How old were you "SUPPOSED" to be?

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cdale613

New member
How old were you "SUPPOSED

One more for 18...

When I was 19 or so I remember telling someone I had CF, and their response being "oh my God... shouldn't you be dead??" I forget my reply, but it was something along the lines of no, I haven't decided to die yet.

I like the Lawrence of Arabia quote "nothing is written"

Chris

26 m w/CF
 
C

cdale613

New member
How old were you "SUPPOSED

One more for 18...

When I was 19 or so I remember telling someone I had CF, and their response being "oh my God... shouldn't you be dead??" I forget my reply, but it was something along the lines of no, I haven't decided to die yet.

I like the Lawrence of Arabia quote "nothing is written"

Chris

26 m w/CF
 
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mum2kj

New member
How old were you "SUPPOSED

We were never told about when it would happen,

But My fears came about when a little girl died at age 7. She was our first contact with another cfer.
Kj was 3 when we met her. So I always had the thought Kj wouldn't make it past 7. She is nearly 15 now.

And seeing alot of older ppl with cf on these boards, it gives me even more hope!
 
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mum2kj

New member
How old were you "SUPPOSED

We were never told about when it would happen,

But My fears came about when a little girl died at age 7. She was our first contact with another cfer.
Kj was 3 when we met her. So I always had the thought Kj wouldn't make it past 7. She is nearly 15 now.

And seeing alot of older ppl with cf on these boards, it gives me even more hope!
 
M

mum2kj

New member
How old were you "SUPPOSED

We were never told about when it would happen,

But My fears came about when a little girl died at age 7. She was our first contact with another cfer.
Kj was 3 when we met her. So I always had the thought Kj wouldn't make it past 7. She is nearly 15 now.

And seeing alot of older ppl with cf on these boards, it gives me even more hope!
 
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ladybug

New member
How old were you "SUPPOSED

Dx'ed at 5 months and given about 7 years to live. Now am 29! <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
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ladybug

New member
How old were you "SUPPOSED

Dx'ed at 5 months and given about 7 years to live. Now am 29! <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
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ladybug

New member
How old were you "SUPPOSED

Dx'ed at 5 months and given about 7 years to live. Now am 29! <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
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onlyoneloveinmylife

New member
How old were you "SUPPOSED

the Docs never told my parents anything like that. but once when i was 9 years old i had to stay in the hosp. with 50% lung function(appx) and they said i wouldn't get better, i shot up to 105% in two weeks.




they don't know everything.




i also had a hernia and the docs said that i would never be able to sit up.(5 years old). but when i was in JR high i could do 60 sit ups a minute. (too old now, the floor is too low!)



i love showing the docs that they are wrong.
 
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onlyoneloveinmylife

New member
How old were you "SUPPOSED

the Docs never told my parents anything like that. but once when i was 9 years old i had to stay in the hosp. with 50% lung function(appx) and they said i wouldn't get better, i shot up to 105% in two weeks.




they don't know everything.




i also had a hernia and the docs said that i would never be able to sit up.(5 years old). but when i was in JR high i could do 60 sit ups a minute. (too old now, the floor is too low!)



i love showing the docs that they are wrong.
 
O

onlyoneloveinmylife

New member
How old were you "SUPPOSED

the Docs never told my parents anything like that. but once when i was 9 years old i had to stay in the hosp. with 50% lung function(appx) and they said i wouldn't get better, i shot up to 105% in two weeks.




they don't know everything.




i also had a hernia and the docs said that i would never be able to sit up.(5 years old). but when i was in JR high i could do 60 sit ups a minute. (too old now, the floor is too low!)



i love showing the docs that they are wrong.
 
K

Kelli

New member
How old were you "SUPPOSED

~Original Poster~
It's not that I am angry now, read dramamama's post, she gets it too. It is just that I don't think anyone should have told us that (we did NOT ask). Then I lived my life up to that point, not caring what I did, not caring how I acted, not caring so much about grades because I'd never go to college (since I'd be dead) etc. So I lived my life without ever planning on my future. It was a huge moment to me when I realized that ok, I'm getting older and I'm still here. I felt like I was living on 'borrowed time' up to that point. I really had to change my point of view.
I just don't think it was appropriate for a doctor (or anyone else) to 'limit' my life. I have lived an amazing life, I've done things I never thought I'd be able to do, I've seen places I've only dreamed of. That is what it is about for me. I don't live in a bubble, I truly LIVE my life, and I'm so proud of that.
So it's not an ager thing, I think it is a common sense thing. That people should not tell others (when they never asked) for a prognosis such as 18 years old. I simply put this post on here especially for the familys who have young kids on here, that there is hope. You cannot believe everything a dr says. And I will continue to live my life happily, loving, laughing, and have a freaking riot, until I drop dead. That is my plan.
I hope this gives hope to others, DO NOT let anyone take your hope away.....ever!
~Kelli <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
K

Kelli

New member
How old were you "SUPPOSED

~Original Poster~
It's not that I am angry now, read dramamama's post, she gets it too. It is just that I don't think anyone should have told us that (we did NOT ask). Then I lived my life up to that point, not caring what I did, not caring how I acted, not caring so much about grades because I'd never go to college (since I'd be dead) etc. So I lived my life without ever planning on my future. It was a huge moment to me when I realized that ok, I'm getting older and I'm still here. I felt like I was living on 'borrowed time' up to that point. I really had to change my point of view.
I just don't think it was appropriate for a doctor (or anyone else) to 'limit' my life. I have lived an amazing life, I've done things I never thought I'd be able to do, I've seen places I've only dreamed of. That is what it is about for me. I don't live in a bubble, I truly LIVE my life, and I'm so proud of that.
So it's not an ager thing, I think it is a common sense thing. That people should not tell others (when they never asked) for a prognosis such as 18 years old. I simply put this post on here especially for the familys who have young kids on here, that there is hope. You cannot believe everything a dr says. And I will continue to live my life happily, loving, laughing, and have a freaking riot, until I drop dead. That is my plan.
I hope this gives hope to others, DO NOT let anyone take your hope away.....ever!
~Kelli <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
K

Kelli

New member
How old were you "SUPPOSED

~Original Poster~
It's not that I am angry now, read dramamama's post, she gets it too. It is just that I don't think anyone should have told us that (we did NOT ask). Then I lived my life up to that point, not caring what I did, not caring how I acted, not caring so much about grades because I'd never go to college (since I'd be dead) etc. So I lived my life without ever planning on my future. It was a huge moment to me when I realized that ok, I'm getting older and I'm still here. I felt like I was living on 'borrowed time' up to that point. I really had to change my point of view.
I just don't think it was appropriate for a doctor (or anyone else) to 'limit' my life. I have lived an amazing life, I've done things I never thought I'd be able to do, I've seen places I've only dreamed of. That is what it is about for me. I don't live in a bubble, I truly LIVE my life, and I'm so proud of that.
So it's not an ager thing, I think it is a common sense thing. That people should not tell others (when they never asked) for a prognosis such as 18 years old. I simply put this post on here especially for the familys who have young kids on here, that there is hope. You cannot believe everything a dr says. And I will continue to live my life happily, loving, laughing, and have a freaking riot, until I drop dead. That is my plan.
I hope this gives hope to others, DO NOT let anyone take your hope away.....ever!
~Kelli <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
K

Kelli

New member
How old were you "SUPPOSED

By the way.....
fr3ak......I LOVE the photo of your dog. Oh my gosh, that is adorable!!!!
And your story is powerful, thank you for putting it on here. You are an inspriation!
~Kelli
 
K

Kelli

New member
How old were you "SUPPOSED

By the way.....
fr3ak......I LOVE the photo of your dog. Oh my gosh, that is adorable!!!!
And your story is powerful, thank you for putting it on here. You are an inspriation!
~Kelli
 
K

Kelli

New member
How old were you "SUPPOSED

By the way.....
fr3ak......I LOVE the photo of your dog. Oh my gosh, that is adorable!!!!
And your story is powerful, thank you for putting it on here. You are an inspriation!
~Kelli
 
C

coltsfan715

New member
How old were you "SUPPOSED

When I was diagnosed at 1 yr old my parents were told to enjoy the time they had with me and that I would be lucky to live to age 12 (I was really sick when I was diagnosed).

Then when I hit 12 my mom said what next and they said enjoy the time you have with her - you'll be lucky to see her graduate high school.

I am now 24 and will be 25 this coming July.

Have a Great Day!
Lindsey
 
C

coltsfan715

New member
How old were you "SUPPOSED

When I was diagnosed at 1 yr old my parents were told to enjoy the time they had with me and that I would be lucky to live to age 12 (I was really sick when I was diagnosed).

Then when I hit 12 my mom said what next and they said enjoy the time you have with her - you'll be lucky to see her graduate high school.

I am now 24 and will be 25 this coming July.

Have a Great Day!
Lindsey
 
C

coltsfan715

New member
How old were you "SUPPOSED

When I was diagnosed at 1 yr old my parents were told to enjoy the time they had with me and that I would be lucky to live to age 12 (I was really sick when I was diagnosed).

Then when I hit 12 my mom said what next and they said enjoy the time you have with her - you'll be lucky to see her graduate high school.

I am now 24 and will be 25 this coming July.

Have a Great Day!
Lindsey
 
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