Hi all,
This is long but I would really appreciate any haelp or advice.
This is my first post. I was diagnosed at age of 1 (I am almost 28) becuase my sister (younger) was diagnosed. It took a few sweat tests to diagnose me and even then they were borderline (according to my parents) and I can remember that my geno-type had to be sent away for testing. I am not sure what type it is but I think it is an uncommon form. I have never had any real problemas and did not do that much physio when I was younger but I was active. I still am active, I cycle, started jogging and do martial arts. I got sick about 2 years ago, not sure what it was but steroids seemed to sort it out. They said it was aspergillis reaction but I never tested for it. Recently my FEV1 has dropped to 2.8 from 3 and was 3.2. A few years a go it was 4, back when I was exercising a lot. I also have liver disease but have never had problems with it, jsut a few ursofalk a day and osophegial varicies that again dont cause me problems. At the moment i am on a setetide inhaler to see if there is an asthmatic component, I hope there is.
Anyway I migt have to go back on steroids, not to worried about it. Its been 2 years since I was in hospital or on IV's at home.
I was with someone for almost 7 years and we broke up last week. It wasnt over the cf, she is working things out in her life and we may get back together.
However I know she wants kids and I am infertile. She is willing to adopt or get a sperm donor. I have been healthy and I do exercise. She is a doctor and very smart, I love her to bits and she loves me. However I am thinking that maybe I need to tell her I cannot be with her. Set her free so to speak, if I leave her now she might meet someone who can give her kids easily and have a long and happy life with them. It would be the hardest thing I ever did. My friends say that it is not my decision to make, she knows the facts so let her decide. I asked her about it and she said I was strong and fit and she is not worried about the baby stuff. I love her so much that maybe the ultimate act of love is to set her free? If we do get back it is for good, marraige etc. I have struggled with this and at times I feel it is the right thing to do and at other times (after a jog usually and feeling great) I think, No we can be really good together and could go far.
Sorry for the rambling nature of the post but I am pretty tron up inside, with her leaving and being unsure about what will happen health wise. Any advice or experience would be great.
This is long but I would really appreciate any haelp or advice.
This is my first post. I was diagnosed at age of 1 (I am almost 28) becuase my sister (younger) was diagnosed. It took a few sweat tests to diagnose me and even then they were borderline (according to my parents) and I can remember that my geno-type had to be sent away for testing. I am not sure what type it is but I think it is an uncommon form. I have never had any real problemas and did not do that much physio when I was younger but I was active. I still am active, I cycle, started jogging and do martial arts. I got sick about 2 years ago, not sure what it was but steroids seemed to sort it out. They said it was aspergillis reaction but I never tested for it. Recently my FEV1 has dropped to 2.8 from 3 and was 3.2. A few years a go it was 4, back when I was exercising a lot. I also have liver disease but have never had problems with it, jsut a few ursofalk a day and osophegial varicies that again dont cause me problems. At the moment i am on a setetide inhaler to see if there is an asthmatic component, I hope there is.
Anyway I migt have to go back on steroids, not to worried about it. Its been 2 years since I was in hospital or on IV's at home.
I was with someone for almost 7 years and we broke up last week. It wasnt over the cf, she is working things out in her life and we may get back together.
However I know she wants kids and I am infertile. She is willing to adopt or get a sperm donor. I have been healthy and I do exercise. She is a doctor and very smart, I love her to bits and she loves me. However I am thinking that maybe I need to tell her I cannot be with her. Set her free so to speak, if I leave her now she might meet someone who can give her kids easily and have a long and happy life with them. It would be the hardest thing I ever did. My friends say that it is not my decision to make, she knows the facts so let her decide. I asked her about it and she said I was strong and fit and she is not worried about the baby stuff. I love her so much that maybe the ultimate act of love is to set her free? If we do get back it is for good, marraige etc. I have struggled with this and at times I feel it is the right thing to do and at other times (after a jog usually and feeling great) I think, No we can be really good together and could go far.
Sorry for the rambling nature of the post but I am pretty tron up inside, with her leaving and being unsure about what will happen health wise. Any advice or experience would be great.