<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>clinging2faith</b></i>
Hi Ricky123:
Yes it has for me too. CF does affect to a great extent.
HOw can we make many friends when we are hospitalized and in bed at home or trying to stay away from other's germs? It is difficult also because like you state, its not always possible to be in the greatest mood and relentlessly have energy for all the demands of having friends all the time and around.
It is tiring to try to keep up with friends. I lucked out because I have my set of very good friends since childhood and adolescence, I sitll have at least 5 of my highschool friends who are my constant supporters whenever they can get online because they are in Spain and Mexico and Italy and South America.
Talking takes energy, if one is clogged well it s more difficult to keep talking, joking, laughing and us )chocking!
I , like you, had or maybe have some sort of inferiority feeling too not from other but from the fact that cf does limit us in many ways even if one is encouraged to live a normal life, its not always normal is it?
To have a social life, one needs energy, stamina, lungs clear so one can talk for hours, no therapies so one does not interrupt others (or vice versa), one should be able to feel so good that one can go anywhere and smile. Eating problems? This was my biggest issue when I was growing up. HOW TO HIDE THE HORRIBLE GAS PROBLEM FROM DIGESTIVE PROBLEMS? back when I was a child I had to suffer so much from this and go to school and hide in the bathroom until all the kids were out so nobody would smell ... it was very hard I remember that and sometimes I still do.
I remember one time I had a Catholic retreat when i was 12yrs old. I had joined with my school 2 entire classrooms of girls in the retreat. For every two girls we had a small room to sleep in with the toilet in the middle of the room enclosed in 3 walls. HOW DOES A CF PERSON WITH SEVERE DIGESTIVE DISORDER HIDE THIS IN THS SITUATION?
I had to not go to the toilet for 3 days, i went back home with such a severe intestinal blockage from holding all in.
YES ITS REALLY SAD BUT CF DOES AFFECT GREATLY SOCIAL LIFE.
We can go up and down the list of problems which can be large.
People who have a great social life, have a greater body and illness not so bad or no illness at all. They can stand the daily and routine things in a social life which are very demanding on a cf person with breathing proble3ms, digesting probs, etc.
I cant think of having a social life whenIm in a lot of pain unable to get up from it, coughing, chocking, medication schedules, et c etc etc sometimes one has to make the friends online, get a few phone calls from others and leave the socializing till one feels good enough to walk out and talk for hours (to say the least).
Yes thereare CF people who do have a great social life I think, but those may be the ones with a milder form of cf that allows them to continue as if nothing was wrong and with not many complicaitons to have a social life.
I find that being so thin makes me feel so badly inferior now becayse I compare myself all the time looking at evrybody else being ok (those without cf) and me here like bones. ITS HARD IT IS.
Somethings we can overcome some we may not .
Mary</end quote></div>great post i think you have summed up perfectly how cf can affect you in a social environment
Hi Ricky123:
Yes it has for me too. CF does affect to a great extent.
HOw can we make many friends when we are hospitalized and in bed at home or trying to stay away from other's germs? It is difficult also because like you state, its not always possible to be in the greatest mood and relentlessly have energy for all the demands of having friends all the time and around.
It is tiring to try to keep up with friends. I lucked out because I have my set of very good friends since childhood and adolescence, I sitll have at least 5 of my highschool friends who are my constant supporters whenever they can get online because they are in Spain and Mexico and Italy and South America.
Talking takes energy, if one is clogged well it s more difficult to keep talking, joking, laughing and us )chocking!
I , like you, had or maybe have some sort of inferiority feeling too not from other but from the fact that cf does limit us in many ways even if one is encouraged to live a normal life, its not always normal is it?
To have a social life, one needs energy, stamina, lungs clear so one can talk for hours, no therapies so one does not interrupt others (or vice versa), one should be able to feel so good that one can go anywhere and smile. Eating problems? This was my biggest issue when I was growing up. HOW TO HIDE THE HORRIBLE GAS PROBLEM FROM DIGESTIVE PROBLEMS? back when I was a child I had to suffer so much from this and go to school and hide in the bathroom until all the kids were out so nobody would smell ... it was very hard I remember that and sometimes I still do.
I remember one time I had a Catholic retreat when i was 12yrs old. I had joined with my school 2 entire classrooms of girls in the retreat. For every two girls we had a small room to sleep in with the toilet in the middle of the room enclosed in 3 walls. HOW DOES A CF PERSON WITH SEVERE DIGESTIVE DISORDER HIDE THIS IN THS SITUATION?
I had to not go to the toilet for 3 days, i went back home with such a severe intestinal blockage from holding all in.
YES ITS REALLY SAD BUT CF DOES AFFECT GREATLY SOCIAL LIFE.
We can go up and down the list of problems which can be large.
People who have a great social life, have a greater body and illness not so bad or no illness at all. They can stand the daily and routine things in a social life which are very demanding on a cf person with breathing proble3ms, digesting probs, etc.
I cant think of having a social life whenIm in a lot of pain unable to get up from it, coughing, chocking, medication schedules, et c etc etc sometimes one has to make the friends online, get a few phone calls from others and leave the socializing till one feels good enough to walk out and talk for hours (to say the least).
Yes thereare CF people who do have a great social life I think, but those may be the ones with a milder form of cf that allows them to continue as if nothing was wrong and with not many complicaitons to have a social life.
I find that being so thin makes me feel so badly inferior now becayse I compare myself all the time looking at evrybody else being ok (those without cf) and me here like bones. ITS HARD IT IS.
Somethings we can overcome some we may not .
Mary</end quote></div>great post i think you have summed up perfectly how cf can affect you in a social environment