My pediatrician is not really working with me well, she seems to think he is fine. Is there a special doctor that I can go to without having to be referred to have the full genetic test done? My husband also thinks I'm crazy and that there is nothing wrong with him... that its just the winter.
Hello
- Thread starter Cecily
- Start date
My pediatrician is not really working with me well, she seems to think he is fine. Is there a special doctor that I can go to without having to be referred to have the full genetic test done? My husband also thinks I'm crazy and that there is nothing wrong with him... that its just the winter.
My pediatrician is not really working with me well, she seems to think he is fine. Is there a special doctor that I can go to without having to be referred to have the full genetic test done? My husband also thinks I'm crazy and that there is nothing wrong with him... that its just the winter.
My pediatrician is not really working with me well, she seems to think he is fine. Is there a special doctor that I can go to without having to be referred to have the full genetic test done? My husband also thinks I'm crazy and that there is nothing wrong with him... that its just the winter.
My pediatrician is not really working with me well, she seems to think he is fine. Is there a special doctor that I can go to without having to be referred to have the full genetic test done? My husband also thinks I'm crazy and that there is nothing wrong with him... that its just the winter.
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Cecily</b></i>
My pediatrician is not really working with me well, she seems to think he is fine. Is there a special doctor that I can go to without having to be referred to have the full genetic test done? My husband also thinks I'm crazy and that there is nothing wrong with him... that its just the winter.</end quote></div>
Assuming you dont need a referral for insurance purposes, you can contact a CF Clinic directly. Here is a link to loctae one near you.
<a target=_blank class=ftalternatingbarlinklarge href="http://www.cysticfibrosis.com/cfcenters.cfm">http://www.cysticfibrosis.com/cfcenters.cfm</a>
My pediatrician is not really working with me well, she seems to think he is fine. Is there a special doctor that I can go to without having to be referred to have the full genetic test done? My husband also thinks I'm crazy and that there is nothing wrong with him... that its just the winter.</end quote></div>
Assuming you dont need a referral for insurance purposes, you can contact a CF Clinic directly. Here is a link to loctae one near you.
<a target=_blank class=ftalternatingbarlinklarge href="http://www.cysticfibrosis.com/cfcenters.cfm">http://www.cysticfibrosis.com/cfcenters.cfm</a>
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Cecily</b></i>
My pediatrician is not really working with me well, she seems to think he is fine. Is there a special doctor that I can go to without having to be referred to have the full genetic test done? My husband also thinks I'm crazy and that there is nothing wrong with him... that its just the winter.</end quote></div>
Assuming you dont need a referral for insurance purposes, you can contact a CF Clinic directly. Here is a link to loctae one near you.
<a target=_blank class=ftalternatingbarlinklarge href="http://www.cysticfibrosis.com/cfcenters.cfm">http://www.cysticfibrosis.com/cfcenters.cfm</a>
My pediatrician is not really working with me well, she seems to think he is fine. Is there a special doctor that I can go to without having to be referred to have the full genetic test done? My husband also thinks I'm crazy and that there is nothing wrong with him... that its just the winter.</end quote></div>
Assuming you dont need a referral for insurance purposes, you can contact a CF Clinic directly. Here is a link to loctae one near you.
<a target=_blank class=ftalternatingbarlinklarge href="http://www.cysticfibrosis.com/cfcenters.cfm">http://www.cysticfibrosis.com/cfcenters.cfm</a>
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Cecily</b></i>
My pediatrician is not really working with me well, she seems to think he is fine. Is there a special doctor that I can go to without having to be referred to have the full genetic test done? My husband also thinks I'm crazy and that there is nothing wrong with him... that its just the winter.</end quote></div>
Assuming you dont need a referral for insurance purposes, you can contact a CF Clinic directly. Here is a link to loctae one near you.
<a target=_blank class=ftalternatingbarlinklarge href="http://www.cysticfibrosis.com/cfcenters.cfm">http://www.cysticfibrosis.com/cfcenters.cfm</a>
My pediatrician is not really working with me well, she seems to think he is fine. Is there a special doctor that I can go to without having to be referred to have the full genetic test done? My husband also thinks I'm crazy and that there is nothing wrong with him... that its just the winter.</end quote></div>
Assuming you dont need a referral for insurance purposes, you can contact a CF Clinic directly. Here is a link to loctae one near you.
<a target=_blank class=ftalternatingbarlinklarge href="http://www.cysticfibrosis.com/cfcenters.cfm">http://www.cysticfibrosis.com/cfcenters.cfm</a>
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Cecily</b></i>
My pediatrician is not really working with me well, she seems to think he is fine. Is there a special doctor that I can go to without having to be referred to have the full genetic test done? My husband also thinks I'm crazy and that there is nothing wrong with him... that its just the winter.</end quote>
Assuming you dont need a referral for insurance purposes, you can contact a CF Clinic directly. Here is a link to loctae one near you.
<a target=_blank class=ftalternatingbarlinklarge href="http://www.cysticfibrosis.com/cfcenters.cfm">http://www.cysticfibrosis.com/cfcenters.cfm</a>
My pediatrician is not really working with me well, she seems to think he is fine. Is there a special doctor that I can go to without having to be referred to have the full genetic test done? My husband also thinks I'm crazy and that there is nothing wrong with him... that its just the winter.</end quote>
Assuming you dont need a referral for insurance purposes, you can contact a CF Clinic directly. Here is a link to loctae one near you.
<a target=_blank class=ftalternatingbarlinklarge href="http://www.cysticfibrosis.com/cfcenters.cfm">http://www.cysticfibrosis.com/cfcenters.cfm</a>
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Cecily</b></i>
<br />
<br />My pediatrician is not really working with me well, she seems to think he is fine. Is there a special doctor that I can go to without having to be referred to have the full genetic test done? My husband also thinks I'm crazy and that there is nothing wrong with him... that its just the winter.</end quote>
<br />
<br />
<br />Assuming you dont need a referral for insurance purposes, you can contact a CF Clinic directly. Here is a link to loctae one near you.
<br />
<br /><a target=_blank class=ftalternatingbarlinklarge href="http://www.cysticfibrosis.com/cfcenters.cfm">http://www.cysticfibrosis.com/cfcenters.cfm</a>
<br />
<br />My pediatrician is not really working with me well, she seems to think he is fine. Is there a special doctor that I can go to without having to be referred to have the full genetic test done? My husband also thinks I'm crazy and that there is nothing wrong with him... that its just the winter.</end quote>
<br />
<br />
<br />Assuming you dont need a referral for insurance purposes, you can contact a CF Clinic directly. Here is a link to loctae one near you.
<br />
<br /><a target=_blank class=ftalternatingbarlinklarge href="http://www.cysticfibrosis.com/cfcenters.cfm">http://www.cysticfibrosis.com/cfcenters.cfm</a>
Hi Cecily,
Welcome to the site.
Getting into a doctor at a CFF clinic w/o a referral most likely has more to do with your own health insurance company than another physician referral. So I would recommend checking your policy for referral rules to a specialist first.
Ditto to everyone else...keep pursuing the genetic testing. You can read our full story on my blog page, but the short version is...my kids sweat tests are pretty low (38 & 41) and that is why they were mis-diagnosed and not diagnosed until genetic testing was done.
If your child's sweat test number was below 10 that is a little less suspicious than something in the 20's or 30's but definitely not unheard of to still find CF... it has happened to several people. You should still pursue FULL genetic testing, because anyone showing symptoms of CF deserves to know for sure... the risk of not getting proper care and treatment is too great. Keep pushing and fighting until you are sure he doesn't have CF.
My daughter had yeast infections when younger, but I think that was due to the antibiotics for ear infections.
Oh, and don't worry about asking too many questions !!! Keep'em coming -- we don't mind
Welcome to the site.
Getting into a doctor at a CFF clinic w/o a referral most likely has more to do with your own health insurance company than another physician referral. So I would recommend checking your policy for referral rules to a specialist first.
Ditto to everyone else...keep pursuing the genetic testing. You can read our full story on my blog page, but the short version is...my kids sweat tests are pretty low (38 & 41) and that is why they were mis-diagnosed and not diagnosed until genetic testing was done.
If your child's sweat test number was below 10 that is a little less suspicious than something in the 20's or 30's but definitely not unheard of to still find CF... it has happened to several people. You should still pursue FULL genetic testing, because anyone showing symptoms of CF deserves to know for sure... the risk of not getting proper care and treatment is too great. Keep pushing and fighting until you are sure he doesn't have CF.
My daughter had yeast infections when younger, but I think that was due to the antibiotics for ear infections.
Oh, and don't worry about asking too many questions !!! Keep'em coming -- we don't mind
Hi Cecily,
Welcome to the site.
Getting into a doctor at a CFF clinic w/o a referral most likely has more to do with your own health insurance company than another physician referral. So I would recommend checking your policy for referral rules to a specialist first.
Ditto to everyone else...keep pursuing the genetic testing. You can read our full story on my blog page, but the short version is...my kids sweat tests are pretty low (38 & 41) and that is why they were mis-diagnosed and not diagnosed until genetic testing was done.
If your child's sweat test number was below 10 that is a little less suspicious than something in the 20's or 30's but definitely not unheard of to still find CF... it has happened to several people. You should still pursue FULL genetic testing, because anyone showing symptoms of CF deserves to know for sure... the risk of not getting proper care and treatment is too great. Keep pushing and fighting until you are sure he doesn't have CF.
My daughter had yeast infections when younger, but I think that was due to the antibiotics for ear infections.
Oh, and don't worry about asking too many questions !!! Keep'em coming -- we don't mind
Welcome to the site.
Getting into a doctor at a CFF clinic w/o a referral most likely has more to do with your own health insurance company than another physician referral. So I would recommend checking your policy for referral rules to a specialist first.
Ditto to everyone else...keep pursuing the genetic testing. You can read our full story on my blog page, but the short version is...my kids sweat tests are pretty low (38 & 41) and that is why they were mis-diagnosed and not diagnosed until genetic testing was done.
If your child's sweat test number was below 10 that is a little less suspicious than something in the 20's or 30's but definitely not unheard of to still find CF... it has happened to several people. You should still pursue FULL genetic testing, because anyone showing symptoms of CF deserves to know for sure... the risk of not getting proper care and treatment is too great. Keep pushing and fighting until you are sure he doesn't have CF.
My daughter had yeast infections when younger, but I think that was due to the antibiotics for ear infections.
Oh, and don't worry about asking too many questions !!! Keep'em coming -- we don't mind
Hi Cecily,
Welcome to the site.
Getting into a doctor at a CFF clinic w/o a referral most likely has more to do with your own health insurance company than another physician referral. So I would recommend checking your policy for referral rules to a specialist first.
Ditto to everyone else...keep pursuing the genetic testing. You can read our full story on my blog page, but the short version is...my kids sweat tests are pretty low (38 & 41) and that is why they were mis-diagnosed and not diagnosed until genetic testing was done.
If your child's sweat test number was below 10 that is a little less suspicious than something in the 20's or 30's but definitely not unheard of to still find CF... it has happened to several people. You should still pursue FULL genetic testing, because anyone showing symptoms of CF deserves to know for sure... the risk of not getting proper care and treatment is too great. Keep pushing and fighting until you are sure he doesn't have CF.
My daughter had yeast infections when younger, but I think that was due to the antibiotics for ear infections.
Oh, and don't worry about asking too many questions !!! Keep'em coming -- we don't mind
Welcome to the site.
Getting into a doctor at a CFF clinic w/o a referral most likely has more to do with your own health insurance company than another physician referral. So I would recommend checking your policy for referral rules to a specialist first.
Ditto to everyone else...keep pursuing the genetic testing. You can read our full story on my blog page, but the short version is...my kids sweat tests are pretty low (38 & 41) and that is why they were mis-diagnosed and not diagnosed until genetic testing was done.
If your child's sweat test number was below 10 that is a little less suspicious than something in the 20's or 30's but definitely not unheard of to still find CF... it has happened to several people. You should still pursue FULL genetic testing, because anyone showing symptoms of CF deserves to know for sure... the risk of not getting proper care and treatment is too great. Keep pushing and fighting until you are sure he doesn't have CF.
My daughter had yeast infections when younger, but I think that was due to the antibiotics for ear infections.
Oh, and don't worry about asking too many questions !!! Keep'em coming -- we don't mind
Hi Cecily,
Welcome to the site.
Getting into a doctor at a CFF clinic w/o a referral most likely has more to do with your own health insurance company than another physician referral. So I would recommend checking your policy for referral rules to a specialist first.
Ditto to everyone else...keep pursuing the genetic testing. You can read our full story on my blog page, but the short version is...my kids sweat tests are pretty low (38 & 41) and that is why they were mis-diagnosed and not diagnosed until genetic testing was done.
If your child's sweat test number was below 10 that is a little less suspicious than something in the 20's or 30's but definitely not unheard of to still find CF... it has happened to several people. You should still pursue FULL genetic testing, because anyone showing symptoms of CF deserves to know for sure... the risk of not getting proper care and treatment is too great. Keep pushing and fighting until you are sure he doesn't have CF.
My daughter had yeast infections when younger, but I think that was due to the antibiotics for ear infections.
Oh, and don't worry about asking too many questions !!! Keep'em coming -- we don't mind
Welcome to the site.
Getting into a doctor at a CFF clinic w/o a referral most likely has more to do with your own health insurance company than another physician referral. So I would recommend checking your policy for referral rules to a specialist first.
Ditto to everyone else...keep pursuing the genetic testing. You can read our full story on my blog page, but the short version is...my kids sweat tests are pretty low (38 & 41) and that is why they were mis-diagnosed and not diagnosed until genetic testing was done.
If your child's sweat test number was below 10 that is a little less suspicious than something in the 20's or 30's but definitely not unheard of to still find CF... it has happened to several people. You should still pursue FULL genetic testing, because anyone showing symptoms of CF deserves to know for sure... the risk of not getting proper care and treatment is too great. Keep pushing and fighting until you are sure he doesn't have CF.
My daughter had yeast infections when younger, but I think that was due to the antibiotics for ear infections.
Oh, and don't worry about asking too many questions !!! Keep'em coming -- we don't mind
Hi Cecily,
<br />
<br />Welcome to the site.
<br />
<br />Getting into a doctor at a CFF clinic w/o a referral most likely has more to do with your own health insurance company than another physician referral. So I would recommend checking your policy for referral rules to a specialist first.
<br />
<br />Ditto to everyone else...keep pursuing the genetic testing. You can read our full story on my blog page, but the short version is...my kids sweat tests are pretty low (38 & 41) and that is why they were mis-diagnosed and not diagnosed until genetic testing was done.
<br />
<br />If your child's sweat test number was below 10 that is a little less suspicious than something in the 20's or 30's but definitely not unheard of to still find CF... it has happened to several people. You should still pursue FULL genetic testing, because anyone showing symptoms of CF deserves to know for sure... the risk of not getting proper care and treatment is too great. Keep pushing and fighting until you are sure he doesn't have CF.
<br />
<br />My daughter had yeast infections when younger, but I think that was due to the antibiotics for ear infections.
<br />
<br />Oh, and don't worry about asking too many questions !!! Keep'em coming -- we don't mind
<br />
<br />Welcome to the site.
<br />
<br />Getting into a doctor at a CFF clinic w/o a referral most likely has more to do with your own health insurance company than another physician referral. So I would recommend checking your policy for referral rules to a specialist first.
<br />
<br />Ditto to everyone else...keep pursuing the genetic testing. You can read our full story on my blog page, but the short version is...my kids sweat tests are pretty low (38 & 41) and that is why they were mis-diagnosed and not diagnosed until genetic testing was done.
<br />
<br />If your child's sweat test number was below 10 that is a little less suspicious than something in the 20's or 30's but definitely not unheard of to still find CF... it has happened to several people. You should still pursue FULL genetic testing, because anyone showing symptoms of CF deserves to know for sure... the risk of not getting proper care and treatment is too great. Keep pushing and fighting until you are sure he doesn't have CF.
<br />
<br />My daughter had yeast infections when younger, but I think that was due to the antibiotics for ear infections.
<br />
<br />Oh, and don't worry about asking too many questions !!! Keep'em coming -- we don't mind