We see DS's CF doctor in the City every 6 months and the local CF doctor at peds clinic every 6 months -- so every 3 months. We also stopped going to the local CF clinic. And amazingly, DS also stopped culturing pseudo...
We had issues with the overcrowded community waiting room, which had toys. They didn't have enough exam rooms for their patients, so when we first started going they'd rotate patients from room to room to see the various medical staff. We were given our own room with a crib because at the time DS was a newborn and appointments lasted well over 4 hours. We complained about the waiting room and from then on they promised to have the receptionist place us in an exam room immediately. The exam room wasn't very clean.... Next time we went we were back to waiting in the waiting room, so we hung out in the hallway. And the final time we went -- after a 15 minute wait in the hallway we were placed in the "smelly b.o. exam room" that didn't seem very clean and then the nurse came in and said -- okay we're switching rooms. I walked ahead only to find another patient (with productive cough) and his dad sitting in the room. I then got into an argument -- with the nurse she said you're moving, I said no, threatened to leave. We got to keep the stinky room, but were made to cool our heels for an hour and 20 minutes. Haven't been back since.