holmfamily1992
New member
I think the hardest part is actually believing that this is happening. I have to look at it this way, my girls have been healthy and they will continue to be healthy. With the treatments, it can only help them. My boys are a little bit different. They may not have had the lung issue's that alot of CFers have but the digestive system is really messed up. BUT we can get through that.
I have been working on our video. I had to make a lot of changes with the new news. I did however cut it back to one song and I think it looks really good. I have to edit it one more time to lenghthen some of the info spots. But over all I think it will do.
My parents kind of make me a littel bit upset. I called them the other day because they have registered to go on our Great Strides walk with us. My dads knee is blown out so I know he can't walk but my mom can. She said she wasnt sure if she was going or not. So I spoke to my cousin about it and she told me all she has heard them say behind my back is "well, Tina's kids arent even sick". It's almost like denial. Just because they havent been in and out of the hospital doesnt mean they arent sick. She is trying to talk us out of a feeding tube. But what she doesnt understand is that Dylan and Ryan can not consume 3200+ calories in a day. Dylan and Ryan both are looking really bad. So how am I suppose to talk with them about this when they dont even believe that they are sick??
Its just frustrating. We need all the support we can get and my family is being like this. My husbands family has been awesome!! Not only emotional support but finacial support also. They have donated almost $900 to the foundation!! Thats so cool.
I can't worry about what my family thinks right now. If my parents dont want to believe that this is happening then let them believe it. I think it has a lot to do with the fact that they dont know a whole lot about it. Everytime I try to talk with them about it my dad changes the subject.
What do you think? Anyone else have this problem?
Tina
I have been working on our video. I had to make a lot of changes with the new news. I did however cut it back to one song and I think it looks really good. I have to edit it one more time to lenghthen some of the info spots. But over all I think it will do.
My parents kind of make me a littel bit upset. I called them the other day because they have registered to go on our Great Strides walk with us. My dads knee is blown out so I know he can't walk but my mom can. She said she wasnt sure if she was going or not. So I spoke to my cousin about it and she told me all she has heard them say behind my back is "well, Tina's kids arent even sick". It's almost like denial. Just because they havent been in and out of the hospital doesnt mean they arent sick. She is trying to talk us out of a feeding tube. But what she doesnt understand is that Dylan and Ryan can not consume 3200+ calories in a day. Dylan and Ryan both are looking really bad. So how am I suppose to talk with them about this when they dont even believe that they are sick??
Its just frustrating. We need all the support we can get and my family is being like this. My husbands family has been awesome!! Not only emotional support but finacial support also. They have donated almost $900 to the foundation!! Thats so cool.
I can't worry about what my family thinks right now. If my parents dont want to believe that this is happening then let them believe it. I think it has a lot to do with the fact that they dont know a whole lot about it. Everytime I try to talk with them about it my dad changes the subject.
What do you think? Anyone else have this problem?
Tina