How do you stay positive?

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letsrockcfem

New member
Hey Joni! As we all know CF is not the easiest thing to deal with...all the daily treatments, IV's, eating and everything else just to keep us healthy. Sometimes we do all the stuff we are supposed to do and we still don't feel better and that can for sure get us down. I keep reading about people who get IV's and then a month later they are back on them..that is just tough..and they are tough too!! We are all tough, we know all the statistics and read up on stuff and yet we still do our treatmens each day and do what we have to do to keep us feeling good. We will do whatever it takes to help us feel better and be able to keep ourselves going each day.

For me my family has always been the most supportive people ever..our motto is "laughter is the best medicine." It is true especially for me..I do not go a day without full out laughing(couughing)..when we used to fall down my mom would laugh (not to be mean..sounds crazy) and then if I saw her laugh I would laugh and I'd forget about my scraped knee. I try and surround myself with people who make me laugh and make me feel good. Sometimes I do break down after reading about something, or I have some anxiety about my life and what is going to happen to me..I then suck it up and think about what I am doing to help myself and everyone else living with CF.
Whenever I'm down I try to find something that really makes me laugh or keep me going. CF sucks flat out but we have to deal with it, there's no way around it. Just stay positive and laugh, a lot!
Rock CF
 
L

letsrockcfem

New member
Hey Joni! As we all know CF is not the easiest thing to deal with...all the daily treatments, IV's, eating and everything else just to keep us healthy. Sometimes we do all the stuff we are supposed to do and we still don't feel better and that can for sure get us down. I keep reading about people who get IV's and then a month later they are back on them..that is just tough..and they are tough too!! We are all tough, we know all the statistics and read up on stuff and yet we still do our treatmens each day and do what we have to do to keep us feeling good. We will do whatever it takes to help us feel better and be able to keep ourselves going each day.

For me my family has always been the most supportive people ever..our motto is "laughter is the best medicine." It is true especially for me..I do not go a day without full out laughing(couughing)..when we used to fall down my mom would laugh (not to be mean..sounds crazy) and then if I saw her laugh I would laugh and I'd forget about my scraped knee. I try and surround myself with people who make me laugh and make me feel good. Sometimes I do break down after reading about something, or I have some anxiety about my life and what is going to happen to me..I then suck it up and think about what I am doing to help myself and everyone else living with CF.
Whenever I'm down I try to find something that really makes me laugh or keep me going. CF sucks flat out but we have to deal with it, there's no way around it. Just stay positive and laugh, a lot!
Rock CF
 
B

beleache

New member
The more i read, the more amazed i am about how brave and strong c/f people are. Thank you Jennifer and Emily, Jennifer almost 35 God Bless, and if you feel like screaming, you go right ahead, i think you have every right to... Emily i love your attitude !! Thanks guys, it's nice to know your not alone in your feelings. Joni.....54 soon to be 55 y/o f w c/f
 
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beleache

New member
The more i read, the more amazed i am about how brave and strong c/f people are. Thank you Jennifer and Emily, Jennifer almost 35 God Bless, and if you feel like screaming, you go right ahead, i think you have every right to... Emily i love your attitude !! Thanks guys, it's nice to know your not alone in your feelings. Joni.....54 soon to be 55 y/o f w c/f
 
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beleache

New member
The more i read, the more amazed i am about how brave and strong c/f people are. Thank you Jennifer and Emily, Jennifer almost 35 God Bless, and if you feel like screaming, you go right ahead, i think you have every right to... Emily i love your attitude !! Thanks guys, it's nice to know your not alone in your feelings. Joni.....54 soon to be 55 y/o f w c/f
 
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icefisherman

New member
what got my attention was "i don't want to live this way, I want to enjoy myself as much as i can" You can enjoy yourself. I'm probably not the model cf'er, but i think being happy is all we have. I do a lot of things i enjoy. I hike, hunt, fish, do photography, drink (hehe, ok beer enthusiest), make my own beer(hehe again), shoot target archery, and target rifle, try to be the best husband i can, and after all that, i still have times when i'm bored. So what i would say is if you like something, do it. We only have one shot at this life, so make the best of it! I don't think life is measured in qantity, it's measured in quality. Do what you think is right, and what makes you happy.
Hang in there
Ben
 
I

icefisherman

New member
what got my attention was "i don't want to live this way, I want to enjoy myself as much as i can" You can enjoy yourself. I'm probably not the model cf'er, but i think being happy is all we have. I do a lot of things i enjoy. I hike, hunt, fish, do photography, drink (hehe, ok beer enthusiest), make my own beer(hehe again), shoot target archery, and target rifle, try to be the best husband i can, and after all that, i still have times when i'm bored. So what i would say is if you like something, do it. We only have one shot at this life, so make the best of it! I don't think life is measured in qantity, it's measured in quality. Do what you think is right, and what makes you happy.
Hang in there
Ben
 
I

icefisherman

New member
what got my attention was "i don't want to live this way, I want to enjoy myself as much as i can" You can enjoy yourself. I'm probably not the model cf'er, but i think being happy is all we have. I do a lot of things i enjoy. I hike, hunt, fish, do photography, drink (hehe, ok beer enthusiest), make my own beer(hehe again), shoot target archery, and target rifle, try to be the best husband i can, and after all that, i still have times when i'm bored. So what i would say is if you like something, do it. We only have one shot at this life, so make the best of it! I don't think life is measured in qantity, it's measured in quality. Do what you think is right, and what makes you happy.
Hang in there
Ben
 
T

thefrogprincess

New member
Hmmm, staying positive huh? Its hard sometimes. Some times I just want to say screw it! But you have to remember that life is too short to poopoo everything. I had a rough year, not CF-wise though. I lost a dear friend to cancer and 3 days later my (now) husband was diagnosed with kidney cancer. Then planned and pulled of our wedding while working full time and getting a promotion. Talk about stress. It finally prompted me to start antidepressants. It was getting to the point that I just felt like it was never going to get better. My doc and I are still trying to figure out the proper dosage for me and have tried 3 different meds now but just being proactive about it has made me feel better. I still have mood swings and cry at weird times but it is getting better!
 
T

thefrogprincess

New member
Hmmm, staying positive huh? Its hard sometimes. Some times I just want to say screw it! But you have to remember that life is too short to poopoo everything. I had a rough year, not CF-wise though. I lost a dear friend to cancer and 3 days later my (now) husband was diagnosed with kidney cancer. Then planned and pulled of our wedding while working full time and getting a promotion. Talk about stress. It finally prompted me to start antidepressants. It was getting to the point that I just felt like it was never going to get better. My doc and I are still trying to figure out the proper dosage for me and have tried 3 different meds now but just being proactive about it has made me feel better. I still have mood swings and cry at weird times but it is getting better!
 
T

thefrogprincess

New member
Hmmm, staying positive huh? Its hard sometimes. Some times I just want to say screw it! But you have to remember that life is too short to poopoo everything. I had a rough year, not CF-wise though. I lost a dear friend to cancer and 3 days later my (now) husband was diagnosed with kidney cancer. Then planned and pulled of our wedding while working full time and getting a promotion. Talk about stress. It finally prompted me to start antidepressants. It was getting to the point that I just felt like it was never going to get better. My doc and I are still trying to figure out the proper dosage for me and have tried 3 different meds now but just being proactive about it has made me feel better. I still have mood swings and cry at weird times but it is getting better!
 
D

djotroy17

New member
"I don't think life is measured in qantity, it's measured in quality."

I like that Icefisherman, I have never heard it before, but I totally agree with it.
 
D

djotroy17

New member
"I don't think life is measured in qantity, it's measured in quality."

I like that Icefisherman, I have never heard it before, but I totally agree with it.
 
D

djotroy17

New member
"I don't think life is measured in qantity, it's measured in quality."

I like that Icefisherman, I have never heard it before, but I totally agree with it.
 
R

Rutgersnyy

New member
I never had any problems w/ CF my entire life. I the biggest inconvenience was leaving my elementary school classes before everyone else so I could go to the nurse and take my enzymes.

I was always involved in sports and never overly fatigued compared to the other kids.

I did not find out CF was fatal until I was 12 or 13 watching a talk show (either Montel or Rickie Lake), they had a special on some kid who had CF. I don't know what most people would have done if they found out this way but because I spent my critical ages in the dark and being healthy, it didn't affect me.

Because my parents and doctors never told me during my childhood, I have been patterned to think of CF as a minor inconvenience (nebs, enzymes) rather than a catastrophic disease.

I don't know what most people have done if they found out like that.
 
R

Rutgersnyy

New member
I never had any problems w/ CF my entire life. I the biggest inconvenience was leaving my elementary school classes before everyone else so I could go to the nurse and take my enzymes.

I was always involved in sports and never overly fatigued compared to the other kids.

I did not find out CF was fatal until I was 12 or 13 watching a talk show (either Montel or Rickie Lake), they had a special on some kid who had CF. I don't know what most people would have done if they found out this way but because I spent my critical ages in the dark and being healthy, it didn't affect me.

Because my parents and doctors never told me during my childhood, I have been patterned to think of CF as a minor inconvenience (nebs, enzymes) rather than a catastrophic disease.

I don't know what most people have done if they found out like that.
 
R

Rutgersnyy

New member
I never had any problems w/ CF my entire life. I the biggest inconvenience was leaving my elementary school classes before everyone else so I could go to the nurse and take my enzymes.

I was always involved in sports and never overly fatigued compared to the other kids.

I did not find out CF was fatal until I was 12 or 13 watching a talk show (either Montel or Rickie Lake), they had a special on some kid who had CF. I don't know what most people would have done if they found out this way but because I spent my critical ages in the dark and being healthy, it didn't affect me.

Because my parents and doctors never told me during my childhood, I have been patterned to think of CF as a minor inconvenience (nebs, enzymes) rather than a catastrophic disease.

I don't know what most people have done if they found out like that.
 
B

beleache

New member
It's funny rutgersnyy, for the first 44 years of my life i didn't know just how sick i was ( sure i knew something was wrong) It's only when i got the diagnosis that i started thinking differently.... I love to hear how possitive you all are, and i truly am thankful for the age i am, that i have four children and a grandchild! I do love life and enjoy many things, i think that when you have an illness you realize just how precious life is and try not to take anything for granted. It's just that it does get very scary, Thanks everyone for all the positive feedback....It helps.................Joni 54 soon to be 55 y/o f w c/f
 
B

beleache

New member
It's funny rutgersnyy, for the first 44 years of my life i didn't know just how sick i was ( sure i knew something was wrong) It's only when i got the diagnosis that i started thinking differently.... I love to hear how possitive you all are, and i truly am thankful for the age i am, that i have four children and a grandchild! I do love life and enjoy many things, i think that when you have an illness you realize just how precious life is and try not to take anything for granted. It's just that it does get very scary, Thanks everyone for all the positive feedback....It helps.................Joni 54 soon to be 55 y/o f w c/f
 
B

beleache

New member
It's funny rutgersnyy, for the first 44 years of my life i didn't know just how sick i was ( sure i knew something was wrong) It's only when i got the diagnosis that i started thinking differently.... I love to hear how possitive you all are, and i truly am thankful for the age i am, that i have four children and a grandchild! I do love life and enjoy many things, i think that when you have an illness you realize just how precious life is and try not to take anything for granted. It's just that it does get very scary, Thanks everyone for all the positive feedback....It helps.................Joni 54 soon to be 55 y/o f w c/f
 
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