My son is three he was born 9/4/2003. Unlike many I found out my son had CF when I was pregnant. I had him a couple of days before I turned 19 years old. I live in Miami, FL with my family I'am married to my sons father. I can't complain about having emotional support. I'am having financial support we both work minimum wage jobs and can't afford my sons visits or medicine about a year ago my sons Medicaid was taken away from him and I've been fighting ever since hes running out of his medicines and my mom has been helping me with what she can to give me out of her job at a pharmacy. I don't know what else todo if anyone knows what I can do or go please help.
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Help I don't know what else todo
- Thread starter AdamsMom
- Start date
My son is three he was born 9/4/2003. Unlike many I found out my son had CF when I was pregnant. I had him a couple of days before I turned 19 years old. I live in Miami, FL with my family I'am married to my sons father. I can't complain about having emotional support. I'am having financial support we both work minimum wage jobs and can't afford my sons visits or medicine about a year ago my sons Medicaid was taken away from him and I've been fighting ever since hes running out of his medicines and my mom has been helping me with what she can to give me out of her job at a pharmacy. I don't know what else todo if anyone knows what I can do or go please help.
My son is three he was born 9/4/2003. Unlike many I found out my son had CF when I was pregnant. I had him a couple of days before I turned 19 years old. I live in Miami, FL with my family I'am married to my sons father. I can't complain about having emotional support. I'am having financial support we both work minimum wage jobs and can't afford my sons visits or medicine about a year ago my sons Medicaid was taken away from him and I've been fighting ever since hes running out of his medicines and my mom has been helping me with what she can to give me out of her job at a pharmacy. I don't know what else todo if anyone knows what I can do or go please help.
coltsfan715
New member
Hi there,
You need to ask your docs office OR your local CFF Chapter about CF Abilities. I am in Jacksonville, FL and I know this program is offered throughout Florida. I am not sure if it is just for adults or if it is for ALL CF patients. If it is available for all CF patients you need to get signed up for it. It just takes your doc filling out some papers saying your son DOES have CF. The program helps with expenses - they have paid for gym memberships or exercise equipment, may help with meds/copayments or even things like air filters and such.
I think if I remember correctly I got my info through the CFF Chapter. If you aren't able to get the info through your chapter let me know through a PM and I can send you the name and number of the head of the Jacksonville CFF Chapter and she can maybe give you the info or the name of someone to contact at the very least.
That is all I can think of to mention that I know is available in FL. I hope you are able to track down some info on it cause I think it would be beneficial for you. I have 3 insurances and pretty good coverage so I myself have NOT signed up for this program but I have friends that have and they get great benefit from it.
Take Care,
Lindsey
You need to ask your docs office OR your local CFF Chapter about CF Abilities. I am in Jacksonville, FL and I know this program is offered throughout Florida. I am not sure if it is just for adults or if it is for ALL CF patients. If it is available for all CF patients you need to get signed up for it. It just takes your doc filling out some papers saying your son DOES have CF. The program helps with expenses - they have paid for gym memberships or exercise equipment, may help with meds/copayments or even things like air filters and such.
I think if I remember correctly I got my info through the CFF Chapter. If you aren't able to get the info through your chapter let me know through a PM and I can send you the name and number of the head of the Jacksonville CFF Chapter and she can maybe give you the info or the name of someone to contact at the very least.
That is all I can think of to mention that I know is available in FL. I hope you are able to track down some info on it cause I think it would be beneficial for you. I have 3 insurances and pretty good coverage so I myself have NOT signed up for this program but I have friends that have and they get great benefit from it.
Take Care,
Lindsey
coltsfan715
New member
Hi there,
You need to ask your docs office OR your local CFF Chapter about CF Abilities. I am in Jacksonville, FL and I know this program is offered throughout Florida. I am not sure if it is just for adults or if it is for ALL CF patients. If it is available for all CF patients you need to get signed up for it. It just takes your doc filling out some papers saying your son DOES have CF. The program helps with expenses - they have paid for gym memberships or exercise equipment, may help with meds/copayments or even things like air filters and such.
I think if I remember correctly I got my info through the CFF Chapter. If you aren't able to get the info through your chapter let me know through a PM and I can send you the name and number of the head of the Jacksonville CFF Chapter and she can maybe give you the info or the name of someone to contact at the very least.
That is all I can think of to mention that I know is available in FL. I hope you are able to track down some info on it cause I think it would be beneficial for you. I have 3 insurances and pretty good coverage so I myself have NOT signed up for this program but I have friends that have and they get great benefit from it.
Take Care,
Lindsey
You need to ask your docs office OR your local CFF Chapter about CF Abilities. I am in Jacksonville, FL and I know this program is offered throughout Florida. I am not sure if it is just for adults or if it is for ALL CF patients. If it is available for all CF patients you need to get signed up for it. It just takes your doc filling out some papers saying your son DOES have CF. The program helps with expenses - they have paid for gym memberships or exercise equipment, may help with meds/copayments or even things like air filters and such.
I think if I remember correctly I got my info through the CFF Chapter. If you aren't able to get the info through your chapter let me know through a PM and I can send you the name and number of the head of the Jacksonville CFF Chapter and she can maybe give you the info or the name of someone to contact at the very least.
That is all I can think of to mention that I know is available in FL. I hope you are able to track down some info on it cause I think it would be beneficial for you. I have 3 insurances and pretty good coverage so I myself have NOT signed up for this program but I have friends that have and they get great benefit from it.
Take Care,
Lindsey
coltsfan715
New member
Hi there,
You need to ask your docs office OR your local CFF Chapter about CF Abilities. I am in Jacksonville, FL and I know this program is offered throughout Florida. I am not sure if it is just for adults or if it is for ALL CF patients. If it is available for all CF patients you need to get signed up for it. It just takes your doc filling out some papers saying your son DOES have CF. The program helps with expenses - they have paid for gym memberships or exercise equipment, may help with meds/copayments or even things like air filters and such.
I think if I remember correctly I got my info through the CFF Chapter. If you aren't able to get the info through your chapter let me know through a PM and I can send you the name and number of the head of the Jacksonville CFF Chapter and she can maybe give you the info or the name of someone to contact at the very least.
That is all I can think of to mention that I know is available in FL. I hope you are able to track down some info on it cause I think it would be beneficial for you. I have 3 insurances and pretty good coverage so I myself have NOT signed up for this program but I have friends that have and they get great benefit from it.
Take Care,
Lindsey
You need to ask your docs office OR your local CFF Chapter about CF Abilities. I am in Jacksonville, FL and I know this program is offered throughout Florida. I am not sure if it is just for adults or if it is for ALL CF patients. If it is available for all CF patients you need to get signed up for it. It just takes your doc filling out some papers saying your son DOES have CF. The program helps with expenses - they have paid for gym memberships or exercise equipment, may help with meds/copayments or even things like air filters and such.
I think if I remember correctly I got my info through the CFF Chapter. If you aren't able to get the info through your chapter let me know through a PM and I can send you the name and number of the head of the Jacksonville CFF Chapter and she can maybe give you the info or the name of someone to contact at the very least.
That is all I can think of to mention that I know is available in FL. I hope you are able to track down some info on it cause I think it would be beneficial for you. I have 3 insurances and pretty good coverage so I myself have NOT signed up for this program but I have friends that have and they get great benefit from it.
Take Care,
Lindsey
Here in Kentucky we have a gov. program called the center for children with special health care needs. They help pay for medical treatiment and meds. for certain conditions and cf if one of them. If you don't have insurance you should qualify, especially on minimum wage jobs. I don't know if every state has this, but I would be happy to get you the number for the one here and maybe they could help you out. Good luck.
Here in Kentucky we have a gov. program called the center for children with special health care needs. They help pay for medical treatiment and meds. for certain conditions and cf if one of them. If you don't have insurance you should qualify, especially on minimum wage jobs. I don't know if every state has this, but I would be happy to get you the number for the one here and maybe they could help you out. Good luck.