Has it been suggested by any of your doctors to start your infant on hypertonic saline treatments? I know there is currently a study being conducted regarding safety in infants - the issue being wether or not they can tolerate it as it can be irritating to their already smaller airways. Our CF doctor is against it but hasn't given a specific age that he feels is appropriate/safe. From my understanding, the earlier you start, the better (i.e., less damage to the cilia and less accumulation of mucus has occurred if you start early). Just wanted your thoughts...if your child is using hypertonic saline, how old were they when they started?
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Hypertonic Saline and Infant
- Thread starter kitomd21
- Start date
Has it been suggested by any of your doctors to start your infant on hypertonic saline treatments? I know there is currently a study being conducted regarding safety in infants - the issue being wether or not they can tolerate it as it can be irritating to their already smaller airways. Our CF doctor is against it but hasn't given a specific age that he feels is appropriate/safe. From my understanding, the earlier you start, the better (i.e., less damage to the cilia and less accumulation of mucus has occurred if you start early). Just wanted your thoughts...if your child is using hypertonic saline, how old were they when they started?
Has it been suggested by any of your doctors to start your infant on hypertonic saline treatments? I know there is currently a study being conducted regarding safety in infants - the issue being wether or not they can tolerate it as it can be irritating to their already smaller airways. Our CF doctor is against it but hasn't given a specific age that he feels is appropriate/safe. From my understanding, the earlier you start, the better (i.e., less damage to the cilia and less accumulation of mucus has occurred if you start early). Just wanted your thoughts...if your child is using hypertonic saline, how old were they when they started?
Has it been suggested by any of your doctors to start your infant on hypertonic saline treatments? I know there is currently a study being conducted regarding safety in infants - the issue being wether or not they can tolerate it as it can be irritating to their already smaller airways. Our CF doctor is against it but hasn't given a specific age that he feels is appropriate/safe. From my understanding, the earlier you start, the better (i.e., less damage to the cilia and less accumulation of mucus has occurred if you start early). Just wanted your thoughts...if your child is using hypertonic saline, how old were they when they started?
Has it been suggested by any of your doctors to start your infant on hypertonic saline treatments? I know there is currently a study being conducted regarding safety in infants - the issue being wether or not they can tolerate it as it can be irritating to their already smaller airways. Our CF doctor is against it but hasn't given a specific age that he feels is appropriate/safe. From my understanding, the earlier you start, the better (i.e., less damage to the cilia and less accumulation of mucus has occurred if you start early). Just wanted your thoughts...if your child is using hypertonic saline, how old were they when they started?
Maggie startes Hypertonic saline when she was a little over 4 years old(if I remember correctly). I had brought the idea up to our CF doc a year prior and he was against it cause he wanted to hear what was being said about it at the CF conference. Then Maggie had a yucky cough and I asked what can we do about this cough, and he added the HTS and she's been on it since. It would be ideal to be able to do PFT's before and after the HTS to see how it's being tolerated and what difference it makes but Maggie was not doing PFT's at the time. Maggie has not needed her "hard core" antibiotics since she's been on the HTS. But it did make her cough ALOT the first month, she called it her bad air medicine for a while; it irritated the outside of her nose for a while as well. Now, The HTS makes her cough when she's coming down with something. That's our experience; I know nothing about infants and HTS.
Maggie startes Hypertonic saline when she was a little over 4 years old(if I remember correctly). I had brought the idea up to our CF doc a year prior and he was against it cause he wanted to hear what was being said about it at the CF conference. Then Maggie had a yucky cough and I asked what can we do about this cough, and he added the HTS and she's been on it since. It would be ideal to be able to do PFT's before and after the HTS to see how it's being tolerated and what difference it makes but Maggie was not doing PFT's at the time. Maggie has not needed her "hard core" antibiotics since she's been on the HTS. But it did make her cough ALOT the first month, she called it her bad air medicine for a while; it irritated the outside of her nose for a while as well. Now, The HTS makes her cough when she's coming down with something. That's our experience; I know nothing about infants and HTS.
Maggie startes Hypertonic saline when she was a little over 4 years old(if I remember correctly). I had brought the idea up to our CF doc a year prior and he was against it cause he wanted to hear what was being said about it at the CF conference. Then Maggie had a yucky cough and I asked what can we do about this cough, and he added the HTS and she's been on it since. It would be ideal to be able to do PFT's before and after the HTS to see how it's being tolerated and what difference it makes but Maggie was not doing PFT's at the time. Maggie has not needed her "hard core" antibiotics since she's been on the HTS. But it did make her cough ALOT the first month, she called it her bad air medicine for a while; it irritated the outside of her nose for a while as well. Now, The HTS makes her cough when she's coming down with something. That's our experience; I know nothing about infants and HTS.
Maggie startes Hypertonic saline when she was a little over 4 years old(if I remember correctly). I had brought the idea up to our CF doc a year prior and he was against it cause he wanted to hear what was being said about it at the CF conference. Then Maggie had a yucky cough and I asked what can we do about this cough, and he added the HTS and she's been on it since. It would be ideal to be able to do PFT's before and after the HTS to see how it's being tolerated and what difference it makes but Maggie was not doing PFT's at the time. Maggie has not needed her "hard core" antibiotics since she's been on the HTS. But it did make her cough ALOT the first month, she called it her bad air medicine for a while; it irritated the outside of her nose for a while as well. Now, The HTS makes her cough when she's coming down with something. That's our experience; I know nothing about infants and HTS.
Maggie startes Hypertonic saline when she was a little over 4 years old(if I remember correctly). I had brought the idea up to our CF doc a year prior and he was against it cause he wanted to hear what was being said about it at the CF conference. Then Maggie had a yucky cough and I asked what can we do about this cough, and he added the HTS and she's been on it since. It would be ideal to be able to do PFT's before and after the HTS to see how it's being tolerated and what difference it makes but Maggie was not doing PFT's at the time. Maggie has not needed her "hard core" antibiotics since she's been on the HTS. But it did make her cough ALOT the first month, she called it her bad air medicine for a while; it irritated the outside of her nose for a while as well. Now, The HTS makes her cough when she's coming down with something. That's our experience; I know nothing about infants and HTS.
My son started HS at about 2 and a half yrs. old at my request. He has tolerated it well and while I can't prove anything I think it's really helped his health. It makes him cough productively when he is sick and junky and nothing prior to it had. When he is not sick it may get one or two small dry coughs but he doesn't seem bothered by it.
My son started HS at about 2 and a half yrs. old at my request. He has tolerated it well and while I can't prove anything I think it's really helped his health. It makes him cough productively when he is sick and junky and nothing prior to it had. When he is not sick it may get one or two small dry coughs but he doesn't seem bothered by it.
My son started HS at about 2 and a half yrs. old at my request. He has tolerated it well and while I can't prove anything I think it's really helped his health. It makes him cough productively when he is sick and junky and nothing prior to it had. When he is not sick it may get one or two small dry coughs but he doesn't seem bothered by it.
My son started HS at about 2 and a half yrs. old at my request. He has tolerated it well and while I can't prove anything I think it's really helped his health. It makes him cough productively when he is sick and junky and nothing prior to it had. When he is not sick it may get one or two small dry coughs but he doesn't seem bothered by it.
My son started HS at about 2 and a half yrs. old at my request. He has tolerated it well and while I can't prove anything I think it's really helped his health. It makes him cough productively when he is sick and junky and nothing prior to it had. When he is not sick it may get one or two small dry coughs but he doesn't seem bothered by it.
I found out about HTS on my own when living at the beach for five weeks during the summer of '07. I could tell I was coughing up stuff unusual amounts of stuff while playing with my kids in the sand. I finally googled ocean and lungs and found the Australian surfers-with-CF study. I came home and told my pulmonologist and at first he scoffed, but then he wrote the script for saline and the rest is history.
My point is that I find the ocean air saltier and more effective than HTS. Plenty of babies spend time at the beach, and if they have CF, I be they do better than usual.
I would guess that it is worth trying the HTS on your child...maybe 3% at first...maybe letting fill the room rather than strapped to her face at first as well.
Best wishes.
My point is that I find the ocean air saltier and more effective than HTS. Plenty of babies spend time at the beach, and if they have CF, I be they do better than usual.
I would guess that it is worth trying the HTS on your child...maybe 3% at first...maybe letting fill the room rather than strapped to her face at first as well.
Best wishes.
I found out about HTS on my own when living at the beach for five weeks during the summer of '07. I could tell I was coughing up stuff unusual amounts of stuff while playing with my kids in the sand. I finally googled ocean and lungs and found the Australian surfers-with-CF study. I came home and told my pulmonologist and at first he scoffed, but then he wrote the script for saline and the rest is history.
My point is that I find the ocean air saltier and more effective than HTS. Plenty of babies spend time at the beach, and if they have CF, I be they do better than usual.
I would guess that it is worth trying the HTS on your child...maybe 3% at first...maybe letting fill the room rather than strapped to her face at first as well.
Best wishes.
My point is that I find the ocean air saltier and more effective than HTS. Plenty of babies spend time at the beach, and if they have CF, I be they do better than usual.
I would guess that it is worth trying the HTS on your child...maybe 3% at first...maybe letting fill the room rather than strapped to her face at first as well.
Best wishes.
I found out about HTS on my own when living at the beach for five weeks during the summer of '07. I could tell I was coughing up stuff unusual amounts of stuff while playing with my kids in the sand. I finally googled ocean and lungs and found the Australian surfers-with-CF study. I came home and told my pulmonologist and at first he scoffed, but then he wrote the script for saline and the rest is history.
My point is that I find the ocean air saltier and more effective than HTS. Plenty of babies spend time at the beach, and if they have CF, I be they do better than usual.
I would guess that it is worth trying the HTS on your child...maybe 3% at first...maybe letting fill the room rather than strapped to her face at first as well.
Best wishes.
My point is that I find the ocean air saltier and more effective than HTS. Plenty of babies spend time at the beach, and if they have CF, I be they do better than usual.
I would guess that it is worth trying the HTS on your child...maybe 3% at first...maybe letting fill the room rather than strapped to her face at first as well.
Best wishes.
I found out about HTS on my own when living at the beach for five weeks during the summer of '07. I could tell I was coughing up stuff unusual amounts of stuff while playing with my kids in the sand. I finally googled ocean and lungs and found the Australian surfers-with-CF study. I came home and told my pulmonologist and at first he scoffed, but then he wrote the script for saline and the rest is history.
My point is that I find the ocean air saltier and more effective than HTS. Plenty of babies spend time at the beach, and if they have CF, I be they do better than usual.
I would guess that it is worth trying the HTS on your child...maybe 3% at first...maybe letting fill the room rather than strapped to her face at first as well.
Best wishes.
My point is that I find the ocean air saltier and more effective than HTS. Plenty of babies spend time at the beach, and if they have CF, I be they do better than usual.
I would guess that it is worth trying the HTS on your child...maybe 3% at first...maybe letting fill the room rather than strapped to her face at first as well.
Best wishes.
I found out about HTS on my own when living at the beach for five weeks during the summer of '07. I could tell I was coughing up stuff unusual amounts of stuff while playing with my kids in the sand. I finally googled ocean and lungs and found the Australian surfers-with-CF study. I came home and told my pulmonologist and at first he scoffed, but then he wrote the script for saline and the rest is history.
<br />My point is that I find the ocean air saltier and more effective than HTS. Plenty of babies spend time at the beach, and if they have CF, I be they do better than usual.
<br />I would guess that it is worth trying the HTS on your child...maybe 3% at first...maybe letting fill the room rather than strapped to her face at first as well.
<br />Best wishes.
<br />My point is that I find the ocean air saltier and more effective than HTS. Plenty of babies spend time at the beach, and if they have CF, I be they do better than usual.
<br />I would guess that it is worth trying the HTS on your child...maybe 3% at first...maybe letting fill the room rather than strapped to her face at first as well.
<br />Best wishes.