here is what gets me...

lilMeggies

New member
Oh man this might almost be as bad as when my sister hacked in lol <img src="i/expressions/face-icon-small-happy.gif" border="0">
jokes jokes
 

lilMeggies

New member
Oh man this might almost be as bad as when my sister hacked in lol <img src="i/expressions/face-icon-small-happy.gif" border="0">
jokes jokes
 
S

skh

Guest
I appreciate all of you so much - the good and the bad. This site has helped me to understand my daughter's CF and has prepared me for things that may happen and has actually given me alot of hope. When I see posts on here from 30, 40 and 50 yr. old people who have CF that gives me hope for my daughter's future. Yes, many times I have read posts that have had me crying but that's not all bad since they have made me face possibilities that I would rather not. To me the positive and the negative have educated me and I hope will provide me with knowledge to help my daughter in whatever her future may hold. That is what makes this site so wonderful - the mix of the two.

I agree with some of the earlier posts that since we are not able to see the person as they type we may be missing some of the message they are hoping to relay. I know that I do not have the gift that many of you have to type and actually make people feel and see what you mean. We may need to remember that for future posts.

I noticed that somehow my reply last night to a different post was sent 5 times - what's up with that?!! I promise I am only doing this once!

Sue
 
S

skh

Guest
I appreciate all of you so much - the good and the bad. This site has helped me to understand my daughter's CF and has prepared me for things that may happen and has actually given me alot of hope. When I see posts on here from 30, 40 and 50 yr. old people who have CF that gives me hope for my daughter's future. Yes, many times I have read posts that have had me crying but that's not all bad since they have made me face possibilities that I would rather not. To me the positive and the negative have educated me and I hope will provide me with knowledge to help my daughter in whatever her future may hold. That is what makes this site so wonderful - the mix of the two.

I agree with some of the earlier posts that since we are not able to see the person as they type we may be missing some of the message they are hoping to relay. I know that I do not have the gift that many of you have to type and actually make people feel and see what you mean. We may need to remember that for future posts.

I noticed that somehow my reply last night to a different post was sent 5 times - what's up with that?!! I promise I am only doing this once!

Sue
 

anonymous

New member
<img src="i/expressions/brokenheart.gif" border="0">
----- Original Message -----
From: YANNERS
To: YANNERS
Sent: Thursday, February 23, 2006 10:34 PM
Subject: [Norton AntiSpam] Emailing: unlessyouvelostachild





Don't ask us if we are over it yet. We'll never be over it.

A part of us died with our child.


Don't tell us they are in a better place.

They are not here with us where they belong.


Don't say at least they are not suffering.

We haven't come to terms with why they suffered at all.

Don't tell us at least we have other children.

Which of your children would you have sacrificed?


Don't ask us if we feel better.

Bereavement isn't a condition that clears up.

Don't force your beliefs on us.

Not all of us have the same faith.

Don't tell us at least we had our child for so many years.

What year would you choose for your child to die?


Don't tell us God never gives us more than we can bear.

Right now we don't feel we can handle anything else.

Don't avoid us. We don't have a contagious disease, just unbearable pain.

Don't tell us you know how we feel, unless you have lost a child.

No other loss can compare to losing a child. It's not the natural order of things.

Don't take our anger personally.

We don't know who we are angry at or why and lash out at those closest to us.


Don't whisper behind us when we enter a room.

We are in pain, but not deaf.


Don't stop calling us after the initial loss.

Our grief does not stop there and we need to know others are thinking of us.

Don't be offended when we don't return calls right away.

We take each moment as it comes and some are worse than others.

Don't tell us to get on with our lives.

We each grieve differently and in our own time frame.

Grief can not be governed by any clock or calendar.

Do say you are sorry. We're sorry, too, and you saying

that you share our sorrow is far better than saying any of those

tired cliches you don't really mean anyway. Just say you're sorry.

Do put your arms around us and hold us.

We need your strength to get us through each day.

Do say you remember our child, if you do.

Memories are all we have left and we cherish them.

Do let us talk about our child.

Our child lived and still lives on in our hearts, forever.

Do mention our child's name. It will not make us sad or hurt our feelings.


Do let us cry. Crying is an important part of the grief process.

Cry with us if you want to.

Do remember us on special dates.

Our child's birth date, death date and holidays are

a very lonely and difficult time for us without our child.

Do send us cards on those dates saying you remember our child.

We do.


Do show our family that you care.

Sometimes we forget to do that in our own pain.


Do be thankful for children.

Nothing hurts us worse than seeing other people in pain.


~ Original version was written by Mary Cleckley, Atlanta, GA ~
~ Revised by Wendy Lockman ~

song playing: A Mothers Love

Back
 

anonymous

New member
<img src="i/expressions/brokenheart.gif" border="0">
----- Original Message -----
From: YANNERS
To: YANNERS
Sent: Thursday, February 23, 2006 10:34 PM
Subject: [Norton AntiSpam] Emailing: unlessyouvelostachild





Don't ask us if we are over it yet. We'll never be over it.

A part of us died with our child.


Don't tell us they are in a better place.

They are not here with us where they belong.


Don't say at least they are not suffering.

We haven't come to terms with why they suffered at all.

Don't tell us at least we have other children.

Which of your children would you have sacrificed?


Don't ask us if we feel better.

Bereavement isn't a condition that clears up.

Don't force your beliefs on us.

Not all of us have the same faith.

Don't tell us at least we had our child for so many years.

What year would you choose for your child to die?


Don't tell us God never gives us more than we can bear.

Right now we don't feel we can handle anything else.

Don't avoid us. We don't have a contagious disease, just unbearable pain.

Don't tell us you know how we feel, unless you have lost a child.

No other loss can compare to losing a child. It's not the natural order of things.

Don't take our anger personally.

We don't know who we are angry at or why and lash out at those closest to us.


Don't whisper behind us when we enter a room.

We are in pain, but not deaf.


Don't stop calling us after the initial loss.

Our grief does not stop there and we need to know others are thinking of us.

Don't be offended when we don't return calls right away.

We take each moment as it comes and some are worse than others.

Don't tell us to get on with our lives.

We each grieve differently and in our own time frame.

Grief can not be governed by any clock or calendar.

Do say you are sorry. We're sorry, too, and you saying

that you share our sorrow is far better than saying any of those

tired cliches you don't really mean anyway. Just say you're sorry.

Do put your arms around us and hold us.

We need your strength to get us through each day.

Do say you remember our child, if you do.

Memories are all we have left and we cherish them.

Do let us talk about our child.

Our child lived and still lives on in our hearts, forever.

Do mention our child's name. It will not make us sad or hurt our feelings.


Do let us cry. Crying is an important part of the grief process.

Cry with us if you want to.

Do remember us on special dates.

Our child's birth date, death date and holidays are

a very lonely and difficult time for us without our child.

Do send us cards on those dates saying you remember our child.

We do.


Do show our family that you care.

Sometimes we forget to do that in our own pain.


Do be thankful for children.

Nothing hurts us worse than seeing other people in pain.


~ Original version was written by Mary Cleckley, Atlanta, GA ~
~ Revised by Wendy Lockman ~

song playing: A Mothers Love

Back
 

anonymous

New member
Wow. i totally agree with that letter(or poem). It got back to my previous problem with people saying that God gives us what we can handle and also brought up so many more. It was a beautiful way to talk about something I can only hope to never have to go through and pray that my family doesn't as well. Thanks

Sue 23 w/ CF
 

anonymous

New member
Wow. i totally agree with that letter(or poem). It got back to my previous problem with people saying that God gives us what we can handle and also brought up so many more. It was a beautiful way to talk about something I can only hope to never have to go through and pray that my family doesn't as well. Thanks

Sue 23 w/ CF
 

Allie

New member
I loved that poem...I haven't lost a child, but I can relate to so much of what is contained therein.
 

Allie

New member
I loved that poem...I haven't lost a child, but I can relate to so much of what is contained therein.
 
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