How come I didn't know this?

KarenMarks

New member
Wow,

This SHOCKS ME! I had no idea that this was possible... I am actually quite dependent on tylenol due to sinus headaches and i have discussed this with many doctors throughout the past few years. Many of them are aware that i have been taking tylenol... i have never been warned.

Have you found any further information regarding this?
 
M

Mommafirst

Guest
I have nothing to back what the doctor said. Though I've always known that tylenol can created liver concerns. I'm not one to take much meds if I don't have to, but once again -- CF changes everything!!!
 
M

Mommafirst

Guest
I have nothing to back what the doctor said. Though I've always known that tylenol can created liver concerns. I'm not one to take much meds if I don't have to, but once again -- CF changes everything!!!
 
M

Mommafirst

Guest
I have nothing to back what the doctor said. Though I've always known that tylenol can created liver concerns. I'm not one to take much meds if I don't have to, but once again -- CF changes everything!!!
 

okok

New member
Here is an arguement for tylenol use (i just made it up though so don't take me seriously): Because ibprofun is so useful in preventing the lung damage that eventually leads to lung failure it might be a good idea to avoid use of ibprofun for general purposes to spare the kidneys any "extra punches" assuming the patient's liver can withstand the tylenol. (ibprofun is eventually hard on the kidneys.)

On the other hand since ibprofun is so good at preventing inflammation that leads to lung damage then maybe it is good to just use ibprofun for everything (general purposes as well as CF treatment.) although it does seem like it woud be hard on the kidneys at some point. so i don't really know... I tend to agree with the previous posters who said they think that this would be relevant in patients who have liver involvement but that it is not a big deal in patient's without liver involvement.
 

okok

New member
Here is an arguement for tylenol use (i just made it up though so don't take me seriously): Because ibprofun is so useful in preventing the lung damage that eventually leads to lung failure it might be a good idea to avoid use of ibprofun for general purposes to spare the kidneys any "extra punches" assuming the patient's liver can withstand the tylenol. (ibprofun is eventually hard on the kidneys.)

On the other hand since ibprofun is so good at preventing inflammation that leads to lung damage then maybe it is good to just use ibprofun for everything (general purposes as well as CF treatment.) although it does seem like it woud be hard on the kidneys at some point. so i don't really know... I tend to agree with the previous posters who said they think that this would be relevant in patients who have liver involvement but that it is not a big deal in patient's without liver involvement.
 

okok

New member
Here is an arguement for tylenol use (i just made it up though so don't take me seriously): Because ibprofun is so useful in preventing the lung damage that eventually leads to lung failure it might be a good idea to avoid use of ibprofun for general purposes to spare the kidneys any "extra punches" assuming the patient's liver can withstand the tylenol. (ibprofun is eventually hard on the kidneys.)

On the other hand since ibprofun is so good at preventing inflammation that leads to lung damage then maybe it is good to just use ibprofun for everything (general purposes as well as CF treatment.) although it does seem like it woud be hard on the kidneys at some point. so i don't really know... I tend to agree with the previous posters who said they think that this would be relevant in patients who have liver involvement but that it is not a big deal in patient's without liver involvement.
 
OMG i hope i havent hurt my baby! NO ONE ever told me that! and i knew arionna had cf when i was pregnant.. i was obcessed... i researched EVERYTHING.... never heard that................. im glad u said something
 
OMG i hope i havent hurt my baby! NO ONE ever told me that! and i knew arionna had cf when i was pregnant.. i was obcessed... i researched EVERYTHING.... never heard that................. im glad u said something
 
OMG i hope i havent hurt my baby! NO ONE ever told me that! and i knew arionna had cf when i was pregnant.. i was obcessed... i researched EVERYTHING.... never heard that................. im glad u said something
 

lovemygirl

New member
We were also told the opposite for our 6 yr old. She was taking Motrin daily for headaches and they said it was not good for her (something about white blood cell count) and that we should switch her to Tylenol.
Turns out all she needed was vitamin B2, but that is a completely different conversation <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

lovemygirl

New member
We were also told the opposite for our 6 yr old. She was taking Motrin daily for headaches and they said it was not good for her (something about white blood cell count) and that we should switch her to Tylenol.
Turns out all she needed was vitamin B2, but that is a completely different conversation <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

lovemygirl

New member
We were also told the opposite for our 6 yr old. She was taking Motrin daily for headaches and they said it was not good for her (something about white blood cell count) and that we should switch her to Tylenol.
Turns out all she needed was vitamin B2, but that is a completely different conversation <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

jbrandonAW

New member
You can use it for the occasional stuff but if she is requiring tylenol more than once a week ya you have to switch to something else. I hate motrion though, it never seems to work. Do be careful though, I having been taking tylenol all my life (19/cf) and I though I'd never get liver problems, but I have them. However nothing has ever really helped my pain so I take the max of everyhing and then some, I also used to live on tylenol sinus . I ahve also been told not o take ibprofen either b/c of the stomach effects. Its really lose lose lol.

If tylenol is all you ave in your cabinet now use it up. But afterwards just go get the motrin.
 

jbrandonAW

New member
You can use it for the occasional stuff but if she is requiring tylenol more than once a week ya you have to switch to something else. I hate motrion though, it never seems to work. Do be careful though, I having been taking tylenol all my life (19/cf) and I though I'd never get liver problems, but I have them. However nothing has ever really helped my pain so I take the max of everyhing and then some, I also used to live on tylenol sinus . I ahve also been told not o take ibprofen either b/c of the stomach effects. Its really lose lose lol.

If tylenol is all you ave in your cabinet now use it up. But afterwards just go get the motrin.
 

jbrandonAW

New member
You can use it for the occasional stuff but if she is requiring tylenol more than once a week ya you have to switch to something else. I hate motrion though, it never seems to work. Do be careful though, I having been taking tylenol all my life (19/cf) and I though I'd never get liver problems, but I have them. However nothing has ever really helped my pain so I take the max of everyhing and then some, I also used to live on tylenol sinus . I ahve also been told not o take ibprofen either b/c of the stomach effects. Its really lose lose lol.

If tylenol is all you ave in your cabinet now use it up. But afterwards just go get the motrin.
 

Pameladragonfly

New member
Hi my name is Pam and I am new at this evan though my son David was diagnosied in kindergarten . He is now 15 and Iam looking for any thing to help with his bowels and pain issues last year he was diagnosied with migrains and irritable bowel now this year they say he has migrains in the stomach . we have been hospitlolized several times in Denver at the childrens hosptiol and no has told us to not give tylenol so Iam glad you brought it up thanks for listening to me lost and alone in Kansas Pam
 

Pameladragonfly

New member
Hi my name is Pam and I am new at this evan though my son David was diagnosied in kindergarten . He is now 15 and Iam looking for any thing to help with his bowels and pain issues last year he was diagnosied with migrains and irritable bowel now this year they say he has migrains in the stomach . we have been hospitlolized several times in Denver at the childrens hosptiol and no has told us to not give tylenol so Iam glad you brought it up thanks for listening to me lost and alone in Kansas Pam
 

Pameladragonfly

New member
Hi my name is Pam and I am new at this evan though my son David was diagnosied in kindergarten . He is now 15 and Iam looking for any thing to help with his bowels and pain issues last year he was diagnosied with migrains and irritable bowel now this year they say he has migrains in the stomach . we have been hospitlolized several times in Denver at the childrens hosptiol and no has told us to not give tylenol so Iam glad you brought it up thanks for listening to me lost and alone in Kansas Pam
 

lovemygirl

New member
Pam,
Talk to your Dr. about B2 for the migraines. They have done wonders for our daughter and are commonly used for migraines. It is a water soluble vitamin so whatever the body doesn't need will leave the body in his urine. My daughter is 6 yrs old and takes 2 / day.
Hope this works!
 
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