It is difficult also because like you state, its not always possible to be in the greatest mood and relentlessly have energy for all the demands of having friends all the time and around.

It is tiring to try to keep up with friends. I lucked out because I have my set of very good friends since childhood and adolescence, I sitll have at least 5 of my highschool friends who are my constant supporters whenever they can get online because they are in Spain and Mexico and Italy and South America.

Talking takes energy, if one is clogged well it s more difficult to keep talking, joking, laughing and us )chocking!

I , like you, had or maybe have some sort of inferiority feeling too not from other but from the fact that cf does limit us in many ways even if one is encouraged to live a normal life, its not always normal is it?

To have a social life, one needs energy, stamina, lungs clear so one can talk for hours, no therapies so one does not interrupt others (or vice versa), one should be able to feel so good that one can go anywhere and smile. Eating problems? This was my biggest issue when I was growing up. HOW TO HIDE THE HORRIBLE GAS PROBLEM FROM DIGESTIVE PROBLEMS? back when I was a child I had to suffer so much from this and go to school and hide in the bathroom until all the kids were out so nobody would smell ... it was very hard I remember that and sometimes I still do.

I remember one time I had a Catholic retreat when i was 12yrs old. I had joined with my school 2 entire classrooms of girls in the retreat. For every two girls we had a small room to sleep in with the toilet in the middle of the room enclosed in 3 walls. HOW DOES A CF PERSON WITH SEVERE DIGESTIVE DISORDER HIDE THIS IN THS SITUATION?
I had to not go to the toilet for 3 days, i went back home with such a severe intestinal blockage from holding all in.
YES ITS REALLY SAD BUT CF DOES AFFECT GREATLY SOCIAL LIFE.

We can go up and down the list of problems which can be large.

People who have a great social life, have a greater body and illness not so bad or no illness at all. They can stand the daily and routine things in a social life which are very demanding on a cf person with breathing proble3ms, digesting probs, etc.

I cant think of having a social life whenIm in a lot of pain unable to get up from it, coughing, chocking, medication schedules, et c etc etc sometimes one has to make the friends online, get a few phone calls from others and leave the socializing till one feels good enough to walk out and talk for hours (to say the least).

Yes thereare CF people who do have a great social life I think, but those may be the ones with a milder form of cf that allows them to continue as if nothing was wrong and with not many complicaitons to have a social life.

I find that being so thin makes me feel so badly inferior now becayse I compare myself all the time looking at evrybody else being ok (those without cf) and me here like bones. ITS HARD IT IS.
Somethings we can overcome some we may not .

Mary

 

[65rosessamurai]

During my childhood years, I had problems due to being constantly teased, as well as missing school from being sick so often.
As I got into high school, I still had occasional teasing, but also was able to find a few people to call friends because they didn't "attack" my differences due to my health problems that were obvious. The less obvious was how many pills I took. The principal's office always carried the medication (because they were prescription, they felt better having that kind of control), so I would take it there before going to the lunch room.
It wasn't until after graduation, when I was having my graduation party in which no one that I invited had come over. Sad day, but helped me realize that I really needed to work harder at building friendships.
I still had a few 'social oddities', even during my first marriage, but had 'help' in that area as well!
I think those problems were related to my CF, because with having four siblings, I really think things would have been different if I wasn't sick so often as a child.
I'd also add that I started into the martial arts to help me deal with the self confidence and health problem, seems to have worked so far for me.

 

[65rosessamurai]

During my childhood years, I had problems due to being constantly teased, as well as missing school from being sick so often.
As I got into high school, I still had occasional teasing, but also was able to find a few people to call friends because they didn't "attack" my differences due to my health problems that were obvious. The less obvious was how many pills I took. The principal's office always carried the medication (because they were prescription, they felt better having that kind of control), so I would take it there before going to the lunch room.
It wasn't until after graduation, when I was having my graduation party in which no one that I invited had come over. Sad day, but helped me realize that I really needed to work harder at building friendships.
I still had a few 'social oddities', even during my first marriage, but had 'help' in that area as well!
I think those problems were related to my CF, because with having four siblings, I really think things would have been different if I wasn't sick so often as a child.
I'd also add that I started into the martial arts to help me deal with the self confidence and health problem, seems to have worked so far for me.