how often do you miss treatments?

[NoExcuses]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>cdale613</b></i>

I'm sorry, but you and I strongly disagree on some fundamental ideas of happiness, health, and how to live life with CF.



What are your goals? What are your responsibilities? What are your dreams?



I'm engaged to be married in 3 months. I could not ask my fiance to marry me and risk the heartache of losing me to CF if I wasn't willing to give 110% in keeping myself healthy. I'm 27. My FEV1 baseline is still 90 percent. That makes it possible to look optimistically to the future and consider children (we don't care what the board thinks btw). Ask my fiance the difference between 45 and 55. Its worth it, and to suggest that its ok compromise any of that for 2 joints a year or getting drunk every so often is just sad.



I like to exercise. I am scared of not being able to do the things I love to do - biking, hiking, running, etc. Compliance with my meds is nothing compared to what I'd be giving up if I couldn't do these activities.



I work full time, I have a Masters degree. I'm not done achieving, and I'm not willing to sit around watching my life pass me by just because I have CF. I took the LSAT yesterday. I am competing in a half-ironman triathlon in three weeks. I'm biking 150 miles for the CFF in 5 weeks. I'm going on my honeymoon to Croatia in 14 weeks. I'm living a full life, and compliance with my meds makes that possible.



The guilt and shame I would feel if I was unable to provide for my wife and family; lost the ability to do the activities I love doing; lost the drive and ability to achieve... while knowing that I hadn't been fully compliant would be more than I could handle. Now, CF is chronic... I understand that. I can live with myself if I know I've done everything I can do to stave it off as long as possible.



100 percent compliance with my health care makes everything else I do possible. The 3-4 hours I spend taking care of myself each day is a small price to pay for the other 20.



And seriously.... you do realize you can do other things while you inhale meds through a neb... right? Be it LSAT prep tests, reading, watching TV, being online... a lot of it is time you would spend sitting anyway.



Don't try to justify your lack of compliance. Set goals that necessitate full compliance, and achieve them. That is how you live a full live with CF.



Sorry, but there no shortcuts. You get one chance at life. No do-overs. Don't make foolish decisions that appear to gratify you in the short-term that sacrifice your long-term health and happiness. Its really not worth it.



Chris



27 m w/CF</end quote>




Bravo! Bravo! Bravo!!!!

 

[NoExcuses]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>cdale613</b></i>

I'm sorry, but you and I strongly disagree on some fundamental ideas of happiness, health, and how to live life with CF.



What are your goals? What are your responsibilities? What are your dreams?



I'm engaged to be married in 3 months. I could not ask my fiance to marry me and risk the heartache of losing me to CF if I wasn't willing to give 110% in keeping myself healthy. I'm 27. My FEV1 baseline is still 90 percent. That makes it possible to look optimistically to the future and consider children (we don't care what the board thinks btw). Ask my fiance the difference between 45 and 55. Its worth it, and to suggest that its ok compromise any of that for 2 joints a year or getting drunk every so often is just sad.



I like to exercise. I am scared of not being able to do the things I love to do - biking, hiking, running, etc. Compliance with my meds is nothing compared to what I'd be giving up if I couldn't do these activities.



I work full time, I have a Masters degree. I'm not done achieving, and I'm not willing to sit around watching my life pass me by just because I have CF. I took the LSAT yesterday. I am competing in a half-ironman triathlon in three weeks. I'm biking 150 miles for the CFF in 5 weeks. I'm going on my honeymoon to Croatia in 14 weeks. I'm living a full life, and compliance with my meds makes that possible.



The guilt and shame I would feel if I was unable to provide for my wife and family; lost the ability to do the activities I love doing; lost the drive and ability to achieve... while knowing that I hadn't been fully compliant would be more than I could handle. Now, CF is chronic... I understand that. I can live with myself if I know I've done everything I can do to stave it off as long as possible.



100 percent compliance with my health care makes everything else I do possible. The 3-4 hours I spend taking care of myself each day is a small price to pay for the other 20.



And seriously.... you do realize you can do other things while you inhale meds through a neb... right? Be it LSAT prep tests, reading, watching TV, being online... a lot of it is time you would spend sitting anyway.



Don't try to justify your lack of compliance. Set goals that necessitate full compliance, and achieve them. That is how you live a full live with CF.



Sorry, but there no shortcuts. You get one chance at life. No do-overs. Don't make foolish decisions that appear to gratify you in the short-term that sacrifice your long-term health and happiness. Its really not worth it.



Chris



27 m w/CF</end quote>




Bravo! Bravo! Bravo!!!!

 

[NoExcuses]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>CyndiW555</b></i>

You are 18 now and need to live YOUR life not the life of "wanting to fit in". L

</end quote></div>


You hit the nail on the head.

But people like this always find out what needs to be done one way or the other - either they decide to do meds or they get so sick they'll never reecover lung function that they've lost.

It's a tragedy.

 

[NoExcuses]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>CyndiW555</b></i>

You are 18 now and need to live YOUR life not the life of "wanting to fit in". L

</end quote></div>


You hit the nail on the head.

But people like this always find out what needs to be done one way or the other - either they decide to do meds or they get so sick they'll never reecover lung function that they've lost.

It's a tragedy.

 

[NoExcuses]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>CyndiW555</b></i>

You are 18 now and need to live YOUR life not the life of "wanting to fit in". L

</end quote></div>


You hit the nail on the head.

But people like this always find out what needs to be done one way or the other - either they decide to do meds or they get so sick they'll never reecover lung function that they've lost.

It's a tragedy.

 

[NoExcuses]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>CyndiW555</b></i>

You are 18 now and need to live YOUR life not the life of "wanting to fit in". L

</end quote></div>


You hit the nail on the head.

But people like this always find out what needs to be done one way or the other - either they decide to do meds or they get so sick they'll never reecover lung function that they've lost.

It's a tragedy.

 

[NoExcuses]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>CyndiW555</b></i>

You are 18 now and need to live YOUR life not the life of "wanting to fit in". L

</end quote>


You hit the nail on the head.

But people like this always find out what needs to be done one way or the other - either they decide to do meds or they get so sick they'll never reecover lung function that they've lost.

It's a tragedy.

 

[NoExcuses]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>CyndiW555</b></i>

You are 18 now and need to live YOUR life not the life of "wanting to fit in". L

</end quote>


You hit the nail on the head.

But people like this always find out what needs to be done one way or the other - either they decide to do meds or they get so sick they'll never reecover lung function that they've lost.

It's a tragedy.

 

[sue35]

I think Ricky is 23 or older. Doesn't it say that in his first thread. I would say I am a 9 (don't exercise enough) but I do understand what Ricky is saying. I do feel like a robot and my medicine interfers with a lot. I would love to just be able to go from doing something at night to go sleep at my boyfriend's but I can't because I have to go home and do the stupid medicine.

I think it is very hard to do your medicine perfectly, like Ricky originally did, and then still get very sick. It would make a lot of people want to give up a little. I am sure he will get back on the wagon again. This is how he wants to live his life and he still is a 7<img src="i/expressions/face-icon-small-smile.gif" border="0">

While I don't agree I do see how he can do that. To each his own I guess. Its true, some people need to get really sick to get kicked in the butt.

 

[sue35]

I think Ricky is 23 or older. Doesn't it say that in his first thread. I would say I am a 9 (don't exercise enough) but I do understand what Ricky is saying. I do feel like a robot and my medicine interfers with a lot. I would love to just be able to go from doing something at night to go sleep at my boyfriend's but I can't because I have to go home and do the stupid medicine.

I think it is very hard to do your medicine perfectly, like Ricky originally did, and then still get very sick. It would make a lot of people want to give up a little. I am sure he will get back on the wagon again. This is how he wants to live his life and he still is a 7<img src="i/expressions/face-icon-small-smile.gif" border="0">

While I don't agree I do see how he can do that. To each his own I guess. Its true, some people need to get really sick to get kicked in the butt.

 

[sue35]

I think Ricky is 23 or older. Doesn't it say that in his first thread. I would say I am a 9 (don't exercise enough) but I do understand what Ricky is saying. I do feel like a robot and my medicine interfers with a lot. I would love to just be able to go from doing something at night to go sleep at my boyfriend's but I can't because I have to go home and do the stupid medicine.

I think it is very hard to do your medicine perfectly, like Ricky originally did, and then still get very sick. It would make a lot of people want to give up a little. I am sure he will get back on the wagon again. This is how he wants to live his life and he still is a 7<img src="i/expressions/face-icon-small-smile.gif" border="0">

While I don't agree I do see how he can do that. To each his own I guess. Its true, some people need to get really sick to get kicked in the butt.

 

[sue35]

I think Ricky is 23 or older. Doesn't it say that in his first thread. I would say I am a 9 (don't exercise enough) but I do understand what Ricky is saying. I do feel like a robot and my medicine interfers with a lot. I would love to just be able to go from doing something at night to go sleep at my boyfriend's but I can't because I have to go home and do the stupid medicine.

I think it is very hard to do your medicine perfectly, like Ricky originally did, and then still get very sick. It would make a lot of people want to give up a little. I am sure he will get back on the wagon again. This is how he wants to live his life and he still is a 7<img src="i/expressions/face-icon-small-smile.gif" border="0">

While I don't agree I do see how he can do that. To each his own I guess. Its true, some people need to get really sick to get kicked in the butt.

 

[sue35]

I think Ricky is 23 or older. Doesn't it say that in his first thread. I would say I am a 9 (don't exercise enough) but I do understand what Ricky is saying. I do feel like a robot and my medicine interfers with a lot. I would love to just be able to go from doing something at night to go sleep at my boyfriend's but I can't because I have to go home and do the stupid medicine.

I think it is very hard to do your medicine perfectly, like Ricky originally did, and then still get very sick. It would make a lot of people want to give up a little. I am sure he will get back on the wagon again. This is how he wants to live his life and he still is a 7<img src="i/expressions/face-icon-small-smile.gif" border="0">

While I don't agree I do see how he can do that. To each his own I guess. Its true, some people need to get really sick to get kicked in the butt.

 

[sue35]

I think Ricky is 23 or older. Doesn't it say that in his first thread. I would say I am a 9 (don't exercise enough) but I do understand what Ricky is saying. I do feel like a robot and my medicine interfers with a lot. I would love to just be able to go from doing something at night to go sleep at my boyfriend's but I can't because I have to go home and do the stupid medicine.

I think it is very hard to do your medicine perfectly, like Ricky originally did, and then still get very sick. It would make a lot of people want to give up a little. I am sure he will get back on the wagon again. This is how he wants to live his life and he still is a 7<img src="i/expressions/face-icon-small-smile.gif" border="0">

While I don't agree I do see how he can do that. To each his own I guess. Its true, some people need to get really sick to get kicked in the butt.

 

[mom2lillian]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>CyndiW555</b></i>

I am a 9 I do all the inhailing things the dr. wants. I also do all the pills the dr. wants. I don't do the vest or chest pt. I don't like them. I work out. I know its not the same and now at this age I am comming to terms with doing the vest. I read about it a lot on here and people seem to like it. (Mine is gathering dust as we speak).
</end quote></div>


Cyndi-I hear you on this, I was this way, I had the vest for 4 years and had logged maybe 100 hours. I HATED the thing. I had it on a plant dollie and lugged it all around trying to get to a place where it was comfortable to do it wehn it was 'convenient'. I never thought it did any good so I figured why bother? I continued to store it and figured I woudl do it when, "I got sick enough to need it".

Now I do it every day 2x a day and leave it sitting udner my computer. In addition to the forums and email I am big into pictures and organizing them and goign to start scrapbooking electronically. These things make dong the vest not so bad. I just started it this year and it has helped me alot.

I would just say to try it for a 1 month committment and find something you can enjoy doing while vesting to make it more enjoyable. Learn to do the setting right as that made all the difference for me (read the Warwick letter on Amy's blog) do some good huffing and coughing and just commit for 1 month. See how you feel. I changed my mind 100% on the vest. I still do not get up alot while doing it but after doing it and excercise is when I get the benefit.

 

[mom2lillian]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>CyndiW555</b></i>

I am a 9 I do all the inhailing things the dr. wants. I also do all the pills the dr. wants. I don't do the vest or chest pt. I don't like them. I work out. I know its not the same and now at this age I am comming to terms with doing the vest. I read about it a lot on here and people seem to like it. (Mine is gathering dust as we speak).
</end quote></div>


Cyndi-I hear you on this, I was this way, I had the vest for 4 years and had logged maybe 100 hours. I HATED the thing. I had it on a plant dollie and lugged it all around trying to get to a place where it was comfortable to do it wehn it was 'convenient'. I never thought it did any good so I figured why bother? I continued to store it and figured I woudl do it when, "I got sick enough to need it".

Now I do it every day 2x a day and leave it sitting udner my computer. In addition to the forums and email I am big into pictures and organizing them and goign to start scrapbooking electronically. These things make dong the vest not so bad. I just started it this year and it has helped me alot.

I would just say to try it for a 1 month committment and find something you can enjoy doing while vesting to make it more enjoyable. Learn to do the setting right as that made all the difference for me (read the Warwick letter on Amy's blog) do some good huffing and coughing and just commit for 1 month. See how you feel. I changed my mind 100% on the vest. I still do not get up alot while doing it but after doing it and excercise is when I get the benefit.

 

[mom2lillian]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>CyndiW555</b></i>

I am a 9 I do all the inhailing things the dr. wants. I also do all the pills the dr. wants. I don't do the vest or chest pt. I don't like them. I work out. I know its not the same and now at this age I am comming to terms with doing the vest. I read about it a lot on here and people seem to like it. (Mine is gathering dust as we speak).
</end quote></div>


Cyndi-I hear you on this, I was this way, I had the vest for 4 years and had logged maybe 100 hours. I HATED the thing. I had it on a plant dollie and lugged it all around trying to get to a place where it was comfortable to do it wehn it was 'convenient'. I never thought it did any good so I figured why bother? I continued to store it and figured I woudl do it when, "I got sick enough to need it".

Now I do it every day 2x a day and leave it sitting udner my computer. In addition to the forums and email I am big into pictures and organizing them and goign to start scrapbooking electronically. These things make dong the vest not so bad. I just started it this year and it has helped me alot.

I would just say to try it for a 1 month committment and find something you can enjoy doing while vesting to make it more enjoyable. Learn to do the setting right as that made all the difference for me (read the Warwick letter on Amy's blog) do some good huffing and coughing and just commit for 1 month. See how you feel. I changed my mind 100% on the vest. I still do not get up alot while doing it but after doing it and excercise is when I get the benefit.

 

[mom2lillian]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>CyndiW555</b></i>

I am a 9 I do all the inhailing things the dr. wants. I also do all the pills the dr. wants. I don't do the vest or chest pt. I don't like them. I work out. I know its not the same and now at this age I am comming to terms with doing the vest. I read about it a lot on here and people seem to like it. (Mine is gathering dust as we speak).
</end quote></div>


Cyndi-I hear you on this, I was this way, I had the vest for 4 years and had logged maybe 100 hours. I HATED the thing. I had it on a plant dollie and lugged it all around trying to get to a place where it was comfortable to do it wehn it was 'convenient'. I never thought it did any good so I figured why bother? I continued to store it and figured I woudl do it when, "I got sick enough to need it".

Now I do it every day 2x a day and leave it sitting udner my computer. In addition to the forums and email I am big into pictures and organizing them and goign to start scrapbooking electronically. These things make dong the vest not so bad. I just started it this year and it has helped me alot.

I would just say to try it for a 1 month committment and find something you can enjoy doing while vesting to make it more enjoyable. Learn to do the setting right as that made all the difference for me (read the Warwick letter on Amy's blog) do some good huffing and coughing and just commit for 1 month. See how you feel. I changed my mind 100% on the vest. I still do not get up alot while doing it but after doing it and excercise is when I get the benefit.

 

[mom2lillian]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>CyndiW555</b></i>

I am a 9 I do all the inhailing things the dr. wants. I also do all the pills the dr. wants. I don't do the vest or chest pt. I don't like them. I work out. I know its not the same and now at this age I am comming to terms with doing the vest. I read about it a lot on here and people seem to like it. (Mine is gathering dust as we speak).
</end quote>


Cyndi-I hear you on this, I was this way, I had the vest for 4 years and had logged maybe 100 hours. I HATED the thing. I had it on a plant dollie and lugged it all around trying to get to a place where it was comfortable to do it wehn it was 'convenient'. I never thought it did any good so I figured why bother? I continued to store it and figured I woudl do it when, "I got sick enough to need it".

Now I do it every day 2x a day and leave it sitting udner my computer. In addition to the forums and email I am big into pictures and organizing them and goign to start scrapbooking electronically. These things make dong the vest not so bad. I just started it this year and it has helped me alot.

I would just say to try it for a 1 month committment and find something you can enjoy doing while vesting to make it more enjoyable. Learn to do the setting right as that made all the difference for me (read the Warwick letter on Amy's blog) do some good huffing and coughing and just commit for 1 month. See how you feel. I changed my mind 100% on the vest. I still do not get up alot while doing it but after doing it and excercise is when I get the benefit.

 

[mom2lillian]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>CyndiW555</b></i>

I am a 9 I do all the inhailing things the dr. wants. I also do all the pills the dr. wants. I don't do the vest or chest pt. I don't like them. I work out. I know its not the same and now at this age I am comming to terms with doing the vest. I read about it a lot on here and people seem to like it. (Mine is gathering dust as we speak).
</end quote>


Cyndi-I hear you on this, I was this way, I had the vest for 4 years and had logged maybe 100 hours. I HATED the thing. I had it on a plant dollie and lugged it all around trying to get to a place where it was comfortable to do it wehn it was 'convenient'. I never thought it did any good so I figured why bother? I continued to store it and figured I woudl do it when, "I got sick enough to need it".

Now I do it every day 2x a day and leave it sitting udner my computer. In addition to the forums and email I am big into pictures and organizing them and goign to start scrapbooking electronically. These things make dong the vest not so bad. I just started it this year and it has helped me alot.

I would just say to try it for a 1 month committment and find something you can enjoy doing while vesting to make it more enjoyable. Learn to do the setting right as that made all the difference for me (read the Warwick letter on Amy's blog) do some good huffing and coughing and just commit for 1 month. See how you feel. I changed my mind 100% on the vest. I still do not get up alot while doing it but after doing it and excercise is when I get the benefit.