has cf affected your social life

[Allie]

<div class="FTQUOTE"><begin quote>If you've still got it, flaunt it!
The end is inevitable.
Carpe Diem, Sugah.

</end quote></div>

I really like this sentiment, so much so that I wrote it in my notenook. It sounds like something Ry would have said, and it was definitely the way he lived. Keep on being yourself, Phoebe.

Oh, and what I actually emant to add, before that distracted me...I think some of it is personality. I don't have much of a social life either. I can blame a lot of things, but what ti all comes down to is I'm naturally a shyer, quieter person in my life, and with my touch of social anxiety...I dislike doing things sometimes. It's not that my friends don't care about me, it's just that it isn't their job to make sure I'm entertained. I am much more low key. They aren't. If I want someone to hang around and watch movies with, I have to find a friend who wants to do that. I just haven't made that effort. So I think it is with a lot of people, CF and non.

 

[65rosessamurai]

I disagree to Amy's fact that "we have a choice".

Sure, we have a choice, but around the age of 5, or 10, or maybe even 15, there aren't those kind of people around telling you "you have a choice"; not the bully picking on you for your size; not for the group of 'fellow students' teasing you after you got out of the bathroom; and certainly not your teachers.
Of course, when you're at the age to which you realize you do have choices (and MAYBE find that influential friend, or teacher), and you can work harder towards a social life that you want it to become, but that means having a lot of hard work to put into it, and a lot of failures before successes.

Of course, those of us CF'rs who had lost friends due to illnesses, etc., their future social life will certainly be influenced by it.

I, personally felt my social life was 'too secluded', so I've had to 'fall' a few times in order to feel a little bit less secluded. I'm not some "transformed party animal" or anything, in fact I don't really like those kind of parties, but because I've had to deal with company customers on many occasions, I was glad I had developed enough 'social skills' to not seem like an "alien".

 

[65rosessamurai]

I disagree to Amy's fact that "we have a choice".

Sure, we have a choice, but around the age of 5, or 10, or maybe even 15, there aren't those kind of people around telling you "you have a choice"; not the bully picking on you for your size; not for the group of 'fellow students' teasing you after you got out of the bathroom; and certainly not your teachers.
Of course, when you're at the age to which you realize you do have choices (and MAYBE find that influential friend, or teacher), and you can work harder towards a social life that you want it to become, but that means having a lot of hard work to put into it, and a lot of failures before successes.

Of course, those of us CF'rs who had lost friends due to illnesses, etc., their future social life will certainly be influenced by it.

I, personally felt my social life was 'too secluded', so I've had to 'fall' a few times in order to feel a little bit less secluded. I'm not some "transformed party animal" or anything, in fact I don't really like those kind of parties, but because I've had to deal with company customers on many occasions, I was glad I had developed enough 'social skills' to not seem like an "alien".

 

[65rosessamurai]

I disagree to Amy's fact that "we have a choice".

Sure, we have a choice, but around the age of 5, or 10, or maybe even 15, there aren't those kind of people around telling you "you have a choice"; not the bully picking on you for your size; not for the group of 'fellow students' teasing you after you got out of the bathroom; and certainly not your teachers.
Of course, when you're at the age to which you realize you do have choices (and MAYBE find that influential friend, or teacher), and you can work harder towards a social life that you want it to become, but that means having a lot of hard work to put into it, and a lot of failures before successes.

Of course, those of us CF'rs who had lost friends due to illnesses, etc., their future social life will certainly be influenced by it.

I, personally felt my social life was 'too secluded', so I've had to 'fall' a few times in order to feel a little bit less secluded. I'm not some "transformed party animal" or anything, in fact I don't really like those kind of parties, but because I've had to deal with company customers on many occasions, I was glad I had developed enough 'social skills' to not seem like an "alien".

 

[MissAudrey]

Oh Grande.
Presumably any comparison to the esteemed Ry = compliment city.
Thankyouu Allie, I shall indeed continue being myself.
Most others bore me anyway.
;]

 

[MissAudrey]

Oh Grande.
Presumably any comparison to the esteemed Ry = compliment city.
Thankyouu Allie, I shall indeed continue being myself.
Most others bore me anyway.
;]

 

[MissAudrey]

Oh Grande.
Presumably any comparison to the esteemed Ry = compliment city.
Thankyouu Allie, I shall indeed continue being myself.
Most others bore me anyway.
;]

 

[Ricky123]

clinging to faith i totally agree with you.Depending on what type of cf you have really affects the way you interact in a social environment.I had a lot of problems with my stomach ie bad stomach cramps(cf related}.When you feel like ***** you physically cant be normal in a social environment.So one of the earlier responses in this forum who said cf did not affect her social life at all is lucky cos she has no real medical complications.Its the luck of the draw some people have to put with a lot more ***** than others whereas otheres get off scott free as the old saying goes life can be a bitch

 

[Ricky123]

clinging to faith i totally agree with you.Depending on what type of cf you have really affects the way you interact in a social environment.I had a lot of problems with my stomach ie bad stomach cramps(cf related}.When you feel like ***** you physically cant be normal in a social environment.So one of the earlier responses in this forum who said cf did not affect her social life at all is lucky cos she has no real medical complications.Its the luck of the draw some people have to put with a lot more ***** than others whereas otheres get off scott free as the old saying goes life can be a bitch

 

[Ricky123]

clinging to faith i totally agree with you.Depending on what type of cf you have really affects the way you interact in a social environment.I had a lot of problems with my stomach ie bad stomach cramps(cf related}.When you feel like ***** you physically cant be normal in a social environment.So one of the earlier responses in this forum who said cf did not affect her social life at all is lucky cos she has no real medical complications.Its the luck of the draw some people have to put with a lot more ***** than others whereas otheres get off scott free as the old saying goes life can be a bitch

 

[clinging2faith]

"I think if someone is sick a lot it is up to them to keep their friends. Their friends are only going to be there for so long before they do get used to you not being there. They have their own life and that is not their fault. I think that we have to try harder because of it and I am ok with that. "

--------------------------

I think there are two issues here that one has to make a distinction from. One is to be able to go out , party, have a good time with people at a different place than where one is used to living/sleeping.
And another thing is to have friends (or not ).

Personalities vary. So do character and traits that become enlarged or more marked as time and cf progresses too. Some people can choose to go out and party even if they are dying in pain some people choose to stay home and relax and wait. I dont think any of us plainly just doesnt want to have a social life. CF does influence on all aspects of a social life. Its the maintenance of a social life that is hard to do when cf starts striking more and more with ferocity.

I have a network of friends that many could wish for. We still get together even after 30yrs since we all came out of highschool and went about our own ways.
WE absolutely support each other. We celebrate each others birthdays and have an active life amongst all of us to do things together and to stay emotionally together. Its a blessing. Even when most of us have even moved abroad or live in different countries now. We all make it a point to make an appt for a twice a year reunion. In my country the friends still living there get together once a month. And those of us outside, sometimes arrange for our trips so we arrive fr the monthly school generation meeting.

However cf can and does tend to make some people feel shy, feeling left out is not something imaginary, people do it. As its mentioned here. If they see you turn them down several times they stop asking. Sometimes cf can take months before you can say 'yes" i 'll go ! Unfurtunately yes even family can sometimes forget us out . People should never do this because it means there is a very shallow understanding of compassion towards someone who is in need of friends and suffering from a terrible genetic problem.

One of the things that a good friend or true friend does and should always have in heart is being "sensitive" to their neighbors/friends/"kompis"/partners thats always a good sign that they are true friends. if they still are kind enough to ask and check on you even if they know you may not go with them coz you are ill.

A true good friend does not leave alone, or leave out his/her true friend.
Even through email a friend can send and be there with love for a person.

 

[clinging2faith]

"I think if someone is sick a lot it is up to them to keep their friends. Their friends are only going to be there for so long before they do get used to you not being there. They have their own life and that is not their fault. I think that we have to try harder because of it and I am ok with that. "

--------------------------

I think there are two issues here that one has to make a distinction from. One is to be able to go out , party, have a good time with people at a different place than where one is used to living/sleeping.
And another thing is to have friends (or not ).

Personalities vary. So do character and traits that become enlarged or more marked as time and cf progresses too. Some people can choose to go out and party even if they are dying in pain some people choose to stay home and relax and wait. I dont think any of us plainly just doesnt want to have a social life. CF does influence on all aspects of a social life. Its the maintenance of a social life that is hard to do when cf starts striking more and more with ferocity.

I have a network of friends that many could wish for. We still get together even after 30yrs since we all came out of highschool and went about our own ways.
WE absolutely support each other. We celebrate each others birthdays and have an active life amongst all of us to do things together and to stay emotionally together. Its a blessing. Even when most of us have even moved abroad or live in different countries now. We all make it a point to make an appt for a twice a year reunion. In my country the friends still living there get together once a month. And those of us outside, sometimes arrange for our trips so we arrive fr the monthly school generation meeting.

However cf can and does tend to make some people feel shy, feeling left out is not something imaginary, people do it. As its mentioned here. If they see you turn them down several times they stop asking. Sometimes cf can take months before you can say 'yes" i 'll go ! Unfurtunately yes even family can sometimes forget us out . People should never do this because it means there is a very shallow understanding of compassion towards someone who is in need of friends and suffering from a terrible genetic problem.

One of the things that a good friend or true friend does and should always have in heart is being "sensitive" to their neighbors/friends/"kompis"/partners thats always a good sign that they are true friends. if they still are kind enough to ask and check on you even if they know you may not go with them coz you are ill.

A true good friend does not leave alone, or leave out his/her true friend.
Even through email a friend can send and be there with love for a person.

 

[clinging2faith]

"I think if someone is sick a lot it is up to them to keep their friends. Their friends are only going to be there for so long before they do get used to you not being there. They have their own life and that is not their fault. I think that we have to try harder because of it and I am ok with that. "

--------------------------

I think there are two issues here that one has to make a distinction from. One is to be able to go out , party, have a good time with people at a different place than where one is used to living/sleeping.
And another thing is to have friends (or not ).

Personalities vary. So do character and traits that become enlarged or more marked as time and cf progresses too. Some people can choose to go out and party even if they are dying in pain some people choose to stay home and relax and wait. I dont think any of us plainly just doesnt want to have a social life. CF does influence on all aspects of a social life. Its the maintenance of a social life that is hard to do when cf starts striking more and more with ferocity.

I have a network of friends that many could wish for. We still get together even after 30yrs since we all came out of highschool and went about our own ways.
WE absolutely support each other. We celebrate each others birthdays and have an active life amongst all of us to do things together and to stay emotionally together. Its a blessing. Even when most of us have even moved abroad or live in different countries now. We all make it a point to make an appt for a twice a year reunion. In my country the friends still living there get together once a month. And those of us outside, sometimes arrange for our trips so we arrive fr the monthly school generation meeting.

However cf can and does tend to make some people feel shy, feeling left out is not something imaginary, people do it. As its mentioned here. If they see you turn them down several times they stop asking. Sometimes cf can take months before you can say 'yes" i 'll go ! Unfurtunately yes even family can sometimes forget us out . People should never do this because it means there is a very shallow understanding of compassion towards someone who is in need of friends and suffering from a terrible genetic problem.

One of the things that a good friend or true friend does and should always have in heart is being "sensitive" to their neighbors/friends/"kompis"/partners thats always a good sign that they are true friends. if they still are kind enough to ask and check on you even if they know you may not go with them coz you are ill.

A true good friend does not leave alone, or leave out his/her true friend.
Even through email a friend can send and be there with love for a person.

 

[Dreamer]

I agree with things several people have said, but I can't remember all of the names! I will make a list!!

1. I do think that the effect that CF has on your social life correlates with the severity of your symptoms.
2. I think that to an extent you can control your social life, but you can't control what the people around you do.
3. Being picked on by other people isn't something that you can stop; you can only control how you react to it.
4. I think personality does play a very significant role in how CF affects your social life.

I have had a great social life growing up. As someone mentioned previously, I was always one of the ringleaders in my circle. I was the one who people called to find out the "plan" and things like that. I think that this is attributed to two things: 1) I have been lucky in my bout with CF thus far, and 2) I have a very strong personality. I don't mean strong in a bad way, but I mean it in the way that people always tell me I'm charismatic. I hid CF for a while, but even once I let my CF guard down, nothing changed social-life wise.

I think the best advice to give is to make the most of your situation. People love humor. If you can make a joke about yourself, people will admire that. For example, yesterday in one of my classes, a group of girls was talking about America's Top Model. A girl next to me told me that I should try out. I said, "Yeah, maybe when for America's Top Midget." People laughed and, in a way, it demonstrates that you're confident and secure in yourself, and people like that. In high school, once it was finally established that I probably wasn't growing any more, people started realizing I was small. It was really amazing, actually. People loved picking me up and, although it made automatically made me "cute", it worked.

I read a quotation once that said something like: "10 percent of your life is what happens to you, and 90 percent is how you react to it." Because CF is so unpredictable and uncontrollable at times, maybe for CFers it should be 35 percent is what happens to you and 65 percent is how you react to it. You can't control the stuff that other people say and do to you, but you can definitely control your reactions. Although a portion of life can't be controlled, the majority of it can, so it's best to think in those terms.

Now, I'm just starting to ramble, but I could go on and on about this.

Have a great day! <img src="i/expressions/face-icon-small-happy.gif" border="0">

 

[Dreamer]

I agree with things several people have said, but I can't remember all of the names! I will make a list!!

1. I do think that the effect that CF has on your social life correlates with the severity of your symptoms.
2. I think that to an extent you can control your social life, but you can't control what the people around you do.
3. Being picked on by other people isn't something that you can stop; you can only control how you react to it.
4. I think personality does play a very significant role in how CF affects your social life.

I have had a great social life growing up. As someone mentioned previously, I was always one of the ringleaders in my circle. I was the one who people called to find out the "plan" and things like that. I think that this is attributed to two things: 1) I have been lucky in my bout with CF thus far, and 2) I have a very strong personality. I don't mean strong in a bad way, but I mean it in the way that people always tell me I'm charismatic. I hid CF for a while, but even once I let my CF guard down, nothing changed social-life wise.

I think the best advice to give is to make the most of your situation. People love humor. If you can make a joke about yourself, people will admire that. For example, yesterday in one of my classes, a group of girls was talking about America's Top Model. A girl next to me told me that I should try out. I said, "Yeah, maybe when for America's Top Midget." People laughed and, in a way, it demonstrates that you're confident and secure in yourself, and people like that. In high school, once it was finally established that I probably wasn't growing any more, people started realizing I was small. It was really amazing, actually. People loved picking me up and, although it made automatically made me "cute", it worked.

I read a quotation once that said something like: "10 percent of your life is what happens to you, and 90 percent is how you react to it." Because CF is so unpredictable and uncontrollable at times, maybe for CFers it should be 35 percent is what happens to you and 65 percent is how you react to it. You can't control the stuff that other people say and do to you, but you can definitely control your reactions. Although a portion of life can't be controlled, the majority of it can, so it's best to think in those terms.

Now, I'm just starting to ramble, but I could go on and on about this.

Have a great day! <img src="i/expressions/face-icon-small-happy.gif" border="0">

 

[Dreamer]

I agree with things several people have said, but I can't remember all of the names! I will make a list!!

1. I do think that the effect that CF has on your social life correlates with the severity of your symptoms.
2. I think that to an extent you can control your social life, but you can't control what the people around you do.
3. Being picked on by other people isn't something that you can stop; you can only control how you react to it.
4. I think personality does play a very significant role in how CF affects your social life.

I have had a great social life growing up. As someone mentioned previously, I was always one of the ringleaders in my circle. I was the one who people called to find out the "plan" and things like that. I think that this is attributed to two things: 1) I have been lucky in my bout with CF thus far, and 2) I have a very strong personality. I don't mean strong in a bad way, but I mean it in the way that people always tell me I'm charismatic. I hid CF for a while, but even once I let my CF guard down, nothing changed social-life wise.

I think the best advice to give is to make the most of your situation. People love humor. If you can make a joke about yourself, people will admire that. For example, yesterday in one of my classes, a group of girls was talking about America's Top Model. A girl next to me told me that I should try out. I said, "Yeah, maybe when for America's Top Midget." People laughed and, in a way, it demonstrates that you're confident and secure in yourself, and people like that. In high school, once it was finally established that I probably wasn't growing any more, people started realizing I was small. It was really amazing, actually. People loved picking me up and, although it made automatically made me "cute", it worked.

I read a quotation once that said something like: "10 percent of your life is what happens to you, and 90 percent is how you react to it." Because CF is so unpredictable and uncontrollable at times, maybe for CFers it should be 35 percent is what happens to you and 65 percent is how you react to it. You can't control the stuff that other people say and do to you, but you can definitely control your reactions. Although a portion of life can't be controlled, the majority of it can, so it's best to think in those terms.

Now, I'm just starting to ramble, but I could go on and on about this.

Have a great day! <img src="i/expressions/face-icon-small-happy.gif" border="0">

 

[EnergyGal]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Dreamer</b></i>

I agree with things several people have said, but I can't remember all of the names! I will make a list!!



1. I do think that the effect that CF has on your social life correlates with the severity of your symptoms.

2. I think that to an extent you can control your social life, but you can't control what the people around you do.

3. Being picked on by other people isn't something that you can stop; you can only control how you react to it.

4. I think personality does play a very significant role in how CF affects your social life.



I have had a great social life growing up. As someone mentioned previously, I was always one of the ringleaders in my circle. I was the one who people called to find out the "plan" and things like that. I think that this is attributed to two things: 1) I have been lucky in my bout with CF thus far, and 2) I have a very strong personality. I don't mean strong in a bad way, but I mean it in the way that people always tell me I'm charismatic. I hid CF for a while, but even once I let my CF guard down, nothing changed social-life wise.



I think the best advice to give is to make the most of your situation. People love humor. If you can make a joke about yourself, people will admire that. For example, yesterday in one of my classes, a group of girls was talking about America's Top Model. A girl next to me told me that I should try out. I said, "Yeah, maybe when for America's Top Midget." People laughed and, in a way, it demonstrates that you're confident and secure in yourself, and people like that. In high school, once it was finally established that I probably wasn't growing any more, people started realizing I was small. It was really amazing, actually. People loved picking me up and, although it made automatically made me "cute", it worked.



I read a quotation once that said something like: "10 percent of your life is what happens to you, and 90 percent is how you react to it." Because CF is so unpredictable and uncontrollable at times, maybe for CFers it should be 35 percent is what happens to you and 65 percent is how you react to it. You can't control the stuff that other people say and do to you, but you can definitely control your reactions. Although a portion of life can't be controlled, the majority of it can, so it's best to think in those terms.



Now, I'm just starting to ramble, but I could go on and on about this.



Have a great day! <img src="i/expressions/face-icon-small-happy.gif" border="0"></end quote></div>


When I first saw your blog, I knew that you were very popular in school. You can see the confidence in your expression. You are adorable and likeable too boot. You have an awesome Attitude. Seems like you are going to do well in life with CF and whatever you pursue for your future. Take care of yourself

 

[EnergyGal]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Dreamer</b></i>

I agree with things several people have said, but I can't remember all of the names! I will make a list!!



1. I do think that the effect that CF has on your social life correlates with the severity of your symptoms.

2. I think that to an extent you can control your social life, but you can't control what the people around you do.

3. Being picked on by other people isn't something that you can stop; you can only control how you react to it.

4. I think personality does play a very significant role in how CF affects your social life.



I have had a great social life growing up. As someone mentioned previously, I was always one of the ringleaders in my circle. I was the one who people called to find out the "plan" and things like that. I think that this is attributed to two things: 1) I have been lucky in my bout with CF thus far, and 2) I have a very strong personality. I don't mean strong in a bad way, but I mean it in the way that people always tell me I'm charismatic. I hid CF for a while, but even once I let my CF guard down, nothing changed social-life wise.



I think the best advice to give is to make the most of your situation. People love humor. If you can make a joke about yourself, people will admire that. For example, yesterday in one of my classes, a group of girls was talking about America's Top Model. A girl next to me told me that I should try out. I said, "Yeah, maybe when for America's Top Midget." People laughed and, in a way, it demonstrates that you're confident and secure in yourself, and people like that. In high school, once it was finally established that I probably wasn't growing any more, people started realizing I was small. It was really amazing, actually. People loved picking me up and, although it made automatically made me "cute", it worked.



I read a quotation once that said something like: "10 percent of your life is what happens to you, and 90 percent is how you react to it." Because CF is so unpredictable and uncontrollable at times, maybe for CFers it should be 35 percent is what happens to you and 65 percent is how you react to it. You can't control the stuff that other people say and do to you, but you can definitely control your reactions. Although a portion of life can't be controlled, the majority of it can, so it's best to think in those terms.



Now, I'm just starting to ramble, but I could go on and on about this.



Have a great day! <img src="i/expressions/face-icon-small-happy.gif" border="0"></end quote></div>


When I first saw your blog, I knew that you were very popular in school. You can see the confidence in your expression. You are adorable and likeable too boot. You have an awesome Attitude. Seems like you are going to do well in life with CF and whatever you pursue for your future. Take care of yourself

 

[EnergyGal]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Dreamer</b></i>

I agree with things several people have said, but I can't remember all of the names! I will make a list!!



1. I do think that the effect that CF has on your social life correlates with the severity of your symptoms.

2. I think that to an extent you can control your social life, but you can't control what the people around you do.

3. Being picked on by other people isn't something that you can stop; you can only control how you react to it.

4. I think personality does play a very significant role in how CF affects your social life.



I have had a great social life growing up. As someone mentioned previously, I was always one of the ringleaders in my circle. I was the one who people called to find out the "plan" and things like that. I think that this is attributed to two things: 1) I have been lucky in my bout with CF thus far, and 2) I have a very strong personality. I don't mean strong in a bad way, but I mean it in the way that people always tell me I'm charismatic. I hid CF for a while, but even once I let my CF guard down, nothing changed social-life wise.



I think the best advice to give is to make the most of your situation. People love humor. If you can make a joke about yourself, people will admire that. For example, yesterday in one of my classes, a group of girls was talking about America's Top Model. A girl next to me told me that I should try out. I said, "Yeah, maybe when for America's Top Midget." People laughed and, in a way, it demonstrates that you're confident and secure in yourself, and people like that. In high school, once it was finally established that I probably wasn't growing any more, people started realizing I was small. It was really amazing, actually. People loved picking me up and, although it made automatically made me "cute", it worked.



I read a quotation once that said something like: "10 percent of your life is what happens to you, and 90 percent is how you react to it." Because CF is so unpredictable and uncontrollable at times, maybe for CFers it should be 35 percent is what happens to you and 65 percent is how you react to it. You can't control the stuff that other people say and do to you, but you can definitely control your reactions. Although a portion of life can't be controlled, the majority of it can, so it's best to think in those terms.



Now, I'm just starting to ramble, but I could go on and on about this.



Have a great day! <img src="i/expressions/face-icon-small-happy.gif" border="0"></end quote></div>


When I first saw your blog, I knew that you were very popular in school. You can see the confidence in your expression. You are adorable and likeable too boot. You have an awesome Attitude. Seems like you are going to do well in life with CF and whatever you pursue for your future. Take care of yourself

 

[DarceyMaysey]

When I first read the question I thought, "What social life?" Between working full-time and being a single mom I don't have time for anything else...
but then (as I was walking) I realized that it does. We have tunnels at work and I frequently walk in them for exercise. There is a group that walks regularly and they invited me to join them. I politely declined for two reasons:
1. I tend to get short of breath when walking and it is very embarrassing. These women are all older than me but I don't think that I would be able to keep up with them for the entire 2 miles and I wouldn't want to slow them down.
2. I prefer to walk in the non-climate controlled tunnels because I sweat a lot (not sure if that is a common CF thing) and the tunnels out to the parking garage stay cooler than the ones inside.
Sometimes I run into them and I am afraid that they think I am a snob or something because I don't walk with them. I told them the reason I couldn't walk with them was because I like to listen to my ipod or books on tape/cd while I am walking. I think it would be nice to have someone to walk with. Only my boss and a couple of people in my department know that I have CF.
Darcey/36f/CF