Hypertonic Saline (again)

[etabetac]

Sorry to repeat this topic but I couldn't find a recent one on hypertonic saline.

I participated in a study yesterday while at the dr's office (but not associated with my cf clinic) that involved hypertonic saline. They pretreated with albuterol and then I spent 21 minutes nebbing hypertonic saline. We did spirometry in between the different concentrations. I didn't get up a lot of sputum (but more than usual). But about 1 hour later I felt fabulous. Possibly better than I've ever felt before. I was disappointed to go to sleep even because I knew I wouldn't feel as good today. It even helped sinus congestion, I think. We only did up to 5% concentration. The person administering the protocol suggested that I'd see better results most likely at a higher concentration.

So my question is how do you get the Dr. to prescribe this wonderful elixir (or do I even need a prescription). I also don't have an ultrasonic nebulizer at home just the pulmoaide and a pari, would it be as effective with a regular nebulizer? Today has been a let down in comparison to how clear I felt yesterday. The hypertonic saline did bring my o2 sat down by a few percentage points but they said that's normal as the sputum coming up was blocking just slightly my ability to get oxygen. But once it was cleared out my o2 sat jumped up and I blew better spirometry than I have in years.

 

[etabetac]

Sorry to repeat this topic but I couldn't find a recent one on hypertonic saline.

I participated in a study yesterday while at the dr's office (but not associated with my cf clinic) that involved hypertonic saline. They pretreated with albuterol and then I spent 21 minutes nebbing hypertonic saline. We did spirometry in between the different concentrations. I didn't get up a lot of sputum (but more than usual). But about 1 hour later I felt fabulous. Possibly better than I've ever felt before. I was disappointed to go to sleep even because I knew I wouldn't feel as good today. It even helped sinus congestion, I think. We only did up to 5% concentration. The person administering the protocol suggested that I'd see better results most likely at a higher concentration.

So my question is how do you get the Dr. to prescribe this wonderful elixir (or do I even need a prescription). I also don't have an ultrasonic nebulizer at home just the pulmoaide and a pari, would it be as effective with a regular nebulizer? Today has been a let down in comparison to how clear I felt yesterday. The hypertonic saline did bring my o2 sat down by a few percentage points but they said that's normal as the sputum coming up was blocking just slightly my ability to get oxygen. But once it was cleared out my o2 sat jumped up and I blew better spirometry than I have in years.

 

[etabetac]

Sorry to repeat this topic but I couldn't find a recent one on hypertonic saline.

I participated in a study yesterday while at the dr's office (but not associated with my cf clinic) that involved hypertonic saline. They pretreated with albuterol and then I spent 21 minutes nebbing hypertonic saline. We did spirometry in between the different concentrations. I didn't get up a lot of sputum (but more than usual). But about 1 hour later I felt fabulous. Possibly better than I've ever felt before. I was disappointed to go to sleep even because I knew I wouldn't feel as good today. It even helped sinus congestion, I think. We only did up to 5% concentration. The person administering the protocol suggested that I'd see better results most likely at a higher concentration.

So my question is how do you get the Dr. to prescribe this wonderful elixir (or do I even need a prescription). I also don't have an ultrasonic nebulizer at home just the pulmoaide and a pari, would it be as effective with a regular nebulizer? Today has been a let down in comparison to how clear I felt yesterday. The hypertonic saline did bring my o2 sat down by a few percentage points but they said that's normal as the sputum coming up was blocking just slightly my ability to get oxygen. But once it was cleared out my o2 sat jumped up and I blew better spirometry than I have in years.

 

[etabetac]

Sorry to repeat this topic but I couldn't find a recent one on hypertonic saline.

I participated in a study yesterday while at the dr's office (but not associated with my cf clinic) that involved hypertonic saline. They pretreated with albuterol and then I spent 21 minutes nebbing hypertonic saline. We did spirometry in between the different concentrations. I didn't get up a lot of sputum (but more than usual). But about 1 hour later I felt fabulous. Possibly better than I've ever felt before. I was disappointed to go to sleep even because I knew I wouldn't feel as good today. It even helped sinus congestion, I think. We only did up to 5% concentration. The person administering the protocol suggested that I'd see better results most likely at a higher concentration.

So my question is how do you get the Dr. to prescribe this wonderful elixir (or do I even need a prescription). I also don't have an ultrasonic nebulizer at home just the pulmoaide and a pari, would it be as effective with a regular nebulizer? Today has been a let down in comparison to how clear I felt yesterday. The hypertonic saline did bring my o2 sat down by a few percentage points but they said that's normal as the sputum coming up was blocking just slightly my ability to get oxygen. But once it was cleared out my o2 sat jumped up and I blew better spirometry than I have in years.

 

[etabetac]

Sorry to repeat this topic but I couldn't find a recent one on hypertonic saline.

I participated in a study yesterday while at the dr's office (but not associated with my cf clinic) that involved hypertonic saline. They pretreated with albuterol and then I spent 21 minutes nebbing hypertonic saline. We did spirometry in between the different concentrations. I didn't get up a lot of sputum (but more than usual). But about 1 hour later I felt fabulous. Possibly better than I've ever felt before. I was disappointed to go to sleep even because I knew I wouldn't feel as good today. It even helped sinus congestion, I think. We only did up to 5% concentration. The person administering the protocol suggested that I'd see better results most likely at a higher concentration.

So my question is how do you get the Dr. to prescribe this wonderful elixir (or do I even need a prescription). I also don't have an ultrasonic nebulizer at home just the pulmoaide and a pari, would it be as effective with a regular nebulizer? Today has been a let down in comparison to how clear I felt yesterday. The hypertonic saline did bring my o2 sat down by a few percentage points but they said that's normal as the sputum coming up was blocking just slightly my ability to get oxygen. But once it was cleared out my o2 sat jumped up and I blew better spirometry than I have in years.

 

[blindhearted]

yes, you do need a prescription. talk to your CF clinic about it. It's been approved for CF Treatment so your CF center should know about it. Talk to them and see what they say. It should be okay to use with Pulmo-Aide compressor, I believe the Pari neb is okay to, but I'm not sure. Do a search on HS or Hypertonic and some result should come up. Unfortunatly, I did not have good results with HS. Which was very disappointing, but overall, most CFers have had great results with it.

 

[blindhearted]

yes, you do need a prescription. talk to your CF clinic about it. It's been approved for CF Treatment so your CF center should know about it. Talk to them and see what they say. It should be okay to use with Pulmo-Aide compressor, I believe the Pari neb is okay to, but I'm not sure. Do a search on HS or Hypertonic and some result should come up. Unfortunatly, I did not have good results with HS. Which was very disappointing, but overall, most CFers have had great results with it.

 

[blindhearted]

yes, you do need a prescription. talk to your CF clinic about it. It's been approved for CF Treatment so your CF center should know about it. Talk to them and see what they say. It should be okay to use with Pulmo-Aide compressor, I believe the Pari neb is okay to, but I'm not sure. Do a search on HS or Hypertonic and some result should come up. Unfortunatly, I did not have good results with HS. Which was very disappointing, but overall, most CFers have had great results with it.

 

[blindhearted]

yes, you do need a prescription. talk to your CF clinic about it. It's been approved for CF Treatment so your CF center should know about it. Talk to them and see what they say. It should be okay to use with Pulmo-Aide compressor, I believe the Pari neb is okay to, but I'm not sure. Do a search on HS or Hypertonic and some result should come up. Unfortunatly, I did not have good results with HS. Which was very disappointing, but overall, most CFers have had great results with it.

 

[blindhearted]

yes, you do need a prescription. talk to your CF clinic about it. It's been approved for CF Treatment so your CF center should know about it. Talk to them and see what they say. It should be okay to use with Pulmo-Aide compressor, I believe the Pari neb is okay to, but I'm not sure. Do a search on HS or Hypertonic and some result should come up. Unfortunatly, I did not have good results with HS. Which was very disappointing, but overall, most CFers have had great results with it.

 

[AnD]

I do 7% HS in a Pari LC+ with my Pari Proneb in the morning -and 3% most nights- it works fine. It is great stuff- I do feel better when I do mine- it's like I get up all the crud I usually spend the whole day coughing up in one treatment <img src="i/expressions/face-icon-small-smile.gif" border="0"> . I get mine from CF Services, and it's called HyperSal, made by Pari. You have to have a prescription, and you have to ask for it by name brand. I used to mix my own out of 10% and .9(?)%, but I haven't been able to get the 10% for a while now. With my copay, it is cheaper to mix it myself, but oh well...Glad it helped you so much, and good luck with it!

 

[AnD]

I do 7% HS in a Pari LC+ with my Pari Proneb in the morning -and 3% most nights- it works fine. It is great stuff- I do feel better when I do mine- it's like I get up all the crud I usually spend the whole day coughing up in one treatment <img src="i/expressions/face-icon-small-smile.gif" border="0"> . I get mine from CF Services, and it's called HyperSal, made by Pari. You have to have a prescription, and you have to ask for it by name brand. I used to mix my own out of 10% and .9(?)%, but I haven't been able to get the 10% for a while now. With my copay, it is cheaper to mix it myself, but oh well...Glad it helped you so much, and good luck with it!

 

[AnD]

I do 7% HS in a Pari LC+ with my Pari Proneb in the morning -and 3% most nights- it works fine. It is great stuff- I do feel better when I do mine- it's like I get up all the crud I usually spend the whole day coughing up in one treatment <img src="i/expressions/face-icon-small-smile.gif" border="0"> . I get mine from CF Services, and it's called HyperSal, made by Pari. You have to have a prescription, and you have to ask for it by name brand. I used to mix my own out of 10% and .9(?)%, but I haven't been able to get the 10% for a while now. With my copay, it is cheaper to mix it myself, but oh well...Glad it helped you so much, and good luck with it!

 

[AnD]

I do 7% HS in a Pari LC+ with my Pari Proneb in the morning -and 3% most nights- it works fine. It is great stuff- I do feel better when I do mine- it's like I get up all the crud I usually spend the whole day coughing up in one treatment <img src="i/expressions/face-icon-small-smile.gif" border="0"> . I get mine from CF Services, and it's called HyperSal, made by Pari. You have to have a prescription, and you have to ask for it by name brand. I used to mix my own out of 10% and .9(?)%, but I haven't been able to get the 10% for a while now. With my copay, it is cheaper to mix it myself, but oh well...Glad it helped you so much, and good luck with it!

 

[AnD]

I do 7% HS in a Pari LC+ with my Pari Proneb in the morning -and 3% most nights- it works fine. It is great stuff- I do feel better when I do mine- it's like I get up all the crud I usually spend the whole day coughing up in one treatment <img src="i/expressions/face-icon-small-smile.gif" border="0"> . I get mine from CF Services, and it's called HyperSal, made by Pari. You have to have a prescription, and you have to ask for it by name brand. I used to mix my own out of 10% and .9(?)%, but I haven't been able to get the 10% for a while now. With my copay, it is cheaper to mix it myself, but oh well...Glad it helped you so much, and good luck with it!

 

[Alyssa]

Yes, we have found it to be pretty great stuff as well.

My daughter mixes her own concentration with 10% and 3%.. I think she usually ends up with something between 5% to 7% depending on how she feels.

My son is on straight 7% mixed by the pharmacy.

They both use the Pulmo-aid machine with the Pari-LC cups.

Ditto to the other posts -- you need an Rx but it shouldn't be too difficult to get it from you CF doc... it's become quite standard most places now (I would think anyway)

 

[Alyssa]

Yes, we have found it to be pretty great stuff as well.

My daughter mixes her own concentration with 10% and 3%.. I think she usually ends up with something between 5% to 7% depending on how she feels.

My son is on straight 7% mixed by the pharmacy.

They both use the Pulmo-aid machine with the Pari-LC cups.

Ditto to the other posts -- you need an Rx but it shouldn't be too difficult to get it from you CF doc... it's become quite standard most places now (I would think anyway)

 

[Alyssa]

Yes, we have found it to be pretty great stuff as well.

My daughter mixes her own concentration with 10% and 3%.. I think she usually ends up with something between 5% to 7% depending on how she feels.

My son is on straight 7% mixed by the pharmacy.

They both use the Pulmo-aid machine with the Pari-LC cups.

Ditto to the other posts -- you need an Rx but it shouldn't be too difficult to get it from you CF doc... it's become quite standard most places now (I would think anyway)

 

[Alyssa]

Yes, we have found it to be pretty great stuff as well.

My daughter mixes her own concentration with 10% and 3%.. I think she usually ends up with something between 5% to 7% depending on how she feels.

My son is on straight 7% mixed by the pharmacy.

They both use the Pulmo-aid machine with the Pari-LC cups.

Ditto to the other posts -- you need an Rx but it shouldn't be too difficult to get it from you CF doc... it's become quite standard most places now (I would think anyway)

 

[Alyssa]

Yes, we have found it to be pretty great stuff as well.

My daughter mixes her own concentration with 10% and 3%.. I think she usually ends up with something between 5% to 7% depending on how she feels.

My son is on straight 7% mixed by the pharmacy.

They both use the Pulmo-aid machine with the Pari-LC cups.

Ditto to the other posts -- you need an Rx but it shouldn't be too difficult to get it from you CF doc... it's become quite standard most places now (I would think anyway)