I would like to show you how I am overcoming my disease!

[katyf13]

I would also like to add that although a lot of people with CF go through a phase of depression, I find cfers to be extremely strong individuals. I would hate for people to think that is in anyway their fault that their health is declining. SOmetimes, it's just the nature of the disease. Almost everyone on this site and the cfers I've met in the real world (many) are doing everything they can and have wonderful attitudes. I don't come across many "victims".
Good for you for doing so well!!! I really mean that!!! But please don't imply that others are not because of a victim mentality.
CF has taught me to appreciate life too. I could be pretty bitter after losing Mike, but I don't feel like a victim. I feel incredibly LUCKY to have had such a wonderful man in my life!!

 

[katyf13]

I would also like to add that although a lot of people with CF go through a phase of depression, I find cfers to be extremely strong individuals. I would hate for people to think that is in anyway their fault that their health is declining. SOmetimes, it's just the nature of the disease. Almost everyone on this site and the cfers I've met in the real world (many) are doing everything they can and have wonderful attitudes. I don't come across many "victims".
Good for you for doing so well!!! I really mean that!!! But please don't imply that others are not because of a victim mentality.
CF has taught me to appreciate life too. I could be pretty bitter after losing Mike, but I don't feel like a victim. I feel incredibly LUCKY to have had such a wonderful man in my life!!

 

[katyf13]

I would also like to add that although a lot of people with CF go through a phase of depression, I find cfers to be extremely strong individuals. I would hate for people to think that is in anyway their fault that their health is declining. SOmetimes, it's just the nature of the disease. Almost everyone on this site and the cfers I've met in the real world (many) are doing everything they can and have wonderful attitudes. I don't come across many "victims".
Good for you for doing so well!!! I really mean that!!! But please don't imply that others are not because of a victim mentality.
CF has taught me to appreciate life too. I could be pretty bitter after losing Mike, but I don't feel like a victim. I feel incredibly LUCKY to have had such a wonderful man in my life!!

 

[katyf13]

I would also like to add that although a lot of people with CF go through a phase of depression, I find cfers to be extremely strong individuals. I would hate for people to think that is in anyway their fault that their health is declining. SOmetimes, it's just the nature of the disease. Almost everyone on this site and the cfers I've met in the real world (many) are doing everything they can and have wonderful attitudes. I don't come across many "victims".
Good for you for doing so well!!! I really mean that!!! But please don't imply that others are not because of a victim mentality.
CF has taught me to appreciate life too. I could be pretty bitter after losing Mike, but I don't feel like a victim. I feel incredibly LUCKY to have had such a wonderful man in my life!!

 

[katyf13]

I would also like to add that although a lot of people with CF go through a phase of depression, I find cfers to be extremely strong individuals. I would hate for people to think that is in anyway their fault that their health is declining. SOmetimes, it's just the nature of the disease. Almost everyone on this site and the cfers I've met in the real world (many) are doing everything they can and have wonderful attitudes. I don't come across many "victims".
Good for you for doing so well!!! I really mean that!!! But please don't imply that others are not because of a victim mentality.
CF has taught me to appreciate life too. I could be pretty bitter after losing Mike, but I don't feel like a victim. I feel incredibly LUCKY to have had such a wonderful man in my life!!

 

[EvtonB]

Discarding the victim mentality has been key in my recovery and has helped me a bunch. I feel that if somebody were able to give me the information that I have today, back when I was struggling with my disease, that I would be much better off now because of it.
It is my goal to offer that kind of outlook and hope to somebody through my website.

I am not suggesting that the people who have failing health are all victims, only that if you are a victim then it would be to your best interest to discard that mentality.

I think this topic is describe very accurately in this blog at <a target=_blank class=ftalternatingbarlinklarge href="http://breathe4tomorrow.wordpress.com/2007/12/28/two-types-of-cfers/
">http://breathe4tomorrow.wordpr...8/two-types-of-cfers/
</a>
I'm sorry for your loss Katy and im glad that Mike was such an inspiring guy to others. I think the key is remaining positive even through the hardest times and always seeing that light at the end of the tunnel. It seems he did well in that respect.

Keep on fighting like a warrior!

 

[EvtonB]

Discarding the victim mentality has been key in my recovery and has helped me a bunch. I feel that if somebody were able to give me the information that I have today, back when I was struggling with my disease, that I would be much better off now because of it.
It is my goal to offer that kind of outlook and hope to somebody through my website.

I am not suggesting that the people who have failing health are all victims, only that if you are a victim then it would be to your best interest to discard that mentality.

I think this topic is describe very accurately in this blog at <a target=_blank class=ftalternatingbarlinklarge href="http://breathe4tomorrow.wordpress.com/2007/12/28/two-types-of-cfers/
">http://breathe4tomorrow.wordpr...8/two-types-of-cfers/
</a>
I'm sorry for your loss Katy and im glad that Mike was such an inspiring guy to others. I think the key is remaining positive even through the hardest times and always seeing that light at the end of the tunnel. It seems he did well in that respect.

Keep on fighting like a warrior!

 

[EvtonB]

Discarding the victim mentality has been key in my recovery and has helped me a bunch. I feel that if somebody were able to give me the information that I have today, back when I was struggling with my disease, that I would be much better off now because of it.
It is my goal to offer that kind of outlook and hope to somebody through my website.

I am not suggesting that the people who have failing health are all victims, only that if you are a victim then it would be to your best interest to discard that mentality.

I think this topic is describe very accurately in this blog at <a target=_blank class=ftalternatingbarlinklarge href="http://breathe4tomorrow.wordpress.com/2007/12/28/two-types-of-cfers/
">http://breathe4tomorrow.wordpr...8/two-types-of-cfers/
</a>
I'm sorry for your loss Katy and im glad that Mike was such an inspiring guy to others. I think the key is remaining positive even through the hardest times and always seeing that light at the end of the tunnel. It seems he did well in that respect.

Keep on fighting like a warrior!

 

[EvtonB]

Discarding the victim mentality has been key in my recovery and has helped me a bunch. I feel that if somebody were able to give me the information that I have today, back when I was struggling with my disease, that I would be much better off now because of it.
It is my goal to offer that kind of outlook and hope to somebody through my website.

I am not suggesting that the people who have failing health are all victims, only that if you are a victim then it would be to your best interest to discard that mentality.

I think this topic is describe very accurately in this blog at <a target=_blank class=ftalternatingbarlinklarge href="http://breathe4tomorrow.wordpress.com/2007/12/28/two-types-of-cfers/
">http://breathe4tomorrow.wordpr...8/two-types-of-cfers/
</a>
I'm sorry for your loss Katy and im glad that Mike was such an inspiring guy to others. I think the key is remaining positive even through the hardest times and always seeing that light at the end of the tunnel. It seems he did well in that respect.

Keep on fighting like a warrior!

 

[EvtonB]

Discarding the victim mentality has been key in my recovery and has helped me a bunch. I feel that if somebody were able to give me the information that I have today, back when I was struggling with my disease, that I would be much better off now because of it.
It is my goal to offer that kind of outlook and hope to somebody through my website.

I am not suggesting that the people who have failing health are all victims, only that if you are a victim then it would be to your best interest to discard that mentality.

I think this topic is describe very accurately in this blog at <a target=_blank class=ftalternatingbarlinklarge href="http://breathe4tomorrow.wordpress.com/2007/12/28/two-types-of-cfers/
">http://breathe4tomorrow.wordpr...8/two-types-of-cfers/
</a>
I'm sorry for your loss Katy and im glad that Mike was such an inspiring guy to others. I think the key is remaining positive even through the hardest times and always seeing that light at the end of the tunnel. It seems he did well in that respect.

Keep on fighting like a warrior!

 

[Mockingbird]

Are you familiar with W. E. Henley? You guys remind me of him. At the age of twelve, he was diagnosed with a tubercular disease of the bone. One leg was amputated, and at the age of twenty four, he was advised to amputate the other. It was at that time he wrote this poem:

"Out of night that covers me,
Black as the Pit from pole to pole,
I thank whatever gods may be
For my unconquerable soul.

In the fell clutch of circumstance
I have not winced nor cried out loud
Under the bludgeonings of chance
My head is bloody but unbowed.

Beyond this place of wrath and tears
Looms but the horror of the shade,
And yet the menace of the years
Finds, and shall find me, unafraid.

It matters not how strait the gate,
How charged with punishments the scroll,
I am the master of my fate
I am the captain of my soul."

After twenty months, the disease was checked and the leg saved. Unfortunately, at the age of forty-five, the death of his four-year-old daughter did what the disease could not do. His spirit broken and his head bowed, Henley never regained the fire he once had.

Your site is very much like Henley's poem; it's very inspriational but also rather empty and extremely temporary.

I notice you really only talk about lung function in regard to CF. Don't get me wrong, that's fine, but I'm wondering what other symptoms you have. I mean, try doing cardio work and weight training with chronic pain, then you can tell me about being a warrior and living indubiously. When I'm in pain and someone says to me I need to have a more positive outlook, I tend to want to kick that person in the groin and see how positive their outlook is.

I don't mean to rip on you like this, but I do think you need a dose of reality. Personally, I agree with Debbie way up there. If I relied on myself rather than the power of Jesus Christ, I wouldn't be able to make it out of bed every morning (and, perhaps a lot of people would have their groins kicked).

You say you have faith in yourself and that's worked for you. Great! I believe you. But its not enough, is it? I know it isn't enough because you're still searching for something more through natural treatments and such.

Anyway, I hope you find what you're searching for.

 

[Mockingbird]

Are you familiar with W. E. Henley? You guys remind me of him. At the age of twelve, he was diagnosed with a tubercular disease of the bone. One leg was amputated, and at the age of twenty four, he was advised to amputate the other. It was at that time he wrote this poem:

"Out of night that covers me,
Black as the Pit from pole to pole,
I thank whatever gods may be
For my unconquerable soul.

In the fell clutch of circumstance
I have not winced nor cried out loud
Under the bludgeonings of chance
My head is bloody but unbowed.

Beyond this place of wrath and tears
Looms but the horror of the shade,
And yet the menace of the years
Finds, and shall find me, unafraid.

It matters not how strait the gate,
How charged with punishments the scroll,
I am the master of my fate
I am the captain of my soul."

After twenty months, the disease was checked and the leg saved. Unfortunately, at the age of forty-five, the death of his four-year-old daughter did what the disease could not do. His spirit broken and his head bowed, Henley never regained the fire he once had.

Your site is very much like Henley's poem; it's very inspriational but also rather empty and extremely temporary.

I notice you really only talk about lung function in regard to CF. Don't get me wrong, that's fine, but I'm wondering what other symptoms you have. I mean, try doing cardio work and weight training with chronic pain, then you can tell me about being a warrior and living indubiously. When I'm in pain and someone says to me I need to have a more positive outlook, I tend to want to kick that person in the groin and see how positive their outlook is.

I don't mean to rip on you like this, but I do think you need a dose of reality. Personally, I agree with Debbie way up there. If I relied on myself rather than the power of Jesus Christ, I wouldn't be able to make it out of bed every morning (and, perhaps a lot of people would have their groins kicked).

You say you have faith in yourself and that's worked for you. Great! I believe you. But its not enough, is it? I know it isn't enough because you're still searching for something more through natural treatments and such.

Anyway, I hope you find what you're searching for.

 

[Mockingbird]

Are you familiar with W. E. Henley? You guys remind me of him. At the age of twelve, he was diagnosed with a tubercular disease of the bone. One leg was amputated, and at the age of twenty four, he was advised to amputate the other. It was at that time he wrote this poem:

"Out of night that covers me,
Black as the Pit from pole to pole,
I thank whatever gods may be
For my unconquerable soul.

In the fell clutch of circumstance
I have not winced nor cried out loud
Under the bludgeonings of chance
My head is bloody but unbowed.

Beyond this place of wrath and tears
Looms but the horror of the shade,
And yet the menace of the years
Finds, and shall find me, unafraid.

It matters not how strait the gate,
How charged with punishments the scroll,
I am the master of my fate
I am the captain of my soul."

After twenty months, the disease was checked and the leg saved. Unfortunately, at the age of forty-five, the death of his four-year-old daughter did what the disease could not do. His spirit broken and his head bowed, Henley never regained the fire he once had.

Your site is very much like Henley's poem; it's very inspriational but also rather empty and extremely temporary.

I notice you really only talk about lung function in regard to CF. Don't get me wrong, that's fine, but I'm wondering what other symptoms you have. I mean, try doing cardio work and weight training with chronic pain, then you can tell me about being a warrior and living indubiously. When I'm in pain and someone says to me I need to have a more positive outlook, I tend to want to kick that person in the groin and see how positive their outlook is.

I don't mean to rip on you like this, but I do think you need a dose of reality. Personally, I agree with Debbie way up there. If I relied on myself rather than the power of Jesus Christ, I wouldn't be able to make it out of bed every morning (and, perhaps a lot of people would have their groins kicked).

You say you have faith in yourself and that's worked for you. Great! I believe you. But its not enough, is it? I know it isn't enough because you're still searching for something more through natural treatments and such.

Anyway, I hope you find what you're searching for.

 

[Mockingbird]

Are you familiar with W. E. Henley? You guys remind me of him. At the age of twelve, he was diagnosed with a tubercular disease of the bone. One leg was amputated, and at the age of twenty four, he was advised to amputate the other. It was at that time he wrote this poem:

"Out of night that covers me,
Black as the Pit from pole to pole,
I thank whatever gods may be
For my unconquerable soul.

In the fell clutch of circumstance
I have not winced nor cried out loud
Under the bludgeonings of chance
My head is bloody but unbowed.

Beyond this place of wrath and tears
Looms but the horror of the shade,
And yet the menace of the years
Finds, and shall find me, unafraid.

It matters not how strait the gate,
How charged with punishments the scroll,
I am the master of my fate
I am the captain of my soul."

After twenty months, the disease was checked and the leg saved. Unfortunately, at the age of forty-five, the death of his four-year-old daughter did what the disease could not do. His spirit broken and his head bowed, Henley never regained the fire he once had.

Your site is very much like Henley's poem; it's very inspriational but also rather empty and extremely temporary.

I notice you really only talk about lung function in regard to CF. Don't get me wrong, that's fine, but I'm wondering what other symptoms you have. I mean, try doing cardio work and weight training with chronic pain, then you can tell me about being a warrior and living indubiously. When I'm in pain and someone says to me I need to have a more positive outlook, I tend to want to kick that person in the groin and see how positive their outlook is.

I don't mean to rip on you like this, but I do think you need a dose of reality. Personally, I agree with Debbie way up there. If I relied on myself rather than the power of Jesus Christ, I wouldn't be able to make it out of bed every morning (and, perhaps a lot of people would have their groins kicked).

You say you have faith in yourself and that's worked for you. Great! I believe you. But its not enough, is it? I know it isn't enough because you're still searching for something more through natural treatments and such.

Anyway, I hope you find what you're searching for.

 

[Mockingbird]

Are you familiar with W. E. Henley? You guys remind me of him. At the age of twelve, he was diagnosed with a tubercular disease of the bone. One leg was amputated, and at the age of twenty four, he was advised to amputate the other. It was at that time he wrote this poem:

"Out of night that covers me,
Black as the Pit from pole to pole,
I thank whatever gods may be
For my unconquerable soul.

In the fell clutch of circumstance
I have not winced nor cried out loud
Under the bludgeonings of chance
My head is bloody but unbowed.

Beyond this place of wrath and tears
Looms but the horror of the shade,
And yet the menace of the years
Finds, and shall find me, unafraid.

It matters not how strait the gate,
How charged with punishments the scroll,
I am the master of my fate
I am the captain of my soul."

After twenty months, the disease was checked and the leg saved. Unfortunately, at the age of forty-five, the death of his four-year-old daughter did what the disease could not do. His spirit broken and his head bowed, Henley never regained the fire he once had.

Your site is very much like Henley's poem; it's very inspriational but also rather empty and extremely temporary.

I notice you really only talk about lung function in regard to CF. Don't get me wrong, that's fine, but I'm wondering what other symptoms you have. I mean, try doing cardio work and weight training with chronic pain, then you can tell me about being a warrior and living indubiously. When I'm in pain and someone says to me I need to have a more positive outlook, I tend to want to kick that person in the groin and see how positive their outlook is.

I don't mean to rip on you like this, but I do think you need a dose of reality. Personally, I agree with Debbie way up there. If I relied on myself rather than the power of Jesus Christ, I wouldn't be able to make it out of bed every morning (and, perhaps a lot of people would have their groins kicked).

You say you have faith in yourself and that's worked for you. Great! I believe you. But its not enough, is it? I know it isn't enough because you're still searching for something more through natural treatments and such.

Anyway, I hope you find what you're searching for.

 

[Faust]

When I was 23 I felt like I was superman. I'm not even sure if I had a lung bleed yet then. I know my PFT's were way off the charts too. I think when you enter your mid 30's, it's a much better gauge of where you are progression wise. The 20's aren't what i'd view as a measuring stick for our longevity.

 

[Faust]

When I was 23 I felt like I was superman. I'm not even sure if I had a lung bleed yet then. I know my PFT's were way off the charts too. I think when you enter your mid 30's, it's a much better gauge of where you are progression wise. The 20's aren't what i'd view as a measuring stick for our longevity.

 

[Faust]

When I was 23 I felt like I was superman. I'm not even sure if I had a lung bleed yet then. I know my PFT's were way off the charts too. I think when you enter your mid 30's, it's a much better gauge of where you are progression wise. The 20's aren't what i'd view as a measuring stick for our longevity.

 

[Faust]

When I was 23 I felt like I was superman. I'm not even sure if I had a lung bleed yet then. I know my PFT's were way off the charts too. I think when you enter your mid 30's, it's a much better gauge of where you are progression wise. The 20's aren't what i'd view as a measuring stick for our longevity.

 

[Faust]

When I was 23 I felt like I was superman. I'm not even sure if I had a lung bleed yet then. I know my PFT's were way off the charts too. I think when you enter your mid 30's, it's a much better gauge of where you are progression wise. The 20's aren't what i'd view as a measuring stick for our longevity.