I just want everyone to make the best informed decision possible

Scarlett81

New member
Emilee i think it's very nice of you to be so peacable.
I didn't think that you were attacking SeanD at all. You were sharing some info. And most of us appreciate that.

To SD and everyone for that matter: The bottom line is some things work for some bodies, and don't for others. Like what someone was saying about Echinacea doing nothing good for them-well it works well for me. B/c it's a completely different body system maybe.
My mother takes this veggie shake every morning- I tried it for a month-I felt no different at all. She can't get through her day if she doesn't take it. People's bodies are all different.
The real issue here is safety. I even feel a little better about orally taking a supplement, than inhaling one into my delicate lungs. Especially one than we don't know too much about long term effects. Sorry-all I can picture is sticky oil sitting in my lungs for years, and accumulating.

That being said- I think it's very kind of SD to offer his experience on Oils. HE is doing it with no other motive than trying to be helpful.

I do say that with caution b/c honestly-I had no idea up until like 2 weeks ago that it was supposed to be Water Soluble Oil you were inhaling. Now-again- if a person reads something here, and then runs out and does it without really knowing about it, it could be detrimental! I think we should be very careful in reccomending things.

And I think we should give each other the benefit of the doubt too, guys.
 

anonymous

New member
I apprieciate all of Sean's posts as well as Emilee's note. I was sorry to see this get derailed. Please continue to share these things it is helpful to everyone. Here's to one day us all having healthy lungs and poops!!
 

anonymous

New member
SeanDavis

I am one of your biggest fans. You know why? Not because I want to take OO. Because you are trying to help others. You may come off a little pushy at times, but that's because you are passionate about the OO and what it has done for you. That's what happens when someone has a passion - they become a frothing fanatic about it.

Heck, there are others on this board who have passions. It could be Julie with her male infertility web site. Or maybe some of the moms and their kids. Ask them about they passion and they are going to go on about it endlessly. Nothing wrong with that. It's a good thing, I think.

Wanting to help others and share your success is not something you should walk away from. Sure some people wont' take the OO for many different reasons. As you always say "fine, it's your decision." But don't stop sharing your success. Don't give up. And if it turns out that the OO wasn't as good as you tought, I am sure you would share that too. That's just the kind of person you are. Honest.

Don't let a few whiners get you down. If they don't want to read about OO, they can just avoid those threads. Duh. Pretty simple if you ask me. If they think you are too pushy, then just don't read the threads. Don't reply to them. Simple as that.

It's nice that Emilee shared her doctor's side of the OO. Another great example of sharing. And you didn't complain about her sharing. You just disagreed with some of the doctor's comments. What's wrong with that? Nothing.
 

Seana30

New member
Sean,

I am surpised by your last post!!

You seem like such a level headed person and you did not listen to what people were saying.

Everyone that said they will not try the OO oil also stated that they have been and will remain interested in your results.

I hope you keep posting and let us know how it is going.


Seana
 

PeterC

New member
Hello everyone! I thought it was time for me to introduce myself and get involved a bit. I am a 57 year old man with CF diagnosed at the age of eight. I am in relatively good health considering all I have gone through since birth. My health has played a major role in determining my life decisions and direction. I am not sure why I am still alive and doing so well but I do know that it has a lot to do with fear.
I have been reading posts on this site on and off for several months and I am struck by the fact that so many people are so passionately involved in the many issues regarding CF.
I am especially grateful to people like Sean Davis who has so bravely shared his experiences and enthusiasm with the world! Sean, when you began posting info about yourself and your use of alternative therapies you opened yourself up to criticism and attack. The rebels and nonconformists in this world are always criticized. Most people do not have the guts to stand up and gamble on something that is not accepted in the mainstream. The pioneers of the world have all been subjected to all sorts of attacks.
Your value in this quest for a cure for CF is immeasurable in my opinion. You have demonstrated a high level of concern and care in your attempt to get the word out about your experience. You have given me a new outlook on things and I am grateful for that! So keep on keeping on!!!
My main reason for finally posting on this site is to possibly bring a different perspective to life with CF (really to life in general).
Getting back to the fear.... I say I am alive today because of the role fear has played because it is true!
When I was a child growing up in a family of nine, I, along with my younger brother Joseph, was diagnosed with CF. Very little was known about it at the time except that there was no cure and you seldom lived beyond the age of 12.
Even at the age of four my brother understood that the news was not good.
So on the advice of the medical doctors and various specialists my parents set out on the uncertain road of taking care of two children with CF and trying at the same time to do a good job of raising five other healthy children.
Joe and I did all the recommended meds and therapies religiously! I was in and out of the hospital often with pneumonia and other complications since birth. Joe stayed healthy enough to stay out of the hospital until the age of 21 when he started to have serious problems. He died at the age of 22 of heart failure.
Where the fear comes in is how my parents, my primary care givers, dealt with the situation. My Mom was very fearful about just about anything having to do with my health, making sure I did my meds and treatments as needed, keeping my doctors appointments, keeping me away from any activity that might put me at risk. I was a fragile child after all! My Dad on the otherhand was too busy earning a living trying to support a family of nine to get so emotionally involved.
Anyway, my life progressed, I graduated from high school, I went to college, I got various jobs, I found a girlfriend and I got an apartment along with the usual trappings of a successful adult, meanwhile dealing with countless lung infections, collapses and other health problems and somehow keeping my head above water.
All this time I lived in the culture of Cystic Fibrosis. It had me-I didn't have it!!
As I grew older the whole question of my existence became more pressing because of several scary experiences, mainly lung collapses and bleeds. At the time I was taking a ton of meds and life was becoming more limiting.
And then at the age of 29 I realized that I had never really taken responsibility for my own health, that I had left it all up to my parents, my doctors and a great deal of luck to pull me through. I was either a victim or the benificiary of circumstances. I gave my power as a human being away to others. It was a responsibility I had no business giving to them because it was mine alone!
I won't go into much detail here but I will say that the realization that I could take responsibility for my health opened up my life to countless possibilities. I started to read about what was currently known about CF. I learned that good nutrition could play a major role in how the disease progresses. I learned that constant use of antibiotics can interfere with the normal function of the immune system. I learned that physical activity should improve the health of someone with CF. I learned that exposure to polutants and other airborn toxins can and do hinder the function of healthy lungs let alone compromised lungs. I learned that having a spiritual life can bring comfort and peace at a time of crisis and it can also bring unexpected healing as well.
Within a year and a half I, with the guidance and support of my doctor, was taken off all but a couple of meds and I was able to live a very normal life, with the use of good nutrition, exercise and several alternative health practices and a lot of good sense.
I did not learn all of these things overnight but I did learn enough at the age of 29 to set me on a different path of health care that I still follow today some 28 years later.
I am open to my being in good health no matter when or how it happens. If I get sick my belief is that I can recover from it quickly. I can find something to do or not do to help the situation. I believe that taking a nap, eating food I know makes me feel better or taking a walk or praying for healing can all help. I believe that I can feel better in the next day or week or hour or even the next minute. I am not foolish about this. I know that if I get too sick it is time to see the Doctor and at least get a diagnosis. If his advice feels right to me I follow it. Taking antibiotics or being hospitalized is not out of the question. (I have only been hospitalized once in 1978 for a cleanout). I am open to the possibility of feeling better at any moment. I believe that taking full responsibility for one's own health and health care is the only way to have peace about it.
Young children need responsible parents to guide them along. Trusting Doctors to do their best is essential! Having faith that you are doing the best you can for your kids is most important. My parents obviously did some things just right otherwise I would not still be here. Who knows if I would be alive today if it had not been for their efforts.
I do know that my folks, especially my Mom, did make some mistakes. My mother being too fearful to let me participate in sports or do anything strenuous. My Dad being so busy making a living and needing more family income to notice that the job he found for me was dangerous to my health. (working in a plastics factory). They were both overwhelmed with the jobs they had to do. I know they did the best they could!!
So in closing I can say that I indeed based all of my decisions until I was 29 on fear! After that point I relaxed a great deal and started making decisions based on good sense and being educated about what it is I wanted to accomplish. I encourage all of you that do or don't have health problems to deal with, that if you have not already taken full responsibility for your health care and your life in general, to do so today. Stop seeing yourself as a victim!! Start to explore the possibility that you have what it takes to make progress towards a more fulfilling and satisfying life. You will never regret it!!!

Sincerely:
PeterC 57 m/cf

P.S. There is more to this story as you can imagine, so write to me if you have any questions!
My email address is campanale@spire.com
 

Seana30

New member
Peter,

You sound like a wonderful man and your story was inspiring!

Hope to talk with you more!

Seana

mom to

Lauren-15, no CF
Courtney-13, with CF
Cameron-10, no CF
 

Scarlett81

New member
What a wonderful story. Thank you so much for sharing, and please keep updating if you think of any other specific things that could help us.
I agree also with the spiritual help. I am a very spiritual person too. And have been through alot from an early childhood, besides my CF. And people always marvel at how "normal" I seem to be, and I attribute it all to my spirituality. I think this has also played a huge part in my physical illness.
Thanks for sharing your perspective!
 

CowTown

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>SeanDavis</b></i>

I wish the best for you guys, and I actually hope i'm wrong. I mean, if you are found to be wrong, you are just wrong. If you are found to be even somewhat correct by accident, who cares. All I ever wanted to do by presenting my findings and how I felt afterwards, was to help others.

I seriously have no idea what else to say. I've tapped the vein till it's bone dry. Even though I have spent countless hours doing my own research, applied my findings to my own life, and benefitted...I seriously don't want to ever talk about oregano oil ever again. I've done my part, i've discussed what I could. I will continue to use this substance. I now fully understand why Carl Marx had the thoughts that he had.

Just please leave me alone and never refer to me in any way regarding oregano oil, essential oils, monolaurin, or supplements in general. I give up.</end quote></div>



Hi Sean, I must say I'm almost stunned that you just said this. I asked myself, why would SD be so upset about others feeling concerned about taking OO? I just didn't get it especially since day one, you've just wanted to *help others*. Was there an underlying expectation on your part that everyone would start to take OO? It certainly never sounded like there was, but your defensivness made me wonder. As you can tell from all these posts, you seem to have taken everything the wrong way or something. You are a leader, you have become someone on this site who people turn to with respect and knowledge of the more unknown supplemental world. You obvioulsy have given a ton of people hope, and obviously have raised a ton of people's curiosity about OO. That's what you wanted wasn't it? You didn't expect for *everyone* to jump on the bandwagon and actually do it, did you? You've brought new alternative knowledge to all of us, that no one can deny and that's awesome! I think you just had a brain fart or something to think that "I've done my part, i've discussed what I could.... and never refer to me in any way regarding oregano oil, essential oils, monolaurin, or supplements in general. I give up." That's pretty darn bizarre to hear from you. It's ridiculous to be honest with you.

You might have a bone to pick with doctors in general (I can fully understand that), but I don't believe you have a bone to pick with any CFers here that are trying to learn more and process all this new information and gauge whether it'll jive with their system or not. Why give up? Was it your mission to make everyone do it? No, it was your passion to help others be aware and see a new perpsective and possibly something new that could help. To each is own. Peace.
 

anonymous

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>SeanDavis</b></i>

I now fully understand why Carl Marx had the thoughts that he had.</end quote></div>

Me too. Religion IS the origanum of the people.

Q
 

Faust

New member
"I think you just had a brain fart or something to think that "I've done my part, i've discussed what I could.... and never refer to me in any way regarding oregano oil, essential oils, monolaurin, or supplements in general."


I wasn't going to respond on this matter further because I felt I got my point across, but since you are directly inquiring:

I didn't have any issue with the principle behind a "Hey look what my doctor/pharmacist/whoever involved in medicine said about oil of oregano, and he thinks it's very bad to do it" post. The man is obviously much more educated than me just by him being a doctor, he "know's much more" than me in many ways. I suppose I finally "snaped" so to speak, after showing countless reputable sources involving research on the substance, what it has been shown to do, and how it operates, so much so i'm sure a few posters dogs can probably recite what i've related, and the content of that doctors email, several parts of it were totally incorrect. Weak inhibition towards pseudo and bacteria in general? There were many published research stating otherwise, and one or two articles in scientific journals actually stating that it was as strong against bacteria or more so than vancomycin, the uber nuclear weapon vs bacteria. Chemical pneumonia (lipoidal pneumonia) related to it's inhalation? It's a long shot considering I was on the regular oil before I did the water soluble oil for a good chunk of time (3-4 months?), as many others were as well, and people that corresponded with me only responded positive results, but ok, i'll say that it could be possible with regards to the standard oil of oregano. But lipoidal pneumonia via wikipedia only mentioned the condition attributed to "oil", or toxins. This oil they are refering to, are they speaking of just petroleum based oil products, or did they hold down some people and make them inhale purified plant essential oils in a test group (with a carrier base of purified virgin olive oil, something we injest all the time I should add)? I would think the most feasible explanation for lipoidal pneumonia would be more in the realm of workers in the solvent and general petroleum industry via inhalation.

As for it's buildup, at what point would a medical professional come to the conclusion that the obvious benefits far outweigh the risks time wise? Would that also mean they advocate continual PFT/lung health decline via conventional CF treatment over say, me thriving for 20+ potential years doing what i'm doing now, but with potential (possibly totally unfounded) risk of having the substance build up within my lungs? What about the cessation of nearly all my symptoms of my terminal disease via what i'm doing now as opposed to before I was using the substance?

As for the other issue where his argument has some merit, is the aspect of the purity of the product. I can't fully guarantee that there aren't some form of microbes within anything, unless I was able to exam every bottle with home equipment and training to do so. But judging by the properties of the substance itself, and the track record of the company that makes the only brand I inhale, I would doubt there is anything in it that would cause me any real concern...Considering I more than likely acquired two new bugs from the hospital, hospitals are much more dangerous theorhetically than the inhalation of oregano oil.

One of his main points is totally eliminated by only nebulizing the pure water soluble form of the product.

I could sit here as a layman and tear a part many points that he brought up in his correspondence, but what is the point? After over 1000 posts by myself, with tons of scientific research shared for everyone, there are still people (including doctors) that think i'm full of s*it, so why bother?


As for why I snapped, i've put a ton of time and energy into trying to educate others on here and another site, atleast two different CF based foundations, and others with chronic illnesses about the very likely benefits of the substance to help them. I have repeated myself countless times (which I honestly didn't mind, though sometimes the inquiry was answered on the same page the question was posted before they asked the question). And then to run into correspondence from a doctor where several points in the email seemed to be completely incorrect, and for a stance to seemingly be taken of "See guys, I'm not too sure", can be very frustrating, and everyone eventually has their breaking point.

And to anyone who refers to me as a "pusher", be thankful we are separated by the internet, because I view that as a very deliberate insult, one that if it were brought upon me in person, I could very well react in a pretty ungentlemanly manner.

I was never a "pusher". I'm just a healthy disabled CF patient that saw what something did for me, did my own research, and continued to find more and more reason why I should be doing what I was starting to do. As someone else mentioned, they realized it was my enthusiasm to potentially help others like I was helped, and no underlying ulterior motives were involved.


Anyone would want to shove flaming pokers into their brain if they illustrated through many sources that the sky does appear to be blue, and then are frequently met with a perspective of "Well I dunno if the sky is blue dude".


I finally came to the conclusion that while i'd love to see everyone give the substance a try, and see how they do, and would rejoice if they all had similar responses like I did, as opposed to being on the same destructive sick/nuke/sick/nuke standard CF care regimen, and lives could potentially be saved, it's probably not worth it to my mental health to pursue spreading the information around anymore. That letter, especially due to it coming from a health professional, was kind of the straw that broke the camels back for me.


I love helping others and want others with CF and other chronic illnesses that this substance could help to do much better, but i'm also not a mental masochist that gets off on being the focus of skeptics, and repeating my perspective to others who might think i'm a snake oil salesman till I have calouses on my finger tips.


I get nothing from this besides knowing I might have possibly helped save some lives, or atleast improve the quality of life for others. I put the message and means to learn more out there for everyone to pursue, if they choose not to, that's up to them, if they choose to, that's up to them also. Reading Jazzysmom's response just kind of reaffirmed some of my previous beliefs that while we no longer have predators in a physical sense, the thinning of the herd still takes place by other means, and theres nothing I can do about it.

I think in the scheme of things, I have helped quite a few people just with my passionate showing of my experiences and the research surround the substance. There is nothing I can further do when fundamental principles of the substance are even debated by a medical professional, and frankly, I don't want to lose my hair at 35, or claw my eyes out due to my information either being scorned or totally not absorbed.
 

kybert

New member
just to clarify, when i said pusher i was not reffering to you sean. i thought that would be obvious seeing as i clearly stated twice that is was in reference to people pressuring others to overdose on gsh.

1. <div class="FTQUOTE"><begin quote>*thinks back to gsh 'pushers' saga*</end quote></div>

2. <div class="FTQUOTE"><begin quote>"oh no honey, you have explosive diarrhea because your planets arent aligned. it has nothing to do with the 10000 mgs of gsh you are taking!"</end quote></div>
 

LouLou

New member
I don't usually get into the squabble posts on here. But this one I feel I better. I've never ever thought Sean was being pushy about OO or any other supplement. His openminded nature about his own experience has brought others out to speak about their experience and research on natural remedies. Tom for example who has a wealth of information. I think it's totally normal that Sean acted a bit saddened about the news because he is personally hopeful for OO but remember he opened up his post with saying that it's always good to share what we find. I thought all of his points were sane. On the other hand I feel a post or two here have been very agressive and am surprised to see these people commenting like they are about Sean. So sad. He is such a pleasure to this site with his sense of humor and research. If it's a topic about supplements and you don't want to read it don't. I have learned so much from the natural posts on here. Like who knew that antibiotics deplete magnesium and many, many other things.
 

anonymous

New member
I hope SD takes Kybert's comments with a grain of salt. She tends to be a bit agressive with her responses at times. And it is a good idea to be cautious when trying any new treatment. SD has told of his experiences, and I am quite hopeful that OO may become part of a regular treatment option for cfers.
 

anonymous

New member
I also hope that SD does not let Melissa's response upset him. To be honest, I just tune her out when she gets like that. = /

SD has taken much time and effort to share his experiences. He does not just add comments like "the decision is up to you" or "this is my own experience" just for filler. He is making it very clear that he is not an OO pusher. For gosh sakes, he has said for day one that he just wants to help people.

If you have a problem with the whole OO topic then don't read the threads. No one is forcing this on you.

I hope that SD will continue to share his experiences with us. He has been very open with the good and the not-so-good. He has explained why some types of oils may be better than others, the results of his blood work, his doctor's comments, how he feels day-to-day, his passion about the OO, and much more. That does not make him a pusher. It makes him honest.

Ultimately, as SD would say, the choice is yours. Don't come down on the guy for sharing his passion.
 

Seana30

New member
OKAY NOW YOU PEOPLE ARE UPSETTING ME, AND IT TAKES ALOT TO MAKE ME MAD!!!!!!!!

First of all EVERYONE that said they would not take the OO oil stated that they were still interested in the results. We all have our own reasons for either taking it or not!!

There are 2, 175 people that are part of this site and we are all going to have different opinions!

All this "don't listen to her when she gets this way" and "this person can be so blunt" is REALLY upsetting! Do these people not have a right to their opinions????? "Don't read it if you don't want to hear about it" is also a dumb statement because if you read the posts everyone states that they are interested in the results.

IF YOU DON'T WANT TO HEAR DIFFERENT OPINIONS THEN DON'T READ IT OR BRING IT UP!"

SeanD.......I value your opinions, and look forward to reading your posts on a daily basis, but I have to say I am quite disappointed in comments on this post, by yourself and others!!!

I hope you continue informing us of your results with OO oil, but you all have to know that we are all not going to agree!!!!!!!!!

Seana
 
S

skh

Guest
Peter, thank you so much for sharing your story. I would love to hear the rest. As a parent to a 15 yr. old wcf I am always interested in finding out what others have done to stay healthy. Knowing that you are doing well and have "beat the odds" so to speak age wise tells me what you are doing works for you. As a parent I am sure that I have made mistakes but I am always open for suggestions/recommendations. I just want to do what is best for my daughter.

SD, I sure hope you continue to give us updates on your results with OO. I always look for your posts. What people choose to do with the information that you share is up to them, which you have stated. I too have concerns regarding the long term affects of the OO but that doesn't mean that I am not interested in it. I have actually purchased the facial sauna and the OO and at this point my oldest daughter with sinus problems has used it and seen some good results. She is also old enough to make her own decision regarding using it. My 15 yr. old wcf has not used it yet since she isn't comfortable yet with the idea. And I feel I need to honor that.

I also want to thank Emilee for the original post. It's always good to hear both sides and then be able to make a sound decision from the information provided.

Sue
 

catboogie

New member
i just wanted to make a suggestion. it seems some people are turning against each other with respect to alternative therapies and cf, and oregano oil in particular. why? WE ARE NOT EACH OTHERS ENEMIES HERE. there is not one person on this site who would not like to have some new development for CF that is proven safe and effective. the real "enemy" here, if you want to put it that way, is anyone who would get in the way of more information gathering on (what seems like) a promising treatment.

why don't we focus our energies not against each other, but toward places like the CF foundation, to encourage them to test this stuff. this could go for other things as well, if we feel they might be overlooking testing of other alternative therapies. why don't we write the FDA and ask them to start testing herbal suppliments? i realize it is a long shot, but change will never come unless we push for it. why don't we talk to our doctors and see if any of them would be willing to do any kind of trial, at least plant that seed in their brain, even if the samples might be very small.

lastly, and perhaps THE best thing we can do for ourselves, is to have those who try the oil carefully document their experiences with the substance. i have kept a journal since day one. my next batch of PFTs will certainly be useful information. as well as cultures and lab tests. what i'm saying is, if no one will test it, let's do it ourselves. in as "scientific" of a way as we can...

anyway, these are my thoughts. oh, another thing, if one were to contact the makers of P73, maybe they could give some reassurances to its purity?? just a thought.

laura, 27
 

Faust

New member
I have discussed my reaction and the overall content of the doctors email and this post in general with the original poster, her and I are fine. I'm not going to go into much depth with explanation for the rest of everyone because it was a pretty indepth explanation I took the time to create for her, but I basically informed her due to many other things relating to the whole supplement information sharing I have done, I basically snapped. It wasn't her directly, and I did apologise to her if she took it that way. I also provided her with a wealth of information so she herself could look into anything regarding oregano oil, from many scientific sources. I am a big believer in "any information good or bad, is good information", the problem with that approach in general, is that while doctors have a tremendous amount of training and knowledge and experience in general or specialized health care, due to the fact that many of them (even if open minded), close to most of them, have never had natural/alternative/eastern medicine training at all. They didn't receive the training because they didn't want to, it's just mostly not offered or only briefly skimmed over when they are going to school for their PHD. It's not their fault, it's the systems fault.


My mother had a real bad time with Shingles due to stress a very long time ago. Every good doctor from every walk of conventional medicine gave her some new pill or cream from some pharmaceutical company, and nothing even remotely helped. She felt she would be doomed to a life of agony due to this health issue. Out of a suggestion from an Asian friend, she sought out acupunture/acupressure. Two or three visits in, her shingles 100% went away and have never come back. This was my mothers first foray into alternative/eastern medicinal practices, so it's not like she had a strong mental placebo effect going on to defeat shingles thinking so strongly that the new treatment would work. If anything she had a placebo effect thinking the conventional treatments would work. So that angle doesn't apply. What does apply is that it worked, and MANY MANY MANY other health issues have been helped or eliminated with alternative/natural/eastern medicine as opposed to only conventional medicine treatment.

I'm of the belief that "It's all here for us, we just need to learn how to use it" so to speak with regards to all the wonderful herbs and other natural substances here. I don't blame doctors, tons of what they have to offer is extremely helpful. Antibiotics alone have saved many millions of lives. But I feel medical schools should incorporate a very indepth inclusion of natural/alternative/eastern medicine instruction to all those seeking to become doctors and general health care workers. That way, they have a much wider arsenal for treating our problems, and not just "Runny nose? No erection? Hate your life? Wanna kill someone? Here take this new pill/antibiotic/whatever". I think that is an ultimate horrible approach, but it is that way due to their training and how deeply inbed the pharmaceutical companies are at every level of our health care providers existance.


As far as the email she shared itself, I feel there are several points of it that are patently false, of those: How the substance interacts with microbes/bacteria (nothing like conventional antibiotics), the strength of the antimicrobial properties of the oil (stated as weak in the email), and the potential side effect of lipoidal pneumonia (the sources I reviewed, stated just "oil", and "toxins" causing this effect, not refined food grade virgin olive oil/plant essential oil/water soluble oil), and how the substance has never been researched invivo or human tests (it has, just not specifically for CF), and that the substance has never been researched in scientific - peer reviewed journals/universities (it has, and I could fill many many many pages with my sources, which some I have in the past, and I have stated in one of my previous posts).


As I said, it wasn't the post or the poster that made me crack, it was a culmination of many aspects associated with the exchange of information, and then finally seeing totally false opinionated information from a health care professional that did it. Every person has their breaking point, I guess I just found mine. You could probably torture me for long periods of time and I would never break, but when met with many forms of "Well I have never done my own looking into the oregano oil thing even though you have supplied me with countless information databases for me to look into it myself, but (fill in the blank) said this about it, and therefore I think it's a bad idea" or anything similar.


I'm not trying to shove what I do down anyones throat, I know many people won't give it a try. I'm also not saying everyone should only nebulise the substance, because there are several ways to take the substance that could benefit someone with CF (we have direct reports from many CF patients that have shown some level of improvement regardless how they take the substance), I just personally advocate the nebulised approach due to how I am now due to administering it that way, but that doesn't mean that only taking the oil sublingually or in capsule form would show no improvement at all, it just might not be as pronounced as it was for me.


I'm also a big boy, i'm 35 years of age, I have had the crap kicked out of me a few times, and done some crap kicking myself both physcially and emotionally, earth isn't the nicest of places, humans generally suck, I have been told many times in many ways that others wish I would die, my house burn down, and all my loved ones as well. You know where I came across people who say such things? That's right, the internet. So while I might find something insulting to me on here, i'm far from a wounded duck. That's how the internet operates. So I will openly apologise (even though it's not necessary, due to me doing so in a private message) to the original poster, stating it wasn't only her post that made me crack, it was the build up of tons of responses basically where people refuse to be their own advocates and look into things themself when given many avenues to do so. And if you weren't refering to me as a "pusher", thanks. I just said if I had been refered to as one, and it was in my presence in real life, well...


Anyways thanks for the kind words to those that gave them. If you want resources to do your own research, just ask me in a PM and i'll send it to you.
 
Thank you Sean, I was acutally going to post about our conversations as well. I appreciate all that you do as I have said before. I also want to state for all who are reading that I in no way am against herbal substances. I take somethings that others have credited as no worth as well. I still believe that OO is a good thing. I just want to do my own research and I believe that others should do that as well. I appreciate everyones expressions to me of thanks. I also like catboogie suggested and I know LOULOU has suggested would love to see everyones outcomes on OO. I truly did not mean to start anything with this topic. I just thought that the info I got should be given to all and then people can make up their minds. That is what I am doing! Good Luck to you all!

Emilee
 
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