I just don't know what to do
Is it only with the tube feeding that she is getting the reflux or is it with regular meals as well?
Not sure what you are giving her through the tube, but maybe the CF center can recommend something different.
I know that when we first had the tube for DS, he would vomit from time to time (5 months at the time) when the formula would be too strong or when we gave him too much or when it went too fast into his tummy. I think that it might take her time to build up to taking more in, more time for her tummy to stretch.
Just my thoughts, but HTH.
Hoping that things get better, and I would definitely not take the tube out quite yet <img src="i/expressions/face-icon-small-smile.gif" border="0"> Wouldn't want to have another surgery <img src="i/expressions/face-icon-small-sad.gif" border="0">
Is it only with the tube feeding that she is getting the reflux or is it with regular meals as well?
Not sure what you are giving her through the tube, but maybe the CF center can recommend something different.
I know that when we first had the tube for DS, he would vomit from time to time (5 months at the time) when the formula would be too strong or when we gave him too much or when it went too fast into his tummy. I think that it might take her time to build up to taking more in, more time for her tummy to stretch.
Just my thoughts, but HTH.
Hoping that things get better, and I would definitely not take the tube out quite yet <img src="i/expressions/face-icon-small-smile.gif" border="0"> Wouldn't want to have another surgery <img src="i/expressions/face-icon-small-sad.gif" border="0">