I'm a carrier...

annaally · Oct 22, 2007

We are also both carriers, delta F 508. We found it out before we got pregnant, as my husband's niese is sick.
January 2007 we got pregnant, but the fetus was sick, and we had an abortion in week 13. It has been a very tough time, trying to get pregnant again, and as the time goes it gets worse, as I know what we have to go throug with testing.
We live in Norway, and pgd is still not allowed, but the state will support us economically by going aborad (it is just a question about time when pgd will be allowed). So, we are now adjusting to the thought of pgd abroad. I must say I am not looking forward to that either. I have been searching and searching for people in the same situation as us, it feels soooo lonely. I am happy to read about others in the same situation where the story ends good! I am happy to hear from you!

annaally · Oct 22, 2007

We are also both carriers, delta F 508. We found it out before we got pregnant, as my husband's niese is sick.
January 2007 we got pregnant, but the fetus was sick, and we had an abortion in week 13. It has been a very tough time, trying to get pregnant again, and as the time goes it gets worse, as I know what we have to go throug with testing.
We live in Norway, and pgd is still not allowed, but the state will support us economically by going aborad (it is just a question about time when pgd will be allowed). So, we are now adjusting to the thought of pgd abroad. I must say I am not looking forward to that either. I have been searching and searching for people in the same situation as us, it feels soooo lonely. I am happy to read about others in the same situation where the story ends good! I am happy to hear from you!

annaally · Oct 22, 2007

We are also both carriers, delta F 508. We found it out before we got pregnant, as my husband's niese is sick.
January 2007 we got pregnant, but the fetus was sick, and we had an abortion in week 13. It has been a very tough time, trying to get pregnant again, and as the time goes it gets worse, as I know what we have to go throug with testing.
We live in Norway, and pgd is still not allowed, but the state will support us economically by going aborad (it is just a question about time when pgd will be allowed). So, we are now adjusting to the thought of pgd abroad. I must say I am not looking forward to that either. I have been searching and searching for people in the same situation as us, it feels soooo lonely. I am happy to read about others in the same situation where the story ends good! I am happy to hear from you!

annaally · Oct 22, 2007

We are also both carriers, delta F 508. We found it out before we got pregnant, as my husband's niese is sick.
January 2007 we got pregnant, but the fetus was sick, and we had an abortion in week 13. It has been a very tough time, trying to get pregnant again, and as the time goes it gets worse, as I know what we have to go throug with testing.
We live in Norway, and pgd is still not allowed, but the state will support us economically by going aborad (it is just a question about time when pgd will be allowed). So, we are now adjusting to the thought of pgd abroad. I must say I am not looking forward to that either. I have been searching and searching for people in the same situation as us, it feels soooo lonely. I am happy to read about others in the same situation where the story ends good! I am happy to hear from you!

annaally · Oct 22, 2007

We are also both carriers, delta F 508. We found it out before we got pregnant, as my husband's niese is sick.
January 2007 we got pregnant, but the fetus was sick, and we had an abortion in week 13. It has been a very tough time, trying to get pregnant again, and as the time goes it gets worse, as I know what we have to go throug with testing.
We live in Norway, and pgd is still not allowed, but the state will support us economically by going aborad (it is just a question about time when pgd will be allowed). So, we are now adjusting to the thought of pgd abroad. I must say I am not looking forward to that either. I have been searching and searching for people in the same situation as us, it feels soooo lonely. I am happy to read about others in the same situation where the story ends good! I am happy to hear from you!

Scarlett81 · Oct 23, 2007

well first off I don't believe in approaching this situation with scare tactics, throwing the death of any child in someone's face.

My personal experience was this-me and hubby discussed kids when we were dating-we hadn't planned on having a biological child only bc of my health, not genetics. Then my health improved dramatically and we realized I could probably carry a pregnancy and raise a child. My hubby went for genetic testing. We had decided that if he was a carrier, we would not have a child but would adopt.
That isn't bc I wish I wasn't born bc I have cf, or bc my child could/would die, or anything like that-it was purely bc we were completely comfortable with the idea of adoption and also bc of the added strain of me (a person with cf) caring for a child with cf.

I know people always criticize the "hit by a bus" theory, but the fact is, it is a fact of life-you can do everything right, you can plan and plan, and do all your homework and something bad can still happen. You can do the testing, and by some freak of nature-(the test be wrong, the results read wrong, science changing...) you can turn out to be a carrier and have a child with cf anyway. You can have a child born perfect....and in 5 years it is diagnosed with cancer. And, yes....you can walk out of your perfect house, cross your perfect yard....and get hit by a car (or bus....) and die, or worse-be severely damaged or injured for the rest of your life.

Does this mean you should not worry about anything and say-you have no control over anything at all so you're going to do whatever? No! But I think the problem with people that say, 'well I've done all my planning and homework and calcluated the decision', sometimes these people are so rigid that when life does throw something at them, they break down and can't handle it.
You plan, and life happens.

I'm not saying that you or anyone should go out and get pregnant if you are a carrier-I'm just saying it is a completely personal decision and I don't think anyone can tell you what to do. Learn all your options-I would look at every avenue you have, including adoption. Perhaps talk to a family therapist, a specialist in adoption services, social worker, ect. I also don't know if its a good idea to be asking too many people what they think. Its good to hear other's stories about what they did, ect...that can tell you alot. But in the end this is your family's decision.

As a cfer, I have to say that I believe I have made the most of my life, and the most of my illness. Having Cf has taught me valuable lessons and given me intelligence and strength in certain areas. I love my life and think people value me and am glad I am here too. And if my life is cut short, I'll know that I brought happiness to people that knew me and left a legacy of strength, faith and fighting to my child. And thats whether I die from Cf of from being hit by a bus.

Scarlett81 · Oct 23, 2007

well first off I don't believe in approaching this situation with scare tactics, throwing the death of any child in someone's face.

My personal experience was this-me and hubby discussed kids when we were dating-we hadn't planned on having a biological child only bc of my health, not genetics. Then my health improved dramatically and we realized I could probably carry a pregnancy and raise a child. My hubby went for genetic testing. We had decided that if he was a carrier, we would not have a child but would adopt.
That isn't bc I wish I wasn't born bc I have cf, or bc my child could/would die, or anything like that-it was purely bc we were completely comfortable with the idea of adoption and also bc of the added strain of me (a person with cf) caring for a child with cf.

I know people always criticize the "hit by a bus" theory, but the fact is, it is a fact of life-you can do everything right, you can plan and plan, and do all your homework and something bad can still happen. You can do the testing, and by some freak of nature-(the test be wrong, the results read wrong, science changing...) you can turn out to be a carrier and have a child with cf anyway. You can have a child born perfect....and in 5 years it is diagnosed with cancer. And, yes....you can walk out of your perfect house, cross your perfect yard....and get hit by a car (or bus....) and die, or worse-be severely damaged or injured for the rest of your life.

Does this mean you should not worry about anything and say-you have no control over anything at all so you're going to do whatever? No! But I think the problem with people that say, 'well I've done all my planning and homework and calcluated the decision', sometimes these people are so rigid that when life does throw something at them, they break down and can't handle it.
You plan, and life happens.

I'm not saying that you or anyone should go out and get pregnant if you are a carrier-I'm just saying it is a completely personal decision and I don't think anyone can tell you what to do. Learn all your options-I would look at every avenue you have, including adoption. Perhaps talk to a family therapist, a specialist in adoption services, social worker, ect. I also don't know if its a good idea to be asking too many people what they think. Its good to hear other's stories about what they did, ect...that can tell you alot. But in the end this is your family's decision.

As a cfer, I have to say that I believe I have made the most of my life, and the most of my illness. Having Cf has taught me valuable lessons and given me intelligence and strength in certain areas. I love my life and think people value me and am glad I am here too. And if my life is cut short, I'll know that I brought happiness to people that knew me and left a legacy of strength, faith and fighting to my child. And thats whether I die from Cf of from being hit by a bus.

Scarlett81 · Oct 23, 2007

well first off I don't believe in approaching this situation with scare tactics, throwing the death of any child in someone's face.

My personal experience was this-me and hubby discussed kids when we were dating-we hadn't planned on having a biological child only bc of my health, not genetics. Then my health improved dramatically and we realized I could probably carry a pregnancy and raise a child. My hubby went for genetic testing. We had decided that if he was a carrier, we would not have a child but would adopt.
That isn't bc I wish I wasn't born bc I have cf, or bc my child could/would die, or anything like that-it was purely bc we were completely comfortable with the idea of adoption and also bc of the added strain of me (a person with cf) caring for a child with cf.

I know people always criticize the "hit by a bus" theory, but the fact is, it is a fact of life-you can do everything right, you can plan and plan, and do all your homework and something bad can still happen. You can do the testing, and by some freak of nature-(the test be wrong, the results read wrong, science changing...) you can turn out to be a carrier and have a child with cf anyway. You can have a child born perfect....and in 5 years it is diagnosed with cancer. And, yes....you can walk out of your perfect house, cross your perfect yard....and get hit by a car (or bus....) and die, or worse-be severely damaged or injured for the rest of your life.

Does this mean you should not worry about anything and say-you have no control over anything at all so you're going to do whatever? No! But I think the problem with people that say, 'well I've done all my planning and homework and calcluated the decision', sometimes these people are so rigid that when life does throw something at them, they break down and can't handle it.
You plan, and life happens.

I'm not saying that you or anyone should go out and get pregnant if you are a carrier-I'm just saying it is a completely personal decision and I don't think anyone can tell you what to do. Learn all your options-I would look at every avenue you have, including adoption. Perhaps talk to a family therapist, a specialist in adoption services, social worker, ect. I also don't know if its a good idea to be asking too many people what they think. Its good to hear other's stories about what they did, ect...that can tell you alot. But in the end this is your family's decision.

As a cfer, I have to say that I believe I have made the most of my life, and the most of my illness. Having Cf has taught me valuable lessons and given me intelligence and strength in certain areas. I love my life and think people value me and am glad I am here too. And if my life is cut short, I'll know that I brought happiness to people that knew me and left a legacy of strength, faith and fighting to my child. And thats whether I die from Cf of from being hit by a bus.

Scarlett81 · Oct 23, 2007

well first off I don't believe in approaching this situation with scare tactics, throwing the death of any child in someone's face.

My personal experience was this-me and hubby discussed kids when we were dating-we hadn't planned on having a biological child only bc of my health, not genetics. Then my health improved dramatically and we realized I could probably carry a pregnancy and raise a child. My hubby went for genetic testing. We had decided that if he was a carrier, we would not have a child but would adopt.
That isn't bc I wish I wasn't born bc I have cf, or bc my child could/would die, or anything like that-it was purely bc we were completely comfortable with the idea of adoption and also bc of the added strain of me (a person with cf) caring for a child with cf.

I know people always criticize the "hit by a bus" theory, but the fact is, it is a fact of life-you can do everything right, you can plan and plan, and do all your homework and something bad can still happen. You can do the testing, and by some freak of nature-(the test be wrong, the results read wrong, science changing...) you can turn out to be a carrier and have a child with cf anyway. You can have a child born perfect....and in 5 years it is diagnosed with cancer. And, yes....you can walk out of your perfect house, cross your perfect yard....and get hit by a car (or bus....) and die, or worse-be severely damaged or injured for the rest of your life.

Does this mean you should not worry about anything and say-you have no control over anything at all so you're going to do whatever? No! But I think the problem with people that say, 'well I've done all my planning and homework and calcluated the decision', sometimes these people are so rigid that when life does throw something at them, they break down and can't handle it.
You plan, and life happens.

I'm not saying that you or anyone should go out and get pregnant if you are a carrier-I'm just saying it is a completely personal decision and I don't think anyone can tell you what to do. Learn all your options-I would look at every avenue you have, including adoption. Perhaps talk to a family therapist, a specialist in adoption services, social worker, ect. I also don't know if its a good idea to be asking too many people what they think. Its good to hear other's stories about what they did, ect...that can tell you alot. But in the end this is your family's decision.

As a cfer, I have to say that I believe I have made the most of my life, and the most of my illness. Having Cf has taught me valuable lessons and given me intelligence and strength in certain areas. I love my life and think people value me and am glad I am here too. And if my life is cut short, I'll know that I brought happiness to people that knew me and left a legacy of strength, faith and fighting to my child. And thats whether I die from Cf of from being hit by a bus.

Scarlett81 · Oct 23, 2007

well first off I don't believe in approaching this situation with scare tactics, throwing the death of any child in someone's face.

My personal experience was this-me and hubby discussed kids when we were dating-we hadn't planned on having a biological child only bc of my health, not genetics. Then my health improved dramatically and we realized I could probably carry a pregnancy and raise a child. My hubby went for genetic testing. We had decided that if he was a carrier, we would not have a child but would adopt.
That isn't bc I wish I wasn't born bc I have cf, or bc my child could/would die, or anything like that-it was purely bc we were completely comfortable with the idea of adoption and also bc of the added strain of me (a person with cf) caring for a child with cf.

I know people always criticize the "hit by a bus" theory, but the fact is, it is a fact of life-you can do everything right, you can plan and plan, and do all your homework and something bad can still happen. You can do the testing, and by some freak of nature-(the test be wrong, the results read wrong, science changing...) you can turn out to be a carrier and have a child with cf anyway. You can have a child born perfect....and in 5 years it is diagnosed with cancer. And, yes....you can walk out of your perfect house, cross your perfect yard....and get hit by a car (or bus....) and die, or worse-be severely damaged or injured for the rest of your life.

Does this mean you should not worry about anything and say-you have no control over anything at all so you're going to do whatever? No! But I think the problem with people that say, 'well I've done all my planning and homework and calcluated the decision', sometimes these people are so rigid that when life does throw something at them, they break down and can't handle it.
You plan, and life happens.

I'm not saying that you or anyone should go out and get pregnant if you are a carrier-I'm just saying it is a completely personal decision and I don't think anyone can tell you what to do. Learn all your options-I would look at every avenue you have, including adoption. Perhaps talk to a family therapist, a specialist in adoption services, social worker, ect. I also don't know if its a good idea to be asking too many people what they think. Its good to hear other's stories about what they did, ect...that can tell you alot. But in the end this is your family's decision.

As a cfer, I have to say that I believe I have made the most of my life, and the most of my illness. Having Cf has taught me valuable lessons and given me intelligence and strength in certain areas. I love my life and think people value me and am glad I am here too. And if my life is cut short, I'll know that I brought happiness to people that knew me and left a legacy of strength, faith and fighting to my child. And thats whether I die from Cf of from being hit by a bus.

meNdanny · Nov 29, 2007