Help me work this out

Emily65Roses · Aug 12, 2007

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>izemmom</b></i>
I say don't let her skip treatments. At 12 she certainly can do the vest by herself, and the nebs, too. Give her friend's parents a quick lesson, stress to them the importance of her doing them everyday, and then send her off to the beach with her swimsuit, towel, nebcups (enought so that they don't have to worry about washing or sterilizing...), meds and vest. Unless of course the beach house doesn't have electricity, in which case, well, I'm not sure.

I realize that my kid is younger and I don't have to deal with the preteen issues yet. But, IMO, the fact that she is a preteen is all the more reason to insist that treatments get done religiously. You are right around the corner from out and out noncompliance. Why send the message that it's ok to take breaks?

Kids need to be kids, yes. And she will be. She'll have a blast at the beach and the running and playing will be great for her lungs. But don't let it get in the way of her routine. Her health comes first. Period.</end quote></div>

I agree 100%.

Emily65Roses · Aug 12, 2007

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>izemmom</b></i>
I say don't let her skip treatments. At 12 she certainly can do the vest by herself, and the nebs, too. Give her friend's parents a quick lesson, stress to them the importance of her doing them everyday, and then send her off to the beach with her swimsuit, towel, nebcups (enought so that they don't have to worry about washing or sterilizing...), meds and vest. Unless of course the beach house doesn't have electricity, in which case, well, I'm not sure.

I realize that my kid is younger and I don't have to deal with the preteen issues yet. But, IMO, the fact that she is a preteen is all the more reason to insist that treatments get done religiously. You are right around the corner from out and out noncompliance. Why send the message that it's ok to take breaks?

Kids need to be kids, yes. And she will be. She'll have a blast at the beach and the running and playing will be great for her lungs. But don't let it get in the way of her routine. Her health comes first. Period.</end quote></div>

I agree 100%.

Emily65Roses · Aug 12, 2007

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>izemmom</b></i>
I say don't let her skip treatments. At 12 she certainly can do the vest by herself, and the nebs, too. Give her friend's parents a quick lesson, stress to them the importance of her doing them everyday, and then send her off to the beach with her swimsuit, towel, nebcups (enought so that they don't have to worry about washing or sterilizing...), meds and vest. Unless of course the beach house doesn't have electricity, in which case, well, I'm not sure.

I realize that my kid is younger and I don't have to deal with the preteen issues yet. But, IMO, the fact that she is a preteen is all the more reason to insist that treatments get done religiously. You are right around the corner from out and out noncompliance. Why send the message that it's ok to take breaks?

Kids need to be kids, yes. And she will be. She'll have a blast at the beach and the running and playing will be great for her lungs. But don't let it get in the way of her routine. Her health comes first. Period.</end quote></div>

I agree 100%.

Emily65Roses · Aug 12, 2007

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>izemmom</b></i>
I say don't let her skip treatments. At 12 she certainly can do the vest by herself, and the nebs, too. Give her friend's parents a quick lesson, stress to them the importance of her doing them everyday, and then send her off to the beach with her swimsuit, towel, nebcups (enought so that they don't have to worry about washing or sterilizing...), meds and vest. Unless of course the beach house doesn't have electricity, in which case, well, I'm not sure.

I realize that my kid is younger and I don't have to deal with the preteen issues yet. But, IMO, the fact that she is a preteen is all the more reason to insist that treatments get done religiously. You are right around the corner from out and out noncompliance. Why send the message that it's ok to take breaks?

Kids need to be kids, yes. And she will be. She'll have a blast at the beach and the running and playing will be great for her lungs. But don't let it get in the way of her routine. Her health comes first. Period.</end quote>

I agree 100%.

Emily65Roses · Aug 12, 2007

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>izemmom</b></i>
I say don't let her skip treatments. At 12 she certainly can do the vest by herself, and the nebs, too. Give her friend's parents a quick lesson, stress to them the importance of her doing them everyday, and then send her off to the beach with her swimsuit, towel, nebcups (enought so that they don't have to worry about washing or sterilizing...), meds and vest. Unless of course the beach house doesn't have electricity, in which case, well, I'm not sure.

I realize that my kid is younger and I don't have to deal with the preteen issues yet. But, IMO, the fact that she is a preteen is all the more reason to insist that treatments get done religiously. You are right around the corner from out and out noncompliance. Why send the message that it's ok to take breaks?

Kids need to be kids, yes. And she will be. She'll have a blast at the beach and the running and playing will be great for her lungs. But don't let it get in the way of her routine. Her health comes first. Period.</end quote>

I agree 100%.

lightNlife · Aug 12, 2007

This is a good age for her to learn that if she wants to do the fun stuff, she needs to be responsible about her treatments. I agree with izemom; this is not the time to encourage her to take breaks. The vest is especially important since she'll be expending energy playing with her friend in the sun. The only thing I would say is that it's okay to skip the HTS, since she'll be in ocean air and (I hope!) playing in the ocean water. That is a good substitute therapy. It's your call as a mom, and it might send a mixed message to tell her to only do part of it, so that's up to you.

Staying healthy is a priority! I've never skipped treatments when doing summer fun--even as a kid. Believe me, it was so difficult to have to go do my nebs and stuff when the other kids at summer camp(not CF camp) were having crafts or something. All in all, I'm glad I did it though. I made lifelong friends who still check on me every now and then because seeing someone live normally and still have CF was a powerful lesson for them.

I hope your daughter has a great time at the beach and many many many more summers as the results of compliance with treatments.

lightNlife · Aug 12, 2007

This is a good age for her to learn that if she wants to do the fun stuff, she needs to be responsible about her treatments. I agree with izemom; this is not the time to encourage her to take breaks. The vest is especially important since she'll be expending energy playing with her friend in the sun. The only thing I would say is that it's okay to skip the HTS, since she'll be in ocean air and (I hope!) playing in the ocean water. That is a good substitute therapy. It's your call as a mom, and it might send a mixed message to tell her to only do part of it, so that's up to you.

Staying healthy is a priority! I've never skipped treatments when doing summer fun--even as a kid. Believe me, it was so difficult to have to go do my nebs and stuff when the other kids at summer camp(not CF camp) were having crafts or something. All in all, I'm glad I did it though. I made lifelong friends who still check on me every now and then because seeing someone live normally and still have CF was a powerful lesson for them.

I hope your daughter has a great time at the beach and many many many more summers as the results of compliance with treatments.

lightNlife · Aug 12, 2007

This is a good age for her to learn that if she wants to do the fun stuff, she needs to be responsible about her treatments. I agree with izemom; this is not the time to encourage her to take breaks. The vest is especially important since she'll be expending energy playing with her friend in the sun. The only thing I would say is that it's okay to skip the HTS, since she'll be in ocean air and (I hope!) playing in the ocean water. That is a good substitute therapy. It's your call as a mom, and it might send a mixed message to tell her to only do part of it, so that's up to you.

Staying healthy is a priority! I've never skipped treatments when doing summer fun--even as a kid. Believe me, it was so difficult to have to go do my nebs and stuff when the other kids at summer camp(not CF camp) were having crafts or something. All in all, I'm glad I did it though. I made lifelong friends who still check on me every now and then because seeing someone live normally and still have CF was a powerful lesson for them.

I hope your daughter has a great time at the beach and many many many more summers as the results of compliance with treatments.

lightNlife · Aug 12, 2007

This is a good age for her to learn that if she wants to do the fun stuff, she needs to be responsible about her treatments. I agree with izemom; this is not the time to encourage her to take breaks. The vest is especially important since she'll be expending energy playing with her friend in the sun. The only thing I would say is that it's okay to skip the HTS, since she'll be in ocean air and (I hope!) playing in the ocean water. That is a good substitute therapy. It's your call as a mom, and it might send a mixed message to tell her to only do part of it, so that's up to you.

Staying healthy is a priority! I've never skipped treatments when doing summer fun--even as a kid. Believe me, it was so difficult to have to go do my nebs and stuff when the other kids at summer camp(not CF camp) were having crafts or something. All in all, I'm glad I did it though. I made lifelong friends who still check on me every now and then because seeing someone live normally and still have CF was a powerful lesson for them.

I hope your daughter has a great time at the beach and many many many more summers as the results of compliance with treatments.

lightNlife · Aug 12, 2007

This is a good age for her to learn that if she wants to do the fun stuff, she needs to be responsible about her treatments. I agree with izemom; this is not the time to encourage her to take breaks. The vest is especially important since she'll be expending energy playing with her friend in the sun. The only thing I would say is that it's okay to skip the HTS, since she'll be in ocean air and (I hope!) playing in the ocean water. That is a good substitute therapy. It's your call as a mom, and it might send a mixed message to tell her to only do part of it, so that's up to you.

Staying healthy is a priority! I've never skipped treatments when doing summer fun--even as a kid. Believe me, it was so difficult to have to go do my nebs and stuff when the other kids at summer camp(not CF camp) were having crafts or something. All in all, I'm glad I did it though. I made lifelong friends who still check on me every now and then because seeing someone live normally and still have CF was a powerful lesson for them.

I hope your daughter has a great time at the beach and many many many more summers as the results of compliance with treatments.

sdelorenzo · Aug 13, 2007

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>izemmom</b></i>

I say don't let her skip treatments. At 12 she certainly can do the vest by herself, and the nebs, too. Give her friend's parents a quick lesson, stress to them the importance of her doing them everyday, and then send her off to the beach with her swimsuit, towel, nebcups (enought so that they don't have to worry about washing or sterilizing...), meds and vest. Unless of course the beach house doesn't have electricity, in which case, well, I'm not sure.

I realize that my kid is younger and I don't have to deal with the preteen issues yet. But, IMO, the fact that she is a preteen is all the more reason to insist that treatments get done religiously. You are right around the corner from out and out noncompliance. Why send the message that it's ok to take breaks?

Kids need to be kids, yes. And she will be. She'll have a blast at the beach and the running and playing will be great for her lungs. But don't let it get in the way of her routine. Her health comes first. Period.

Wish her a great trip from all of us!</end quote></div>

I also agree with Tami 100%.
Sharon, mom of Sophia, 6 and Jack, 3 both with cf

sdelorenzo · Aug 13, 2007

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>izemmom</b></i>

I say don't let her skip treatments. At 12 she certainly can do the vest by herself, and the nebs, too. Give her friend's parents a quick lesson, stress to them the importance of her doing them everyday, and then send her off to the beach with her swimsuit, towel, nebcups (enought so that they don't have to worry about washing or sterilizing...), meds and vest. Unless of course the beach house doesn't have electricity, in which case, well, I'm not sure.

I realize that my kid is younger and I don't have to deal with the preteen issues yet. But, IMO, the fact that she is a preteen is all the more reason to insist that treatments get done religiously. You are right around the corner from out and out noncompliance. Why send the message that it's ok to take breaks?

Kids need to be kids, yes. And she will be. She'll have a blast at the beach and the running and playing will be great for her lungs. But don't let it get in the way of her routine. Her health comes first. Period.

Wish her a great trip from all of us!</end quote></div>

I also agree with Tami 100%.
Sharon, mom of Sophia, 6 and Jack, 3 both with cf

sdelorenzo · Aug 13, 2007

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>izemmom</b></i>

I say don't let her skip treatments. At 12 she certainly can do the vest by herself, and the nebs, too. Give her friend's parents a quick lesson, stress to them the importance of her doing them everyday, and then send her off to the beach with her swimsuit, towel, nebcups (enought so that they don't have to worry about washing or sterilizing...), meds and vest. Unless of course the beach house doesn't have electricity, in which case, well, I'm not sure.

I realize that my kid is younger and I don't have to deal with the preteen issues yet. But, IMO, the fact that she is a preteen is all the more reason to insist that treatments get done religiously. You are right around the corner from out and out noncompliance. Why send the message that it's ok to take breaks?

Kids need to be kids, yes. And she will be. She'll have a blast at the beach and the running and playing will be great for her lungs. But don't let it get in the way of her routine. Her health comes first. Period.

Wish her a great trip from all of us!</end quote></div>

I also agree with Tami 100%.
Sharon, mom of Sophia, 6 and Jack, 3 both with cf

sdelorenzo · Aug 13, 2007

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>izemmom</b></i>

I say don't let her skip treatments. At 12 she certainly can do the vest by herself, and the nebs, too. Give her friend's parents a quick lesson, stress to them the importance of her doing them everyday, and then send her off to the beach with her swimsuit, towel, nebcups (enought so that they don't have to worry about washing or sterilizing...), meds and vest. Unless of course the beach house doesn't have electricity, in which case, well, I'm not sure.

I realize that my kid is younger and I don't have to deal with the preteen issues yet. But, IMO, the fact that she is a preteen is all the more reason to insist that treatments get done religiously. You are right around the corner from out and out noncompliance. Why send the message that it's ok to take breaks?

Kids need to be kids, yes. And she will be. She'll have a blast at the beach and the running and playing will be great for her lungs. But don't let it get in the way of her routine. Her health comes first. Period.

Wish her a great trip from all of us!</end quote>

I also agree with Tami 100%.
Sharon, mom of Sophia, 6 and Jack, 3 both with cf

sdelorenzo · Aug 13, 2007

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>izemmom</b></i>

I say don't let her skip treatments. At 12 she certainly can do the vest by herself, and the nebs, too. Give her friend's parents a quick lesson, stress to them the importance of her doing them everyday, and then send her off to the beach with her swimsuit, towel, nebcups (enought so that they don't have to worry about washing or sterilizing...), meds and vest. Unless of course the beach house doesn't have electricity, in which case, well, I'm not sure.

I realize that my kid is younger and I don't have to deal with the preteen issues yet. But, IMO, the fact that she is a preteen is all the more reason to insist that treatments get done religiously. You are right around the corner from out and out noncompliance. Why send the message that it's ok to take breaks?

Kids need to be kids, yes. And she will be. She'll have a blast at the beach and the running and playing will be great for her lungs. But don't let it get in the way of her routine. Her health comes first. Period.

Wish her a great trip from all of us!</end quote>

I also agree with Tami 100%.
Sharon, mom of Sophia, 6 and Jack, 3 both with cf

AnD · Aug 13, 2007

Maybe she would be willing to do it if she gets to adjust her schedule a bit. For instance, go to the beach in the morning when it's cooler, and when it starts getting hot- around 10:30-11 am, come back and do her vest (and pulmozyme if this is her time of day for that), eat lunch and then get on with the day. Then she could do her vest again before bed (girls stay up and chat a while before they settle down to go to sleep anyways- you know how that goes <img src="i/expressions/face-icon-small-wink.gif" border="0"> ).

Just a suggestion, but I too wouldn't let the med and vest slide. Better a little inconvience during the vacation then paying more for skipping later <img src="i/expressions/face-icon-small-wink.gif" border="0"> . I think letting the HTS go since she will be at the beach would be okay too- last time I was at the beach, I hardly coughed up anything with my HTS (usually I cough up lots), but felt like my lungs were pretty clear <img src="i/expressions/face-icon-small-wink.gif" border="0"> .

AnD · Aug 13, 2007

Maybe she would be willing to do it if she gets to adjust her schedule a bit. For instance, go to the beach in the morning when it's cooler, and when it starts getting hot- around 10:30-11 am, come back and do her vest (and pulmozyme if this is her time of day for that), eat lunch and then get on with the day. Then she could do her vest again before bed (girls stay up and chat a while before they settle down to go to sleep anyways- you know how that goes <img src="i/expressions/face-icon-small-wink.gif" border="0"> ).

Just a suggestion, but I too wouldn't let the med and vest slide. Better a little inconvience during the vacation then paying more for skipping later <img src="i/expressions/face-icon-small-wink.gif" border="0"> . I think letting the HTS go since she will be at the beach would be okay too- last time I was at the beach, I hardly coughed up anything with my HTS (usually I cough up lots), but felt like my lungs were pretty clear <img src="i/expressions/face-icon-small-wink.gif" border="0"> .

AnD · Aug 13, 2007

Maybe she would be willing to do it if she gets to adjust her schedule a bit. For instance, go to the beach in the morning when it's cooler, and when it starts getting hot- around 10:30-11 am, come back and do her vest (and pulmozyme if this is her time of day for that), eat lunch and then get on with the day. Then she could do her vest again before bed (girls stay up and chat a while before they settle down to go to sleep anyways- you know how that goes <img src="i/expressions/face-icon-small-wink.gif" border="0"> ).

Just a suggestion, but I too wouldn't let the med and vest slide. Better a little inconvience during the vacation then paying more for skipping later <img src="i/expressions/face-icon-small-wink.gif" border="0"> . I think letting the HTS go since she will be at the beach would be okay too- last time I was at the beach, I hardly coughed up anything with my HTS (usually I cough up lots), but felt like my lungs were pretty clear <img src="i/expressions/face-icon-small-wink.gif" border="0"> .

AnD · Aug 13, 2007

Maybe she would be willing to do it if she gets to adjust her schedule a bit. For instance, go to the beach in the morning when it's cooler, and when it starts getting hot- around 10:30-11 am, come back and do her vest (and pulmozyme if this is her time of day for that), eat lunch and then get on with the day. Then she could do her vest again before bed (girls stay up and chat a while before they settle down to go to sleep anyways- you know how that goes <img src="i/expressions/face-icon-small-wink.gif" border="0"> ).

Just a suggestion, but I too wouldn't let the med and vest slide. Better a little inconvience during the vacation then paying more for skipping later <img src="i/expressions/face-icon-small-wink.gif" border="0"> . I think letting the HTS go since she will be at the beach would be okay too- last time I was at the beach, I hardly coughed up anything with my HTS (usually I cough up lots), but felt like my lungs were pretty clear <img src="i/expressions/face-icon-small-wink.gif" border="0"> .

AnD · Aug 13, 2007

Maybe she would be willing to do it if she gets to adjust her schedule a bit. For instance, go to the beach in the morning when it's cooler, and when it starts getting hot- around 10:30-11 am, come back and do her vest (and pulmozyme if this is her time of day for that), eat lunch and then get on with the day. Then she could do her vest again before bed (girls stay up and chat a while before they settle down to go to sleep anyways- you know how that goes <img src="i/expressions/face-icon-small-wink.gif" border="0"> ).

Just a suggestion, but I too wouldn't let the med and vest slide. Better a little inconvience during the vacation then paying more for skipping later <img src="i/expressions/face-icon-small-wink.gif" border="0"> . I think letting the HTS go since she will be at the beach would be okay too- last time I was at the beach, I hardly coughed up anything with my HTS (usually I cough up lots), but felt like my lungs were pretty clear <img src="i/expressions/face-icon-small-wink.gif" border="0"> .

Help me work this out

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