How many of you take your HTS in your E-flow?

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Skye

New member
I continue to be confused on this issue?? I have read and know what the previous posts and research say. I was on board and ready to do all my meds in the e-flow. My huge adult center that sees around 500 adult patients would have no part of it. They are very against anyone using the e-flow for anything except the Aztreanam that has been researched to their liking. I told them that there are many people out there doing it and they responded that they find it hard to believe that any accredited CF center would be supporting the use of e-flow for any other meds. They are not big fans of the compound companies and feel they make a lot of mistakes.

That being said. I went against their advice and used the e-flow for HS and albuterol for about a week. Then I chickened out and felt that I would go with their advice for now. I know what the argument is and I have seen and read the research and they have as well. I resigned myself to the fact that I needed to follow their current medical advice until I could find a compelling enough reason to do to the contrary. It was my own comfort level. I don't know how irritating that HS is to the very small airways and I don't know or understand why they are so hesistant; but, their words were enough for me.

I am sure there are many on here that would disagree with my decision; but, I think it is important for others to know that there is a differing opinion on the e-flow issue and we are not docs no matter how much we may think we understand about what is being told to us by the company funding the research for these inhaled meds via e-flow. My team of docs were adamantly against it and that was enough for me right now. I may change in the near future; but, I am holding back for now<img src="i/expressions/face-icon-small-smile.gif" border="0">
 
S

Skye

New member
I continue to be confused on this issue?? I have read and know what the previous posts and research say. I was on board and ready to do all my meds in the e-flow. My huge adult center that sees around 500 adult patients would have no part of it. They are very against anyone using the e-flow for anything except the Aztreanam that has been researched to their liking. I told them that there are many people out there doing it and they responded that they find it hard to believe that any accredited CF center would be supporting the use of e-flow for any other meds. They are not big fans of the compound companies and feel they make a lot of mistakes.

That being said. I went against their advice and used the e-flow for HS and albuterol for about a week. Then I chickened out and felt that I would go with their advice for now. I know what the argument is and I have seen and read the research and they have as well. I resigned myself to the fact that I needed to follow their current medical advice until I could find a compelling enough reason to do to the contrary. It was my own comfort level. I don't know how irritating that HS is to the very small airways and I don't know or understand why they are so hesistant; but, their words were enough for me.

I am sure there are many on here that would disagree with my decision; but, I think it is important for others to know that there is a differing opinion on the e-flow issue and we are not docs no matter how much we may think we understand about what is being told to us by the company funding the research for these inhaled meds via e-flow. My team of docs were adamantly against it and that was enough for me right now. I may change in the near future; but, I am holding back for now<img src="i/expressions/face-icon-small-smile.gif" border="0">
 
S

Skye

New member
I continue to be confused on this issue?? I have read and know what the previous posts and research say. I was on board and ready to do all my meds in the e-flow. My huge adult center that sees around 500 adult patients would have no part of it. They are very against anyone using the e-flow for anything except the Aztreanam that has been researched to their liking. I told them that there are many people out there doing it and they responded that they find it hard to believe that any accredited CF center would be supporting the use of e-flow for any other meds. They are not big fans of the compound companies and feel they make a lot of mistakes.

That being said. I went against their advice and used the e-flow for HS and albuterol for about a week. Then I chickened out and felt that I would go with their advice for now. I know what the argument is and I have seen and read the research and they have as well. I resigned myself to the fact that I needed to follow their current medical advice until I could find a compelling enough reason to do to the contrary. It was my own comfort level. I don't know how irritating that HS is to the very small airways and I don't know or understand why they are so hesistant; but, their words were enough for me.

I am sure there are many on here that would disagree with my decision; but, I think it is important for others to know that there is a differing opinion on the e-flow issue and we are not docs no matter how much we may think we understand about what is being told to us by the company funding the research for these inhaled meds via e-flow. My team of docs were adamantly against it and that was enough for me right now. I may change in the near future; but, I am holding back for now<img src="i/expressions/face-icon-small-smile.gif" border="0">
 
S

Skye

New member
I continue to be confused on this issue?? I have read and know what the previous posts and research say. I was on board and ready to do all my meds in the e-flow. My huge adult center that sees around 500 adult patients would have no part of it. They are very against anyone using the e-flow for anything except the Aztreanam that has been researched to their liking. I told them that there are many people out there doing it and they responded that they find it hard to believe that any accredited CF center would be supporting the use of e-flow for any other meds. They are not big fans of the compound companies and feel they make a lot of mistakes.

That being said. I went against their advice and used the e-flow for HS and albuterol for about a week. Then I chickened out and felt that I would go with their advice for now. I know what the argument is and I have seen and read the research and they have as well. I resigned myself to the fact that I needed to follow their current medical advice until I could find a compelling enough reason to do to the contrary. It was my own comfort level. I don't know how irritating that HS is to the very small airways and I don't know or understand why they are so hesistant; but, their words were enough for me.

I am sure there are many on here that would disagree with my decision; but, I think it is important for others to know that there is a differing opinion on the e-flow issue and we are not docs no matter how much we may think we understand about what is being told to us by the company funding the research for these inhaled meds via e-flow. My team of docs were adamantly against it and that was enough for me right now. I may change in the near future; but, I am holding back for now<img src="i/expressions/face-icon-small-smile.gif" border="0">
 
S

Skye

New member
I continue to be confused on this issue?? I have read and know what the previous posts and research say. I was on board and ready to do all my meds in the e-flow. My huge adult center that sees around 500 adult patients would have no part of it. They are very against anyone using the e-flow for anything except the Aztreanam that has been researched to their liking. I told them that there are many people out there doing it and they responded that they find it hard to believe that any accredited CF center would be supporting the use of e-flow for any other meds. They are not big fans of the compound companies and feel they make a lot of mistakes.
<br />
<br />That being said. I went against their advice and used the e-flow for HS and albuterol for about a week. Then I chickened out and felt that I would go with their advice for now. I know what the argument is and I have seen and read the research and they have as well. I resigned myself to the fact that I needed to follow their current medical advice until I could find a compelling enough reason to do to the contrary. It was my own comfort level. I don't know how irritating that HS is to the very small airways and I don't know or understand why they are so hesistant; but, their words were enough for me.
<br />
<br />I am sure there are many on here that would disagree with my decision; but, I think it is important for others to know that there is a differing opinion on the e-flow issue and we are not docs no matter how much we may think we understand about what is being told to us by the company funding the research for these inhaled meds via e-flow. My team of docs were adamantly against it and that was enough for me right now. I may change in the near future; but, I am holding back for now<img src="i/expressions/face-icon-small-smile.gif" border="0">
 
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Emily65Roses

New member
Just FYI, I do all my meds in the eFlow with my docs express permission. He was the one that suggested it to begin with.

I was on 7% for a while, Sally (with the regular compressor), and it was too harsh. I told my doc I was willing to do it if we could lower the percentage. He had me try 6% and that was intolerable as well. So I switched down to the 3%. And then I got the eFlow and it felt like it was closer to the 6% or 7% in the old compressor.
 
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Emily65Roses

New member
Just FYI, I do all my meds in the eFlow with my docs express permission. He was the one that suggested it to begin with.

I was on 7% for a while, Sally (with the regular compressor), and it was too harsh. I told my doc I was willing to do it if we could lower the percentage. He had me try 6% and that was intolerable as well. So I switched down to the 3%. And then I got the eFlow and it felt like it was closer to the 6% or 7% in the old compressor.
 
E

Emily65Roses

New member
Just FYI, I do all my meds in the eFlow with my docs express permission. He was the one that suggested it to begin with.

I was on 7% for a while, Sally (with the regular compressor), and it was too harsh. I told my doc I was willing to do it if we could lower the percentage. He had me try 6% and that was intolerable as well. So I switched down to the 3%. And then I got the eFlow and it felt like it was closer to the 6% or 7% in the old compressor.
 
E

Emily65Roses

New member
Just FYI, I do all my meds in the eFlow with my docs express permission. He was the one that suggested it to begin with.

I was on 7% for a while, Sally (with the regular compressor), and it was too harsh. I told my doc I was willing to do it if we could lower the percentage. He had me try 6% and that was intolerable as well. So I switched down to the 3%. And then I got the eFlow and it felt like it was closer to the 6% or 7% in the old compressor.
 
E

Emily65Roses

New member
Just FYI, I do all my meds in the eFlow with my docs express permission. He was the one that suggested it to begin with.
<br />
<br />I was on 7% for a while, Sally (with the regular compressor), and it was too harsh. I told my doc I was willing to do it if we could lower the percentage. He had me try 6% and that was intolerable as well. So I switched down to the 3%. And then I got the eFlow and it felt like it was closer to the 6% or 7% in the old compressor.
 
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TwistedTanya

New member
I use my eFlow for Pulmozyme and Colistin. The Pulmozyme is the same that I would get if I did it in a regular neb and the Colistin, I mix myself so it is no compounded by some company. My doctor says I can do everything in the eFlow but the Pulmozyme should be done first b/c if it gets any left over med from another treatment, it screws up the effectiveness. I could just rinse it out but I don't feel like that's safe or clean enough considering what's in tap water. To soak it in hot soapy water and let it air dry makes it seem like too much time. However I did receive some vials of sterile water from Carter's Pharmacy where I get my Colistin and eFlow that maybe would work but they sent them for me to use and run after I do the hypertonic. They have had problems with the neb head clogging with HS so they want this sterile water to be run through it at the end. Guess that's why I still haven't switched everything over. When you are used to a certain routine, it's hard to change it. I just started doing Pulmozyme in the eFlow. Soon I'll try adding another one of my meds to the eFlow use. I cough up so much just using the 3% HS in the regular neb that I didn't feel I needed to switch it but I know with the eFlow it's supposed to get deeper into the lungs. I'm also afraid of screwing up the head with the HS. Haven't had problems with it with the other meds.
 
T

TwistedTanya

New member
I use my eFlow for Pulmozyme and Colistin. The Pulmozyme is the same that I would get if I did it in a regular neb and the Colistin, I mix myself so it is no compounded by some company. My doctor says I can do everything in the eFlow but the Pulmozyme should be done first b/c if it gets any left over med from another treatment, it screws up the effectiveness. I could just rinse it out but I don't feel like that's safe or clean enough considering what's in tap water. To soak it in hot soapy water and let it air dry makes it seem like too much time. However I did receive some vials of sterile water from Carter's Pharmacy where I get my Colistin and eFlow that maybe would work but they sent them for me to use and run after I do the hypertonic. They have had problems with the neb head clogging with HS so they want this sterile water to be run through it at the end. Guess that's why I still haven't switched everything over. When you are used to a certain routine, it's hard to change it. I just started doing Pulmozyme in the eFlow. Soon I'll try adding another one of my meds to the eFlow use. I cough up so much just using the 3% HS in the regular neb that I didn't feel I needed to switch it but I know with the eFlow it's supposed to get deeper into the lungs. I'm also afraid of screwing up the head with the HS. Haven't had problems with it with the other meds.
 
T

TwistedTanya

New member
I use my eFlow for Pulmozyme and Colistin. The Pulmozyme is the same that I would get if I did it in a regular neb and the Colistin, I mix myself so it is no compounded by some company. My doctor says I can do everything in the eFlow but the Pulmozyme should be done first b/c if it gets any left over med from another treatment, it screws up the effectiveness. I could just rinse it out but I don't feel like that's safe or clean enough considering what's in tap water. To soak it in hot soapy water and let it air dry makes it seem like too much time. However I did receive some vials of sterile water from Carter's Pharmacy where I get my Colistin and eFlow that maybe would work but they sent them for me to use and run after I do the hypertonic. They have had problems with the neb head clogging with HS so they want this sterile water to be run through it at the end. Guess that's why I still haven't switched everything over. When you are used to a certain routine, it's hard to change it. I just started doing Pulmozyme in the eFlow. Soon I'll try adding another one of my meds to the eFlow use. I cough up so much just using the 3% HS in the regular neb that I didn't feel I needed to switch it but I know with the eFlow it's supposed to get deeper into the lungs. I'm also afraid of screwing up the head with the HS. Haven't had problems with it with the other meds.
 
T

TwistedTanya

New member
I use my eFlow for Pulmozyme and Colistin. The Pulmozyme is the same that I would get if I did it in a regular neb and the Colistin, I mix myself so it is no compounded by some company. My doctor says I can do everything in the eFlow but the Pulmozyme should be done first b/c if it gets any left over med from another treatment, it screws up the effectiveness. I could just rinse it out but I don't feel like that's safe or clean enough considering what's in tap water. To soak it in hot soapy water and let it air dry makes it seem like too much time. However I did receive some vials of sterile water from Carter's Pharmacy where I get my Colistin and eFlow that maybe would work but they sent them for me to use and run after I do the hypertonic. They have had problems with the neb head clogging with HS so they want this sterile water to be run through it at the end. Guess that's why I still haven't switched everything over. When you are used to a certain routine, it's hard to change it. I just started doing Pulmozyme in the eFlow. Soon I'll try adding another one of my meds to the eFlow use. I cough up so much just using the 3% HS in the regular neb that I didn't feel I needed to switch it but I know with the eFlow it's supposed to get deeper into the lungs. I'm also afraid of screwing up the head with the HS. Haven't had problems with it with the other meds.
 
T

TwistedTanya

New member
I use my eFlow for Pulmozyme and Colistin. The Pulmozyme is the same that I would get if I did it in a regular neb and the Colistin, I mix myself so it is no compounded by some company. My doctor says I can do everything in the eFlow but the Pulmozyme should be done first b/c if it gets any left over med from another treatment, it screws up the effectiveness. I could just rinse it out but I don't feel like that's safe or clean enough considering what's in tap water. To soak it in hot soapy water and let it air dry makes it seem like too much time. However I did receive some vials of sterile water from Carter's Pharmacy where I get my Colistin and eFlow that maybe would work but they sent them for me to use and run after I do the hypertonic. They have had problems with the neb head clogging with HS so they want this sterile water to be run through it at the end. Guess that's why I still haven't switched everything over. When you are used to a certain routine, it's hard to change it. I just started doing Pulmozyme in the eFlow. Soon I'll try adding another one of my meds to the eFlow use. I cough up so much just using the 3% HS in the regular neb that I didn't feel I needed to switch it but I know with the eFlow it's supposed to get deeper into the lungs. I'm also afraid of screwing up the head with the HS. Haven't had problems with it with the other meds.
 
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