Insensitive people!

[lauren]

Hey,

I went for a part-time job interview and when we got to the health question, I told the guy about CF. I saw a glimpse of recognition in his eyes so I asked him if he knew what is was. He then preceeds to tell me about this guy (didn't sound like he knew him personally) who died from CF. Thinking back now I wish I had told him how rude he was to say that. Plus the other day a nurse, she was really kind, but also really insensitive. She talked about how bad CF used to be...blah...blah..

Don't worry I'm not disillusional to the severity of CF, I just wonder how some people can be so insensitive!!!

Lauren

19 w,cf

 

[lauren]

Hey,

I went for a part-time job interview and when we got to the health question, I told the guy about CF. I saw a glimpse of recognition in his eyes so I asked him if he knew what is was. He then preceeds to tell me about this guy (didn't sound like he knew him personally) who died from CF. Thinking back now I wish I had told him how rude he was to say that. Plus the other day a nurse, she was really kind, but also really insensitive. She talked about how bad CF used to be...blah...blah..

Don't worry I'm not disillusional to the severity of CF, I just wonder how some people can be so insensitive!!!

Lauren

19 w,cf

 

[lauren]

Hey,

I went for a part-time job interview and when we got to the health question, I told the guy about CF. I saw a glimpse of recognition in his eyes so I asked him if he knew what is was. He then preceeds to tell me about this guy (didn't sound like he knew him personally) who died from CF. Thinking back now I wish I had told him how rude he was to say that. Plus the other day a nurse, she was really kind, but also really insensitive. She talked about how bad CF used to be...blah...blah..

Don't worry I'm not disillusional to the severity of CF, I just wonder how some people can be so insensitive!!!

Lauren

19 w,cf

 

[Allie]

Okay, nobody shove a stick of dynamite up my bum ...PLEASE!!!

I don't think it's rude to tell someone with CF, that you knew someone who had CF, and passed on. It's a fact of the disease, they aren't saying it to be rude. They would tell you if they knew someone with CF who was alive, too. Whenever someone mentioned CF, I would mention that my husband had it. I'm not going to stop mentioning the connection I had to CF just because he passed away. An adult with CF knows the facts of CF. I'm not trying to be rude, honestly, I just do not find it insensitive. I didn't find it insensitive when Ry was alive and someone told me they knew someone who had died of CF either. Just trying to present a different view.

As to the nurse telling you how awful it WAS....I would counter with how awful it still is......it's not cured, or even well controlled. MUCH work still needs to be done, and as a nurse, she should know that.

 

[Allie]

Okay, nobody shove a stick of dynamite up my bum ...PLEASE!!!

I don't think it's rude to tell someone with CF, that you knew someone who had CF, and passed on. It's a fact of the disease, they aren't saying it to be rude. They would tell you if they knew someone with CF who was alive, too. Whenever someone mentioned CF, I would mention that my husband had it. I'm not going to stop mentioning the connection I had to CF just because he passed away. An adult with CF knows the facts of CF. I'm not trying to be rude, honestly, I just do not find it insensitive. I didn't find it insensitive when Ry was alive and someone told me they knew someone who had died of CF either. Just trying to present a different view.

As to the nurse telling you how awful it WAS....I would counter with how awful it still is......it's not cured, or even well controlled. MUCH work still needs to be done, and as a nurse, she should know that.

 

[Allie]

Okay, nobody shove a stick of dynamite up my bum ...PLEASE!!!

I don't think it's rude to tell someone with CF, that you knew someone who had CF, and passed on. It's a fact of the disease, they aren't saying it to be rude. They would tell you if they knew someone with CF who was alive, too. Whenever someone mentioned CF, I would mention that my husband had it. I'm not going to stop mentioning the connection I had to CF just because he passed away. An adult with CF knows the facts of CF. I'm not trying to be rude, honestly, I just do not find it insensitive. I didn't find it insensitive when Ry was alive and someone told me they knew someone who had died of CF either. Just trying to present a different view.

As to the nurse telling you how awful it WAS....I would counter with how awful it still is......it's not cured, or even well controlled. MUCH work still needs to be done, and as a nurse, she should know that.

 

[lauren]

Hi Allie

Don't worry I don't taken offense at all. Life wouldn't be interesting if we all had the same opinion!

I still thought it was insensitive ( as he himself did not know the person, but was just recalling any knowledge he had of CF)

<img src="i/expressions/face-icon-small-smile.gif" border="0">

Lauren
19 w,cf

 

[lauren]

Hi Allie

Don't worry I don't taken offense at all. Life wouldn't be interesting if we all had the same opinion!

I still thought it was insensitive ( as he himself did not know the person, but was just recalling any knowledge he had of CF)

<img src="i/expressions/face-icon-small-smile.gif" border="0">

Lauren
19 w,cf

 

[lauren]

Hi Allie

Don't worry I don't taken offense at all. Life wouldn't be interesting if we all had the same opinion!

I still thought it was insensitive ( as he himself did not know the person, but was just recalling any knowledge he had of CF)

<img src="i/expressions/face-icon-small-smile.gif" border="0">

Lauren
19 w,cf

 

[mum2kj]

I hate insensitive ppl too, I had a doc say to me when Kj was 7 that

"the skinny ones die"

and as Kj was skinny it scared me.

It is something that has stuck in my mind since then.

 

[mum2kj]

I hate insensitive ppl too, I had a doc say to me when Kj was 7 that

"the skinny ones die"

and as Kj was skinny it scared me.

It is something that has stuck in my mind since then.

 

[mum2kj]

I hate insensitive ppl too, I had a doc say to me when Kj was 7 that

"the skinny ones die"

and as Kj was skinny it scared me.

It is something that has stuck in my mind since then.

 

[JazzysMom]

Just because a person knows someone that had CF who passed doesnt mean they are obligated to pass on the bad news. Unless the person hearing the story asks. That is like people telling me about my ex husband. Unless I ask about him....why are you telling me!! We are aware of reality. It does seem to me that most people I know that are aware of CF (outside of those I personally know) have a connection to it from a death. Like in the news.....the bad stuff is what we hear. Rude or insensitive I guess is in the perception. Maybe next time ask if they know anyone that has beat the odds so far!!!!

 

[JazzysMom]

Just because a person knows someone that had CF who passed doesnt mean they are obligated to pass on the bad news. Unless the person hearing the story asks. That is like people telling me about my ex husband. Unless I ask about him....why are you telling me!! We are aware of reality. It does seem to me that most people I know that are aware of CF (outside of those I personally know) have a connection to it from a death. Like in the news.....the bad stuff is what we hear. Rude or insensitive I guess is in the perception. Maybe next time ask if they know anyone that has beat the odds so far!!!!

 

[JazzysMom]

Just because a person knows someone that had CF who passed doesnt mean they are obligated to pass on the bad news. Unless the person hearing the story asks. That is like people telling me about my ex husband. Unless I ask about him....why are you telling me!! We are aware of reality. It does seem to me that most people I know that are aware of CF (outside of those I personally know) have a connection to it from a death. Like in the news.....the bad stuff is what we hear. Rude or insensitive I guess is in the perception. Maybe next time ask if they know anyone that has beat the odds so far!!!!

 

[Landy]

It does seem a little insensitive. If I met someone that told me they had MS, I wouldn't say, "yah, I knew a guy that had MS but he died from it" That just does seem a bit insensitive.
I've had people say that to me a few times and it doesn't really bother me, I've known many CFs that have passed. Personally, I don't think I would say that to someone that told me they had cancer, MS, etc.

 

[Landy]

It does seem a little insensitive. If I met someone that told me they had MS, I wouldn't say, "yah, I knew a guy that had MS but he died from it" That just does seem a bit insensitive.
I've had people say that to me a few times and it doesn't really bother me, I've known many CFs that have passed. Personally, I don't think I would say that to someone that told me they had cancer, MS, etc.

 

[Landy]

It does seem a little insensitive. If I met someone that told me they had MS, I wouldn't say, "yah, I knew a guy that had MS but he died from it" That just does seem a bit insensitive.
I've had people say that to me a few times and it doesn't really bother me, I've known many CFs that have passed. Personally, I don't think I would say that to someone that told me they had cancer, MS, etc.

 

[2perfectboys]

I would think CF should not come up in 98% of interviews, it actually crosses the legal aspect, unless YOU volunteered it.

 

[2perfectboys]

I would think CF should not come up in 98% of interviews, it actually crosses the legal aspect, unless YOU volunteered it.